New To The Group

[Guest guest]

born in chicago (oak park actually), family from lansing, iowa...grandpa

lived in LaCrosse a long time (nice place) and st. paul, raised in so.

californication since about 5, mostly L.A. area. driven out/escaped there

in '75, travelled a few years living in several eastern areas (lotsa

stories), settled in maryland in '79... still stuck.

pot, like tobacco, has kept me from suicide, death row, and total

destitution when society just didn't care or play fair. it started in viet

nam, an then back in L.A. i found out my answer to Albert ' question

" what're you gonna do when the welfare turns it's back on you? " well, the

lord provided, right there in the waiting lobby of the welfare office the

new friends that would grow into ... illegal enterprises serving the ongoing

psychedelic revolution ... that bought food, paid the rent, and allowed

survival during the " culture wars " '69-'74. it wasn't even like i had much

choice, or at least it sure seemed that way. when i get screwed or deprived

for nothing justifiable i tend to think rather coldly. now i'm a rather

embittered and cold soul in ways, but still like to try to be helpful from

my reclusive hole where i can. i have little to no desire to smoke pot or

do any other drugs anymore and very rarely do ... however, if i found myself

in the desert and came across some peyote buttons i'd know i was supposed to

eat them.... true blues and gospel. we are just born for certain things to

fulfill parts of the big plans of spirit ....

gotta go do the kitchen thing... this nice day is slip sliding away and i'm

still in my bathrobe on the computer (no work today :-( ).

cheers,

bobL

> RE: new to the group

> >

> > you're just fine,lol...you can be grumpy if you want so youve

> > had hep c for awhile? are you saying you have not done treatment?

>

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[Guest guest]

BABZ,

 where do you reside in England?

I have relatives there and have been to Lake District

I am a retired professor in  English Lit and creative writing.

Annie

A poet is, after all, to see

From: Barbara <babzbates@...>

Subject: Re: New to the group

neck pain

Date: Friday, July 10, 2009, 11:36 AM

  I live in England by the way.

Barbara (Babz)

> >       Hi everyone, thanks for having me in the group.  My problem seems to

be muscle spasms in the back of my neck right at the top of my spine. A lump

forms there but softens after massage. I have been to my GP numerous times, he's

tried anti-inflammarories , muscle relaxants and rubbing creams, so far although

they ease it a bit it hasn't solved the problem. I had an x-ray and there's no

problems with the bones. I think it's partly postural and I'm working on my

" dowager's hump " but I feel as though I have a yoke over my shoulders all the

time.  As well as the neck problem I am having problems with my eyesight. I'm

sure a nerve or something is getting pinched by the swelling because if I sit in

one position too long my eyes start going blurry and after that I get flashing

lights in my peripheral vision.  I've had this trouble off and on for years and

have had migraine treatments in the past, but I'm sure the two are connected and

up until

today's

>  visit I thought my GP agreed.  But today in a complete turnaround he's said

he thinks it's 2 seperate issues and told me to have another eye test.  He's

given me tramadol for the first time and some migraine preventative tablets.

> > Has anyone else had any experience of not so much neck pain as a sort of

dull heavy feeling across the shoulders with the eye problem as well? And if so

have you any advice.

> > Thanks

> >

>

------------------------------------

[Guest guest]

I live in County Durham, not all that far from the Lake District really though I

haven't been there since I was a kid. How strange it would be if your relatives

lived nearby.

> > >       Hi everyone, thanks for having me in the group.  My problem seems to

be muscle spasms in the back of my neck right at the top of my spine. A lump

forms there but softens after massage. I have been to my GP numerous times, he's

tried anti-inflammarories , muscle relaxants and rubbing creams, so far although

they ease it a bit it hasn't solved the problem. I had an x-ray and there's no

problems with the bones. I think it's partly postural and I'm working on my

" dowager's hump " but I feel as though I have a yoke over my shoulders all the

time.  As well as the neck problem I am having problems with my eyesight. I'm

sure a nerve or something is getting pinched by the swelling because if I sit in

one position too long my eyes start going blurry and after that I get flashing

lights in my peripheral vision.  I've had this trouble off and on for years and

have had migraine treatments in the past, but I'm sure the two are connected and

up until

> today's

> >  visit I thought my GP agreed.  But today in a complete turnaround he's said

he thinks it's 2 seperate issues and told me to have another eye test.  He's

given me tramadol for the first time and some migraine preventative tablets.

> > > Has anyone else had any experience of not so much neck pain as a sort of

dull heavy feeling across the shoulders with the eye problem as well? And if so

have you any advice.

> > > Thanks

> > >

> >

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

The problem with getting them done in the winter in the Great North, I'm in

Vermont and had a hip done in September, is that when you want to do some

walking the ice is not good and you could get hurt.  If you have a gym with a

walking place or an indoor mall to walk in plan on using these options so your

progress can continue.  Better to get the knees done and get better than suffer

another season.  When I had my knees done I did them in March so that the ground

would be ice free for that reason, in retrospect I should have gotten the knees

done sooner,  that last month before the surgery was brutal.

