Guest guest Posted December 30, 2007 Report Share Posted December 30, 2007 > > > > Hi, everybody! > > > > I just turned 58, and a couple of weeks ago found out that I have > > SEVERE osteoarthritis in both hips and so need bilateral > > replacements. It's really a relief to know why I've been in so > much > > pain and why I can't walk straight! I was thinking maybe muscle > > atrophy or something, but never dreamed of OA! > > > > It's very helpful to hear some other experiences; I'm planning to > > get some bed risers and move to the chair from my sofa which is > > really low now after being collapsed underneath lol. I already > got > > a raised toilet seat (yesterday) because mine is already too low > for > > me. It helps in maneuvering, but it's a little strange to get > used > > to!! > > > > And I have 5 cats that are like my babies, so I'm hoping I won't > > have to be in the hospital long, because I have no one to come > feed > > them. They can go a couple of days, but wouldn't leave them much > > longer. I know I'll have to put feeding dishes and litter boxes > up > > on something higher - I'm going to try it ahead of time to see if > > they will adapt to it! > > > > Thanks for having me in the group. > > Carol in NC > > > Welcome carol to the group i'm also new here everyone is very nice..Hope you feel better...Tigs in mass Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2007 Report Share Posted December 30, 2007 Hi Carol- You will need to have help at home when you get out of surgery. If you don't, you may wind up in a rehab facility for a few days. Best to mke sure the kitties are being taken care of. As far as prostheses, you may want to look into resurfacing, the group surfacehippy is a good place to ask about it. A better way to attach the ball side of the prostheses to you femur, & allows for return to just about any activity. I think the only thing you can't do is skydive. Peace Bilateral BHR Hozack 10/17-31/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 After each of my Hip replacements and now for my upcoming Knee replacement my Dr. prescribed 2 Vicadin (5-500 mg) every 4 hours. I gather this is pretty much the norm of what I have been reading. apesapane wrote: Hi. My name is Anne Marie and I had LTKR on Nov 19th.I was prepared for all the effort in PT but not the pain. I now take only ULTRCET and I am trying to reduce my usage. What is normal for use of pain meds? No one gives me a straight answer. I know the meds make me more tired and I am worried about becoming dependant. My doctor says 2008 will be a very good year for me....and that I'll be dancing by the spring! I can't wait! I am learning alot from all the messages, thanks in advance for replying to mine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 There is no straight answers on how much pain. Everyone is different. Sorry - "It came to me that every time I lose a pet they take a piece of my heart with them. And every new pet who comes into my life gifts me with a piece of their heart. If I live long enough, all the components of my heart will be an animal, and I will become as generous and loving as they are." --- apesapane@... wrote:From: "apesapane" <apesapane@...>Joint Replacement Subject: New to the groupDate: Sun, 06 Jan 2008 21:44:12 -0000Hi. My name is Anne Marie and I had LTKR on Nov 19th.I was prepared for all the effort in PT but not the pain. I now take only ULTRCET and I am trying to reduce my usage. What is normal for use of pain meds? No one gives me a straight answer. I know the meds make me more tired and I am worried about becoming dependant. My doctor says 2008 will be a very good year for me....and that I'll be dancing by the spring! I can't wait! I am learning alot from all the messages, thanks in advance for replying to mine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 Hi Bridget. I'm 4 weeks post op on a right TKR. I've got a long way to go to get anywhere close to where you are. Welcome. > > Hey everyone, My name is Bridget and I had a right kneww replacment > 8/8/06 at the age of 46. I had undergone a bad knee surgery years > prior resulting in total foot drop and lower leg paralysis, and I guess > the gait abnormalilty caused the knee to wear until I was bone on > bone. I had no options but to have a total replacement. I have > competed in equestrian sport (3 day eventing) for roughly 43 years. > Myy sport is sort of like motocross on horseback. Thge replacmement > was like a miracle to me. I still compete and although the PT was > unbeleiveably hard, and they had to contour it to my sport to enable me > to ride again, I am competing and winning and and pain free. Thank you > God, Dr. Angelo Colosimo and Noca Care Reha (Sharon Noll) ...you all > rock! > > I am looking forward to participating in this group. I still have a > few questions about little things, so I think this group will be a > great recource for me. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2009 Report Share Posted February 8, 2009 Whatever you do.....don't drink alcohol. At this point, you really need to stay connected with your Doctor until he figures out how to proceed. Maybe he can order a dietician to help map out a healthy diet for you. Alcohol is your worst enemy -- PERIOD. ________________________________ From: sjmeece71 <sjmeece71@...