How did you hear about CMT?

January 15, 2002

I first heard about CMT but it was referred to as HMSN back in 98 but it was

immediately ruled out. Then via the internet in Jan 2000 my husband downloaded

pictures of feet and legs that exactly matched mine. I was shocked, horrified

because my feet and legs have always looked the same right from birth and no one

had picked up on it. But by the time I found out about it I'd been in a

wheelchair for nearly a year without knowing why. But I'm glad to say my story

rarely happens.

As things stand at the moment I still don't have a diagnosis of CMT (whatever

type) but no one has yet come up with an explanation as to why I show all the

signs of the most commonly inherited neuromuscular disease and haven't got it.

Love

Sue

The important thing is never to stop questioning.

Freelance Writer and CMTer

" I Thank God for my handicaps, for through them, I have found myself, my work,

and my God. " - Helen Keller

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