Carol

________________________________

From: Carolyn Faulk <cfaulk@...>

knee joint <Joint Replacement >

Sent: Monday, July 13, 2009 4:45:26 PM

Subject: New to the group

Once I get some other health issues resolved, I will be having (we

think) both knee replacements done at the same time in early fall. I am

still healing from lumbar spine fusion surgery that I had in February,

so needed to just try to get to the fall before attempting more surgery.

I did do a search and read some of the messages regarding bilateral TKR,

and it sounds like there are some good experiences and some " not so

good " experiences.

I understand that there will be MRI's of my own knees, and then the

replacement parts will be made to the dimensions for just my own bone

structure. That sounded like a good thing to me.

Since I get so ill from any anesthesia (every time), I have about

decided to get both knees done at one time. (I am 65) I have been having

Supartz (like Synvisc) into my knees for several years, trying to put

off replacing my knees as long as possible. This year it became evident

that my RA and Osteoarthritis had eaten everything away terribly and

this has to be the year to have the knees fixed. I am hoping that my

spine will keep fusing well so that I can be ready to have the knee

surgery. (I have lots of auto-immune diseases going on, so have to make

sure that they are all in control well, too)

I have not had any bad reactions to the metal rods, metal plates, and

screws that have been being added to my spine several times over the

past 10 years, so I assume that the knee metal will also be accepted

well. (are the knees titanium too?)

If anyone has any good advice regarding bilateral knee replacement (done

at one time), I would be interested in hearing it. I just know that I

need them done this year and not in the middle of winter. (Wisconsin

winters are not nice!)

--

Carolyn

[Guest guest]

i am not aimming for treatment. im thinking that if i did it and it didnt

work,what kind of damage did the medication do to my body and my mind and even

if it did work,theres people out there still complaining about how they still

feel shitty and depressed. i see people that have had this for 30 yrs and are

still alive and functioning so...on that note,im 54 and ive had this for 14 yrs

and if got 14 yrs left,im ok with that. this life is temporary so i am looking

forward to Gods plan for me after im gone from here,i hope im good enough for

his plan  

 

as for now,i feel great besides my depression but if you knew where i come from

and the bullshit rode i traveled my depression is totally understandable...and

the DRAMA continues...i think the devil is out to get me,sure feels like it

From: Joss Kinch <josskinch@...>

Subject: New to the group

" Hepatitis C "

<Hepatitis C >

Date: Sunday, August 30, 2009, 4:23 PM

 

Hi I got diagnosed 15 years ago done a years treatment, didn't work. I'm

making sure that I make the most out of life. Of to Barbados next week. I'm

based in London. but I'm a scot been here for 30 years.

Sent from my iPhone

[Guest guest]

Im with you Deb. Im 59 and have had this for well over 30 yrs. Tried treatment

and doctor took me off right away for a very bad psychological reaction. When my

ticket gets punched I will go home to the Lord but until then Im a little tired

but very alive in Jesus

________________________________

From: deborah brown <heaven_scent_in_55@...>

Hepatitis C

Cc: deborah kay mand <heaven_scent_in_55@...>

Sent: Sunday, August 30, 2009 6:09:53 PM

Subject: Re: New to the group

i am not aimming for treatment. im thinking that if i did it and it didnt

work,what kind of damage did the medication do to my body and my mind and even

if it did work,theres people out there still complaining about how they still

feel shitty and depressed. i see people that have had this for 30 yrs and are

still alive and functioning so...on that note,im 54 and ive had this for 14 yrs

and if got 14 yrs left,im ok with that. this life is temporary so i am looking

forward to Gods plan for me after im gone from here,i hope im good enough for

his plan

as for now,i feel great besides my depression but if you knew where i come from

and the bullshit rode i traveled my depression is totally understandable. ..and

the DRAMA continues... i think the devil is out to get me,sure feels like it

From: Joss Kinch <josskinch (DOT) co.uk>

Subject: New to the group

" Hepatitis Csupportgr oupgroups (DOT) com " <Hepatitis Csupportgr

oupgroups (DOT) com>

Date: Sunday, August 30, 2009, 4:23 PM

Hi I got diagnosed 15 years ago done a years treatment, didn't work. I'm

making sure that I make the most out of life. Of to Barbados next week. I'm

based in London. but I'm a scot been here for 30 years.

Sent from my iPhone

[Guest guest]