> Hepatitis C Sent: Saturday, February 7, 2009 11:35:51 AM Subject: new to the group hi, im new here, i found out a couple years ago that i have hep c, havent really taken the best of care of myself since, but, i ended up going to the hospital the other nite and found out that my liver is not producing the " right amount of proteins " , not really sure what the dr was talking about, but i have to have a follow up with another dr next week, so, i guess im starting to let it sink in that i do have this disease, ive been really tired the last couple days, havent eaten much, starving, but just unable to eat much, if anyone could give me somemore info on what i need to do now, besides the obvious, take better care of myself, i would appreciate it, thank you!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2009 Report Share Posted February 8, 2009 Whatever you do.....don't drink alcohol. At this point, you really need to stay connected with your Doctor until he figures out how to proceed. Maybe he can order a dietician to help map out a healthy diet for you. Alcohol is your worst enemy -- PERIOD. ________________________________ From: sjmeece71 <sjmeece71@...> Hepatitis C Sent: Saturday, February 7, 2009 11:35:51 AM Subject: new to the group hi, im new here, i found out a couple years ago that i have hep c, havent really taken the best of care of myself since, but, i ended up going to the hospital the other nite and found out that my liver is not producing the " right amount of proteins " , not really sure what the dr was talking about, but i have to have a follow up with another dr next week, so, i guess im starting to let it sink in that i do have this disease, ive been really tired the last couple days, havent eaten much, starving, but just unable to eat much, if anyone could give me somemore info on what i need to do now, besides the obvious, take better care of myself, i would appreciate it, thank you!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2009 Report Share Posted February 8, 2009 thank you  From: Deron Giuliani <deron_giuliani@...> Subject: Re: new to the group Hepatitis C Date: Sunday, February 8, 2009, 5:53 PM Whatever you do.....don't drink alcohol. At this point, you really need to stay connected with your Doctor until he figures out how to proceed. Maybe he can order a dietician to help map out a healthy diet for you. Alcohol is your worst enemy -- PERIOD. ____________ _________ _________ __ From: sjmeece71 <sjmeece71 (DOT) com> Hepatitis Csupportgr oupgroups (DOT) com Sent: Saturday, February 7, 2009 11:35:51 AM Subject: new to the group hi, im new here, i found out a couple years ago that i have hep c, havent really taken the best of care of myself since, but, i ended up going to the hospital the other nite and found out that my liver is not producing the " right amount of proteins " , not really sure what the dr was talking about, but i have to have a follow up with another dr next week, so, i guess im starting to let it sink in that i do have this disease, ive been really tired the last couple days, havent eaten much, starving, but just unable to eat much, if anyone could give me somemore info on what i need to do now, besides the obvious, take better care of myself, i would appreciate it, thank you!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2009 Report Share Posted February 8, 2009 thank you  From: Deron Giuliani <deron_giuliani@...> Subject: Re: new to the group Hepatitis C Date: Sunday, February 8, 2009, 5:53 PM Whatever you do.....don't drink alcohol. At this point, you really need to stay connected with your Doctor until he figures out how to proceed. Maybe he can order a dietician to help map out a healthy diet for you. Alcohol is your worst enemy -- PERIOD. ____________ _________ _________ __ From: sjmeece71 <sjmeece71 (DOT) com> Hepatitis Csupportgr oupgroups (DOT) com Sent: Saturday, February 7, 2009 11:35:51 AM Subject: new to the group hi, im new here, i found out a couple years ago that i have hep c, havent really taken the best of care of myself since, but, i ended up going to the hospital the other nite and found out that my liver is not producing the " right amount of proteins " , not really sure what the dr was talking about, but i have to have a follow up with another dr next week, so, i guess im starting to let it sink in that i do have this disease, ive been really tired the last couple days, havent eaten much, starving, but just unable to eat much, if anyone could give me somemore info on what i need to do now, besides the obvious, take better care of myself, i would appreciate it, thank you!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2009 Report Share Posted February 20, 2009 Hi, Bobby, Although at 56 (2 weeks post left THR) I'm not one of the younger ones on the site, I think you'll find people your age here who have had hip replacements and are very happy with the result. I also think many of them have reported the same experience that you had--initial resistance from a doctor uncomfortable with performing the surgery on someone young, but when they've pursued it and gotten second or third opinions, found that many doctors are indeed comfortable with it, especially with a young person becoming increasingly disabled due to pain from an increasingly non-functional hip joint. I'm young enough to have to worry about a possible second surgery in my lifetime, but I think that with all of the advances they have made in this area of medicine, by the time I need it, the medical technology will be there for me. I think I'd feel the same way if I were 32 and my life and activity level were becoming increasingly restricted due to pain. Your new joint or joints may last 20 or even 30 years, and in 30 years? We can't even imagine what medical advances will surely be made in that time. If you continue to have problems, try going to a major medical center in a larger city; you may find some progressive doctors in that environment. Good luck-- Jane ---- tahoe1009 <tahoe1009@...