New To The Group

[Guest guest]

http://www.electrosensitivity.org/guides.htm

http://www.weepinitiative.org/

My girlfriend has been living in a largish motorhome for about a year now in the

hills in UK.

 She has found relief from:

1) Avoidance of all cell phone/dect/wireless technology/including being near

base stations

2) Avoid artificial lighting.

3) She has gas lamps for lights, gas fridge/cooker/ heating.

http://www.gas-lights.com/interior.html (ordered from USA)

4) Has no electricity in her van

5) Grounds all the time. Bare feet on wet soil/grass. Lies on the earth for full

contact. Hugs trees. Especially whens gets warm from radio frequency build ups

or other peoples body electricity.

6) Boosting her immune system. Detoxes. Vitamins: Vit d3/Calcium Eap (Mynax),

Quercetin for inflammation (plus fresh nettle and evening primrose leaf tea),

Vit B12 that dissolves under tongue, Sea buckthorn oil tablets, sea buckthorn

oil applied externally. Large multivitamin tablets.

7) Acupuncture at present/ reiki/qigong/ any form of enery work to drain her

body electricity down.

8) her van has screening, to stop rf frequencies coming through the glass, and

it is grounded to stop electricity buildup.

9) Keep away from any source of magnetic field, ie speakers, 50-60hz electrical

sources, cars have high magnetic fields. 

10) buy a Cornet meter/ trifield meter. rf measurement try and get under 10

µw/m2, trifield . Hard to achieve.

http://s160930441.onlinehome.us/

http://www.trifield.com/content/trifield-meter/   (this is really good)

11) Measure rf frequencies with cornet meter/ magnetic with Trifield. Often very

high fields under pavements/ under powerlines.

12) Going to get her to do a liver detox soon.

13) she is to remove mercury amalgam fillings.

14) Boost thyroid gland with Iodine.

15) Finds areas where she can be free from electricity in nature.

16) Relaxation exercises and yoga to calm the nervous sytem.

17) really important to get your immune system as healthy as possible.

18) Get a pet for company, she got a dog, helps her cope when it becomes too

upsetting.

19) She has a councillor to talk to.

20) get rid of all household chemicals, get ecological ones.

22) stop wearing perfumes/ metal.

23) Suprisingly crystals really help/ smoky quartz/large quartz/tourmaline etc/

They seem to absorb the electricity/energy in some way. Holding them.

She has flare ups where she has to keep out of shops, away from people, but then

normalises through avoidance. People wont understand. It seems too weird for

them.

There is a lot of good advice on here, some very technical. The best advice is

as much avoidance as possible, screen yourself or move. Measure your exposure

and learn as much as possible. If you cant be on a computer, get a friend to

print off articles to read.

Sorry to hear you are suffering. Hope some of that helps.

Regards

Charlie

From: <@...>

Subject: Re: new to the group

Date: Monday, 7 June, 2010, 12:16

 

I agree, if you feel a big difference between one day camping and staying

home, I think it's best to move...

You can try some other stuff (like Quantum, Bioprotect card,...), but having

read almost all posts here, quick miracle solutions aren't that common!

You can get less sensitive but probably it'll take some time and if you're being

electrocuted there all the time it seems very difficult...

good luck,

gr,

.

>

> PUK REPLIES - BEST OPTION IS TO MOVE, BUT THAT IN ITSELF IS NOT EASY. HAVE

> YOU TESTED THE FEILDS IN YOUR HOME WITH A METER ?

>

>

> In a message dated 07/06/2010 04:17:36 GMT Daylight Time,

> lindameetoo@... writes:

>

> I just stumbled on this group. I believe I have electrical

> hypersensitivity. I live under a powerline and There is a transformer in my

driveway. I

> have lived here 13 years. I haven't felt good in 13 years except the few

> times I was away for a few days. Away camping. No power my symptoms go away.

My

> symptoms, insomnia, malaise, dry mouth, skin and eyes.Very jittery feeling

> on inside. Burning skin.brain fog. Sensitivity to Prescription

> drugs.Irritable bowel. chronic fatigue. Heart palpitations. I have been to ER

5 times

> in the past 4 years for extreme symptoms. Test were run and came back

> negative. I get real sick when I'm in stores. The lights make me sick. Just

> about everything make me sick. Cell phones get hot and make my cheek hot in

> less than a minute. I sucked the life out of the batteries several times

> lately. I also can't wear watches because I drain the batteries in them is a

few

> hours. I feel really heavy and run down. I feel like I am not from this

> planet. N o one understand. I have tried safespace gadget. It doesn't work

> for me. Q link didn't work, neither did earth calm. I really don't know what

> to do. Help!!

>

>

>

>

[Guest guest]

Wow, sounds all too familiar! There are blocking materials that you can use but

they are very expensive. I would say yes you are EHS. Same with me when I go

camping I am fine! 

 

Best thing to do is to move if you can???? I bought this house I live in over

two years ago not knowing I was EHS and have yet to be able to sleep here. Have

8 cell antennas out my back window. 2 towers.

