Acceptance

[Guest guest]

Hello again everyone!

I was just sitting here reading thru the resent messages and started

to think of how much my life has changed to the better since I

learned to accept my CMT. It has also helped tremendously to have

found this pages and also made some good " CMT-friends " .

While living in Norway in the past (without internet) - our family

felt very isolated and we thought we were just about the only family

on earth with this illness. Nobody had ever heard about it.

It is wonderful to read and communicate with people who knows exactly

how it feels to be tired, even after a good nights sleep and all the

other things that comes with this illness.

In the past I always tried to keep up with the strong and healthy and

always wearing myself out in the prosess. I WANTED to be like

everybody else! Now I've learned to accept myself and my CMT and

what a difference that makes! I can ask for help - tell people I'm

to tired for this and that - have a sleep when I WANT to etc. etc.

By resting when I need to and not " people-please " , I've found that

I've so much more to give! (I do know I'm fortunate having an

understanding husband and no kids) - but I also know it's not being

selfish to look after myself. I am of no use to anybody around me if

I am exhausted all the time.

Also, thanks to Owen and Sadeem for good wishes for my hand surgery.

I'll go for it, my right hand can only get better (any worse and it

is of no use anyway). I trust my specialist surgeon (whom I believe

is Indian) Dr. Sammut. He is UK's leading hand surgeon and practises

three months a year in third world countries to help people there.

A strange thing; He mentioned that people with Lephrosy get the same

kind of hands as my CMT-hands.

Hope you'll all have a good day!

Love, Nina