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Re: ankle stabilization

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Hello ,

Owen here,

In 1974 I was 32 and I had a triple arthrodisis (The

fusion of three ankle bones)done to my right ankle

and an Achilles Tendon lengthening. The surgery was

very successful. In 1978 I was fitted with AFOs

because my left ankle started giving me problems and the doctors did not want to

do a triple an my left ankle. The

AFOs have worked very well until very recently.

A few years after I had the triple my body rejected

the staple and started pushing it out. I had to go

back into surgery and have the staple removed, no

biggie. The doctors told me that every now and the

that happens. The staple was no longer necessary

anyway, it is only used to stabilize the bone until

it knits together.

If you have the surgery before you do go to

http://www.cmtnews.com/ and get the

articles on anesthetics you can print them.

Make sure all the doctors are aware

of your CMT. Its very important they read that

information. You should also be informed and

understand about the anesthetics.

Happy Trails,

Owen

> has HOPES!

> (Honest, Original, Positive, 'Experiential', Sharing)

>

> By 'experiential' we mean we share from our CMT experiences

> AND learn from others experience. We believe " Together

> (We) Can Manage This - CMT! " And that's done right here at

> !

>

> Awareness Nibbles:

>

> Approximately 70% of CMT is Type 1A.

> Approximately 15% of CMT is Type X.

> Did you know current world population

> estimates suggests 2 out of every 10

> children have CMT?

>

>

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Stacey,

I have had both feet done and am kicking myself for

waiting so long. No regrets here as after the second foot

was finished I was able to walk in bare feet down my hall

way. (on my soles instead of the sides of my feet)The long

term goal far outways the short term pain of the operations.

They lifted the drop foot by takig out wedges of bone and

straightned the feet similar method. I have some up and

down movement with a solid fusing with staples as well to

prevent the side roll of the feet.

Great result here.

all the Best

has HOPES!

(Honest, Original, Positive, 'Experiential', Sharing)

By 'experiential' we mean we share from our CMT experiences

AND learn from others experience. We believe " Together

(We) Can Manage This - CMT! " And that's done right here at

!

Awareness Nibbles:

Approximately 70% of CMT is Type 1A.

Approximately 15% of CMT is Type X.

Did you know current world population

estimates suggests 2 out of every 10

children have CMT?

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Guest guest

Owen,

Nice post! I had soft tissue surgery, but when I first visited

the surgeon he had wanted to perform a triple arthrodesis. A

nice member of gave me the email address of a gentleman

who had the soft tissue surgery. I contacted him and he gave

me all the details, which I relayed to the surgeon.

> > has HOPES!

> > (Honest, Original, Positive, 'Experiential', Sharing)

> >

> > By 'experiential' we mean we share from our CMT experiences

> > AND learn from others experience. We believe " Together

> > (We) Can Manage This - CMT! " And that's done right here at

> > !

> >

> > Awareness Nibbles:

> >

> > Approximately 70% of CMT is Type 1A.

> > Approximately 15% of CMT is Type X.

> > Did you know current world population

> > estimates suggests 2 out of every 10

> > children have CMT?

> >

> >

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Guest guest

Hi ,

Yes , I had an ankle fussion in 1993 on my right foot.

It has proved for me to be very successful. My right foot is

about 1/2 shorter then the left, they had to take out some bone

to correct the deformity. I buy " PW Minor in Depth Shoes " .

They added a 1/2 " to the sole and make what you call a rocker

sole along with a molded inersole. The ankle can't bend or

turn so the shoe does the work. The operation took about four

hours. They gave me a general anesthesia, They felt an epidural

would not have lasted the length of the surgery. I had

absolutely no problems in any part of the operation. I

took at least eight or more weeks for a full recovery. That is

from the day of the operation till the time I could put on a

shoe and walk with no problem. Even then it took sometime

before the foot was close to looking normal in the shoe. I had

considerable swelling, but no pain. The dam thing will never

look normal. I have CMT you know,LOL.

I walk now with about 4-5 miles a week with ever so slight a

limp, acutally I could run if the body was willing. The

Orthopedic surgeon I had only operates on feet and ankles.

Hopefully that is the kind of doctor you have. I would have the

same operation in a heart beat. A walk in the park kid. Let me

know how you do.

PS: I was 62yrs young when I had that operation. You age might

determine if there are alternatives for you at this point in

time and maybe get the fussion at a later date as say as a last

resort.

E

> has HOPES!

> (Honest, Original, Positive, 'Experiential', Sharing)

>

> By 'experiential' we mean we share from our CMT experiences

> AND learn from others experience. We believe " Together

> (We) Can Manage This - CMT! " And that's done right here at

> !

>

> Awareness Nibbles:

>

> Approximately 70% of CMT is Type 1A.

> Approximately 15% of CMT is Type X.

> Did you know current world population

> estimates suggests 2 out of every 10

> children have CMT?

>

>

>

>

>

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