 

Welcome to the group. Hope we can help you!  Loni

From: lindameetoo <lindameetoo@...>

Subject: new to the group

Date: Sunday, June 6, 2010, 7:43 PM

 

I just stumbled on this group. I believe I have electrical hypersensitivity. I

live under a powerline and There is a transformer in my driveway. I have lived

here 13 years. I haven't felt good in 13 years except the few times I was away

for a few days. Away camping. No power my symptoms go away. My symptoms,

insomnia, malaise, dry mouth, skin and eyes.Very jittery feeling on inside.

Burning skin.brain fog. Sensitivity to Prescription drugs.Irritable bowel.

chronic fatigue. Heart palpitations. I have been to ER 5 times in the past 4

years for extreme symptoms. Test were run and came back negative. I get real

sick when I'm in stores. The lights make me sick. Just about everything make me

sick. Cell phones get hot and make my cheek hot in less than a minute. I sucked

the life out of the batteries several times lately. I also can't wear watches

because I drain the batteries in them is a few hours. I feel really heavy and

run down. I feel like I am not from

this planet. No one understand. I have tried safespace gadget. It doesn't work

for me. Q link didn't work, neither did earth calm. I really don't know what to

do. Help!!

[Guest guest]

Thank you. It's nice to hear from someone that understands.

From: loni326@...

Date: Mon, 7 Jun 2010 08:39:47 -0700

Subject: Re: new to the group

Wow, sounds all too familiar! There are blocking materials that you can

use but they are very expensive. I would say yes you are EHS. Same with me when

I go camping I am fine!

Best thing to do is to move if you can???? I bought this house I live in over

two years ago not knowing I was EHS and have yet to be able to sleep here. Have

8 cell antennas out my back window. 2 towers.

Welcome to the group. Hope we can help you! Loni

From: lindameetoo <lindameetoo@...>

Subject: new to the group

Date: Sunday, June 6, 2010, 7:43 PM

I just stumbled on this group. I believe I have electrical hypersensitivity. I

live under a powerline and There is a transformer in my driveway. I have lived

here 13 years. I haven't felt good in 13 years except the few times I was away

for a few days. Away camping. No power my symptoms go away. My symptoms,

insomnia, malaise, dry mouth, skin and eyes.Very jittery feeling on inside.

Burning skin.brain fog. Sensitivity to Prescription drugs.Irritable bowel.

chronic fatigue. Heart palpitations. I have been to ER 5 times in the past 4

years for extreme symptoms. Test were run and came back negative. I get real

sick when I'm in stores. The lights make me sick. Just about everything make me

sick. Cell phones get hot and make my cheek hot in less than a minute. I sucked

the life out of the batteries several times lately. I also can't wear watches

because I drain the batteries in them is a few hours. I feel really heavy and

run down. I feel like I am not from

this planet. No one understand. I have tried safespace gadget. It doesn't work

for me. Q link didn't work, neither did earth calm. I really don't know what to

do. Help!!

[Guest guest]

Welcome to the group. It does sound like you have e.s. I feel awesome when I go

hiking.

This group has been great ! It is nice to have support, understanding and to

share information. This is such a bizarre illness, it would be even harder to

deal with without the support of the group.

Maureen

____________________________________________________________

Penny Stock Jumping 2000%

Sign up to the #1 voted penny stock newsletter for free today!

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[Guest guest]

Welcome to the group , and good luck - it's tough to deal with,

especially when you have to face disbelief from lots of people.

For a lot of people, shielding and pendants help, but I'm afraid that for

you, you probably will have to get out of the house, at least for the night.

Powerlines over the house and a transformer in your driveway are really bad

news - now you are sensitised to their effects, they will be continuously

reinforced. The symptoms fit, and I guess you probably have trouble

sleeping too?

My wife Sue has ES and it got unbearable at one point - she went away and

camped in local woodland, by a lake and in a remote area for a summer. It

was drastic, but it broke the vicious circle. She got some good sleep and

it helped her start recovering. She also had treatment and gradually

improved and could live and sleep back in the house again - all the same we

eventually had to move to a more benign location. But her exposure would

have been a fraction of yours in your location :-(

Ian

_____

From: [mailto: ] On Behalf Of

Silva

Sent: 07 June 2010 18:05

esens

Subject: RE: new to the group

Thank you. It's nice to hear from someone that understands.

<mailto:%40>

From: loni326@... <mailto:loni326%40>

Date: Mon, 7 Jun 2010 08:39:47 -0700

Subject: Re: new to the group

Wow, sounds all too familiar! There are blocking materials that you can use

but they are very expensive. I would say yes you are EHS. Same with me when

I go camping I am fine!

Best thing to do is to move if you can???? I bought this house I live in

over two years ago not knowing I was EHS and have yet to be able to sleep

here. Have 8 cell antennas out my back window. 2 towers.

Welcome to the group. Hope we can help you! Loni

From: lindameetoo <lindameetoo@... <mailto:lindameetoo%40msn.com> >

Subject: new to the group

<mailto:%40>

Date: Sunday, June 6, 2010, 7:43 PM

I just stumbled on this group. I believe I have electrical hypersensitivity.