> wrote: > I am new here. I am 32 YOA, male with a lot of pain in my R hip. I > was in a MVA in 1994 and shattered both of my hips. Now I have a lot > of arthritis and my right hip head has collapsed. They tell me I am > not a canidate for the hip resurfacing because I dont have enough > bone. They don't want to do a replacement because I am young and > active (until recently, due to the pain). > I am looking for any help that any of you can offer! I am open to > anything. I am going to a second ortho the first week of March, second > opinion time. I am willing to take the risk and have it done now, but > finding a doctor with that mindset may be difficult. I have been told > that it needs to be done. > Thanks > Bobby > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2009 Report Share Posted February 23, 2009 Bobby: I've had both my hips replaced. One at 42 and one about 5 months ago at 45. My first surgeon wanted to hold off on the implant for as long as possible--due to longevity concerns. I did some research and got a second opinion. It turns out that my sister (who's a physician) went college with a guy who does joint replacement R & D at Stryker. He told me that based on lab testing the newer generation metal-on-metal or ceramic-on-ceramic implants should last a lifetime. Of course, there is no clinical evidence of this as these hips have not been in people long enough to have good data. He also recommended that I get a second opinion from Dr. Engh (he pioneered the development of porous-coated cementless implants) of the Orthopaedic Clinic. Ironically, my sister's friend pointed out that Engh did not use Stryker hips (I have two DePuy hips) Dr. Engh had the same perspective regarding longevity of the newer hips. He did both my surgeries. Thus far, my results have been outstanding. No pain, no restrictions, and pretty much a full range of motion. Good luck, -Ed > > I am new here. I am 32 YOA, male with a lot of pain in my R hip. I > was in a MVA in 1994 and shattered both of my hips. Now I have a lot > of arthritis and my right hip head has collapsed. They tell me I am > not a canidate for the hip resurfacing because I dont have enough > bone. They don't want to do a replacement because I am young and > active (until recently, due to the pain). > I am looking for any help that any of you can offer! I am open to > anything. I am going to a second ortho the first week of March, second > opinion time. I am willing to take the risk and have it done now, but > finding a doctor with that mindset may be difficult. I have been told > that it needs to be done. > Thanks > Bobby > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2009 Report Share Posted February 23, 2009 > Does anyone know of any filters or clothing that will protect us from > EMF's. One scientist speaking about EMF's on worldpuga.org said there > can be some benefit. I'm wondering if anyone has found filters or > clothing that has helped them.. It depends on what you mean by EMFs. If you are looking to reduce exposure to magnetic fields, look to the source of the field (turn off, replace, increase distance, or shield it). If you mean radiowaves and microwaves, see shielding garments at http://www.lessemf.com/personal.html There are also shielding paints and fabrics available there too. Best Regards, Emil DeToffol Less EMF Inc. tel: +1-518-432-1550 fax: +1-309-422-4355 www.lessemf.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2009 Report Share Posted March 25, 2009 hi , Im alex and / WELCOME U TO THE GROUP ! Im not really to involved, I do read the mail quite a bit and sometimes even chat with some of the more supportive members I,'ve found the people that are in treatmnet need more prayer and support than those who are not , like me ,Ive had hep - c for over 25 yrs and havent started any treatment mainly because i have my own store and have to deal with customers and employee,all darn day and am afraid to try getting the treatment because I dont think I would be able to handle it. Some will call that a cop out excuse or being a wimp butt i need my income to take care of my family 10yr & 12yr old ,ican say it seems to be getting harder to get up and go to work every day but have faith in GOD that there is a plan waiting for me down the road.Anyhow dont sweat getting on line and openning up to the people in this group .They all mean well and are willing to give u honest and good advice . GOOD LUCK WITH YOUR BATTLE,AND DONT BE AFRAID TO SHARE ! From: boggsjulie43 <boggsjulie43@...> Subject: new to the group Hepatitis C Date: Thursday, March 26, 2009, 1:35 AM Hi! Its really hard for me to talk. I just found out I had hep c. Almost 8 month ago. I'm a c.n.a nurse and a single mother of 3 great kids. which my last one just turned 19 this month.And is graduating high school in june.I am trying to cope with hep c. Maybe I can get to know some people in the group and open up some more. thank you, julie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2009 Report Share Posted March 25, 2009 Hi , There are many knowledgable people here in the group. You'll find newly diagnosed, people in the middle of treatment and treatment veterans. I highly recommend www.hcvadvocate.org. Alan has assembled an extensive website from which you can print out and copy anything you wish as long as you keep his logo on the items. Remember