Re: Husband Newly Diagnosed

[Guest guest]

Hi Judy:

Your husband is very lucky in the fact he is genotype 3a. I'm also a 3a

and responded to treatment very well. I have been undetectable for a year

after treatment, and feeling great. Good luck to you and your husband. If you

have any question please feel free to e-mail me at LesT2001@...

Take care,

Les

[Guest guest]

I really appreciate your response

Re: Husband Newly Diagnosed

> Hi Judy:

> Your husband is very lucky in the fact he is genotype 3a. I'm also a

3a

> and responded to treatment very well. I have been undetectable for a year

> after treatment, and feeling great. Good luck to you and your husband. If

you

> have any question please feel free to e-mail me at LesT2001@...

> Take care,

> Les

>

> ------------------------------------------------------------------------

> Was the salesman clueless? Productopia has the answers.

> 1/4633/0/_/619765/_/959804384/

> ------------------------------------------------------------------------

>

>

[Guest guest]

I really appreciate your response

Re: Husband Newly Diagnosed

> Hi Judy:

> Your husband is very lucky in the fact he is genotype 3a. I'm also a

3a

> and responded to treatment very well. I have been undetectable for a year

> after treatment, and feeling great. Good luck to you and your husband. If

you

> have any question please feel free to e-mail me at LesT2001@...

> Take care,

> Les

>

> ------------------------------------------------------------------------

> Was the salesman clueless? Productopia has the answers.

> 1/4633/0/_/619765/_/959804384/

> ------------------------------------------------------------------------

>

>

[Guest guest]

,

You have just answered one of the basic questions I wanted to ask at the LRF

forum in San Francisco. What is the difference between SLL and CLL? I have

been told I have SLL, but now I can't understand why they don't call me a

CLL patient instead, because I had no swollen nodes, but very bad blood.

Does anyone, any oncologist or hematologist or anyone else, understand this

disease at all???

Sybil Whitman, 49

Dx Oct. 2003, CHOP x 8, now in remission

Re: Husband newly diagnosed

>

> Hi - welcome

>

> Many of us, myself included, will be at San Francisco. I'm trying with

> LRF's

> permission to organize a side meeting for CLL patients.

>

> As for your husband, SLL and CLL are considered to be the same disease.

> They

> are treated the same way. Some say that if your have enlarged nodes and

> good

> blood, you look more like an SLL patient. If you have no enlarged nodes

> and

> poor blood, you look more like a CLL patient. (Lymphoma versus Leukemia.)

>

> But that's just an oopinon......

>

> I, for example, have one oncologist who tells me I have lymphoma (SLL) and

> my

> other one tells me I have leukemia (CLL).

>

> So that is not something for you to worry about......

>

> The FISH and ZAP tests are used in the early stages to determine prognosis

> and to establish whether a patient should be treated aggressively or not.

> The

> old standard used to be " watch and wait " . Nowadays the prognostic tests

> tell the

> doctor whether waiting is a good idea, or whether something more immediate

> should be done.

>

> What are your husband's symptoms? Enlarged lymph nodes? How are his blood

> counts?

>

> Let us know....

>

>

>

>

>