I live under a powerline and There is a transformer in my driveway. I have

lived here 13 years. I haven't felt good in 13 years except the few times I

was away for a few days. Away camping. No power my symptoms go away. My

symptoms, insomnia, malaise, dry mouth, skin and eyes.Very jittery feeling

on inside. Burning skin.brain fog. Sensitivity to Prescription

drugs.Irritable bowel. chronic fatigue. Heart palpitations. I have been to

ER 5 times in the past 4 years for extreme symptoms. Test were run and came

back negative. I get real sick when I'm in stores. The lights make me sick.

Just about everything make me sick. Cell phones get hot and make my cheek

hot in less than a minute. I sucked the life out of the batteries several

times lately. I also can't wear watches because I drain the batteries in

them is a few hours. I feel really heavy and run down. I feel like I am not

from

this planet. No one understand. I have tried safespace gadget. It doesn't

work for me. Q link didn't work, neither did earth calm. I really don't know

what to do. Help!!

[Guest guest]

It weird that you menstion this, draining batteries. As ive just noticed this as

well.

And i dont evening need to touch the devises, Super powers!!!

I have delt with many ES symtoms by praticing Q Gong. Controling energy. What

comes in and out etc, its worth giving it a go. It takes a lot of control.

Try having a look at this site for help as well.http://www.es-uk.info/

Im 80-90 % better than i was 2 years ago. Need to move asap!

Good Luck.

Best

Giles UK

From: lindameetoo <lindameetoo@...>

Subject: new to the group

Date: Sunday, June 6, 2010, 7:43 PM

I just stumbled on this group. I believe I have electrical hypersensitivity. I

live under a powerline and There is a transformer in my driveway. I have lived

here 13 years. I haven't felt good in 13 years except the few times I was away

for a few days. Away camping. No power my symptoms go away. My symptoms,

insomnia, malaise, dry mouth, skin and eyes.Very jittery feeling on inside.

Burning skin.brain fog. Sensitivity to Prescription drugs.Irritable bowel.

chronic fatigue. Heart palpitations. I have been to ER 5 times in the past 4

years for extreme symptoms. Test were run and came back negative. I get real

sick when I'm in stores. The lights make me sick. Just about everything make me

sick. Cell phones get hot and make my cheek hot in less than a minute. I sucked

the life out of the batteries several times lately. I also can't wear watches

because I drain the batteries in them is a few hours. I feel really heavy and

run down. I feel like I am not from

this planet. No one understand. I have tried safespace gadget. It doesn't work

for me. Q link didn't work, neither did earth calm. I really don't know what to

do. Help!!

[Guest guest]

> It weird that you menstion this, draining batteries. As ive just noticed

> this as well. And i dont evening need to touch the devises, Super powers!!!

Yes, that is pretty odd, draining batteries, although I've seen it

mentioned here several times. I just wonder what exactly is going

on with that?

Marc

[Guest guest]

puk replies - perhaps the only explanation is to do with the capacitance of

the person cuasing a flow of electrons from the battery into the person I

think electrons pool into areas of high concentraction ? sugessting that

the ES person is heavily overloaded with electrical energy !!

puk

In a message dated 08/06/2010 19:40:27 GMT Daylight Time,

marc@... writes:

> It weird that you menstion this, draining batteries. As ive just noticed

> this as well. And i dont evening need to touch the devises, Super

powers!!!

Yes, that is pretty odd, draining batteries, although I've seen it

mentioned here several times. I just wonder what exactly is going

on with that?

Marc

[Guest guest]

, yes could be sth like that...

3 years ago I had a personal contact with a Buddhist munk (one of the 3 leaders

of the Thom Krabok monastery close to Bangkok),

When he touched me he got a huge electric shock, he was really amazed. He felt

the shock at his blackberry-kinda phone. It could be that I emptied his battery,

although I don't think we had checked that. Unsurprisingly he " felt " a lot of

electricity in my body, but he also said other things that were right and that

he couldn't have known otherwise...

It was kinda strange a Buddhist munk, you know they live very sober and only

wear a robe but he did have quite an advanced cellphone! Oh well, I think their

meditation sessions block them from all negative energy! ;-)

I'm going back there in 2 weeks... It's very inspirational the energy you feel

in the entire monastery, the monastery there is actually one big village on a

hill...

gr,

.

>

> puk replies - perhaps the only explanation is to do with the capacitance of

> the person cuasing a flow of electrons from the battery into the person I

> think electrons pool into areas of high concentraction ? sugessting that

> the ES person is heavily overloaded with electrical energy !!

>

> puk

>

>

> In a message dated 08/06/2010 19:40:27 GMT Daylight Time,

> marc@... writes:

>

> > It weird that you menstion this, draining batteries. As ive just noticed

> > this as well. And i dont evening need to touch the devises, Super

> powers!!!

>

> Yes, that is pretty odd, draining batteries, although I've seen it

> mentioned here several times. I just wonder what exactly is going

> on with that?

>

> Marc

>

>

>

>

[Guest guest]

PUK replies - Dare you enlighten him !

In a message dated 09/06/2010 16:20:18 GMT Daylight Time,

@... writes:

It was kinda strange a Buddhist munk, you know they live very sober and

only wear a robe but he did have quite an advanced cellphone! Oh well, I

think their meditation sessions block them from all negative energy! ;-)

[Guest guest]

Hi again, ,

 

I was just refreshing my memory on all your symptoms.  As to your inability to

take medications....  Have you ever tried taking the meds which you do not

tolerate in much smaller amounts?  How do you react, if you have?  The reason

I ask is I now know why I could not take meds.  It had nothing to do with

intolerance to the meds, but it was because I was trying to take regular doses

but I had blood-brain barrier damage which allowed more meds into my brain than

a normal person would get by taking the same amount.  That is also why I have

MCS--chemical sensitivity. 

