Guest guest Posted February 27, 2007 Report Share Posted February 27, 2007 Welcome Members, My name is and I am the Founder of the our support group and the TransGlobal Health Community Center (TGHCC). This group is one of more than 600 others that make up the TGHCC. The TGHCC helps promote our groups on the web. It have been amazed at how much this group has grown over the years. I also hope that each of you have been blessed by this group and have made many new friends. Like many of you, I am a proud parent. I'm a single parent (father) of three wonderful kids. My oldest daughter is 18 and I have two boys, ages 13 & 11, affected by an extremely rare genetic disorder called X-Linked Alpha Thalassemia Mental Retardation Syndrome (ATR-X). Both my sons are severely mentally and physically challenged. Both are non verbal and life long dependant upon care. Back in 1999 when their mother and I learned of their diagnosis, we needed the information and support from other parents with boys like ours. We learned that there were less than a hundred known affected boys in the world. Our families were spread out all over the world and communicating with them was not easy. It was then that I started looking for a way for us to communicate using the internet. It was then that I discovered a service called eGroups and started a support group for ATR-X. Today, we have 146 members. In my search for a way to better communicate with others, I tryed to find a website dedicated to providing support groups for various diseases and disorders but only found sites for specific to one disorder. During this period of time, I became involved with NORD - National Organization for Rare Disorders and learned that there were over 6000 rare diseases. Since I could not find a website dedicated to providing support groups, I decided to build one myself. This was the beginning of the TGHCC. Today, the TGHCC offers over 600 support groups and serves 50,000+ members. Over the years, we have been blessed with a little publicity from various sources. The Dallas Morning News did a complete 3 page story on the boys and our family. Later, the New York Times did an article on the Transglobal Health Community Center and our outreach mission. The articles were picked up by various other publication and published. I am always looking for ways to help promote and support others affected by these rare "orphan" diseases and disorders. I am also committed to helping support medical research for rare "orphan" diseases and disorders. Each month, 60% of the profit from sale of items in the TransGlobal Health Community store goes to medical research. I have designated two diseases/disorders each month to receive this funding. Professionally, I work for Travelers Insurance as an Underwriting Account Manager. Prior to joining Travelers, I was a 15 year veteran Police Officer with the Baylor Health Care System. I hope this helps give you an idea of who I am. Providing support for others has become my passion. Helping others has also helped me cope with the daily challenges. My prayers are always with you and your families. God knows we all need the help. Website: http://transglobalhealth.com Phone: 214-440-1072 Fax: 1-800-397-0065 Messenger: transglobalhealth@... eMail: dhhughes@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2007 Report Share Posted February 27, 2007 Hi , I am mailing to congratulate you for your foresight in setting up this site. I believe it was a very challenging one at the beginning but thank God you sailed through. Today a lot of us read from the website and as you said read from other friends also. My 12 year old daughter has been diagnosed RA and that is how I got to join the group. Ever since I joined, I have benefited a lot and just want to thank you for making this possible. May God Bless you. O. Dankwa Nigeria - West Africa." H. " <dhhughes@...> wrote: Welcome Members, My name is and I am the Founder of the our support group and the TransGlobal Health Community Center (TGHCC). This group is one of more than 600 others that make up the TGHCC. The TGHCC helps promote our groups on the web. It have been amazed at how much this group has grown over the years. I also hope that each of you have been blessed by this group and have made many new friends. Like many of you, I am a proud parent. I'm a single parent (father) of three wonderful kids. My oldest daughter is 18 and I have two boys, ages 13 & 11, affected by an extremely rare genetic disorder called X-Linked Alpha Thalassemia Mental Retardation Syndrome (ATR-X). Both my sons are severely mentally and physically challenged. Both are non verbal and life long dependant upon care. Back in 1999 when their mother and I learned of their diagnosis, we needed the information and support from other parents with boys like ours. We learned that there were less than a hundred known affected boys in the world. Our families were spread out all over the world and communicating with them was not easy. It was then that I started looking for a way for us to communicate using the internet. It was then that I discovered a service called eGroups and started a support group for ATR-X. Today, we have 146 members. In my search for a way to better communicate with others, I tryed to find a website dedicated to providing support groups for various diseases and disorders but only found sites for specific to one disorder. During this period of time, I became involved with NORD - National Organization for Rare Disorders and learned that there were over 6000 rare diseases. Since I could not find a website dedicated to providing support groups, I decided to build one myself. This was the beginning of the TGHCC. Today, the TGHCC offers over 600 support groups and serves 50,000+ members. Over the years, we have been blessed with a little publicity from various sources. The Dallas Morning News did a complete 3 page story on the boys and our family. Later, the New York Times did an article on the Transglobal Health Community Center and our outreach mission. The articles were picked up by various other publication and published. I am always looking for ways to help promote and support others affected by these rare "orphan" diseases and disorders. I am also committed to helping support medical research for rare "orphan" diseases and disorders. Each month, 60% of the profit from sale of items in the TransGlobal Health Community store goes to medical research. I have designated two diseases/disorders each month to receive this funding. Professionally, I work for Travelers Insurance as an Underwriting Account Manager. Prior to joining Travelers, I was a 15 year veteran Police Officer with the Baylor Health Care System. I hope this helps give you an idea of who I am. Providing support for others has become my passion. Helping others has also helped me cope with the daily challenges. My prayers are always with you and your families. God knows we all need the help. Website: http://transglobalhealth.com Phone: 214-440-1072 Fax: 1-800-397-0065 Messenger: transglobalhealth eMail: dhhughesglobalhealthnetwork (DOT) org gkdOtempomg Never miss an email again! Toolbar alerts you the instant new Mail arrives. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 This no longer a valid e-mail address. Please send all messages to : DJ_Curran@... ----Original Message Follows---- From: " H. " <dhhughes@...> Reply-Rheumatoid Arthritis Rheumatoid Arthritis Subject: Welcome Members Date: Tue, 27 Feb 2007 14:24:37 -0000 Welcome Members, My name is and I am the Founder of the our support group and the TransGlobal Health Community Center (TGHCC) <http://transglobalhealth.com/> . This group is one of more than 600 others that make up the TGHCC. The TGHCC helps promote our groups on the web. It have been amazed at how much this group has grown over the years. I also hope that each of you have been blessed by this group and have made many new friends. Like many of you, I am a proud parent. I'm a single parent (father) of three wonderful kids. My oldest daughter is 18 and I have two boys, ages 13 & 11, affected by an extremely rare genetic disorder called X-Linked Alpha Thalassemia Mental Retardation Syndrome (ATR-X). Both my sons are severely mentally and physically challenged. Both are non verbal and life long dependant upon care. Back in 1999 when their mother and I learned of their diagnosis, we needed the information and support from other parents with boys like ours. We learned that there were less than a hundred known affected boys in the world. Our families were spread out all over the world and communicating with them was not easy. It was then that I started looking for a way for us to communicate using the internet. It was then that I discovered a service called eGroups and started a support group for ATR-X. Today, we have 146 members. In my search for a way to better communicate with others, I tryed to find a website dedicated to providing support groups for various diseases and disorders but only found sites for specific to one disorder. During this period of time, I became involved with NORD - National Organization for Rare Disorders and learned that there were over 6000 rare diseases. Since I could not find a website dedicated to providing support groups, I decided to build one myself. This was the beginning of the TGHCC. Today, the TGHCC offers over 600 support groups and serves 50,000+ members. Over the years, we have been blessed with a little publicity from various sources. The Dallas Morning News did a complete 3 page story on the boys and our family. Later, the New York Times did an article on the Transglobal Health Community Center and our outreach mission. The articles were picked up by various other publication and published. I am always looking for ways to help promote and support others affected by these rare " orphan " diseases and disorders. I am also committed to helping support medical research for rare " orphan " diseases and disorders. Each month, 60% of the profit from sale of items in the TransGlobal Health Community store goes to medical research. I have designated two diseases/disorders each month to receive this funding. Professionally, I work for Travelers Insurance as an Underwriting Account Manager. Prior to joining Travelers, I was a 15 year veteran Police Officer with the Baylor Health Care System. I hope this helps give you an idea of who I am. Providing support for others has become my passion. Helping others has also helped me cope with the daily challenges. My prayers are always with you and your families. God knows we all need the help. Website: http://transglobalhealth.com <http://transglobalhealth.com/> Phone: 214-440-1072 Fax: 1-800-397-0065 Messenger: transglobalhealth@... <mailto:transglobalhealth@...> eMail: dhhughes@... <mailto:dhhughes@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2007 Report Share Posted March 5, 2007 Hi I just think groups like this are invaluable. They provide information and support for a lot of us trying to deal with sickness and pain. although not a regular contributer, I always read the many e-mails sent by others and know that I'm not suffering alone. I have provided an attachment that I feel explains how I feel about RA. Thanks >From: " DJ Curran " <DJ_Curran@...> >Reply-Rheumatoid Arthritis >Rheumatoid Arthritis >Subject: RE: Welcome Members >Date: Fri, 02 Mar 2007 09:40:10 -0700 > > >This no longer a valid e-mail address. Please send all messages to : >DJ_Curran@... > > > > >----Original Message Follows---- >From: " H. " <dhhughes@...> >Reply-Rheumatoid Arthritis >Rheumatoid Arthritis >Subject: Welcome Members >Date: Tue, 27 Feb 2007 14:24:37 -0000 > > >Welcome Members, > >My name is and I am the Founder of the our support group and >the TransGlobal Health Community Center (TGHCC) ><http://transglobalhealth.com/> . This group is one of more than 600 >others that make up the TGHCC. The TGHCC helps promote our groups on the >web. > >It have been amazed at how much this group has grown over the years. I >also hope that each of you have been blessed by this group and have made >many new friends. > >Like many of you, I am a proud parent. I'm a single parent (father) of >three wonderful kids. My oldest daughter is 18 and I have two boys, ages >13 & 11, affected by an extremely rare genetic disorder called X-Linked >Alpha Thalassemia Mental Retardation Syndrome (ATR-X). Both my sons are >severely mentally and physically challenged. Both are non verbal and >life long dependant upon care. > >Back in 1999 when their mother and I learned of their diagnosis, we >needed the information and support from other parents with boys like >ours. We learned that there were less than a hundred known affected boys >in the world. Our families were spread out all over the world and >communicating with them was not easy. It was then that I started looking >for a way for us to communicate using the internet. It was then that I >discovered a service called eGroups and started a support group for >ATR-X. Today, we have 146 members. > >In my search for a way to better communicate with others, I tryed to >find a website dedicated to providing support groups for various >diseases and disorders but only found sites for specific to one >disorder. During this period of time, I became involved with NORD - >National Organization for Rare Disorders and learned that there were >over 6000 rare diseases. Since I