Im with you Deb. Im 59 and have had this for well over 30 yrs. Tried treatment

and doctor took me off right away for a very bad psychological reaction. When my

ticket gets punched I will go home to the Lord but until then Im a little tired

but very alive in Jesus

________________________________

From: deborah brown <heaven_scent_in_55@...>

Hepatitis C

Cc: deborah kay mand <heaven_scent_in_55@...>

Sent: Sunday, August 30, 2009 6:09:53 PM

Subject: Re: New to the group

i am not aimming for treatment. im thinking that if i did it and it didnt

work,what kind of damage did the medication do to my body and my mind and even

if it did work,theres people out there still complaining about how they still

feel shitty and depressed. i see people that have had this for 30 yrs and are

still alive and functioning so...on that note,im 54 and ive had this for 14 yrs

and if got 14 yrs left,im ok with that. this life is temporary so i am looking

forward to Gods plan for me after im gone from here,i hope im good enough for

his plan

as for now,i feel great besides my depression but if you knew where i come from

and the bullshit rode i traveled my depression is totally understandable. ..and

the DRAMA continues... i think the devil is out to get me,sure feels like it

From: Joss Kinch <josskinch (DOT) co.uk>

Subject: New to the group

" Hepatitis Csupportgr oupgroups (DOT) com " <Hepatitis Csupportgr

oupgroups (DOT) com>

Date: Sunday, August 30, 2009, 4:23 PM

Hi I got diagnosed 15 years ago done a years treatment, didn't work. I'm

making sure that I make the most out of life. Of to Barbados next week. I'm

based in London. but I'm a scot been here for 30 years.

Sent from my iPhone

[Guest guest]

Im with you Deb. Im 59 and have had this for well over 30 yrs. Tried treatment

and doctor took me off right away for a very bad psychological reaction. When my

ticket gets punched I will go home to the Lord but until then Im a little tired

but very alive in Jesus

________________________________

From: deborah brown <heaven_scent_in_55@...>

Hepatitis C

Cc: deborah kay mand <heaven_scent_in_55@...>

Sent: Sunday, August 30, 2009 6:09:53 PM

Subject: Re: New to the group

i am not aimming for treatment. im thinking that if i did it and it didnt

work,what kind of damage did the medication do to my body and my mind and even

if it did work,theres people out there still complaining about how they still

feel shitty and depressed. i see people that have had this for 30 yrs and are

still alive and functioning so...on that note,im 54 and ive had this for 14 yrs

and if got 14 yrs left,im ok with that. this life is temporary so i am looking

forward to Gods plan for me after im gone from here,i hope im good enough for

his plan

as for now,i feel great besides my depression but if you knew where i come from

and the bullshit rode i traveled my depression is totally understandable. ..and

the DRAMA continues... i think the devil is out to get me,sure feels like it

From: Joss Kinch <josskinch (DOT) co.uk>

Subject: New to the group

" Hepatitis Csupportgr oupgroups (DOT) com " <Hepatitis Csupportgr

oupgroups (DOT) com>

Date: Sunday, August 30, 2009, 4:23 PM

Hi I got diagnosed 15 years ago done a years treatment, didn't work. I'm

making sure that I make the most out of life. Of to Barbados next week. I'm

based in London. but I'm a scot been here for 30 years.

Sent from my iPhone

[Guest guest]

Im with you Deb. Im 59 and have had this for well over 30 yrs. Tried treatment

and doctor took me off right away for a very bad psychological reaction. When my

ticket gets punched I will go home to the Lord but until then Im a little tired

but very alive in Jesus

________________________________

From: deborah brown <heaven_scent_in_55@...>

Hepatitis C

Cc: deborah kay mand <heaven_scent_in_55@...>

Sent: Sunday, August 30, 2009 6:09:53 PM

Subject: Re: New to the group

i am not aimming for treatment. im thinking that if i did it and it didnt

work,what kind of damage did the medication do to my body and my mind and even

if it did work,theres people out there still complaining about how they still

feel shitty and depressed. i see people that have had this for 30 yrs and are

still alive and functioning so...on that note,im 54 and ive had this for 14 yrs

and if got 14 yrs left,im ok with that. this life is temporary so i am looking

forward to Gods plan for me after im gone from here,i hope im good enough for

his plan

as for now,i feel great besides my depression but if you knew where i come from

and the bullshit rode i traveled my depression is totally understandable. ..and

the DRAMA continues... i think the devil is out to get me,sure feels like it

From: Joss Kinch <josskinch (DOT) co.uk>

Subject: New to the group

" Hepatitis Csupportgr oupgroups (DOT) com " <Hepatitis Csupportgr

oupgroups (DOT) com>

Date: Sunday, August 30, 2009, 4:23 PM

Hi I got diagnosed 15 years ago done a years treatment, didn't work. I'm

making sure that I make the most out of life. Of to Barbados next week. I'm

based in London. but I'm a scot been here for 30 years.

Sent from my iPhone

[Guest guest]

Im with you Deb. Im 59 and have had this for well over 30 yrs. Tried treatment

and doctor took me off right away for a very bad psychological reaction. When my

ticket gets punched I will go home to the Lord but until then Im a little tired

but very alive in Jesus

________________________________

From: deborah brown <heaven_scent_in_55@...>

Hepatitis C

Cc: deborah kay mand <heaven_scent_in_55@...>

Sent: Sunday, August 30, 2009 6:09:53 PM

Subject: Re: New to the group

i am not aimming for treatment. im thinking that if i did it and it didnt

work,what kind of damage did the medication do to my body and my mind and even

if it did work,theres people out there still complaining about how they still

feel shitty and depressed. i see people that have had this for 30 yrs and are

still alive and functioning so...on that note,im 54 and ive had this for 14 yrs

and if got 14 yrs left,im ok with that. this life is temporary so i am looking

forward to Gods plan for me after im gone from here,i hope im good enough for

his plan

as for now,i feel great besides my depression but if you knew where i come from

and the bullshit rode i traveled my depression is totally understandable. ..and

the DRAMA continues... i think the devil is out to get me,sure feels like it

From: Joss Kinch <josskinch (DOT) co.uk>

Subject: New to the group

" Hepatitis Csupportgr oupgroups (DOT) com " <Hepatitis Csupportgr

oupgroups (DOT) com>

Date: Sunday, August 30, 2009, 4:23 PM

Hi I got diagnosed 15 years ago done a years treatment, didn't work. I'm

making sure that I make the most out of life. Of to Barbados next week. I'm

based in London. but I'm a scot been here for 30 years.