 

Knowing this might make it possible for you to find a medication amount you can

tolerate.  Also, it gives you an idea as to what problems to look for--for

instance, this bbb damage is caused only by certain things.  If you know what

to look for, you can then find a doctor who can test for these.  In my case,

what damaged my bbb was celiac disease (a genetic disease which causes gluten

intolerance).

 

Btw, I am very much better and can live a fairly normal life most of the time,

now.  I still avoid wireless, chemicals, etc when I can.  But I agree, a

Quantum Pro is not likely to improve your life enough where you live.  It is

unanimous--I think you need to move.  But once you move, the Q Pro might be

enough to help you live fairly normally.  It is interesting that you still can

go away and be well!  I was unable to be well even away from home, my

adrenals/immune system were so bad.  Glad you found help with a springless

bed, too.  (I use an air mattress.) 

I wish you the very best,

Diane/Evie

From: lindameetoo <lindameetoo@...>

Subject: new to the group

Date: Sunday, June 6, 2010, 10:43 PM

 

I just stumbled on this group. I believe I have electrical hypersensitivity. I

live under a powerline and There is a transformer in my driveway. I have lived

here 13 years. I haven't felt good in 13 years except the few times I was away

for a few days. Away camping. No power my symptoms go away. My symptoms,

insomnia, malaise, dry mouth, skin and eyes.Very jittery feeling on inside.

Burning skin.brain fog. Sensitivity to Prescription drugs.Irritable bowel.

chronic fatigue. Heart palpitations. I have been to ER 5 times in the past 4

years for extreme symptoms. Test were run and came back negative. I get real

sick when I'm in stores. The lights make me sick. Just about everything make me

sick. Cell phones get hot and make my cheek hot in less than a minute. I sucked

the life out of the batteries several times lately. I also can't wear watches

because I drain the batteries in them is a few hours. I feel really heavy and

run down. I feel like I am not from

this planet. No one understand. I have tried safespace gadget. It doesn't work

for me. Q link didn't work, neither did earth calm. I really don't know what to

do. Help!!

[Guest guest]

Hi, Diane

I do have to take baby doses of over the counter meds. I have the side effects

for days after on some things.

I some times have to cut the pills into 1/4. They don't work as good, but they

are tolerated. Still takes a long time to wear off. I don't seem to have as many

side effects with herbs. I have found a few that help some. I went on a retreat

last weekend with my church. I was so looking forward to getting away. I felt

really bad the whole time I was there. I guess they had a cell tower on the

property. All of our cell phones worked. The last time I was up there they

didn't. I'm not going to Mexico this year. The last 6 years I felt good when I

was down there. I thought at first it was because I was doing missionary work.

Then maybe it was the ocean air and no electricity. The electric line was one

cable that stretched along the beach. I was not that close to it. I had less

pain and the buzziness was gone. I came back home and it came back. Last year I

was eating special detox food that my Dr. put me on. He thought it was

metagenics that helped me feel better. The detox only helped a little. I think

he believes me now that my house is making me sick. He says I should move. Where

do I move too?

btw I listed all my symptoms. Just the worse one's. I have this patch of skin on

my left thigh that burns all the time, but doesn't hurt to touch it. That is

odd. What is that humming bed springs thing.weird! ringing ears, red, dry eyes

and skin. irritable bowel, insomnia, chest pains, pounding heart, skipping heart

beats, fatigue, muscle aches and joint pains. I Always hurt. headaches. Pressure

around my head( like i'm wearing a head band to tight), memory problems, trouble

concentrating, No libido. Really sensitive to drugs. I can't remember what else.

I feel like I am super charged, but don't have any energy. I hope when I go see

my grandkids this weekend, I will feel better. I will be out of this house for

3 days. Then the next weekend I'm going camping at Silverwood Lake for 4 days.

I hope they don't have wifi there. I read that the campgrounds are providing

wifi for those campers that can't get away from their computers. I'm a tent

camper. I might just sleep on the ground. or hug a tree.

The last time I felt good. A girl from my old chiropractors office did a reiki

thing on me. (She did it during her lunch our) I don't know what she did cause I

had my eyes closed. She said I had trapped energy in my body. I felt at peace

for about an hour. That was about a year ago. I don't know where she went.

Thanks for letting me babble.

From: evie15422@...

Date: Fri, 11 Jun 2010 12:42:40 -0700

Subject: Re: new to the group

Hi again, ,

I was just refreshing my memory on all your symptoms. As to your inability to

take medications.... Have you ever tried taking the meds which you do not

tolerate in much smaller amounts? How do you react, if you have? The reason I

ask is I now know why I could not take meds. It had nothing to do with

intolerance to the meds, but it was because I was trying to take regular doses

but I had blood-brain barrier damage which allowed more meds into my brain than

a normal person would get by taking the same amount. That is also why I have

MCS--chemical sensitivity.

