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Re: migraines and sleep and stuff

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In a message dated 6/20/2004 9:54:46 PM Eastern Daylight Time,

jtwagers7@... writes:

Arg. I honestly don't know what the deciding factor will be. Some days I'm

hyped to do it and think I'll do fine; other days I have this gut feeling

that I'm not going to do well on it. Flip a coin? Pull pedals off flowers

and say " I treat; I don't treat; I treat: I don't treat " . lol.

Dear ,

I suffered from hemalytic anemia and had to stop treatment. It's taken almost

5 years to get something that looks like normal lab values. The good news is

that my liver damage isn't a horror story. So with that thought in mind, I

am going back on treatment in the fall. The last time Procrit wasn't

available. IF it does it's job, I might make it. I do understand the

flip/flop. So

I'm having a busy summer trying to get done what needs to be done, just in case

I fall on my face.

Anne

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Hi Anne....

Stay positive....with the improvements in the pegs and the procrit/epogen meds,

you will do just fine. I had problems with anemia and low platelets this time

around, but neither got low enough to pull me from treatment although I did have

to cut my ribavarinn by a pill a day...and I didn't start having problems until

about a month from finishing treatment.

I don't regret doing treatment the second time around...it was much easier with

pegasys than with the rebetron. But the biggest difference is that I responded

to the pegasys and didn't respond to rebetron. Now if I can sustain that

response...

We'll be here to help you along....

Tatezi

Re: migraines and sleep and stuff

I suffered from hemalytic anemia and had to stop treatment. It's taken almost

5 years to get something that looks like normal lab values. The good news is

that my liver damage isn't a horror story. So with that thought in mind, I

am going back on treatment in the fall. The last time Procrit wasn't

available. IF it does it's job, I might make it. I do understand the

flip/flop. So

I'm having a busy summer trying to get done what needs to be done, just in case

I fall on my face.

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In a message dated 7/3/2004 6:46:39 PM Eastern Daylight Time,

tatezi@... writes:

Stay positive....with the improvements in the pegs and the procrit/epogen

meds, you will do just fine. I had problems with anemia and low platelets this

time around, but neither got low enough to pull me from treatment although I did

have to cut my ribavarinn by a pill a day...and I didn't start having

problems until about a month from finishing treatment.

I don't regret doing treatment the second time around...it was much easier

with pegasys than with the rebetron. But the biggest difference is that I

responded to the pegasys and didn't respond to rebetron. Now if I can sustain

that

response...

We'll be here to help you along....

Dear Tat,

Thank you.

You're experience encouraged me, so, I've made the decision. I hope I made

the right decision in the minor delay. It may turn out to be an insurance

nightmare, but oh well.

Anne

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Anne,

If your insurance doesn't cover Pegasys, go to the assistance folks at

www.pegassist.com. And if your insurance doesn't cover any meds for the sides,

use those links I posted the other day...the subject line read " Prescription

Assistance. "

We don't have much medical coverage in this country, but the pharmas so have

assistance programs...I used them while unemployed...you just need a doctor to

finalize the forms and submit them.

And if you can't deal with any potential sides, then you just stop doing

treatment. I see it as sorta a no lose proposition.

Tatezi

And Willem was my inspiration for doing treatment again so I'll be yours...<g>

Re: migraines and sleep and stuff

Dear Tat,

Thank you.

You're experience encouraged me, so, I've made the decision. I hope I made

the right decision in the minor delay. It may turn out to be an insurance

nightmare, but oh well.

Anne

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