Sent from my iPhone

[Guest guest]

Im with you Deb. Im 59 and have had this for well over 30 yrs. Tried treatment

and doctor took me off right away for a very bad psychological reaction. When my

ticket gets punched I will go home to the Lord but until then Im a little tired

but very alive in Jesus

________________________________

From: deborah brown <heaven_scent_in_55@...>

Hepatitis C

Cc: deborah kay mand <heaven_scent_in_55@...>

Sent: Sunday, August 30, 2009 6:09:53 PM

Subject: Re: New to the group

i am not aimming for treatment. im thinking that if i did it and it didnt

work,what kind of damage did the medication do to my body and my mind and even

if it did work,theres people out there still complaining about how they still

feel shitty and depressed. i see people that have had this for 30 yrs and are

still alive and functioning so...on that note,im 54 and ive had this for 14 yrs

and if got 14 yrs left,im ok with that. this life is temporary so i am looking

forward to Gods plan for me after im gone from here,i hope im good enough for

his plan

as for now,i feel great besides my depression but if you knew where i come from

and the bullshit rode i traveled my depression is totally understandable. ..and

the DRAMA continues... i think the devil is out to get me,sure feels like it

From: Joss Kinch <josskinch (DOT) co.uk>

Subject: New to the group

" Hepatitis Csupportgr oupgroups (DOT) com " <Hepatitis Csupportgr

oupgroups (DOT) com>

Date: Sunday, August 30, 2009, 4:23 PM

Hi I got diagnosed 15 years ago done a years treatment, didn't work. I'm

making sure that I make the most out of life. Of to Barbados next week. I'm

based in London. but I'm a scot been here for 30 years.

Sent from my iPhone

[Guest guest]

amen,Lloyd.

From: Joss Kinch <josskinch (DOT) co.uk>

Subject: New to the group

" Hepatitis Csupportg r oupgroups (DOT) com " <Hepatitis Csupportg r

oupgroups (DOT) com>

Date: Sunday, August 30, 2009, 4:23 PM

Hi I got diagnosed 15 years ago done a years treatment, didn't work. I'm

making sure that I make the most out of life. Of to Barbados next week. I'm

based in London. but I'm a scot been here for 30 years.

Sent from my iPhone

[Guest guest]

amen,Lloyd.

From: Joss Kinch <josskinch (DOT) co.uk>

Subject: New to the group

" Hepatitis Csupportg r oupgroups (DOT) com " <Hepatitis Csupportg r

oupgroups (DOT) com>

Date: Sunday, August 30, 2009, 4:23 PM

Hi I got diagnosed 15 years ago done a years treatment, didn't work. I'm

making sure that I make the most out of life. Of to Barbados next week. I'm

based in London. but I'm a scot been here for 30 years.

Sent from my iPhone

[Guest guest]

amen,Lloyd.

From: Joss Kinch <josskinch (DOT) co.uk>

Subject: New to the group

" Hepatitis Csupportg r oupgroups (DOT) com " <Hepatitis Csupportg r

oupgroups (DOT) com>

Date: Sunday, August 30, 2009, 4:23 PM

Hi I got diagnosed 15 years ago done a years treatment, didn't work. I'm

making sure that I make the most out of life. Of to Barbados next week. I'm

based in London. but I'm a scot been here for 30 years.

Sent from my iPhone

[Guest guest]

amen,Lloyd.

From: Joss Kinch <josskinch (DOT) co.uk>

Subject: New to the group

" Hepatitis Csupportg r oupgroups (DOT) com " <Hepatitis Csupportg r

oupgroups (DOT) com>

Date: Sunday, August 30, 2009, 4:23 PM

Hi I got diagnosed 15 years ago done a years treatment, didn't work. I'm

making sure that I make the most out of life. Of to Barbados next week. I'm

based in London. but I'm a scot been here for 30 years.

Sent from my iPhone

[Guest guest]

amen,Lloyd.

From: Joss Kinch <josskinch (DOT) co.uk>

Subject: New to the group

" Hepatitis Csupportg r oupgroups (DOT) com " <Hepatitis Csupportg r

oupgroups (DOT) com>

Date: Sunday, August 30, 2009, 4:23 PM

Hi I got diagnosed 15 years ago done a years treatment, didn't work. I'm

making sure that I make the most out of life. Of to Barbados next week. I'm

based in London. but I'm a scot been here for 30 years.

Sent from my iPhone

[Guest guest]

amen,Lloyd.