Knowing this might make it possible for you to find a medication amount you can

tolerate. Also, it gives you an idea as to what problems to look for--for

instance, this bbb damage is caused only by certain things. If you know what to

look for, you can then find a doctor who can test for these. In my case, what

damaged my bbb was celiac disease (a genetic disease which causes gluten

intolerance).

Btw, I am very much better and can live a fairly normal life most of the time,

now. I still avoid wireless, chemicals, etc when I can. But I agree, a Quantum

Pro is not likely to improve your life enough where you live. It is

unanimous--I think you need to move. But once you move, the Q Pro might be

enough to help you live fairly normally. It is interesting that you still can

go away and be well! I was unable to be well even away from home, my

adrenals/immune system were so bad. Glad you found help with a springless bed,

too. (I use an air mattress.)

I wish you the very best,

Diane/Evie

From: lindameetoo <lindameetoo@...>

Subject: new to the group

Date: Sunday, June 6, 2010, 10:43 PM

I just stumbled on this group. I believe I have electrical hypersensitivity. I

live under a powerline and There is a transformer in my driveway. I have lived

here 13 years. I haven't felt good in 13 years except the few times I was away

for a few days. Away camping. No power my symptoms go away. My symptoms,

insomnia, malaise, dry mouth, skin and eyes.Very jittery feeling on inside.

Burning skin.brain fog. Sensitivity to Prescription drugs.Irritable bowel.

chronic fatigue. Heart palpitations. I have been to ER 5 times in the past 4

years for extreme symptoms. Test were run and came back negative. I get real

sick when I'm in stores. The lights make me sick. Just about everything make me

sick. Cell phones get hot and make my cheek hot in less than a minute. I sucked

the life out of the batteries several times lately. I also can't wear watches

because I drain the batteries in them is a few hours. I feel really heavy and

run down. I feel like I am not from

this planet. No one understand. I have tried safespace gadget. It doesn't work

for me. Q link didn't work, neither did earth calm. I really don't know what to

do. Help!!

[Guest guest]

Yes I agree Diane; none of these devices are a panacea. Avoidance is the best

way. They can help a little but not alleviate the problem totally.  Loni

 

From: lindameetoo <lindameetoo@...>

Subject: new to the group

Date: Sunday, June 6, 2010, 10:43 PM

 

I just stumbled on this group. I believe I have electrical hypersensitivity. I

live under a powerline and There is a transformer in my driveway. I have lived

here 13 years. I haven't felt good in 13 years except the few times I was away

for a few days. Away camping. No power my symptoms go away. My symptoms,

insomnia, malaise, dry mouth, skin and eyes.Very jittery feeling on inside.

Burning skin.brain fog. Sensitivity to Prescription drugs.Irritable bowel.

chronic fatigue. Heart palpitations. I have been to ER 5 times in the past 4

years for extreme symptoms. Test were run and came back negative. I get real

sick when I'm in stores. The lights make me sick. Just about everything make me

sick. Cell phones get hot and make my cheek hot in less than a minute. I sucked

the life out of the batteries several times lately. I also can't wear watches

because I drain the batteries in them is a few hours. I feel really heavy and

run down. I feel like I am not from

this planet. No one understand. I have tried safespace gadget. It doesn't work

for me. Q link didn't work, neither did earth calm. I really don't know what to

do. Help!!

[Guest guest]

Welcome ,

I am sorry to hear about your son's condition. It is hard for anyone who has a

chronic illness or chronic pain when they are an adult, but it has to be even

worse for a child. I hope you can get answers to your questions here. At the

very least you will meet some very nice people who also have health issues or

family with them to commiserate with.

Jane H.

From: H <wkhatfield812@...>

Subject: new to the group

neck pain

Date: Friday, November 12, 2010, 11:38 AM

 

Hi. I am new to the group and thought I would introduce myself. I am her

for my son, Isaac. He is 11 yrs old and has been dealing with low grade brain

and spinal tumors since 2006 (diagnosed just days before he turned 7). His

spinal tumors have never been much of an issue. They've been there but have

never grown. He does have some tingling in his feet that I assume comes from

them (he also had a stroke during a surgery so he has right side weakness,

severe spech delay, etc so sometimes I don't know what is from tumr and what is

from the stroke aftermath). Anyway, for the past month or so Isaac has been

complaining of back pain. Not severe but he doesn't like his back around his

spine being touched. Naturally, I have been worried and axiously awaiting his

next MRI. He had that MRI on Monday. His tumor at the T4-T5 level remains

stable - weird because this is where he is complaining of the most pain. Isaac

also has two tumors at the L5-S1

area that have grown. They are still tiny - one grew from 8mm to 11mm and the

other from 4.5mm to 6mm. The growth worries me because they have never grown

before. I have been told by many that measurements aren't exact but for Isaac

these tumors have always measured the same. I think this growth is for real.

I am here to look for more info on spinal tumors and back pain. Thans for

leting me join.

[Guest guest]

Welcome ,

I am sorry to hear about your son's condition. It is hard for anyone who has a

chronic illness or chronic pain when they are an adult, but it has to be even

worse for a child. I hope you can get answers to your questions here. At the

very least you will meet some very nice people who also have health issues or

family with them to commiserate with.

Jane H.