there are no dumb questions. Glenn > > Hi! Its really hard for me to talk. I just found out I had hep c. Almost 8 month ago. I'm a c.n.a nurse and a single mother of 3 great kids. which my last one just turned 19 this month.And is graduating high school in june.I am trying to cope with hep c. Maybe I can get to know some people in the group and open up some more. thank you, julie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 > > Hi! Its really hard for me to talk. I just found out I had hep c. Almost 8 month ago. I'm a c.n.a nurse and a single mother of 3 great kids. which my last one just turned 19 this month.And is graduating high school in june.I am trying to cope with hep c. Maybe I can get to know some people in the group and open up some more. thank you, julie > hi julie, sorry to hear about your discovery,i also found out a month and ahalf ago that i have it,i was giving plasma.sounds like you may have gotton it threw your job...my daughter is a cna also,she was recently checked and was neg .i myself think i got hep c threw my only tatoo,i learn now that the guy that did my tattoo has hep. have you been to the doctor yet? if so did you find out your genotype and viral load? they want me to do a liver biopsy but im draging it out,i had an appointment and canceled,i just wasnt ready,but i need to get in there. do you have any syptoms yet? my doc told me that my viral load was not bad> 244.000 and im not showing any outter syptoms so i think thats a good thing...are you planning treatment? i decided not to for myself,just not ready for hep c,i cryed for a month straight,i would wake up and cry,i cryed while making breakfast,i would cry at the store and have to leave before i was seen! how are you doing? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Â hi my name is roie, I sort of agree with I have known of this heppatitis since the 80's I work out alot and have my own business also I don't feel bad the doctors juat say I need the treatment before it's to late!!! I my live is inflamed and thats all I know what are some of the questions I need to ask before I decide to do the treatment and is their differnt treatments that are out there? please respond, thank you:) From: boggsjulie43 <boggsjulie43> Subject: new to the group Hepatitis Csupportgr oupgroups (DOT) com Date: Thursday, March 26, 2009, 1:35 AM Hi! Its really hard for me to talk. I just found out I had hep c. Almost 8 month ago. I'm a c.n.a nurse and a single mother of 3 great kids. which my last one just turned 19 this month.And is graduating high school in june.I am trying to cope with hep c. Maybe I can get to know some people in the group and open up some more. thank you, julie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Hi everyone, My name is lin and I am new to the group. I joined last night after searching for information on what I should do. I had a liver ultrasound and the viral load test last May and did not go back to find out the results until today. I was very scared. I found out I have hep c in 2000 after giving birth to my son. I assumed I had had the virus since the late 70's. I may have been wrong. The results came back normal and viral load almost undetectable. I almost couldn't believe it. Doctor did tests again and I will go have another ultrasound next week. Things look much brighter than I expected. I just want to say that I too was afraid and I also didn't do anything sooner because I am a 51 year old widowed mother of a 9 year old and was afraid I wouldn't be able to work or take care of him. Then I decided that there wasn't gonna be a good time to do treatment. Things look pretty good for me right now but I was prepared for worse. If I don't take care of myself then I won't be able to take care of my son. love and peace to all, lin swindell Hepatitis C From: rosiesells4u@... Date: Thu, 26 Mar 2009 14:41:34 -0700 Subject: Re: new to the group hi my name is roie, I sort of agree with I have known of this heppatitis since the 80's I work out alot and have my own business also I don't feel bad the doctors juat say I need the treatment before it's to late!!! I my live is inflamed and thats all I know what are some of the questions I need to ask before I decide to do the treatment and is their differnt treatments that are out there? please respond, thank you:) From: boggsjulie43 <boggsjulie43> Subject: new to the group Hepatitis Csupportgr oupgroups (DOT) com Date: Thursday, March 26, 2009, 1:35 AM Hi! Its really hard for me to talk. I just found out I had hep c. Almost 8 month ago. I'm a c.n.a nurse and a single mother of 3 great kids. which my last one just turned 19 this month.And is graduating high school in june.I am trying to cope with hep c. Maybe I can get to know some people in the group and open up some more. thank you, julie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 I also wanted to say there are excellent alternative treatments I am looking into. lin Hepatitis C From: linswindell@... Date: Thu, 26 Mar 2009 17:30:41 -0500 Subject: RE: new to the group Hi everyone, My name is lin and I am new to the group. I joined last night after searching for information on what I should do. I had a liver ultrasound and the viral load test last May and did not go back to find out the results until today. I was very scared. I found out I have hep c in 2000 after giving birth to my son. I assumed I had had the virus since the late 70's. I may have been wrong. The results came back normal and viral load almost undetectable. I almost couldn't believe it. Doctor did tests again and I