From: Joss Kinch <josskinch (DOT) co.uk>

Subject: New to the group

" Hepatitis Csupportg r oupgroups (DOT) com " <Hepatitis Csupportg r

oupgroups (DOT) com>

Date: Sunday, August 30, 2009, 4:23 PM

Hi I got diagnosed 15 years ago done a years treatment, didn't work. I'm

making sure that I make the most out of life. Of to Barbados next week. I'm

based in London. but I'm a scot been here for 30 years.

Sent from my iPhone

[Guest guest]

Rainey,

Welcome to the group. I too have had long term back problems, I also have neck

digeneration. I have compromised Liver function that has resulted in my not

being able to take pain medications. I don't even take over the counter because

of the really bad side effects. I have had to be creative in dealing with my

chronic pain. For what it's worth I will let you in on some of the things I do

to cope without meds.

1. Try to get up and move as much as possible.

2. Pace yourself with work and home. Just because you are having a good day

doesn't mean to do everything that day. You will only hurt worse the following

day/s.

As for the tailbone issue: I have a tail, about an inch that shouldn't be there.

Doctors have told me many people do. Surgery of any kind unless it is to prevent

death is not an option for me due to the medication issue. These are my tips for

dealing with a painful tailbone:

1. Do not sit for prolonged times. Move as much as possible.

2. A doughnut pillow used for hemmoroids is good, it takes the weight off your

tailbone some.

There is underwear out there that has padded butt areas. They are generally for

cosmetic purposes but they do help with a painful tailbone.

I would definitely consult with an Orthopedists. Bones and joints are what they

do and what they know. Talk to him too about your pain medication not working

for you as well as it should. There are alot of things out there he can suggest.

I hope you get to feeling better and I hope you find a lot of answers here.

Jane H.

PS: I have tried homeopathic ways of dealing with pain and they did not help at

all but that is just me.

From: minnesotareader <minnesotareader@...>

Subject: New to the group

neck pain

Date: Sunday, October 25, 2009, 7:11 AM

 

Hi everyone,

After another painful adventure with my sciatic nerve, I thought it's time for

me to seek out some support first before ANOTHER visit to the doctor or

chiropractor. I am 51(f) who's had back problems since she was about 14 with

scoliosis graduating to a lower herniated disk. Within the last 1.5-2 years

found out I injured my tailbone. They did an MRI then ruling out bone cancer.

However, my tailbone still hurts, not as much (except for now), but I don't

think the pain ever quite went away. I was prescribed 600 mg/Ibuprofen ever 3/4

hours, which helped at first. Yesterday I wasn't even sure the 600 mg was even

helping. But I don't like the idea of taking that much, but will when pain is

bad. My doctor had said she had a couple of patients have their tailbone

removed. She didn't think people should still have problems after 1 year. Has

anyone ever had surgery done on their tailbone?

I sit quite a bit: 1.5 hours traveling to/from work each day, I do admin work,

therefore, sit most of the day. I am the first to admit I don't get the

exercise in that I need to or always do back stretch exercises. And apparently

it shows when my back starts acting up, like now. Just want to get a feel if

people go through their regular doctor or if more of a specialized orthopedic

doctor would be my best bet.

Another question, has anyone ever tried the homeopathic way of dealith with

their back, bones, arthritis? Did it work?

Sorry for so many questions. Just getting frustrated, but also realize I need

to make some lifestyle changes.

Thanks,

Rainey

[Guest guest]

It was mentioned that one could not take pain meds due to liver

problems.....depends on the pain meds as i have liver probs(hep c and gunshot

both due to combat) and take a lot of opiate pain meds but WITHOUT the

acetominophen, aspirin,ibuprophen ect as the drugs are detrimental to the liver

whereas opiates are not nearly a prob for the liver or my dr would not give them

to me.  3000 to 4000 mgs of acetominophen is as bad for the liver, if taken

daily, as drinking a bottle of vodka (one litre) and i take 450 mg oxycodone

daily and my liver levels are fine .  I got this info from multiple drs and the

PDR,

dont deprive yourself the relief due to careless prescribing as some drs donrt

kno or care and will pioson u with the junk u dont need as it is not useful in a

cronic pain setting and they havent taken the time to get the facts.  But as we

all kno , finding a truly good, caring dr. is damn near impossible!

Harold

________________________________

From: Jane <borlan9191962@...>

neck pain

Sent: Sunday, October 25, 2009 9:05:05 AM

Subject: Re: New to the group

 

Rainey,

Welcome to the group. I too have had long term back problems, I also have neck

digeneration. I have compromised Liver function that has resulted in my not

being able to take pain medications. I don't even take over the counter because

of the really bad side effects. I have had to be creative in dealing with my

chronic pain. For what it's worth I will let you in on some of the things I do

to cope without meds.

1. Try to get up and move as much as possible.

2. Pace yourself with work and home. Just because you are having a good day

doesn't mean to do everything that day. You will only hurt worse the following

day/s.

As for the tailbone issue: I have a tail, about an inch that shouldn't be there.