could not find a website dedicated to >providing support groups, I decided to build one myself. This was the >beginning of the TGHCC. Today, the TGHCC offers over 600 support groups >and serves 50,000+ members. > >Over the years, we have been blessed with a little publicity from >various sources. The Dallas Morning News did a complete 3 page story on >the boys and our family. Later, the New York Times did an article on the >Transglobal Health Community Center and our outreach mission. The >articles were picked up by various other publication and published. > >I am always looking for ways to help promote and support others affected >by these rare " orphan " diseases and disorders. I am also committed to >helping support medical research for rare " orphan " diseases and >disorders. Each month, 60% of the profit from sale of items in the >TransGlobal Health Community store goes to medical research. I have >designated two diseases/disorders each month to receive this funding. > >Professionally, I work for Travelers Insurance as an Underwriting >Account Manager. Prior to joining Travelers, I was a 15 year veteran >Police Officer with the Baylor Health Care System. > >I hope this helps give you an idea of who I am. Providing support for >others has become my passion. Helping others has also helped me cope >with the daily challenges. > >My prayers are always with you and your families. God knows we all need >the help. > > > >Website: http://transglobalhealth.com <http://transglobalhealth.com/> > >Phone: 214-440-1072 > >Fax: 1-800-397-0065 > > Messenger: transglobalhealth@... ><mailto:transglobalhealth@...> > >eMail: dhhughes@... ><mailto:dhhughes@...> > > _________________________________________________________________ Read the latest Hollywood gossip @ http://xtramsn.co.nz/entertainment Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2007 Report Share Posted March 5, 2007 I agree .. I have recently found my Grandson that we have guardianship has add. Then I find just last week I have RA.. Rushing To the net for information and groups was a great Help.. Bet -------Original Message------- From: roger pitcher Date: 3/4/2007 10:49:26 PM Rheumatoid Arthritis Subject: RE: Welcome Members Hi I just think groups like this are invaluable. They provide information and support for a lot of us trying to deal with sickness and pain. although not a regular contributer, I always read the many e-mails sent by others and know that I'm not suffering alone. I have provided an attachment that I feel explains how I feel about RA. Thanks >From: "DJ Curran" <DJ_Curran@...> >Reply-Rheumatoid Arthritis >Rheumatoid Arthritis >Subject: RE: Welcome Members >Date: Fri, 02 Mar 2007 09:40:10 -0700 > > >This no longer a valid e-mail address. Please send all messages to : & gt;DJ_Curran@... > > > > >----Original Message Follows---- >From: " H. " <dhhughes@...> >Reply-Rheumatoid Arthritis >Rheumatoid Arthritis >Subject: Welcome Members >Date: Tue, 27 Feb 2007 14:24:37 -0000 > > >Welcome Members, > >My name is and I am the Founder of the our support group and >the TransGlobal Health Community Center (TGHCC) ><http://transglobalhealth.com/> . This group is one of more than 600 >others that make up the TGHCC. The TGHCC helps promote our groups on the >web. > >It have been amazed at how much this group has grown over the years. I >also hope that each of you have been blessed by this group and have made >many new friends. > >Like many of you, I am a proud parent. I'm a single parent (father) of >three wonderful kids. My oldest daughter is 18 and I have two boys, ages >13 & 11, affected by an extremely rare genetic disorder called X-Linked >Alpha Thalassemia Mental Retardation Syndrome (ATR-X). Both my sons are >severely mentally and physically challenged. Both are non verbal and >life long dependant upon care. > >Back in 1999 when their mother and I learned of their diagnosis, we >needed the information and support from other parents with boys like >ours. We learned that there were less than a hundred known affected boys >in the world. Our families were spread out all over the world and >communicating with them was not easy. It was then that I started looking >for a way for us to communicate using the internet. It was then that I >discovered a service called eGroups and started a support group for >ATR-X. Today, we have 146 members. > >In my search for a way to better communicate with others, I tryed to >find a website dedicated to providing support groups for various >diseases and disorders but only found sites for specific to one >disorder. During this period of time, I became involved with NORD - >National Organization for Rare Disorders and learned that there were >over 6000 rare diseases. Since I could not find a website dedicated to >providing support groups, I decided to build one myself. This was the >beginning of the TGHCC. Today, the TGHCC offers over 600 support groups >and serves 50,000+ members. > >Over the years, we have been blessed with a little publicity from >various sources. The Dallas Morning News did a complete 3 page story on >the boys and our family. Later, the New York Times did an article on the >Transglobal Health Community Center and our outreach mission. The >articles were picked up by various other publication and published. > >I am always looking for ways to help promote and support others affected >by these rare "orphan" diseases and disorders. I am also committed to >helping support medical research for rare "orphan" diseases and >disorders. Each month, 60% of the profit from sale of items in the >TransGlobal Health Community store goes to medical research. I have >designated two diseases/disorders each month to receive this funding. > >Professionally, I work for Travelers Insurance as an Underwriting >Account Manager. Prior to joining Travelers, I was a 15 year veteran >Police Officer with the Baylor Health Care System. > >I hope this helps give you an idea of who I am. Providing support for >others has become my passion. Helping others has also helped me cope >with the daily challenges. > >My prayers are always with you and your families. God knows we all need >the help. > > > >Website: http://transglobalhealth.com <http://transglobalhealth.com/> > >Phone: 214-440-1072 > >Fax: 1-800-397-0065 > > Messenger: transglobalhealth@... ><mailto:transglobalhealth@...> > >eMail: dhhughes@... ><mailto:dhhughes@...> > > _________________________________________________________________ Read the latest Hollywood gossip @ http://xtramsn.co.nz/entertainment Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2007 Report Share Posted March 5, 2007 I agree. I also don't contribute much. But there has been a lot of good advice on on this website. There's also those that tell pretty good stories about what's going on with them. There are some that I would like to get to know and would love to consider my friend. Susieroger pitcher <smartdog_8@...