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OK Claudine....I'm glad to know this. I can understand where she's

coming from.

She will be fine...you're right, she is strong.

Huggggggs

Carol

claudine intexas wrote:

> Everyone - please don't worry about Tatezi. She asked me to tell

> everyone this. She hasn't vanished on us, she will be back. She has a

> very wise streak in her and knows she just needs some time to

> herself. Just herself. There is nothing anyone can do for her right

> now, this is not really a money issue. At least, this is what she has

> told me, and I believe her. It is her spirit that needs healing, not

> her bank account. She is strong, and she will be ok. The best thing

> anyone can send is prayers, kind thoughts, good 'vibes', whatever you

> want to call it.

> Claudine

>

> __________________________________________________

>

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OK Claudine....I'm glad to know this. I can understand where she's

coming from.

She will be fine...you're right, she is strong.

Huggggggs

Carol

claudine intexas wrote:

> Everyone - please don't worry about Tatezi. She asked me to tell

> everyone this. She hasn't vanished on us, she will be back. She has a

> very wise streak in her and knows she just needs some time to

> herself. Just herself. There is nothing anyone can do for her right

> now, this is not really a money issue. At least, this is what she has

> told me, and I believe her. It is her spirit that needs healing, not

> her bank account. She is strong, and she will be ok. The best thing

> anyone can send is prayers, kind thoughts, good 'vibes', whatever you

> want to call it.

> Claudine

>

> __________________________________________________

>

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OK Claudine....I'm glad to know this. I can understand where she's

coming from.

She will be fine...you're right, she is strong.

Huggggggs

Carol

claudine intexas wrote:

> Everyone - please don't worry about Tatezi. She asked me to tell

> everyone this. She hasn't vanished on us, she will be back. She has a

> very wise streak in her and knows she just needs some time to

> herself. Just herself. There is nothing anyone can do for her right

> now, this is not really a money issue. At least, this is what she has

> told me, and I believe her. It is her spirit that needs healing, not

> her bank account. She is strong, and she will be ok. The best thing

> anyone can send is prayers, kind thoughts, good 'vibes', whatever you

> want to call it.

> Claudine

>

> __________________________________________________

>

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  • 1 month later...
Guest guest

Very well stated Tatezi....you really have a way with words. I've been

there, done that too, got the tee shirt and HCV to prove it.....lol.

Huggggggs

Carol

Tatezi wrote:

> Cher...

>

> I'm with Carol 100%. We aren't here to judge. I know that I probably

> got my hep from the 60s when I did a lot of drugs...and even though I

> regret that was the path I chose back then, I know it helped make me

> the person I am today and I like this person. But it doesn't matter

> where, how or when we got this...no matter what happened in the past

> it is only the present that matters. We can't even worry about the

> future because a bus could run us over...we just deal with each day as

> it comes.

>

> I know I asked once about the length of time you had been on methadone

> but there was no judging in that. I was curious, that's all. When I

> was on methadone to kick heroin it was a six month program with

> gradual lessening of doses to help in the detox. And I do remember

> that the withdrawal from the methadone was awful because it gets in

> your bones and joints. That was in 68 or 69 so I was just curious.

>

> Tatezi

> Re: Here is another question

>

>

> Cher

>

> I certainly wouldn't presume to judge you or " label " you.....and I

> think

> most of the forum would agree. It does NOT matter how we got this

> disease, it matters that we can use forums to get the understanding

> we

> need.....and the information. I have some websites I'll send to you

>

> personally ok?

>

> Hang in there

> Carol

>

> runabout_104 wrote:

>

> > For those of you that take herbs or vits do u encounter any of

> them

> > that change the color of your urine-like vit c or any of them for

> > that matter. I do notice that sometime my urine is a bright

> yellow.