From: H <wkhatfield812@...>

Subject: new to the group

neck pain

Date: Friday, November 12, 2010, 11:38 AM

 

Hi. I am new to the group and thought I would introduce myself. I am her

for my son, Isaac. He is 11 yrs old and has been dealing with low grade brain

and spinal tumors since 2006 (diagnosed just days before he turned 7). His

spinal tumors have never been much of an issue. They've been there but have

never grown. He does have some tingling in his feet that I assume comes from

them (he also had a stroke during a surgery so he has right side weakness,

severe spech delay, etc so sometimes I don't know what is from tumr and what is

from the stroke aftermath). Anyway, for the past month or so Isaac has been

complaining of back pain. Not severe but he doesn't like his back around his

spine being touched. Naturally, I have been worried and axiously awaiting his

next MRI. He had that MRI on Monday. His tumor at the T4-T5 level remains

stable - weird because this is where he is complaining of the most pain. Isaac

also has two tumors at the L5-S1

area that have grown. They are still tiny - one grew from 8mm to 11mm and the

other from 4.5mm to 6mm. The growth worries me because they have never grown

before. I have been told by many that measurements aren't exact but for Isaac

these tumors have always measured the same. I think this growth is for real.

I am here to look for more info on spinal tumors and back pain. Thans for

leting me join.

[Guest guest]

Welcome ,

I am sorry to hear about your son's condition. It is hard for anyone who has a

chronic illness or chronic pain when they are an adult, but it has to be even

worse for a child. I hope you can get answers to your questions here. At the

very least you will meet some very nice people who also have health issues or

family with them to commiserate with.

Jane H.

From: H <wkhatfield812@...>

Subject: new to the group

neck pain

Date: Friday, November 12, 2010, 11:38 AM

 

Hi. I am new to the group and thought I would introduce myself. I am her

for my son, Isaac. He is 11 yrs old and has been dealing with low grade brain

and spinal tumors since 2006 (diagnosed just days before he turned 7). His

spinal tumors have never been much of an issue. They've been there but have

never grown. He does have some tingling in his feet that I assume comes from

them (he also had a stroke during a surgery so he has right side weakness,

severe spech delay, etc so sometimes I don't know what is from tumr and what is

from the stroke aftermath). Anyway, for the past month or so Isaac has been

complaining of back pain. Not severe but he doesn't like his back around his

spine being touched. Naturally, I have been worried and axiously awaiting his

next MRI. He had that MRI on Monday. His tumor at the T4-T5 level remains

stable - weird because this is where he is complaining of the most pain. Isaac

also has two tumors at the L5-S1

area that have grown. They are still tiny - one grew from 8mm to 11mm and the

other from 4.5mm to 6mm. The growth worries me because they have never grown

before. I have been told by many that measurements aren't exact but for Isaac

these tumors have always measured the same. I think this growth is for real.

I am here to look for more info on spinal tumors and back pain. Thans for

leting me join.

[Guest guest]

Welcome ,

I am sorry to hear about your son's condition. It is hard for anyone who has a

chronic illness or chronic pain when they are an adult, but it has to be even

worse for a child. I hope you can get answers to your questions here. At the

very least you will meet some very nice people who also have health issues or

family with them to commiserate with.

Jane H.

From: H <wkhatfield812@...>

Subject: new to the group

neck pain

Date: Friday, November 12, 2010, 11:38 AM

 

Hi. I am new to the group and thought I would introduce myself. I am her

for my son, Isaac. He is 11 yrs old and has been dealing with low grade brain

and spinal tumors since 2006 (diagnosed just days before he turned 7). His

spinal tumors have never been much of an issue. They've been there but have

never grown. He does have some tingling in his feet that I assume comes from

them (he also had a stroke during a surgery so he has right side weakness,

severe spech delay, etc so sometimes I don't know what is from tumr and what is

from the stroke aftermath). Anyway, for the past month or so Isaac has been

complaining of back pain. Not severe but he doesn't like his back around his

spine being touched. Naturally, I have been worried and axiously awaiting his

next MRI. He had that MRI on Monday. His tumor at the T4-T5 level remains

stable - weird because this is where he is complaining of the most pain. Isaac

also has two tumors at the L5-S1

area that have grown. They are still tiny - one grew from 8mm to 11mm and the

other from 4.5mm to 6mm. The growth worries me because they have never grown

before. I have been told by many that measurements aren't exact but for Isaac

these tumors have always measured the same. I think this growth is for real.

I am here to look for more info on spinal tumors and back pain. Thans for

leting me join.

