Re: just ignorant and stubborn-To Mamie

[Guest guest]

Mamie,

I would like to welcome you to , we are always happy to have new

members. Although I do not personally have any experience with AFOs, I am

sure there will be other members to respond to your post. I just wanted to

welcome you to the group.

Texas

----- Original Message -----

From: " trueblue9576 " <mamie_elisabeth@...>

< >

Sent: Sunday, January 20, 2002 5:54 PM

Subject: [] just ignorant and stubborn?

> Hi, I am new to this site and group, though not new to CMT. I was\

> diagnosed when I was 13, but have pretty much been coping with this

> on my own for the last 12 years. I have recently moved to Denver,

> and thought it would be a good idea to see a specialist (neurologist)

> here since I had never really remember speaking to a doctor that I

> felt was any help to me. This time the doctor WAS knowledgeable and

> seemed to have a few creative suggestions that other individuals with

> CMT use to cope with everyday frustrations. I have known going into

> every doctor's appointment that basically my future holds two options-

> - AFO's (leg braces) or surgury....as many of you have also most

> likely dealt with this reality. I have plenty to be grateful for,

> and feel I cope/ compensate as best I can...hey, it's a way of life

> for us:) This time however, I did not feel I had the option. The

> doctor wrote the prescription...saying " You will try them " ...and " you

> will come back and tell me how it is going " . Perhaps he did not give

> me the option because no one is going to be overjoyed in making this

> transition in their life......but has he no empathy?! ANyway, the

> point of this posting is simply to hear from those of you who

> have " Made the choice " to wear AFO's. I need to hear from someone

> who has walked in my shoes...and know what it feels like...knowing

> that your life could be easier in some ways.....yet resistant because

> of self- pride...or self- esteem....or pure will not wanting to give

> in the an alternative lifestyle.....whatever the mental obstacle is.

> I am sure there are things I have not considered. I may just be

> resistant right now because everyone that loves me in my life wants

> so much to help.....and the next logical step is leg braces. Has

> anyone else ever had a hard time with this? Is it just me? I want

> so much to do what is right for me......but I have never ever wanted

> to give up or give in before I need to....and even then it is hard.

> Perhaps I need to see the situation in a new light.....a more

> positive light...instead of feeling self- defeated. Any

> positive...or realistic feedback is welcome. Thanks so much.....

>

> Mamie

>

>

>