> > It is not dark like tea or coffee, but sometimes it hs been a

> little

> > on the orange side. Also, if u r clearing the hep wouldn't some of

>

> > these hep symtons start going away. The only real thing i hv

> noticed

> > is that the side effects are now where near as bad and now i worry

>

> > about that! Can u belive that?? Worried becuase they r not as bad

> as

> > they used to be--is that my body getting used to it, or it that

> the

> > peg/reb not working as well as it used to. I know I am prob

> worrying

> > for nothing, but do any of the rest of u who hv been thru this

> > encounter this. I am in the 7th month--still no work from that

> #5-100

> > test that ws done and ws suppose to get the results back in10 dys

> and

> > it is now been 3 weeks. Now the dr's office is not returning my

> calls

> > and i am getting concerned-like oh the dr, will hv to discus this

> one

> > with hr because of the possibility of it being bad. See, I know i

> am

> > no being rational but this is what goes thru my mind. We need a

> > support group so bad in our area!!!!! I looked up on one site-I

> > forgot where it ws that listed support groups and their addresses

> in

> > different states and VA didn't hv one AT ALL. I am trying and

> > fighting at the clinic I go to--no secret I suppose that I am on

> > methadone and so far it is not been a problem with my dr and don't

>

> > think bad this ws not for heroin or anything like that it ws the

> > addiction to the narcotics the docs kept throwing at me because i

> had

> > no insurance for them to find out what ws wrong with me. Needless

> to

> > say, I got addicted to them and needed help getting off,but i hv

> > tried to turn something bad into somehting good. So, please don't

> > judge me though I do hear in this field u r judged if u r on

> > methadone, but it has never been a issue with my dr. and thru the

> > studies i hv read it should not be a hinderance to treatment

> however,

> > i uderstand it is when it comes down to transplants, etc. Thanks

> for

> > listening. As usual any and all comments welcome-and any

> suggestions

> > for that support group wd be welcome also. I am getting close to

> > getting it, but it hs been a long haul with me the only one

> fighting

> > it. cher

> >

> >

> >

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Very well stated Tatezi....you really have a way with words. I've been

there, done that too, got the tee shirt and HCV to prove it.....lol.

Huggggggs

Carol

Tatezi wrote:

> Cher...

>

> I'm with Carol 100%. We aren't here to judge. I know that I probably

> got my hep from the 60s when I did a lot of drugs...and even though I

> regret that was the path I chose back then, I know it helped make me

> the person I am today and I like this person. But it doesn't matter

> where, how or when we got this...no matter what happened in the past

> it is only the present that matters. We can't even worry about the

> future because a bus could run us over...we just deal with each day as

> it comes.

>

> I know I asked once about the length of time you had been on methadone

> but there was no judging in that. I was curious, that's all. When I

> was on methadone to kick heroin it was a six month program with

> gradual lessening of doses to help in the detox. And I do remember

> that the withdrawal from the methadone was awful because it gets in

> your bones and joints. That was in 68 or 69 so I was just curious.

>

> Tatezi

> Re: Here is another question

>

>

> Cher

>

> I certainly wouldn't presume to judge you or " label " you.....and I

> think

> most of the forum would agree. It does NOT matter how we got this

> disease, it matters that we can use forums to get the understanding

> we

> need.....and the information. I have some websites I'll send to you

>

> personally ok?

>

> Hang in there

> Carol

>

> runabout_104 wrote:

>

> > For those of you that take herbs or vits do u encounter any of

> them

> > that change the color of your urine-like vit c or any of them for

> > that matter. I do notice that sometime my urine is a bright

> yellow.