[Guest guest]

Welcome ,

It woulds like you have your hands full and I will keep you and son in my

thoughts--

Annie

 A poet is, after all, to see

________________________________

From: H <wkhatfield812@...>

neck pain

Sent: Fri, November 12, 2010 11:38:06 AM

Subject: new to the group

Hi. I am new to the group and thought I would introduce myself.  I am her for my

son, Isaac.  He is 11 yrs old and has been dealing with low grade brain and

spinal tumors since 2006 (diagnosed just days before he turned 7).  His spinal

tumors have never been much of an issue. They've been there but have never

grown.  He does have some tingling in his feet that I assume comes from them (he

also had a stroke during a surgery so he has right side weakness, severe spech

delay, etc so sometimes I don't know what is from tumr and what is from the

stroke aftermath).  Anyway, for the past month or so Isaac has been complaining

of back pain.  Not severe but he doesn't like his back around his spine being

touched.  Naturally, I have been worried and axiously awaiting his next MRI.  He

had that MRI on Monday.  His tumor at the T4-T5 level remains stable - weird

because this is where he is complaining of the most pain.  Isaac also has two

tumors at the L5-S1 area that have grown.  They are still tiny - one grew from

8mm to 11mm and the other from 4.5mm to 6mm.  The growth worries me because they

have never grown before.  I have been told by many that measurements aren't

exact but for Isaac these tumors have always measured the same.  I think this

growth is for real.

I am here to look for more info on spinal tumors and back pain.  Thans for

leting me join. 

------------------------------------

[Guest guest]

Welcome ,

It woulds like you have your hands full and I will keep you and son in my

thoughts--

Annie

 A poet is, after all, to see

________________________________

From: H <wkhatfield812@...>

neck pain

Sent: Fri, November 12, 2010 11:38:06 AM

Subject: new to the group

Hi. I am new to the group and thought I would introduce myself.  I am her for my

son, Isaac.  He is 11 yrs old and has been dealing with low grade brain and

spinal tumors since 2006 (diagnosed just days before he turned 7).  His spinal

tumors have never been much of an issue. They've been there but have never

grown.  He does have some tingling in his feet that I assume comes from them (he

also had a stroke during a surgery so he has right side weakness, severe spech

delay, etc so sometimes I don't know what is from tumr and what is from the

stroke aftermath).  Anyway, for the past month or so Isaac has been complaining

of back pain.  Not severe but he doesn't like his back around his spine being

touched.  Naturally, I have been worried and axiously awaiting his next MRI.  He

had that MRI on Monday.  His tumor at the T4-T5 level remains stable - weird

because this is where he is complaining of the most pain.  Isaac also has two

tumors at the L5-S1 area that have grown.  They are still tiny - one grew from

8mm to 11mm and the other from 4.5mm to 6mm.  The growth worries me because they

have never grown before.  I have been told by many that measurements aren't

exact but for Isaac these tumors have always measured the same.  I think this

growth is for real.

I am here to look for more info on spinal tumors and back pain.  Thans for

leting me join. 

------------------------------------

[Guest guest]

Welcome ,

It woulds like you have your hands full and I will keep you and son in my

thoughts--

Annie

 A poet is, after all, to see

________________________________

From: H <wkhatfield812@...>

neck pain

Sent: Fri, November 12, 2010 11:38:06 AM

Subject: new to the group

Hi. I am new to the group and thought I would introduce myself.  I am her for my

son, Isaac.  He is 11 yrs old and has been dealing with low grade brain and

spinal tumors since 2006 (diagnosed just days before he turned 7).  His spinal

tumors have never been much of an issue. They've been there but have never

grown.  He does have some tingling in his feet that I assume comes from them (he

also had a stroke during a surgery so he has right side weakness, severe spech

delay, etc so sometimes I don't know what is from tumr and what is from the

stroke aftermath).  Anyway, for the past month or so Isaac has been complaining

of back pain.  Not severe but he doesn't like his back around his spine being

touched.  Naturally, I have been worried and axiously awaiting his next MRI.  He

had that MRI on Monday.  His tumor at the T4-T5 level remains stable - weird

because this is where he is complaining of the most pain.  Isaac also has two

tumors at the L5-S1 area that have grown.  They are still tiny - one grew from

8mm to 11mm and the other from 4.5mm to 6mm.  The growth worries me because they

have never grown before.  I have been told by many that measurements aren't

exact but for Isaac these tumors have always measured the same.  I think this

growth is for real.

I am here to look for more info on spinal tumors and back pain.  Thans for

leting me join. 

------------------------------------

[Guest guest]

Welcome ,

It woulds like you have your hands full and I will keep you and son in my

thoughts--

Annie

 A poet is, after all, to see

________________________________

From: H <wkhatfield812@...>

neck pain

Sent: Fri, November 12, 2010 11:38:06 AM

Subject: new to the group

Hi. I am new to the group and thought I would introduce myself.  I am her for my

son, Isaac.  He is 11 yrs old and has been dealing with low grade brain and

spinal tumors since 2006 (diagnosed just days before he turned 7).  His spinal

tumors have never been much of an issue. They've been there but have never

grown.  He does have some tingling in his feet that I assume comes from them (he

also had a stroke during a surgery so he has right side weakness, severe spech

delay, etc so sometimes I don't know what is from tumr and what is from the

stroke aftermath).  Anyway, for the past month or so Isaac has been complaining

of back pain.  Not severe but he doesn't like his back around his spine being

touched.  Naturally, I have been worried and axiously awaiting his next MRI.  He

had that MRI on Monday.  His tumor at the T4-T5 level remains stable - weird

because this is where he is complaining of the most pain.  Isaac also has two

tumors at the L5-S1 area that have grown.  They are still tiny - one grew from

8mm to 11mm and the other from 4.5mm to 6mm.  The growth worries me because they

have never grown before.  I have been told by many that measurements aren't

exact but for Isaac these tumors have always measured the same.  I think this

growth is for real.

