Fun, vacation

[Guest guest]

Hi All!

I just wanted to say that I will be gone from the list

for at least a week beginning tomorrow(Monday 4/8).

And speaking of the poll this month, I will be on

vacation--how's that for fun! It's been at least 3

years since we went away for anything more than a

weekend, largely due to my CMT and surgery, pain,

exhaustion. I am looking forward to having fun in

Washington, DC!

I also wanted you to know that I rented a wheelchair

from my local medical supply store for $20/week! (or

$40/month!) I know that DC is a lot of pavement

walking, and we want to see as much as we can, so I

thought I'd try the chair for some things on our busy

days. If I'm doing well, I won't use it. But I think

it will be good to have the option, and not hurt

myself trying to keep up with my friends and passing

on things I might not be up for as far as walking, but

would otherwise really like to see. So I will post

something when I get back and let you all know how it

went.

My mother screamed, " Washington, DC! How the HELL are

you going to do that? It's all walking! " Considering

her silence when we talked about AFOs, and her

comments about " not giving in " and " fighting it " in my

21 years of knowing about my CMT, I just replied,

" Well, we'll see. " I just wish I could convince her,

as I am learning, that " not giving in " is not limiting

your life experiences with CMT. And " fighting it " is

finding ways to do what you want and still enjoy those

things rather than just not doing them at all. She's

not going to DC--I'm going with friends, so I didn't

see any point in going 'round with her about it.

Incidentally there is quite a variation in wheelchair

pricing, even within the same city. The first place I

checked wanted $75/month, and they wouldn't rent

weekly for me. I won't go back there for anything.

So TTFN, I'll catch up with you when I get back!

A good week to everyone!

Joyce

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[Guest guest]

Hi Joyce,

I have just returned from a three week vacation in America and I spent five

days in New York. For the first time I took a wheelchair on holiday for exactly

the same reason and with the same thoughts and do you know what I had

good energy levels and did not need to use it too often but knowing it was

there was the key I felt more relaxed and less pressured so all I can say is go

for it girl and enjoy Washington DC.

P