> > It is not dark like tea or coffee, but sometimes it hs been a

> little

> > on the orange side. Also, if u r clearing the hep wouldn't some of

>

> > these hep symtons start going away. The only real thing i hv

> noticed

> > is that the side effects are now where near as bad and now i worry

>

> > about that! Can u belive that?? Worried becuase they r not as bad

> as

> > they used to be--is that my body getting used to it, or it that

> the

> > peg/reb not working as well as it used to. I know I am prob

> worrying

> > for nothing, but do any of the rest of u who hv been thru this

> > encounter this. I am in the 7th month--still no work from that

> #5-100

> > test that ws done and ws suppose to get the results back in10 dys

> and

> > it is now been 3 weeks. Now the dr's office is not returning my

> calls

> > and i am getting concerned-like oh the dr, will hv to discus this

> one

> > with hr because of the possibility of it being bad. See, I know i

> am

> > no being rational but this is what goes thru my mind. We need a

> > support group so bad in our area!!!!! I looked up on one site-I

> > forgot where it ws that listed support groups and their addresses

> in

> > different states and VA didn't hv one AT ALL. I am trying and

> > fighting at the clinic I go to--no secret I suppose that I am on

> > methadone and so far it is not been a problem with my dr and don't

>

> > think bad this ws not for heroin or anything like that it ws the

> > addiction to the narcotics the docs kept throwing at me because i

> had

> > no insurance for them to find out what ws wrong with me. Needless

> to

> > say, I got addicted to them and needed help getting off,but i hv

> > tried to turn something bad into somehting good. So, please don't

> > judge me though I do hear in this field u r judged if u r on

> > methadone, but it has never been a issue with my dr. and thru the

> > studies i hv read it should not be a hinderance to treatment

> however,

> > i uderstand it is when it comes down to transplants, etc. Thanks

> for

> > listening. As usual any and all comments welcome-and any

> suggestions

> > for that support group wd be welcome also. I am getting close to

> > getting it, but it hs been a long haul with me the only one

> fighting

> > it. cher

> >

> >

> >

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Thanks, Carol. Too often people condemn us for our pasts and that is so wrong

because it is the past that makes us the person we are today. I'm not ashamed

that is the path I chose back then, I was a kid and caught up in the

times....but I sure wish I could have come through it without this particular

battle scar <g> And personally, I don't know one person who hasn't made a bad

choice at some time in their lives...in hindsight, I made a lot of choices that

weren't so good. But hey, we move forward and leave the past where it

belongs....in the past.

Off to bed...have a good night everyone....

Tatezi

Re: Tatezi

Very well stated Tatezi....you really have a way with words. I've been

there, done that too, got the tee shirt and HCV to prove it.....lol.

Huggggggs

Carol

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Thanks, Carol. Too often people condemn us for our pasts and that is so wrong

because it is the past that makes us the person we are today. I'm not ashamed

that is the path I chose back then, I was a kid and caught up in the

times....but I sure wish I could have come through it without this particular

battle scar <g> And personally, I don't know one person who hasn't made a bad

choice at some time in their lives...in hindsight, I made a lot of choices that

weren't so good. But hey, we move forward and leave the past where it

belongs....in the past.

Off to bed...have a good night everyone....

Tatezi

Re: Tatezi

Very well stated Tatezi....you really have a way with words. I've been

there, done that too, got the tee shirt and HCV to prove it.....lol.

Huggggggs

Carol

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You are absolutely right (once again) Tats....goodnite dear.

Hugggs

Carol

Tatezi wrote:

> Thanks, Carol. Too often people condemn us for our pasts and that is

> so wrong because it is the past that makes us the person we are today.

> I'm not ashamed that is the path I chose back then, I was a kid and

> caught up in the times....but I sure wish I could have come through it

> without this particular battle scar <g> And personally, I don't know

> one person who hasn't made a bad choice at some time in their

> lives...in hindsight, I made a lot of choices that weren't so good.

> But hey, we move forward and leave the past where it belongs....in the

> past.

>

> Off to bed...have a good night everyone....

> Tatezi

>

> Re: Tatezi

>

>

> Very well stated Tatezi....you really have a way with words. I've

> been

> there, done that too, got the tee shirt and HCV to prove it.....lol.

>

> Huggggggs

> Carol

>

>

>

>

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You are absolutely right (once again) Tats....goodnite dear.

Hugggs

Carol

Tatezi wrote:

> Thanks, Carol. Too often people condemn us for our pasts and that is

> so wrong because it is the past that makes us the person we are today.

> I'm not ashamed that is the path I chose back then, I was a kid and

> caught up in the times....but I sure wish I could have come through it

> without this particular battle scar <g> And personally, I don't know

> one person who hasn't made a bad choice at some time in their

> lives...in hindsight, I made a lot of choices that weren't so good.

> But hey, we move forward and leave the past where it belongs....in the

> past.

>

> Off to bed...have a good night everyone....

