Re: morphine pump/Alan,Rochelle, Paolo

March 1, 2002

the pedorthist (couple who did my orthotics and identified me as cmt) told me

that morphine could stop our hearts - as it is a muscle. etc.

Gretchen Glick wrote:

> First of all Alan, I have NO direct personalexperience with the pump,

> however for my mother's cancer pain this worked. I am at a loss here on

> how to direst you further, regarding this for CMT but may I suggest the

> Medical Advisory Board at the CMTA for any of their assistance on this.

>

> Secondly, Rochelle, where did you get your information? What is YOUR

> experience with this?

>

> Thirdly, Paolo, in your country or other European countries, is the

> morphine pump for CMT pain recommended?

>

> Gretchen

>

> CMT means (we) Can Manage This! And Quality sharing of living positive

> lives with our common disease is our goal! Now that's the Gold!

>

March 2, 2002

> Thirdly, Paolo, in your country or other European countries, is the

> morphine pump for CMT pain recommended?

IN ITALY IT IS NOT USED, ALSO BECAUSE NEUROPATHIC PAIN IS QUITE RARE IN REAL

CMT

DISEASE (AND CAN BE TREATED BY TEGRETOL OR NEURONTIN) AND FOR JOINT PAIN

(MORE COMMON) WE TAKE NON-STEROID ANTIFLOGISTIC

DRUGS, PHYSICAL THERAPY, THERMAL BATHS.

PAOLO

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