Guest guest Posted January 26, 2002 Report Share Posted January 26, 2002 Hello. My name is Stuart and I have just joined this discusssion group. I had previously been on another that did not suit my needs - there was just too much fluff and not much about CMT per se. My doctor recommended I contact a group called so I looked this group up on the Internet and here I am. I liked the description of the group very much, contacted the moderator and subsequently joined. As for my CMT: I was diagnosed at age 8: had two surgeries when I was 12 to 14, on my feet, one at a time, but I did miss school. In those days my folks got me tutors, which I really liked, as I could do school work at my own pace and it was very encouraging. My surgeries left me with big scars, but to this day ( I am in my 40's now) I am still on my feet without aid, so I consider them successful. As for my life: I'm married, with two beautiful twins, whom we adopted, as we had genetic counseling prior since I knew my CMT would possibly be inherited; rather most likely! The twins are a boy and a girl, very close, and we are a close knit family. The children are balls of energy and I truly enjoy this, as with my CMT, my energy level wains and I find just being around them or helping to build some Lego Starship thing that a certain psychic energy is restored. As for my career: I am a corporate attorney, also have a degree in business. Just about everyone I work close with knows I have CMT, as I am always upfront with this, and find I am well respected for this honesty. My CMT primarily affects my feet; so I have custom made shoes and also orthotics. Walking distances I do slowly, giving myself plenty of time to get where I need to be, and I usually arrived before I need to be at an appointed time, giving myself time for composure, and then to review mentally. Weekends when we can, we do 'family days', usually one day set aside to visit a new amusement park, or special museum exhibit (dinosaurs are big with the kids!) or when days are warmer we do picnics and trips to beaches or hiking areas. I am also a photo nut so I am constantly snapping photos of all this - it is just so wonderful and my camera tells even a better story. And yes, " we " ,the children and I, have a sole scrapbook just of Lego photo-creations! They are trying never to make the same 'creation' twice! And yes, I buy film in bulk! We also like to get away in the summer as a family for two weeks vacation, incorporating fun AND learning. There is always something 'new' to learn for the four of us! So, I shall end this Introduction and look forward to hearing about your lives and learning more about CMT in a more substantive way. -------Stuart _____________________________________________________________ Get free web-based IT Professional email, to be recognized as one! ---> http://www.mailchoose.com Quote Link to comment Share on other sites More sharing options...
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