> wrote: Hi I just think groups like this are invaluable. They provide information and support for a lot of us trying to deal with sickness and pain. although not a regular contributer, I always read the many e-mails sent by others and know that I'm not suffering alone. I have provided an attachment that I feel explains how I feel about RA. Thanks >From: "DJ Curran" <DJ_Curranmsn>>Reply-Rheumatoid Arthritis >Rheumatoid Arthritis >Subject: RE: Welcome Members>Date: Fri, 02 Mar 2007 09:40:10 -0700>>>This no longer a valid e-mail address. Please send all messages to :>DJ_Currancomcast (DOT) net>>>>>----Original Message Follows---->From: " H. " <dhhughesGlobalHealthNetwork (DOT) org>>Reply-Rheumatoid Arthritis >Rheumatoid Arthritis >Subject: Welcome Members>Date: Tue, 27 Feb 2007 14:24:37 -0000>>>Welcome Members,>>My name is and I am the Founder of the our support group and>the TransGlobal Health Community Center (TGHCC)><http://transglobalhealth.com/> . This group is one of more than 600>others that make up the TGHCC. The TGHCC helps promote our groups on the>web.>>It have been amazed at how much this group has grown over the years. I>also hope that each of you have been blessed by this group and have made>many new friends.>>Like many of you, I am a proud parent. I'm a single parent (father) of>three wonderful kids. My oldest daughter is 18 and I have two boys, ages>13 & 11, affected by an extremely rare genetic disorder called X-Linked>Alpha Thalassemia Mental Retardation Syndrome (ATR-X). Both my sons are>severely mentally and physically challenged. Both are non verbal and>life long dependant upon care.>>Back in 1999 when their mother and I learned of their diagnosis, we>needed the information and support from other parents with boys like>ours. We learned that there were less than a hundred known affected boys>in the world. Our families were spread out all over the world and>communicating with them was not easy. It was then that I started looking>for a way for us to communicate using the internet. It was then that I>discovered a service called eGroups and started a support group for>ATR-X. Today, we have 146 members.>>In my search for a way to better communicate with others, I tryed to>find a website dedicated to providing support groups for various>diseases and disorders but only found sites for specific to one>disorder. During this period of time, I became involved with NORD ->National Organization for Rare Disorders and learned that there were>over 6000 rare diseases. Since I could not find a website dedicated to>providing support groups, I decided to build one myself. This was the>beginning of the TGHCC. Today, the TGHCC offers over 600 support groups>and serves 50,000+ members.>>Over the years, we have been blessed with a little publicity from>various sources. The Dallas Morning News did a complete 3 page story on>the boys and our family. Later, the New York Times did an article on the>Transglobal Health Community Center and our outreach mission. The>articles were picked up by various other publication and published.>>I am always looking for ways to help promote and support others affected>by these rare "orphan" diseases and disorders. I am also committed to>helping support medical research for rare "orphan" diseases and>disorders. Each month, 60% of the profit from sale of items in the>TransGlobal Health Community store goes to medical research. I have>designated two diseases/disorders each month to receive this funding.>>Professionally, I work for Travelers Insurance as an Underwriting>Account Manager. Prior to joining Travelers, I was a 15 year veteran>Police Officer with the Baylor Health Care System.>>I hope this helps give you an idea of who I am. Providing support for>others has become my passion. Helping others has also helped me cope>with the daily challenges.>>My prayers are always with you and your families. God knows we all need>the help.>>>>Website: http://transglobalhealth.com <http://transglobalhealth.com/>>>Phone: 214-440-1072>>Fax: 1-800-397-0065>> Messenger: transglobalhealth ><mailto:transglobalhealth >>>eMail: dhhughesglobalhealthnetwork (DOT) org><mailto:dhhughesglobalhealthnetwork (DOT) org>>>__________________________________________________________Read the latest Hollywood gossip @ http://xtramsn.co.nz/entertainment Never miss an email again! Toolbar alerts you the instant new Mail arrives. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2007 Report Share Posted March 5, 2007 I just joined this group so I do not know anyone.. I was just dx with RA and it was a shock . It took a couple days to get used to the idea.. But now I realize I have had this for quite awhile. I thought I was just a slug not being able to keep going all day cleaning.. I would have to sit and rest.. And go back.. It was so frustrating.. And when I stopped my anti depressants the pain was really pronounced.. I don't need them and feel great but if it helps with the pain I was thinking of going back. Does anyone know about this connection.. I know for fibromyalgia (sp) the use meds like cymbalta.. Bet -------Original Message------- From: suzette ridgeway Date: 3/5/2007 11:53:47 AM Rheumatoid Arthritis Subject: RE: Welcome Members I agree. I also don't contribute much. But there has been a lot of good advice on on this website. There's also those that tell pretty good stories about what's going on with them. There are some that I would like to get to know and would love to consider my friend. Susieroger pitcher <smartdog_8@...> wrote: Hi I just think groups like this are invaluable. They provide information and support for a lot of us trying to deal with sickness and pain. although not a regular contributer, I always read the many e-mails sent by others and know that I'm not suffering alone. I have provided an attachment that I feel explains how I feel about RA. Thanks >From: "DJ Curran" <DJ_Curranmsn>>Reply-Rheumatoid Arthritis >Rheumatoid Arthritis >Subject: RE: Welcome Members>Date: Fri, 02 Mar 2007 09:40:10 -0700>>>This no longer a valid e-mail address. Please send all messages to :>DJ_Currancomcast (DOT) net>>>>>----Original Message Follows---->From: " H. " <dhhughesGlobalHealthNetwork (DOT) org>>Reply-Rheumatoid Arthritis >Rheumatoid Arthritis >Subject: Welcome Members>Date: Tue, 27 Feb 2007 14:24:37 -0000>>>Welcome Members,>>My name is and I am the Founder of the our support group and>the TransGlobal Health Community Center (TGHCC)><http://transglobalhealth.com/> . This group is one of more than 600>others that make up the TGHCC. The TGHCC helps promote our groups on the>web.