Doctors have told me many people do. Surgery of any kind unless it is to prevent

death is not an option for me due to the medication issue. These are my tips for

dealing with a painful tailbone:

1. Do not sit for prolonged times. Move as much as possible.

2. A doughnut pillow used for hemmoroids is good, it takes the weight off your

tailbone some.

There is underwear out there that has padded butt areas. They are generally for

cosmetic purposes but they do help with a painful tailbone.

I would definitely consult with an Orthopedists. Bones and joints are what they

do and what they know. Talk to him too about your pain medication not working

for you as well as it should. There are alot of things out there he can suggest.

I hope you get to feeling better and I hope you find a lot of answers here.

Jane H.

PS: I have tried homeopathic ways of dealing with pain and they did not help at

all but that is just me.

From: minnesotareader <minnesotareader>

Subject: [PainInTheNeck- Back] New to the group

PainInTheNeck- Back@groups .com

Date: Sunday, October 25, 2009, 7:11 AM

 

Hi everyone,

After another painful adventure with my sciatic nerve, I thought it's time for

me to seek out some support first before ANOTHER visit to the doctor or

chiropractor. I am 51(f) who's had back problems since she was about 14 with

scoliosis graduating to a lower herniated disk. Within the last 1.5-2 years

found out I injured my tailbone. They did an MRI then ruling out bone cancer.

However, my tailbone still hurts, not as much (except for now), but I don't

think the pain ever quite went away. I was prescribed 600 mg/Ibuprofen ever 3/4

hours, which helped at first. Yesterday I wasn't even sure the 600 mg was even

helping. But I don't like the idea of taking that much, but will when pain is

bad. My doctor had said she had a couple of patients have their tailbone

removed. She didn't think people should still have problems after 1 year. Has

anyone ever had surgery done on their tailbone?

I sit quite a bit: 1.5 hours traveling to/from work each day, I do admin work,

therefore, sit most of the day. I am the first to admit I don't get the exercise

in that I need to or always do back stretch exercises. And apparently it shows

when my back starts acting up, like now. Just want to get a feel if people go

through their regular doctor or if more of a specialized orthopedic doctor would

be my best bet.

Another question, has anyone ever tried the homeopathic way of dealith with

their back, bones, arthritis? Did it work?

Sorry for so many questions. Just getting frustrated, but also realize I need to

make some lifestyle changes.

Thanks,

Rainey

[Guest guest]

Harold,

I do not only take doctors advice on meds. I know I can't take them from almost

20 years experience. I have always been drug sensitive. I was just tested and in

4 years my liver has not gotten any worse but it is no better either. In the

past year alone I have been to the ER 3 times for pain medicine side effects.

After taking cough medicine with a small amount of codiene in it I started

itching, face first then step by step the rest of my body. 3 hours after taking

it my body was so covered with bloody marks when I went into the ER I had to

tell them I was there for a drug reaction. They thought I had been in an

accident. The second time my doctor gave me dilaudid for pain as it was a much

weaker opiate than all the rest I had taken and had reactions from. That Er

visit I started itching, then swelling, then I could not take deep breaths, then

I was only taking every other breath. They told me I could die from taking

opiates as I might just stop

breathing. I can't take NSAIDS because they make me retain fluids so bad it

effects my breathing and my blood pressure goes dangerously high, stoke level

high. I can't take acetaminaphen because of furthering the damage to my liver. I

could sit here all night and give you reasons why I can't take pain meds, and

for that matter arthritis meds. and other drugs for other conditions. These are

not arbitrary reasons or nonsense that a doctor has told me. These are life

experiences. I WOULD RATHER BE ALIVE AND HURTING THAN PAIN FREE AND DEAD, but

that is just the way I feel.

Jane H.

From: minnesotareader <minnesotareader>

Subject: [PainInTheNeck- Back] New to the group

PainInTheNeck- Back@groups .com

Date: Sunday, October 25, 2009, 7:11 AM

 

Hi everyone,

After another painful adventure with my sciatic nerve, I thought it's time for

me to seek out some support first before ANOTHER visit to the doctor or

chiropractor. I am 51(f) who's had back problems since she was about 14 with

scoliosis graduating to a lower herniated disk. Within the last 1.5-2 years

found out I injured my tailbone. They did an MRI then ruling out bone cancer.

However, my tailbone still hurts, not as much (except for now), but I don't

think the pain ever quite went away. I was prescribed 600 mg/Ibuprofen ever 3/4

hours, which helped at first. Yesterday I wasn't even sure the 600 mg was even

helping. But I don't like the idea of taking that much, but will when pain is

bad. My doctor had said she had a couple of patients have their tailbone

removed. She didn't think people should still have problems after 1 year. Has

anyone ever had surgery done on their tailbone?

I sit quite a bit: 1.5 hours traveling to/from work each day, I do admin work,

therefore, sit most of the day. I am the first to admit I don't get the exercise

in that I need to or always do back stretch exercises. And apparently it shows

when my back starts acting up, like now. Just want to get a feel if people go

through their regular doctor or if more of a specialized orthopedic doctor would

be my best bet.

Another question, has anyone ever tried the homeopathic way of dealith with

their back, bones, arthritis? Did it work?

Sorry for so many questions. Just getting frustrated, but also realize I need to

make some lifestyle changes.