I am here to look for more info on spinal tumors and back pain.  Thans for

leting me join. 

------------------------------------

[Guest guest]

Is it possible that the pain is due to your son's growth. Maybe his normal

growth is now pushing the spine more onto the tumor..

I would look at that as a possibility..

Tom

In a message dated 11/12/2010 8:38:19 A.M. Mountain Standard Time,

wkhatfield812@... writes:

Hi. I am new to the group and thought I would introduce myself. I am her

for my son, Isaac. He is 11 yrs old and has been dealing with low grade brain

and spinal tumors since 2006 (diagnosed just days before he turned 7). His

spinal tumors have never been much of an issue. They've been there but

have never grown. He does have some tingling in his feet that I assume comes

from them (he also had a stroke during a surgery so he has right side

weakness, severe spech delay, etc so sometimes I don't know what is from tumr

and

what is from the stroke aftermath). Anyway, for the past month or so Isaac

has been complaining of back pain. Not severe but he doesn't like his back

around his spine being touched. Naturally, I have been worried and

axiously awaiting his next MRI. He had that MRI on Monday. His tumor at the

T4-T5

level remains stable - weird because this is where he is complaining of the

most pain. Isaac also has two tumors at the L5-S1 area that have grown .

They are still tiny - one grew from 8mm to 11mm and the other from 4.5mm to

6mm. The growth worries me because they have never grown before. I have

been told by many that measurements aren't exact but for Isaac these tumors

have always measured the same. I think this growth is for real.

I am here to look for more info on spinal tumors and back pain. Thans for

leting me join.

[Guest guest]

Is it possible that the pain is due to your son's growth. Maybe his normal

growth is now pushing the spine more onto the tumor..

I would look at that as a possibility..

Tom

In a message dated 11/12/2010 8:38:19 A.M. Mountain Standard Time,

wkhatfield812@... writes:

Hi. I am new to the group and thought I would introduce myself. I am her

for my son, Isaac. He is 11 yrs old and has been dealing with low grade brain

and spinal tumors since 2006 (diagnosed just days before he turned 7). His

spinal tumors have never been much of an issue. They've been there but

have never grown. He does have some tingling in his feet that I assume comes

from them (he also had a stroke during a surgery so he has right side

weakness, severe spech delay, etc so sometimes I don't know what is from tumr

and

what is from the stroke aftermath). Anyway, for the past month or so Isaac

has been complaining of back pain. Not severe but he doesn't like his back

around his spine being touched. Naturally, I have been worried and

axiously awaiting his next MRI. He had that MRI on Monday. His tumor at the

T4-T5

level remains stable - weird because this is where he is complaining of the

most pain. Isaac also has two tumors at the L5-S1 area that have grown .

They are still tiny - one grew from 8mm to 11mm and the other from 4.5mm to

6mm. The growth worries me because they have never grown before. I have

been told by many that measurements aren't exact but for Isaac these tumors

have always measured the same. I think this growth is for real.

I am here to look for more info on spinal tumors and back pain. Thans for

leting me join.

[Guest guest]

Hello All!

I hope everyone is having a pain free day! My name is Heflin. I am 33

years old and live right outside Raleigh NC. A little about my history.. I have

had 4 spine surgeries to date. My first surgery was in 2006 and was a fusion

from C5-C7. That failed and in 2009 I had that plate removed and a new plate

from C2-C7 installed which also gave me a curve in my neck that I never had.

Even after that I was still in a lot of pain every day. Finally, I had a severe

car accident this past May which caused all kinds of issues at C7 to T3. I had

rods and pins hooked from C5 to T3 as my third surgery. I have a 10 in scar from

the top of my neck down into my back now. Finally, I had the disk and C7 removed

due to the inability to use my right hand. They replaced it with a titanium disk

and I woke up with the use of my right hand!! It was amazing. I still live with

pain, I still work a full time job, I'm a mom, and a wife. Life is stressful but

thank goodness for new technology and all the new meds out there. The depression

and headaches are probably the worst of everything but I am getting better every

day. I get trigger point injections once a month and I see a PMS once a month. I

thankfully have great doctors who really care about me and don't just give me

scripts and send me on my way. I would love to hear other peoples stories as

well. What surgeries you have had, how your feeling now. Thanks for reading my

post and for letting me join the group. Attached is a pic of my xray before my

4th and final surgery. Have a great weekend!

Heflin

Sent on the Sprint® Now Network from my BlackBerry®

[Guest guest]

My Doctor tried Synvisc, but that did not work for me.  It did for a close

friend, and she was able to postpone her surgery fro about two years.

Lots of people here have tried all sorts of things. The last ditch is the

cortisone shot, but that is only temporary.  I hope the shots work for you

All the best, Joan

________________________________

From: Carolyn <dmgkag@...>

Joint Replacement

Sent: Wednesday, October 26, 2011 8:07 PM

Subject: New to the group

 

My doctor suggested that I try Orthovisc injections, one a week for 3 weeks. Did

anyone have luck with these? It seems like there is so much to learn if I end up

having TKR. I would like to believe that the injections will work but I think I

am headed for the surgery as my knee is almost bone on bone on the medial side

and the kneecap is also involved.