>>It have been amazed at how much this group has grown over the years. I>also hope that each of you have been blessed by this group and have made>many new friends.>>Like many of you, I am a proud parent. I'm a single parent (father) of>three wonderful kids. My oldest daughter is 18 and I have two boys, ages>13 & 11, affected by an extremely rare genetic disorder called X-Linked>Alpha Thalassemia Mental Retardation Syndrome (ATR-X). Both my sons are>severely mentally and physically challenged. Both are non verbal and>life long dependant upon care.>>Back in 1999 when their mother and I learned of their diagnosis, we>needed the information and support from other parents with boys like>ours. We learned that there were less than a hundred known affected boys>in the world. Our families were spread out all over the world and>communicating with them was not easy. It was then that I started looking>for a way for us to communicate using the internet. It was then that I>discovered a service called eGroups and started a support group for>ATR-X. Today, we have 146 members.>>In my search for a way to better communicate with others, I tryed to>find a website dedicated to providing support groups for various>diseases and disorders but only found sites for specific to one>disorder. During this period of time, I became involved with NORD ->National Organization for Rare Disorders and learned that there were>over 6000 rare diseases. Since I could not find a website dedicated to>providing support groups, I decided to build one myself. This was the>beginning of the TGHCC. Today, the TGHCC offers over 600 support groups>and serves 50,000+ members.>>Over the years, we have been blessed with a little publicity from>various sources. The Dallas Morning News did a complete 3 page story on>the boys and our family. Later, the New York Times did an article on the>Transglobal Health Community Center and our outreach mission. The>articles were picked up by various other publication and published.>>I am always looking for ways to help promote and support others affected>by these rare "orphan" diseases and disorders. I am also committed to>helping support medical research for rare "orphan" diseases and>disorders. Each month, 60% of the profit from sale of items in the>TransGlobal Health Community store goes to medical research. I have>designated two diseases/disorders each month to receive this funding.>>Professionally, I work for Travelers Insurance as an Underwriting>Account Manager. Prior to joining Travelers, I was a 15 year veteran>Police Officer with the Baylor Health Care System.>>I hope this helps give you an idea of who I am. Providing support for>others has become my passion. Helping others has also helped me cope>with the daily challenges.>>My prayers are always with you and your families. God knows we all need>the help.>>>>Website: http://transglobalhealth.com <http://transglobalhealth.com/>>>Phone: 214-440-1072>>Fax: 1-800-397-0065>> Messenger: transglobalhealth ><mailto:transglobalhealth >>>eMail: dhhughesglobalhealthnetwork (DOT) org><mailto:dhhughesglobalhealthnetwork (DOT) org>>>__________________________________________________________Read the latest Hollywood gossip @ http://xtramsn.co.nz/entertainment Never miss an email again! Toolbar alerts you the instant new Mail arrives. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 Hi Susie, not sure if ya talking about me. But feel free to e-mail me privately, always enjoy a good chat and making new friends. >From: suzette ridgeway <cat_lady20042003@...> >Reply-Rheumatoid Arthritis >Rheumatoid Arthritis >Subject: RE: Welcome Members >Date: Mon, 5 Mar 2007 10:53:07 -0800 (PST) > >I agree. I also don't contribute much. But there has been a lot of good >advice on on this website. There's also those that tell pretty good >stories about what's going on with them. There are some that I would like >to get to know and would love to consider my friend. > Susie > >roger pitcher <smartdog_8@...> wrote: > Hi I just think groups like this are invaluable. They provide >information >and support for a lot of us trying to deal with sickness and pain. although >not a regular contributer, I always read the many e-mails sent by others >and >know that I'm not suffering alone. I have provided an attachment that I >feel >explains how I feel about RA. Thanks > > >From: " DJ Curran " <DJ_Curran@...> > >Reply-Rheumatoid Arthritis > >Rheumatoid Arthritis > >Subject: RE: Welcome Members > >Date: Fri, 02 Mar 2007 09:40:10 -0700 > > > > > >This no longer a valid e-mail address. Please send all messages to : > >DJ_Curran@... > > > > > > > > > >----Original Message Follows---- > >From: " H. " <dhhughes@...> > >Reply-Rheumatoid Arthritis > >Rheumatoid Arthritis > >Subject: Welcome Members > >Date: Tue, 27 Feb 2007 14:24:37 -0000 > > > > > >Welcome Members, > > > >My name is and I am the Founder of the our support group and > >the TransGlobal Health Community Center (TGHCC) > ><http://transglobalhealth.com/> . This group is one of more than 600 > >others that make up the TGHCC. The TGHCC helps promote our groups on the > >web. > > > >It have been amazed at how much this group has grown over the years. I > >also hope that each of you have been blessed by this group and have made > >many new friends. > > > >Like many of you, I am a proud parent. I'm a single parent (father) of > >three wonderful kids. My oldest daughter is 18 and I have two boys, ages > >13 & 11, affected by an extremely rare genetic disorder called X-Linked > >Alpha Thalassemia Mental Retardation Syndrome (ATR-X). Both my sons are > >severely mentally and physically challenged. Both are non verbal and > >life long dependant upon care. > > > >Back in 1999 when their mother and I learned of their diagnosis, we > >needed the information and support from other parents with boys like > >ours. We learned that there were less than a hundred known affected boys > >in the world. Our families were spread out all over the world and > >communicating with them was not easy. It was then that I started looking > >for a way for us to communicate using the internet. It was then that I > >discovered a service called eGroups and started a support group for > >ATR-X. Today, we have 146 members. > > > >In my search for a way to better communicate with others, I tryed to > >find a website dedicated to providing support groups for various > >diseases and disorders but only found sites for specific to one > >disorder. During this period of time, I became involved with NORD - > >National Organization for Rare Disorders and learned that there were > >over 6000 rare diseases. Since I could not