Thanks,

Rainey

[Guest guest]

Greg,

I am sorry for your pain.. Your case seems like an especially bad one.. I

live in Utah so can not help with you need but want to wish you well..

Tom

In a message dated 2/24/2010 11:10:24 P.M. Mountain Standard Time,

gmdeboer@... writes:

I am new to the group and wanted to take a few minutes to introduce my self

and give a somewhat brief overview of my life changing injury that has

left me in horrible pain…each and every day….every passing moment of every

hour. In February 2007 I was working for the Federal Government and without

going into all the boring details I will cut straight to the point. I fell

27 feet and though I am lucky to be alive my horrible nightmare of pain

started the day I had this horrific fall. I was left paralyzed in my legs for a

little while after the fall but when paramedics arrived they were able to

straighten me out which helped me to regain feeling and control over my

legs. I injured T6/T7 protruding 3mm into my spinal canal, T11/12, and the

worst was L4/L5. I tried all of the non-surgical treatments that the doctors

would authorize (PT, LSI and Facet injections, TENS, etc..) . Ultimately I

went through surgery to remove the L4/L5 disc and in its' place they used

the Prodisc TDR (Total Disc Replacement)I am new to the group and wanted to

take a few minutes to introduce my self and give a somewhat brief overview

of my life changing injury that has left me in horrible pain…each and every

day….every passing moment of every hour. In February 2007 I was working for

the Federal Government and without going into all the boring details I

will cut straight to the point. I fell 27 feet and though I am lucky to be

alive my horrible nightmare of pain started the day I had this horrific fall.

I was left paralyzed in my legs for a little while after the fall but when

paramedics arrived they were able to straighten me out which helped me to

regain I am new to the group and wanted to take a few minutes to introduce my

self and give a somewhat brief overview of my life changing injury that

has left me in horrible pain…each and every day….every passing moment of

every hour. In February 2007 I was working for the Federal Government and

without going into all the boring details I will cut straight to the point. I

fell 27 feet and though I am lucky to be alive my horrible nightmare of pain

started the day I had this horrific fall. I was left paralyzed in my legs

for a little while after the fall but when paramedics arrived they were

able to straighten me out which helped me to regain feeling and control over

my legs. I injured T6/T7 protruding 3mm into my spinal canal, T11/12, and

the worst was L4/L5. I tried all of the non-surgical treatments that the

doctors would authorize (PT, LSI and Facet injections, TENS, etc..) .

Ultimately I went through surgery to remove the L4/L5 disc and in its' place

they

used the Prodisc TDR (Total Disc Replacement)<WBR>. Up until I had the

surgery I was in excruciating pain that traveled down both legs and into my

feet.

I also experienced the horrible lower back pain and also constant tingling

in portions of my feet. Within two days of having the disc replacement

surgery my pain had been reduced from a constant 6 to 7 pain scale down to a 3

to 4 pain scale. I did lose a lot of the feeling in my feet and portions

of my calves but this is to be expected when you consider the complexity of

the nerves at the location where the disc was removed. I was EXTREMELY

happy and was in the process of getting my life back. I went through a

strenuous work conditioning/<WBR>hardening program and after just 6 weeks post

surgery my surgeon lifted all light duty restrictions and sent me back to full

duty without any work/light duty restrictions. Two weeks after the surgery

I stopped taking the Oxycodone, Oxycontin, muscle relaxers and I no longer

needed medication to help me sleep at night. It was like a nightmare of

pain had finally come to an end and I could finally start living my life

again, taking my kids on outdoor adventures, playing ball with my kids, living

my life to its' fullest with my children and wife. I lived this newfound

life full of joy and happiness for the next four months till one day in

November 2008 when I was sitting on the ground and my legs went numb. I had

immediate flashbacks and horrifying memories of the pain that was still so

fresh

in my mind. I was able to shake off the numbness and regained feeling in

my legs. Two days later when I woke up for work one morning the nightmare

surfaced with a vengeance and the pain came on likI am new to the group and

wanted to take a few minutes to introduce my self and give a somewhat brief

overview of my life changing injury that has left me in horrible pain…each

and every day….every passing moment of every hour. In February 2007 I was

working for the Federal Government and without going into all the boring

details I will cut straight to the point. I fell 27 feet and though I am lucky

to be alive my horrible n

So, as you can probably tell from my email, I just want to be able to talk

with others who know what this pain is like. As you hear time and time

again….this kind of pain cannot be understood or even imagined unless you

have

been there to feel it. Just knowing there is a wonderful group of people

who have shared this pain gives me some hope and time to get my mind off of

this horrible situation. I guess if I was all alone and did not have the

most wonderful wife in the world and 4 of the most incredible children it

might be a little easier to deal with.

Since we do not have any family close by at our current home we are going

to be relocating to Western KY where my parents and siblings live. This way

we can get some much needed help with a lot of the every day tasks that I

can no longer perform. I would like to ask the group in any knows of a good

Orthopedic Spine Surgeon or Neurologist who has experience performing back

surgeries. We will be close to Paducah in KY and sville and Nashville

in TN. I would love to hear any recommendations you may have. I need to

find a good surgeon and also a good pain management doctor before we make the

move in May.