will go have another ultrasound next week. Things look much brighter than I expected. I just want to say that I too was afraid and I also didn't do anything sooner because I am a 51 year old widowed mother of a 9 year old and was afraid I wouldn't be able to work or take care of him. Then I decided that there wasn't gonna be a good time to do treatment. Things look pretty good for me right now but I was prepared for worse. If I don't take care of myself then I won't be able to take care of my son. love and peace to all, lin swindell Hepatitis C From: rosiesells4u@... Date: Thu, 26 Mar 2009 14:41:34 -0700 Subject: Re: new to the group hi my name is roie, I sort of agree with I have known of this heppatitis since the 80's I work out alot and have my own business also I don't feel bad the doctors juat say I need the treatment before it's to late!!! I my live is inflamed and thats all I know what are some of the questions I need to ask before I decide to do the treatment and is their differnt treatments that are out there? please respond, thank you:) From: boggsjulie43 <boggsjulie43> Subject: new to the group Hepatitis Csupportgr oupgroups (DOT) com Date: Thursday, March 26, 2009, 1:35 AM Hi! Its really hard for me to talk. I just found out I had hep c. Almost 8 month ago. I'm a c.n.a nurse and a single mother of 3 great kids. which my last one just turned 19 this month.And is graduating high school in june.I am trying to cope with hep c. Maybe I can get to know some people in the group and open up some more. thank you, julie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Rosie, Click on this link and go down to " Questions to Ask Your Healthcare professional " . You can print it out and take it with you. You might circle the ones you want to discuss with the Dr. http://www.hcvadvocate.org/hepatitis/factsheets.asp Glenn > > From: boggsjulie43 <boggsjulie43> > Subject: new to the group > Hepatitis Csupportgr oupgroups (DOT) com > Date: Thursday, March 26, 2009, 1:35 AM > > Hi! Its really hard for me to talk. I just found out I had hep c. Almost 8 month ago. I'm a c.n.a nurse and a single mother of 3 great kids. which my last one just turned 19 this month.And is graduating high school in june.I am trying to cope with hep c. Maybe I can get to know some people in the group and open up some more. thank you, julie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 ...alternative treatments sometimes lead to a SVR clearing, but rarely. however, they don't present the problems that all to often come with interferon/ribavirin tx. they can be effective in halting acute symptoms and remaining symptom free, feeling quite well and going on with life. if they work good enough to remain symptom free, they in all likelihood are also significantly reducing progression of liver damage. alternative treatments are the only thing available that make any sense to me at all for repeat non-responders to conventional tx. in their case they have nothing to lose but misery and a few bucks and time on the learning curve. i use a variety of them simultaneously and generally feel better than i have in my whole life. but if i back off, i can tell i shouldn't have. i don't expect to clear the HCV with alt med, but i won't go through tx hell for high odds of nothing or worse, maybe much worse, either. i'll keep looking for better alt approaches while waiting for big med to come up with something that seems like a reasonable risk. meanwhile, my life is as good as can be expected after decades of being not worth the bother for a number of reasons related to the way i got the hep but largely unrelated to the actual disease... is my PTSD vet grumpy old man showing? :-) > new to the group > Hepatitis Csupportgr oupgroups (DOT) com > Date: Thursday, March 26, 2009, 1:35 AM > > Hi! Its really hard for me to talk. I just found out I had > hep c. Almost 8 month ago. I'm a c.n.a nurse and a single > mother of 3 great kids. which my last one just turned 19 this > month.And is graduating high school in june.I am trying to > cope with hep c. Maybe I can get to know some people in the > group and open up some more. thank you, julie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 you're just fine,lol...you can be grumpy if you want so youve had hep c for awhile? are you saying you have not done treatment? > > From: boggsjulie43 <boggsjulie43> > Subject: new to the group > Hepatitis Csupportgr oupgroups (DOT) com > Date: Thursday, March 26, 2009, 1:35 AM > > Hi! Its really hard for me to talk. I just found out I had > hep c. Almost 8 month ago. I'm a c.n.a nurse and a single > mother of 3 great kids. which my last one just turned 19 this > month.And is graduating high school in june.I am trying to > cope with hep c. Maybe I can get to know some people in the > group and open up some more. thank you, julie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 i've most likely had the hep since late 60's or early 70's. bloodwork at the VA in 2002 turned it up. i'd had the semi-regular URQ ache pretty light throughout the late 80's and 90's. my life has always been kind of underpowered for vitality, physical strength and endurance, and personal habits while gradually improved over the decades only got me up to average performance levels as i quit tobacco in '78 and replaced it with physical conditioning and better nutrition... but i still had a lot to learn, and my position in society didn't help a lot but kept me going although i smoked and grew a lot of pot to get through the hard times without suicide, homicide, or homelessness. never