find a website dedicated to > >providing support groups, I decided to build one myself. This was the > >beginning of the TGHCC. Today, the TGHCC offers over 600 support groups > >and serves 50,000+ members. > > > >Over the years, we have been blessed with a little publicity from > >various sources. The Dallas Morning News did a complete 3 page story on > >the boys and our family. Later, the New York Times did an article on the > >Transglobal Health Community Center and our outreach mission. The > >articles were picked up by various other publication and published. > > > >I am always looking for ways to help promote and support others affected > >by these rare " orphan " diseases and disorders. I am also committed to > >helping support medical research for rare " orphan " diseases and > >disorders. Each month, 60% of the profit from sale of items in the > >TransGlobal Health Community store goes to medical research. I have > >designated two diseases/disorders each month to receive this funding. > > > >Professionally, I work for Travelers Insurance as an Underwriting > >Account Manager. Prior to joining Travelers, I was a 15 year veteran > >Police Officer with the Baylor Health Care System. > > > >I hope this helps give you an idea of who I am. Providing support for > >others has become my passion. Helping others has also helped me cope > >with the daily challenges. > > > >My prayers are always with you and your families. God knows we all need > >the help. > > > > > > > >Website: http://transglobalhealth.com <http://transglobalhealth.com/> > > > >Phone: 214-440-1072 > > > >Fax: 1-800-397-0065 > > > > Messenger: transglobalhealth@... > ><mailto:transglobalhealth@...> > > > >eMail: dhhughes@... > ><mailto:dhhughes@...> > > > > > >__________________________________________________________ >Read the latest Hollywood gossip @ http://xtramsn.co.nz/entertainment > > > > > >--------------------------------- >Never miss an email again! > Toolbar alerts you the instant new Mail arrives. Check it out. _________________________________________________________________ Discover fun and games at @ http://xtramsn.co.nz/kids Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 Hi Bet, yes coming to terms with RA can be hard. Took me a long time to realise it wasn,t going to go away. Support from friends and relatives is important. I also have friends who are more advanced with RA than me, find it helps to talk to others who understand. >From: " Bet " <wyopoodlemom3@...> >Reply-Rheumatoid Arthritis ><Rheumatoid Arthritis > >Subject: RE: Welcome Members >Date: Mon, 5 Mar 2007 10:12:06 -0700 (Mountain Standard Time) > >I agree .. I have recently found my >Grandson that we have guardianship has add. >Then I find just last week I have RA.. Rushing >To the net for information and groups was a great >Help.. >Bet > >-------Original Message------- > >From: roger pitcher >Date: 3/4/2007 10:49:26 PM >Rheumatoid Arthritis >Subject: RE: Welcome Members > >Hi I just think groups like this are invaluable. They provide information >and support for a lot of us trying to deal with sickness and pain. although >not a regular contributer, I always read the many e-mails sent by others >and >know that I'm not suffering alone. I have provided an attachment that I >feel >explains how I feel about RA. Thanks > > > >From: " DJ Curran " <DJ_Curran@...> > >Reply-Rheumatoid Arthritis > >Rheumatoid Arthritis > >Subject: RE: Welcome Members > >Date: Fri, 02 Mar 2007 09:40:10 -0700 > > > > > >This no longer a valid e-mail address. Please send all messages to : > & gt;DJ_Curran@... > > > > > > > > > >----Original Message Follows---- > >From: " H. " <dhhughes@...> > >Reply-Rheumatoid Arthritis > >Rheumatoid Arthritis > >Subject: Welcome Members > >Date: Tue, 27 Feb 2007 14:24:37 -0000 > > > > > >Welcome Members, > > > >My name is and I am the Founder of the our support group and > >the TransGlobal Health Community Center (TGHCC) > ><http://transglobalhealth.com/> . This group is one of more than 600 > >others that make up the TGHCC. The TGHCC helps promote our groups on the > >web. > > > >It have been amazed at how much this group has grown over the years. I > >also hope that each of you have been blessed by this group and have made > >many new friends. > > > >Like many of you, I am a proud parent. I'm a single parent (father) of > >three wonderful kids. My oldest daughter is 18 and I have two boys, ages > >13 & 11, affected by an extremely rare genetic disorder called X-Linked > >Alpha Thalassemia Mental Retardation Syndrome (ATR-X). Both my sons are > >severely mentally and physically challenged. Both are non verbal and > >life long dependant upon care. > > > >Back in 1999 when their mother and I learned of their diagnosis, we > >needed the information and support from other parents with boys like > >ours. We learned that there were less than a hundred known affected boys > >in the world. Our families were spread out all over the world and > >communicating with them was not easy. It was then that I started looking > >for a way for us to communicate using the internet. It was then that I > >discovered a service called eGroups and started a support group for > >ATR-X. Today, we have 146 members. > > > >In my search for a way to better communicate with others, I tryed to > >find a website dedicated to providing support groups for various > >diseases and disorders but only found sites for specific to one > >disorder. During this period of time, I became involved with NORD - > >National Organization for Rare Disorders and learned that there were > >over 6000 rare diseases. Since I could not find a website dedicated to > >providing support groups, I decided to build one myself. This was the > >beginning of the TGHCC. Today, the TGHCC offers over 600 support groups > >and serves 50,000+ members. > > > >Over the years, we have been blessed with a little publicity from > >various sources. The Dallas Morning News did a complete 3 page story on > >the boys and our family. Later, the New York Times did an article on the > >Transglobal Health Community Center and our outreach mission. The > >articles were picked up by various other publication and published. > > > >I am always looking for ways to help promote and support others affected > >by these rare " orphan " diseases and disorders. I am also committed to > >helping support medical research for rare " orphan " diseases and > >disorders. Each month, 60% of the profit from sale of items in the > >TransGlobal Health Community store goes to medical research. I have > >designated two diseases/disorders each month to receive this funding. > > > >Professionally, I work for Travelers Insurance as an Underwriting > >Account Manager. Prior to joining Travelers, I was a 15 year veteran > >Police Officer with the Baylor Health Care System. > > > >I hope this helps give you an idea of who I am. Providing support for > >others has become my passion. Helping others has also helped me cope > >with the daily challenges. > > > >My prayers are always with you and your families. God knows we all need > >the help. > > > > > > > >Website: http://transglobalhealth.com <http://transglobalhealth.com/> > > > >Phone: 214-440-1072 > > > >Fax: 1-800-397-0065 > > > > Messenger: transglobalhealth@... > ><mailto:transglobalhealth@...