> Tatezi

>

> Re: Tatezi

>

>

> Very well stated Tatezi....you really have a way with words. I've

> been

> there, done that too, got the tee shirt and HCV to prove it.....lol.

>

> Huggggggs

> Carol

>

>

>

>

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  • 1 year later...
Guest guest

Thanks, Carol. Be thankful that you can at least get the peg intron. I'm really

surprised pegasys still hasn't been approved up there...the FDA usually takes

much longer than their counterpart in Canada.

Off to bed....have a good night everyone...

Blessings

Tatezi

Tatezi

I'm going back on treatment without hesitation. And if it doesn't work again

this time I'll try and try again. Willem is my inspiration...don't ever give up.

Tatezi

So sorry to hear this Tats, but glad you can get Pegasys....I wish I could but

it hasn't been funded yet here in my province, BC, but pegintron has....so I'll

be starting that in a month or so. I laffed when you said how anxious we are to

get the poison into us....but that's the way it is. Yes, Willem is my

inspiration too, I hear ya girl. Good luck with the tx.

Hugggggs

Carol

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Thanks, Carol. Be thankful that you can at least get the peg intron. I'm really

surprised pegasys still hasn't been approved up there...the FDA usually takes

much longer than their counterpart in Canada.

Off to bed....have a good night everyone...

Blessings

Tatezi

Tatezi

I'm going back on treatment without hesitation. And if it doesn't work again

this time I'll try and try again. Willem is my inspiration...don't ever give up.

Tatezi

So sorry to hear this Tats, but glad you can get Pegasys....I wish I could but

it hasn't been funded yet here in my province, BC, but pegintron has....so I'll

be starting that in a month or so. I laffed when you said how anxious we are to

get the poison into us....but that's the way it is. Yes, Willem is my

inspiration too, I hear ya girl. Good luck with the tx.

Hugggggs

Carol

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  • 4 weeks later...

Sorry, been fighting puter problems and am gradually getting my puter loaded.

New motherboard and wiping my hard drives with all 0s and then low level

formatting them seemed to do the trick.

Week 4...today is my check up and I had my labs pulled on Friday. Doing

fine...no sides other than I seem to tired easier than normal...but that could

be the hours I'm working too.

Gotta get out the door to work...now that my computer is up and running other

than installing apps, I'll be in touch more often.

Liefs

Tatezi

tatezi

Hi Tat.How are you doing with the TX.Please let us know.Liefs Willem.

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Sorry, been fighting puter problems and am gradually getting my puter loaded.

New motherboard and wiping my hard drives with all 0s and then low level

formatting them seemed to do the trick.

Week 4...today is my check up and I had my labs pulled on Friday. Doing

fine...no sides other than I seem to tired easier than normal...but that could

be the hours I'm working too.

Gotta get out the door to work...now that my computer is up and running other

than installing apps, I'll be in touch more often.

Liefs

Tatezi

tatezi

Hi Tat.How are you doing with the TX.Please let us know.Liefs Willem.

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Glad you're doing ok on treatment Tats....if getting tired is the worst of it

you have it made!! WTG girl.

Carol

tatezi

Hi Tat.How are you doing with the TX.Please let us know.Liefs Willem.

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  • 2 weeks later...

" Until one has loved an animal, a part of one's soul remains unawakened " -

Anatole France

I " borrowed " this from PeachStatePam.....some of you might know her from other

forums.

Carol

Re: stirring up the group

You do bring me a good chuckle, Willem. And I'm sure you'll do a fine job

finishing the spaghetti <g>

And the most important thing for my soul is love, harmony and laughter. (And a

few of the Great Spirit's creatures to keep me company.)

Did I mention I have another baby pigeon? I can even take him to work on this

job so he gets all the feedings he needs. I've decided that pigeons must be

bringing me a message...I sure have tried to save a lot of them and most people

never see a baby pigeon in their lives.

Liefs,

Tatezi

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" Until one has loved an animal, a part of one's soul remains unawakened " -

Anatole France

I " borrowed " this from PeachStatePam.....some of you might know her from other

forums.