done tx or biopsy. the VA offered them, but i stalled and started learning about them. i'm not a very trusting person, especially of gov't or large organizations... i trust in my higher-power (god i guess) for clues and that's what's always seemed to keep me going. i don't like what i've learned about the odds of real dangers of tx or biopsy, and considering that with the low odds of success i decided if i was going to die i'd try waiting and watching, and doing what i could for myself. to do tx would entail abandoning my little life situation of possessions and those who depend on me to stay afloat. i figure with my general disposition that is much like the bad sides of tx, that i wouldn't be able to keep it together with riba-rage. i want nothing to do with psych meds or institutional psychiatry (VA) if possible, and now with most anything else produced by big pharma. the hep flared up acute in 2005-06, and by summer '06 i was almost unable to continue functioning. .. the whole list of hep symptoms... itching, depression worse than usual, brain fog, fatigue, neuritis/neuropathy, cryoglob feet swollen and aching like they'd been hammered on the bottoms, fibromyalgia, joint aches... i'd been reading hep lists for a couple years but mainly focused on completing some obsessive personal goals which i did, but when it got bad started looking seriously for some way to get a fast handle on it. on the hep lists i picked up some refs to colloidal silver and looked into it and liked what i saw. jumped right in by buying a CS generator on ebay (which ebay no longer allows to be listed due to FDA watchdog pressure) for the cost of a couple bottles of health food store CS... this made economic sense, as if it didn't work i could sell it and recoup my $50 quickly. it worked like magic, like hitting a switch within 24 hours, then faded most benefit but steadily increased again over a month and has stayed effective... and is to this day 3 years later the main ingredient of known success in my arsenal. i now also do a bunch of herbs and supps, eat as organically as possible carefully selected foods with only occasional indulgences in a McGriddle or whatever. a payday out-for-dinner is to be able to hit the Whole Foods salad bar... and last year i fell in lust with sushi which is now a rare treat. i won't do tx until something that looks a lot more worthwhile comes along, unless i end up homeless (again) in this greed-afflicted economy and have to dump myself on the VA for somewhere to be where they'll probably pressure me to get with their program or move on. as long as i can make CS somehow i can probably make it ok. i can make it with a couple batteries & wires or with the lighter socket in a car as long as i don't lose my silver stash and can get decent water. i won't do a biopsy unless it's a mandatory part of doing tx... there's ways being developed and used to non-invasively assess liver damage and the VA might get to using them by the time i have to use the VA. i do use the VA for occasional bloodwork, and am now waiting to see the results of the first labs in a couple years... no PCR, but the rest. i took up cigars in '98 when my world collapsed (again) and don't get enough exercise. at least i don't inhale american tobacco co. chemical laced cigarettes... the thought of that is nauseating. cigars take the edge off a stressful life in the immediate sense but the longer term damage is obviously accumulating and undermining my hep protocols... but i just can't handle life around screaming nutcases etc for long without them. did well quitting all summer until thanksgiving '07 getting into rollerblades (knees can't handle running anymore)but the nutsos around me were too much in their maniacal battles in prep for a thanksgiving " holiday " and i caved. > RE: new to the group > > you're just fine,lol...you can be grumpy if you want so youve > had hep c for awhile? are you saying you have not done treatment? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 you are very interesting to say the least,love your true stories  my first husband of 17 yrs was a pothead,lol,didnt grow it but he sold it,it was his life sorry to say. he treated me like shit but thats over the hill anyhow, i have read many stories about other heppers doing the treatment and thee only thin i can say is ARE THEY FRICKIN CRAZY!!! I wont do it,my guts tell me know!!! like you,i am going to rely on the common sense that has given to me by our creator and to watch for hes little signs...im from wisconsin,and you? From: bob Larson <bobList@...> Subject: RE: new to the group Hepatitis C Date: Friday, March 27, 2009, 10:12 AM i've most likely had the hep since late 60's or early 70's. bloodwork at the VA in 2002 turned it up. i'd had the semi-regular URQ ache pretty light throughout the late 80's and 90's. my life has always been kind of underpowered for vitality, physical strength and endurance, and personal habits while gradually improved over the decades only got me up to average performance levels as i quit tobacco in '78 and replaced it with physical conditioning and better nutrition... but i still had a lot to learn, and my position in society didn't help a lot but kept me going although i smoked and grew a lot of pot to get through the hard times without suicide, homicide, or homelessness. never done tx or biopsy. the VA offered them, but i stalled and started learning about them. i'm not a very trusting person, especially of gov't or large organizations. .. i trust in my higher-power (god i guess) for clues and that's