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For approximately 2 years now, I have been struggling more

& more with my bowel & bladder control. I’m a 44 year old mom,

with one teenage son who also has CMT.

Since September 2001, I began to wearing adult pads (diapers),

due to the loss of warning(sensation) & weak muscle with my

bladder. Only occasional accidents with bowel sensory, muscle

weakness was less of a problem. As of December 2001 bowel

strength & sensation has several decreased. I now experience

extreme pain in my abdomen, lower back, as well as hot fever

sweet till the bowel movement exists. This can take anywhere

from 10 to 45 mins. I no longer eat out with friends nor

family. My outings must be scheduled around my meals &

restroom. My doctor has recognized that I now have zero

muscle in my colon. So he is sending me to see a few

specialist, regarding this matter. We have discussed the

matter of a colostomy.

My question; I would like to ask is, has anyone else with CMT,

come across these issues?? Has anyone had a colostomy

operation done?? If so, how is your quality of life now?

Thanks for your time. Lee :)

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