weaknesses/colostomy question

[Guest guest]

Lee,

My father became something of a recluse because of

weak bowels and the inability to predict when he

would need to go or if he could make it to a

bathroom in time.

I would seriously consider the colostomy for myself,

if it meant staying active or becoming homebound.

We knew a young girl (early 20's) who worked at our

local MDA office who required a colostomy after a

problem in an operation for something else.

(She did not have CMT or any other neuro-muscular

disease.) There is no way I could tell she was

wearing the colostomy appliance if I did not know

the story. She looked normal and as beautiful as

ever.

She handled it all with grace and dignity,

considering she went into the operation without one,

and woke up afterward with one, and I think it was

due to a surgeon's mistake.... She told me once or

twice that the whole ordeal made her appreciate how

much the MDA patients she worked for went thru.

Best wishes in a decision. If the bowel weakness is

serious and affecting your ability to live life to

the fullest, then this would be a good option for you.

Ruth Warren

Raleigh, NC