> > > > >eMail: dhhughes@... > ><mailto:dhhughes@...> > > > > > >_________________________________________________________________ >Read the latest Hollywood gossip @ http://xtramsn.co.nz/entertainment > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 Hi Bet, And Welcome to the group. I'm new here also but not new to RA. I have had it for 10+ years now. When I first came down with RA I knew that is what I had the pain all over was so severe. Being tired a lot is one of the annoying symptoms of RA. I take naps during the day and that seems to help me a lot. Getting plenty of rest is very important. I hope you feel better soon. in MN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 Thank you .. I don't know how long I have had it.. Looking back it has probably been a long time I am 66 now but I have had pain for a long time. Blaming on an accident I had in the 1980's I did have major injuries to my spine and neck I took antidepressants for 15 yrs.. Until a month or so ago And it seemed to rebound on my so I went to a doc that Specialized in this and she put me on cymbalta.. I took this for a couple weeks and decided to just stop And felt great mentally but started to feel increase in Pain like never before.. That is when I went to my medial Doctor and she did a blood test for RA and it turned out positive.... I have an appointment next week to see a specialist. I also am thinking of going back on cymbalta to help with The pain.. Bet -------Original Message------- From: roger pitcher Date: 3/6/2007 1:09:52 AM Rheumatoid Arthritis Subject: RE: Welcome Members Hi Bet, yes coming to terms with RA can be hard. Took me a long time to realise it wasn,t going to go away. Support from friends and relatives is important. I also have friends who are more advanced with RA than me, find it helps to talk to others who understand. >From: "Bet" <wyopoodlemom3@...> >Reply-Rheumatoid Arthritis ><Rheumatoid Arthritis > >Subject: RE: Welcome Members >Date: Mon, 5 Mar 2007 10:12:06 -0700 (Mountain Standard Time) > >I agree .. I have recently found my >Grandson that we have guardianship has add. >Then I find just last week I have RA.. Rushing >To the net for information and groups was a great >Help.. >Bet > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 Thank you for the welcome .. Bet -------Original Message------- From: Date: 3/6/2007 5:38:58 AM Rheumatoid Arthritis Subject: Re: Welcome Members Hi Bet, And Welcome to the group. I'm new here also but not new to RA. I have had it for 10+ years now. When I first came down with RA I knew that is what I had the pain all over was so severe. Being tired a lot is one of the annoying symptoms of RA. I take naps during the day and that seems to help me a lot. Getting plenty of rest is very important. I hope you feel better soon. in MN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 I've been on antidepressants since before I was diagnosed with RA. Thinking back I'm sure I had RA long before I was dxd. I also had a sleep study done in 2001. Now I use a machine to keep me breathing. When the docs ask if I feel more awake and energized after using the machine, I say no. I always wondered why I was still so tired when I was sleeping better. Then I was dxd with RA. Guess I got my answer. I also take sleeping pills which help because I am such a worrier. I tried going off my antidepressant mades last year but that was a big mistake. I would talk to a professional about the connection. I know I feel better with the meds I take. Good Luck, Vicki ----- Original Message ----From: Bet <wyopoodlemom3@...>Rheumatoid Arthritis Sent: Monday, March 5, 2007 1:10:03 PMSubject: RE: Welcome Members I just joined this group so I do not know anyone.. I was just dx with RA and it was a shock . It took a couple days to get used to the idea.. But now I realize I have had this for quite awhile. I thought I was just a slug not being able to keep going all day cleaning.. I would have to sit and rest.. And go back.. It was so frustrating. . And when I stopped my anti depressants the pain was really pronounced.. I don't need them and feel great but if it helps with the pain I was thinking of going back. Does anyone know about this connection.. I know for fibromyalgia (sp) the use meds like cymbalta.. Bet -------Original Message----- -- From: suzette ridgeway Date: 3/5/2007 11:53:47 AM rheumatoid_arthriti sgroups (DOT) com Subject: RE: [rheumatoid_ arthritis] Welcome Members I agree. I also don't contribute much. But there has been a lot of good advice on on this website. There's also those that tell pretty good stories about what's going on with them. There are some that I would like to get to know and would love to consider my friend. Susieroger pitcher <smartdog_8hotmail (DOT) com> wrote: Hi I just think groups like this are invaluable. They provide information and support for a lot of us trying to deal with sickness and pain. although not a regular contributer, I always read the many e-mails sent by others and know that I'm not suffering alone. I have provided an attachment that I feel explains how I feel about RA. Thanks >From: "DJ Curran" <DJ_Curranmsn (DOT) com>>Reply-rheumatoid_arthriti sgroups (DOT) com>rheumatoid_arthriti sgroups (DOT) com>Subject: RE: [rheumatoid_ arthritis] Welcome Members>Date: Fri, 02 Mar 2007 09:40:10 -0700>>>This no longer a valid e-mail address. Please send all messages to :>DJ_Currancomcast (DOT) net>>>>>----Original Message Follows---->From: " H. " <dhhughes@GlobalHeal thNetwork. org>>Reply-rheumatoid_arthriti sgroups (DOT) com>rheumatoid_arthriti sgroups (DOT) com>Subject: [rheumatoid_ arthritis] Welcome Members>Date: Tue, 27 Feb 2007 14:24:37 -0000>>>Welcome Members,>>My name is and I am the Founder of the our support group and>the TransGlobal Health Community Center (TGHCC)><http://transglobalh ealth.com/> . This group is one of more than 600>others that make up the TGHCC. The TGHCC helps promote our groups on the>web.>>It have been amazed at how much this group has grown over the years. I>also hope that each of you have been blessed by this group and have made>many new friends.