Re: Digest 1260 mel2mars <mel2mars@...>

[Guest guest]

" mel2mars " <mel2mars@...> wrote that now that I'm

home I am able to manage my fatigue...

Now that you are home what kinds of things help you

manage the fatigue? I am curious as to what you plan

to do with yourself now. Do you have hobbies that

interest you? How are you able to support yourself

financially? I have been at home for 4 months now,

and I am not finding any correlations between over use

of muscles and fatigue/pain, or weather and

fatigue/pain, or diet and fatigue/pain...I just seem

to have good days and bad days. Sometimes the good or

bad days come in clumps of 3 good days, or 3 bad days,

or 1 good 2 bad, or whatever. The only thing I do

notice is when muscle cramps or twitches keep me awake

at night, I almost certainly have a bad next day. And

I haven't pinned down what I am doing that day to

cause the cramping and twitching at night.

I have been followed by an orthopedic surgeon(not the

same one) for most of my life with many palliative

surgical procedures on my feet, and AFO's and

orthotics. But I am scheduled to see a neurologist

next month, so hopefully he will have something to

suggest. I haven't seen one since I was diagnosed at

the age of 7 in 1973. I will post what I find out

from him, then. But for now, I am curious what you

find helps you.

Thank you,

Joyce

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