Re: Welcome Kerry

[Guest guest]

Dear Gretchen, Hi and thanks for your reply. Of course, it was a

tendon transplant - I was confused. What sort of testing is available

for this? Did I read a post where a blood test was mentioned? That

sounds quite simple. I should obviously get that done first before I

start worrying about anything else.

Regards, Kerry

[Guest guest]

I bet it is due to the PT. I wish I had had PT. But,

I'm going to do more swimming, which I love anyway and

always thought was good for me. I am hearing from

other CMTers that it is so I am going to do more.

Dawn T.

--- Gretchen Glick <liliwigg@...> wrote:

> Welcome Kerry,

>

> Thank you for the introduction and post. I have not

> heard of a ligament

> transplant, but the surgery I had was a tendon

> transplant (both feet -

> at age 10). CMT is apparently the most common

> inherited neurological

> disorder and I would suggest that if CMT is in your

> family and the tests

> are readily available to do it. As a young teen I

> had lots of what we

> called physical therapy, plus the Dr. said to swim

> and horsebackride. So

> I did it all; I'm now pushing 50 and still active,

> just need orthotics

> inside my shoes for the toe walking and good

> balance. My legs are able

> to propel me fine. I have often wondered if this was

> due to all the PT

> and stuff when I was younger.

>

> Again, welcome to .

> ~ Gretchen

>

>

> > Acceptance and gratitude are the keys to living

> positive with

> > CMT! knows CMT does NOT affect our brains or

> intellectual capacity! CMT affected persons often

> far exceed average intelligence.

> > Adapting to a (currently) incurable chronic

> illness and a life of great uncertainity can result

> in ingenious achievement, heightened creativity and

> extreme giftedness in developing a unique manner for

> task accomplishment with the smallest amount of

> physical effort!

> >

> > Our upbeat slogan is (we) CAN MANAGE THIS! Why?

> Because we're ALL WINNERS at by sharing our

> CMT lives with each other in an upbeat, generous and

> positive manner here at our 'one-of-a-kind'

> group!

> >

> > During 2001 alone, known, diagnosed cases of CMT

> disease have spread globally by 62.5%. is

> committed to bring you not only positive sharing and

> new resources, but research and regenerative

> medicine news about CMT as well!

> >

> >