Carol

Re: stirring up the group

You do bring me a good chuckle, Willem. And I'm sure you'll do a fine job

finishing the spaghetti <g>

And the most important thing for my soul is love, harmony and laughter. (And a

few of the Great Spirit's creatures to keep me company.)

Did I mention I have another baby pigeon? I can even take him to work on this

job so he gets all the feedings he needs. I've decided that pigeons must be

bringing me a message...I sure have tried to save a lot of them and most people

never see a baby pigeon in their lives.

Liefs,

Tatezi

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  • 5 months later...

In a message dated 2/15/2004 9:13:34 PM Eastern Standard Time,

tatezi@... writes:

> Hey Anne...good to hear from you!

>

Hi, I'm still hanging in. Just as an FYI I've decided to keep AOL for

awhile. Going to earthlink got to be a little too complicated. So we're using

both. This is probably because I'm a creature of habit and because I'm used to

this, I prefer it.

I try to keep up with what's going on.

Thanks,

Anne

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Wow!! It sounds like you are doing wonderfully. Do you mind if I ask

how old you are and what your genotype (isn't that right?) is? and

does the genotype matter?

<><TammieD><>

> I've been in treatment 30 weeks (Pegasys and Ribavarinn) and the

only side I've had that is listed below are the dark circles under my

eyes...and it blew out my thyroid which we regulate with Synthroid.

>

> Sides aren't standard...they vary from person to person. The key

is to drink lots and lots of water, eat low fat foods stay away from

red meats, etc. and eat high grain foods. I work full time,

volunteer two nights a week and other than collapsing on Saturdays

for a day of sleep, I've been doing just fine.

>

> I take supplements, avoid stress and drum fo stay centered. I also

stay positive.

>

> I'll try to remember this on the weekend and send you the vitamins

and herbs that I take. Can barely keep my eyes open tonight...

>

> Tatezi

>

>

>

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Wow!! It sounds like you are doing wonderfully. Do you mind if I ask

how old you are and what your genotype (isn't that right?) is? and

does the genotype matter?

<><TammieD><>

> I've been in treatment 30 weeks (Pegasys and Ribavarinn) and the

only side I've had that is listed below are the dark circles under my

eyes...and it blew out my thyroid which we regulate with Synthroid.

>

> Sides aren't standard...they vary from person to person. The key

is to drink lots and lots of water, eat low fat foods stay away from

red meats, etc. and eat high grain foods. I work full time,

volunteer two nights a week and other than collapsing on Saturdays

for a day of sleep, I've been doing just fine.

>

> I take supplements, avoid stress and drum fo stay centered. I also

stay positive.

>

> I'll try to remember this on the weekend and send you the vitamins

and herbs that I take. Can barely keep my eyes open tonight...

>

> Tatezi

>

>

>

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Tammie,

Genotype matters a lot when it comes to response rates. I don't know if genotype

has anything to do with how you feel...I've never heard or read anything about

that.

Since diagnosis in 98, I have always kept in mind that whatever I eat, breathe

or touch has to be processed by my liver. I've done my best to live a liver

healthy life and all the changes that it entailed.

I am a 1b and am 54 years young. The most important thing, I think, is that I

love life and try to live it to the fullest each day. I count each blessing that

comes my way and thank the Great Spirit for sharing that blessing with me.

Don't get me wrong, life can knock me down sometimes...it just can't keep me

there...guess I should say I won't let it keep me down. Like turtle I pull into

my shell until I can regain my balance in this earthwalk...or regenerate myself

if that makes more sense.

You will be okay...once you reach acceptance all the pieces will fall in place

for you. Acceptance is very important, but after learning you have a dis-ease

like HCV it can take a long time to come to acceptance. It took over a year for

me.

Hang in there, Tammie....we are all here to help you through the good times and

the rocky times...

Blessings

Tatezi

Re: Tatezi

Wow!! It sounds like you are doing wonderfully. Do you mind if I ask

how old you are and what your genotype (isn't that right?) is? and

does the genotype matter?

<><TammieD><>

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Tammie,

Genotype matters a lot when it comes to response rates. I don't know if genotype

has anything to do with how you feel...I've never heard or read anything about

that.