what's always seemed to keep me going. i don't like what i've learned about the odds of real dangers of tx or biopsy, and considering that with the low odds of success i decided if i was going to die i'd try waiting and watching, and doing what i could for myself. to do tx would entail abandoning my little life situation of possessions and those who depend on me to stay afloat. i figure with my general disposition that is much like the bad sides of tx, that i wouldn't be able to keep it together with riba-rage. i want nothing to do with psych meds or institutional psychiatry (VA) if possible, and now with most anything else produced by big pharma. the hep flared up acute in 2005-06, and by summer '06 i was almost unable to continue functioning. .. the whole list of hep symptoms... itching, depression worse than usual, brain fog, fatigue, neuritis/neuropathy , cryoglob feet swollen and aching like they'd been hammered on the bottoms, fibromyalgia, joint aches... i'd been reading hep lists for a couple years but mainly focused on completing some obsessive personal goals which i did, but when it got bad started looking seriously for some way to get a fast handle on it. on the hep lists i picked up some refs to colloidal silver and looked into it and liked what i saw. jumped right in by buying a CS generator on ebay (which ebay no longer allows to be listed due to FDA watchdog pressure) for the cost of a couple bottles of health food store CS... this made economic sense, as if it didn't work i could sell it and recoup my $50 quickly. it worked like magic, like hitting a switch within 24 hours, then faded most benefit but steadily increased again over a month and has stayed effective... and is to this day 3 years later the main ingredient of known success in my arsenal. i now also do a bunch of herbs and supps, eat as organically as possible carefully selected foods with only occasional indulgences in a McGriddle or whatever. a payday out-for-dinner is to be able to hit the Whole Foods salad bar... and last year i fell in lust with sushi which is now a rare treat. i won't do tx until something that looks a lot more worthwhile comes along, unless i end up homeless (again) in this greed-afflicted economy and have to dump myself on the VA for somewhere to be where they'll probably pressure me to get with their program or move on. as long as i can make CS somehow i can probably make it ok. i can make it with a couple batteries & wires or with the lighter socket in a car as long as i don't lose my silver stash and can get decent water. i won't do a biopsy unless it's a mandatory part of doing tx... there's ways being developed and used to non-invasively assess liver damage and the VA might get to using them by the time i have to use the VA. i do use the VA for occasional bloodwork, and am now waiting to see the results of the first labs in a couple years... no PCR, but the rest. i took up cigars in '98 when my world collapsed (again) and don't get enough exercise. at least i don't inhale american tobacco co. chemical laced cigarettes.. . the thought of that is nauseating. cigars take the edge off a stressful life in the immediate sense but the longer term damage is obviously accumulating and undermining my hep protocols... but i just can't handle life around screaming nutcases etc for long without them. did well quitting all summer until thanksgiving '07 getting into rollerblades (knees can't handle running anymore)but the nutsos around me were too much in their maniacal battles in prep for a thanksgiving " holiday " and i caved. > RE: new to the group > > you're just fine,lol...you can be grumpy if you want so youve > had hep c for awhile? are you saying you have not done treatment? 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Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 you are very interesting to say the least,love your true stories  my first husband of 17 yrs was a pothead,lol,didnt grow it but he sold it,it was his life sorry to say. he treated me like shit but thats over the hill anyhow, i have read many stories about other heppers doing the treatment and thee only thin i can say is ARE THEY FRICKIN CRAZY!!! I wont do it,my guts tell me know!!! like you,i am going to rely on the common sense that has given to me by our creator and to watch for hes little signs...im from wisconsin,and you? From: bob Larson <bobList@...> Subject: RE: new to the group Hepatitis C Date: Friday, March 27, 2009, 10:12 AM i've most likely had the hep since late 60's or early 70's. bloodwork at the VA in 2002 turned it up. i'd had the semi-regular URQ ache pretty light throughout the late 80's and 90's. my life has always been kind of underpowered for vitality, physical strength and endurance, and personal habits while gradually improved over the decades only got me up to average performance levels as i quit tobacco in '78 and replaced it with physical conditioning and better nutrition... but i still had a lot to learn, and my position in society didn't help a lot but kept me going although i smoked and grew a lot of pot to get through the hard times without suicide, homicide, or homelessness. never done tx or biopsy. the VA offered them, but i stalled and started learning about them. i'm not a very trusting person, especially of gov't or large organizations. .. i trust in my higher-power (god i guess) for clues and that's what's always seemed to keep me going. i don't like what i've learned about the odds of real dangers of tx or biopsy, and considering that with the low odds of success i decided