Guest guest Posted March 6, 2002 Report Share Posted March 6, 2002 Welcome and thank you so much for posting your introduction. While no one here is an " expert " , in a sense, we all are, in other words, those of us living with CMT KNOW what it means, is like, and here we try to share and help each other live a positive quality of life. If you have not had a chance, I would like to suggest you review our bookmarks/links section. I myself have had CMT since childhood, about age 10 or so. Had 1 surgery shortly thereafter, do not wear braces, just custom orthotics inside shoes, I have a mild tremor controlled by Elavil which is sometimes aggravated under stress, and I work as a writer and eco-travel agent, hobbies are art-related and travel - so that's a short version of me. CMT has not stopped me from much that life offers:) I started 3 1/2 years ago because there was no venue for a positive exchange of CMT information and ideas, hope and encouragement, etc. We have exanded immmeasurably, and also offer pages of StressBusters, FatigueBusters, a Career Idea list, and our new revised foundation website will have much, much more information and interesting information. If you would like " for CMT " violet awareness ribbons, or f you would like copies of the past few newsletters, email me at liliwigg@... and I can send them via Word which is much easier to read than our archives. (ribbons are sent snail mail) Also, if you would like to see some of our pictures, go to the 'photos' section and click around. Feel free to add yours if you like, or one of your family. Again welcome and we hope this group exceeds your expectations. ~ Gretchen > > CMT means (we) Can Manage This! And Quality sharing of living positive > lives with our common disease is our goal! Now that's the Gold! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 Welcome ; I'm 51, diagnosed this past fall, haven't been typed yet but my family are all type II. Man, CMT AND LGMD,in the same family, that really sucks. I answered your post because their is a small group meeting in Greenville Ohio on the last Tuesday of each month from April thru October. Sometimes, as last month the winter too on an informal basis. I don't know where you are in Indiana but we have one couple from th Mt. Comfort area who sometimes attend. I live in west central Ohio so it is about an hour for me. Let me know and I'll contact them and get you directions! Prayers! Jim Nash Quote Link to comment Share on other sites More sharing options...
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