Since diagnosis in 98, I have always kept in mind that whatever I eat, breathe

or touch has to be processed by my liver. I've done my best to live a liver

healthy life and all the changes that it entailed.

I am a 1b and am 54 years young. The most important thing, I think, is that I

love life and try to live it to the fullest each day. I count each blessing that

comes my way and thank the Great Spirit for sharing that blessing with me.

Don't get me wrong, life can knock me down sometimes...it just can't keep me

there...guess I should say I won't let it keep me down. Like turtle I pull into

my shell until I can regain my balance in this earthwalk...or regenerate myself

if that makes more sense.

You will be okay...once you reach acceptance all the pieces will fall in place

for you. Acceptance is very important, but after learning you have a dis-ease

like HCV it can take a long time to come to acceptance. It took over a year for

me.

Hang in there, Tammie....we are all here to help you through the good times and

the rocky times...

Blessings

Tatezi

Re: Tatezi

Wow!! It sounds like you are doing wonderfully. Do you mind if I ask

how old you are and what your genotype (isn't that right?) is? and

does the genotype matter?

<><TammieD><>

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Tatezi,

I love the comparison to a turtle.. that is me .. my friends have learned

that about me.. i kind of become unreachable by phone when i am feeling down.. i

just stay in myself .. quiet and sleep more.. is the way i have to deal with

it.. think part is due to the thyroid but hep c is the root... watching what i

eat is so clear.. if eat heavy or eat high fat content or red meats.. i am

ready for a longggg nap..

first time responding on here for a while.. but good to be back.. went thru

the peg stuff and was ruffer in some ways than the combo.. should have taken

the Mayo docs advice to wait and see cuz treatment is so ruff on me..

thank you all for being there for us,

dawn... believer.. used to be curlykew...

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Maybe turtle is your totem and it has nothing to do with your thyroid. I believe

all animals bring us messages and lessons to learn from life.

Re: Re: Tatezi

Tatezi,

I love the comparison to a turtle.. that is me .. my friends have learned

that about me.. i kind of become unreachable by phone when i am feeling down..

i

just stay in myself .. quiet and sleep more.. is the way i have to deal with

it.. think part is due to the thyroid but hep c is the root... watching what i

eat is so clear.. if eat heavy or eat high fat content or red meats.. i am

ready for a longggg nap..

first time responding on here for a while.. but good to be back.. went thru

the peg stuff and was ruffer in some ways than the combo.. should have taken

the Mayo docs advice to wait and see cuz treatment is so ruff on me..

thank you all for being there for us,

dawn... believer.. used to be curlykew...

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In a message dated 2/19/2004 8:18:12 PM Eastern Standard Time,

tatezi@... writes:

> You will be okay...once you reach acceptance all the pieces will fall in

> place for you. Acceptance is very important, but after learning you have a

> dis-ease like HCV it can take a long time to come to acceptance. It took over

a

> year for me.

>

>

Sound advice, Tat. It didn't take me long to reach acceptance, it just took

me, and is still taking me a long time to learn and or relearn my own

limitations. The seesaw effect is the most irritating. I am also guilty of

overdoing

on good days, which probably makes bad days worse.

And as we've all mentioned in the past, it takes a lot of patience to keep

explaining how you feel when you would prefer not to speak about it much in the

first place.

Prayer has been a great sustainer for me.

Anne

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In a message dated 2/19/2004 8:18:12 PM Eastern Standard Time,

tatezi@... writes:

> You will be okay...once you reach acceptance all the pieces will fall in

> place for you. Acceptance is very important, but after learning you have a

> dis-ease like HCV it can take a long time to come to acceptance. It took over

a

> year for me.

>

>

Sound advice, Tat. It didn't take me long to reach acceptance, it just took

me, and is still taking me a long time to learn and or relearn my own

limitations. The seesaw effect is the most irritating. I am also guilty of

overdoing

on good days, which probably makes bad days worse.

And as we've all mentioned in the past, it takes a lot of patience to keep

explaining how you feel when you would prefer not to speak about it much in the

first place.

Prayer has been a great sustainer for me.

Anne

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