if i was going to die i'd try waiting and watching, and doing what i could for myself. to do tx would entail abandoning my little life situation of possessions and those who depend on me to stay afloat. i figure with my general disposition that is much like the bad sides of tx, that i wouldn't be able to keep it together with riba-rage. i want nothing to do with psych meds or institutional psychiatry (VA) if possible, and now with most anything else produced by big pharma. the hep flared up acute in 2005-06, and by summer '06 i was almost unable to continue functioning. .. the whole list of hep symptoms... itching, depression worse than usual, brain fog, fatigue, neuritis/neuropathy , cryoglob feet swollen and aching like they'd been hammered on the bottoms, fibromyalgia, joint aches... i'd been reading hep lists for a couple years but mainly focused on completing some obsessive personal goals which i did, but when it got bad started looking seriously for some way to get a fast handle on it. on the hep lists i picked up some refs to colloidal silver and looked into it and liked what i saw. jumped right in by buying a CS generator on ebay (which ebay no longer allows to be listed due to FDA watchdog pressure) for the cost of a couple bottles of health food store CS... this made economic sense, as if it didn't work i could sell it and recoup my $50 quickly. it worked like magic, like hitting a switch within 24 hours, then faded most benefit but steadily increased again over a month and has stayed effective... and is to this day 3 years later the main ingredient of known success in my arsenal. i now also do a bunch of herbs and supps, eat as organically as possible carefully selected foods with only occasional indulgences in a McGriddle or whatever. a payday out-for-dinner is to be able to hit the Whole Foods salad bar... and last year i fell in lust with sushi which is now a rare treat. i won't do tx until something that looks a lot more worthwhile comes along, unless i end up homeless (again) in this greed-afflicted economy and have to dump myself on the VA for somewhere to be where they'll probably pressure me to get with their program or move on. as long as i can make CS somehow i can probably make it ok. i can make it with a couple batteries & wires or with the lighter socket in a car as long as i don't lose my silver stash and can get decent water. i won't do a biopsy unless it's a mandatory part of doing tx... there's ways being developed and used to non-invasively assess liver damage and the VA might get to using them by the time i have to use the VA. i do use the VA for occasional bloodwork, and am now waiting to see the results of the first labs in a couple years... no PCR, but the rest. i took up cigars in '98 when my world collapsed (again) and don't get enough exercise. at least i don't inhale american tobacco co. chemical laced cigarettes.. . the thought of that is nauseating. cigars take the edge off a stressful life in the immediate sense but the longer term damage is obviously accumulating and undermining my hep protocols... but i just can't handle life around screaming nutcases etc for long without them. did well quitting all summer until thanksgiving '07 getting into rollerblades (knees can't handle running anymore)but the nutsos around me were too much in their maniacal battles in prep for a thanksgiving " holiday " and i caved. > RE: new to the group > > you're just fine,lol...you can be grumpy if you want so youve > had hep c for awhile? are you saying you have not done treatment? 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Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 born in chicago (oak park actually), family from lansing, iowa...grandpa lived in LaCrosse a long time (nice place) and st. paul, raised in so. californication since about 5, mostly L.A. area. driven out/escaped there in '75, travelled a few years living in several eastern areas (lotsa stories), settled in maryland in '79... still stuck. pot, like tobacco, has kept me from suicide, death row, and total destitution when society just didn't care or play fair. it started in viet nam, an then back in L.A. i found out my answer to Albert ' question " what're you gonna do when the welfare turns it's back on you? " well, the lord provided, right there in the waiting lobby of the welfare office the new friends that would grow into ... illegal enterprises serving the ongoing psychedelic revolution ... that bought food, paid the rent, and allowed survival during the " culture wars " '69-'74. it wasn't even like i had much choice, or at least it sure seemed that way. when i get screwed or deprived for nothing justifiable i tend to think rather coldly. now i'm a rather embittered and cold soul in ways, but still like to try to be helpful from my reclusive hole where i can. i have little to no desire to smoke pot or do any other drugs anymore and very rarely do ... however, if i found myself in the desert and came across some peyote buttons i'd know i was supposed to eat them.... true blues and gospel. we are just born for certain things to fulfill parts of the big plans of spirit .... gotta go do the kitchen thing... this nice day is slip sliding away and i'm still in my bathrobe on the computer (no work today :-( ). cheers, bobL > RE: new to the group > > > > you're just fine,lol...you can be grumpy if you want so youve > > had hep c for awhile? are you saying you have not done treatment? > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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