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My Introduction

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Hello. My name is Stuart and I have just joined this discusssion group. I had

previously been on

another that did not suit my needs - there was just too much fluff and not much

about CMT per se.

My doctor recommended I contact a group called so I looked this group up

on the Internet and

here I am. I liked the description of the group very much, contacted the

moderator and

subsequently joined.

As for my CMT: I was diagnosed at age 8: had two surgeries when I was 12 to 14,

on my feet, one

at a time, but I did miss school. In those days my folks got me tutors, which I

really liked, as I could

do school work at my own pace and it was very encouraging. My surgeries left me

with big scars,

but to this day ( I am in my 40's now) I am still on my feet without aid, so I

consider them successful.

As for my life: I'm married, with two beautiful twins, whom we adopted, as we

had genetic counseling

prior since I knew my CMT would possibly be inherited; rather most likely! The

twins are a boy and a

girl, very close, and we are a close knit family. The children are balls of

energy and I truly enjoy this, as

with my CMT, my energy level wains and I find just being around them or helping

to build some Lego

Starship thing that a certain psychic energy is restored.

As for my career: I am a corporate attorney, also have a degree in business.

Just about everyone I work

close with knows I have CMT, as I am always upfront with this, and find I am

well respected for this honesty.

My CMT primarily affects my feet; so I have custom made shoes and also

orthotics. Walking distances I do

slowly, giving myself plenty of time to get where I need to be, and I usually

arrived before I need to be at an

appointed time, giving myself time for composure, and then to review mentally.

Weekends when we can, we do 'family days', usually one day set aside to visit a

new amusement park, or

special museum exhibit (dinosaurs are big with the kids!) or when days are

warmer we do picnics and

trips to beaches or hiking areas. I am also a photo nut so I am constantly

snapping photos of all this - it is just

so wonderful and my camera tells even a better story. And yes, " we " ,the

children and I, have a sole

scrapbook just of Lego photo-creations! They are trying never to make the same

'creation' twice! And yes,

I buy film in bulk! We also like to get away in the summer as a family for two

weeks vacation, incorporating

fun AND learning. There is always something 'new' to learn for the four of us!

So, I shall end this Introduction and look forward to hearing about your lives

and learning more about CMT in

a more substantive way.

-------Stuart

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