Take Care,

Greg

[Guest guest]

PUK REPLIES - BEST OPTION IS TO MOVE, BUT THAT IN ITSELF IS NOT EASY. HAVE

YOU TESTED THE FEILDS IN YOUR HOME WITH A METER ?

In a message dated 07/06/2010 04:17:36 GMT Daylight Time,

lindameetoo@... writes:

I just stumbled on this group. I believe I have electrical

hypersensitivity. I live under a powerline and There is a transformer in my

driveway. I

have lived here 13 years. I haven't felt good in 13 years except the few

times I was away for a few days. Away camping. No power my symptoms go away. My

symptoms, insomnia, malaise, dry mouth, skin and eyes.Very jittery feeling

on inside. Burning skin.brain fog. Sensitivity to Prescription

drugs.Irritable bowel. chronic fatigue. Heart palpitations. I have been to ER 5

times

in the past 4 years for extreme symptoms. Test were run and came back

negative. I get real sick when I'm in stores. The lights make me sick. Just

about everything make me sick. Cell phones get hot and make my cheek hot in

less than a minute. I sucked the life out of the batteries several times

lately. I also can't wear watches because I drain the batteries in them is a

few

hours. I feel really heavy and run down. I feel like I am not from this

planet. N o one understand. I have tried safespace gadget. It doesn't work

for me. Q link didn't work, neither did earth calm. I really don't know what

to do. Help!!

[Guest guest]

I agree, if you feel a big difference between one day camping and staying home,

I think it's best to move...

You can try some other stuff (like Quantum, Bioprotect card,...), but having

read almost all posts here, quick miracle solutions aren't that common!

You can get less sensitive but probably it'll take some time and if you're being

electrocuted there all the time it seems very difficult...

good luck,

gr,

.

>

> PUK REPLIES - BEST OPTION IS TO MOVE, BUT THAT IN ITSELF IS NOT EASY. HAVE

> YOU TESTED THE FEILDS IN YOUR HOME WITH A METER ?

>

>

> In a message dated 07/06/2010 04:17:36 GMT Daylight Time,

> lindameetoo@... writes:

>

> I just stumbled on this group. I believe I have electrical

> hypersensitivity. I live under a powerline and There is a transformer in my

driveway. I

> have lived here 13 years. I haven't felt good in 13 years except the few

> times I was away for a few days. Away camping. No power my symptoms go away.

My

> symptoms, insomnia, malaise, dry mouth, skin and eyes.Very jittery feeling

> on inside. Burning skin.brain fog. Sensitivity to Prescription

> drugs.Irritable bowel. chronic fatigue. Heart palpitations. I have been to ER

5 times

> in the past 4 years for extreme symptoms. Test were run and came back

> negative. I get real sick when I'm in stores. The lights make me sick. Just

> about everything make me sick. Cell phones get hot and make my cheek hot in

> less than a minute. I sucked the life out of the batteries several times

> lately. I also can't wear watches because I drain the batteries in them is a

few

> hours. I feel really heavy and run down. I feel like I am not from this

> planet. N o one understand. I have tried safespace gadget. It doesn't work

> for me. Q link didn't work, neither did earth calm. I really don't know what

> to do. Help!!

>

>

>

>

[Guest guest]

Move. I was feeling just as you do and had a bau biologist check out my

place and he told me to move.

Estelle

[Guest guest]

Welcome. Right to the point. Solution seems quite simple to me. Move!

I have moved 3 times in 7 years to get where I am now. I am

considering moving again unless I can do something drastic to block

the new WiFi/Cell phone radiation.

Your issue with the powerline and transformer isn't going to change

and there isn't any good way to block that stuff (magnetic fields).

If you needed someone to tell you or tell your wife, now is the time

to move, not next year. I think the economy is going to tank later

this year so now is the time to put it on the market.

my 2 cents,

On Jun 6, 2010, at 10:43 PM, lindameetoo wrote:

> I just stumbled on this group. I believe I have electrical

> hypersensitivity. I live under a powerline and There is a

> transformer in my driveway. I have lived here 13 years. I haven't

> felt good in 13 years except the few times I was away for a few

> days. Away camping. No power my symptoms go away. My symptoms,

> insomnia, malaise, dry mouth, skin and eyes.Very jittery feeling on

> inside. Burning skin.brain fog. Sensitivity to Prescription

> drugs.Irritable bowel. chronic fatigue. Heart palpitations. I have

> been to ER 5 times in the past 4 years for extreme symptoms. Test

> were run and came back negative. I get real sick when I'm in stores.

> The lights make me sick. Just about everything make me sick. Cell

> phones get hot and make my cheek hot in less than a minute. I sucked

> the life out of the batteries several times lately. I also can't

> wear watches because I drain the batteries in them is a few hours. I

> feel really heavy and run down. I feel like I am not from this

> planet. No one understand. I have tried safespace gadget. It doesn't

> work for me. Q link didn't work, neither did earth calm. I really

> don't know what to do. Help!!

>

>

>

>

> ------------------------------------

>

>