>>Like many of you, I am a proud parent. I'm a single parent (father) of>three wonderful kids. My oldest daughter is 18 and I have two boys, ages>13 & 11, affected by an extremely rare genetic disorder called X-Linked>Alpha Thalassemia Mental Retardation Syndrome (ATR-X). Both my sons are>severely mentally and physically challenged. Both are non verbal and>life long dependant upon care.>>Back in 1999 when their mother and I learned of their diagnosis, we>needed the information and support from other parents with boys like>ours. We learned that there were less than a hundred known affected boys>in the world. Our families were spread out all over the world and>communicating with them was not easy. It was then that I started looking>for a way for us to communicate using the internet. It was then that I>discovered a service called eGroups and started a support group for>ATR-X. Today, we have 146 members.>>In my search for a way to better communicate with others, I tryed to>find a website dedicated to providing support groups for various>diseases and disorders but only found sites for specific to one>disorder. During this period of time, I became involved with NORD ->National Organization for Rare Disorders and learned that there were>over 6000 rare diseases. Since I could not find a website dedicated to>providing support groups, I decided to build one myself. This was the>beginning of the TGHCC. Today, the TGHCC offers over 600 support groups>and serves 50,000+ members.>>Over the years, we have been blessed with a little publicity from>various sources. The Dallas Morning News did a complete 3 page story on>the boys and our family. Later, the New York Times did an article on the>Transglobal Health Community Center and our outreach mission. The>articles were picked up by various other publication and published.>>I am always looking for ways to help promote and support others affected>by these rare "orphan" diseases and disorders. I am also committed to>helping support medical research for rare "orphan" diseases and>disorders. Each month, 60% of the profit from sale of items in the>TransGlobal Health Community store goes to medical research. I have>designated two diseases/disorders each month to receive this funding.>>Professionally, I work for Travelers Insurance as an Underwriting>Account Manager. Prior to joining Travelers, I was a 15 year veteran>Police Officer with the Baylor Health Care System.>>I hope this helps give you an idea of who I am. Providing support for>others has become my passion. Helping others has also helped me cope>with the daily challenges.>>My prayers are always with you and your families. God knows we all need>the help.>>>>Website: http://transglobalh ealth.com <http://transglobalh ealth.com/>>>Phone: 214-440-1072>>Fax: 1-800-397-0065>> Messenger: transglobalhealth><mailto:transglobalhealth>>>eMail: dhhughes@globalheal thnetwork. org><mailto:dhhughes@globalheal thnetwork. org>>>____________ _________ _________ _________ _________ _________ _Read the latest Hollywood gossip @ http://xtramsn. co.nz/entertainm ent Never miss an email again! Toolbar alerts you the instant new Mail arrives. Check it out. Never miss an email again! Toolbar alerts you the instant new Mail arrives. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 Thanks for the reply Vicki.. I know they give cymbalta For fibromyalgia (sp) excuse my spelling even my spell check has a problem with it lol.. I hate to go back on them but if it helps me to get around And active I will.. I am going to call the recreation center today and find what They have to offer. Bet -------Original Message------- From: Vicki Hoyt Date: 3/6/2007 8:33:10 AM Rheumatoid Arthritis Subject: Re: Welcome Members I've been on antidepressants since before I was diagnosed with RA. Thinking back I'm sure I had RA long before I was dxd. I also had a sleep study done in 2001. Now I use a machine to keep me breathing. When the docs ask if I feel more awake and energized after using the machine, I say no. I always wondered why I was still so tired when I was sleeping better. Then I was dxd with RA. Guess I got my answer. I also take sleeping pills which help because I am such a worrier. I tried going off my antidepressant mades last year but that was a big mistake. I would talk to a professional about the connection. I know I feel better with the meds I take. Good Luck, Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 i have the sleep machine too but cant get started on it -is it difficult to get used too - i just got ra this past summer - take mtx,predisone, and cymbalta - im 71 and not excepting it very well ----- Original Message ----- From: Bet Rheumatoid Arthritis Sent: Tuesday, March 06, 2007 10:50 AM Subject: Re: Welcome Members Thanks for the reply Vicki.. I know they give cymbalta For fibromyalgia (sp) excuse my spelling even my spell check has a problem with it lol.. I hate to go back on them but if it helps me to get around And active I will.. I am going to call the recreation center today and find what They have to offer. Bet -------Original Message------- From: Vicki Hoyt Date: 3/6/2007 8:33:10 AM Rheumatoid Arthritis Subject: Re: Welcome Members I've been on antidepressants since before I was diagnosed with RA. Thinking back I'm sure I had RA long before I was dxd. I also had a sleep study done in 2001. Now I use a machine to keep me breathing. When the docs ask if I feel more awake and energized after using the machine, I say no. I always wondered why I was still so tired when I was sleeping better. Then I was dxd with RA. Guess I got my answer. I also take sleeping pills which help because I am such a worrier. I tried going off my antidepressant mades last year but that was a big mistake. I would talk to a professional about the connection. I know I feel better with the meds I take. Good Luck, Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 What is the dose of the cymbalta if I may ask.. I am taking 30mg.. Bet -------Original Message------- From: jeanneteter Date: 3/6/2007 11:17:20 AM Rheumatoid Arthritis Subject: Re: Welcome Members i have the sleep machine too but cant get started on it -is it difficult to get used too - i just got ra this past summer - take mtx,predisone, and cymbalta - im 71 and not excepting it very well ----- Original Message ----- From: Bet Rheumatoid Arthritis Sent: Tuesday, March 06, 2007 10:50 AM Subject: Re: Welcome Members Thanks for the reply Vicki.. I know they give cymbalta For fibromyalgia (sp) excuse my spelling even my spell check has a problem with it lol.. I hate to go back on them but if it helps me to get around And active I will.. I am going to call the recreation center today and find what They have to offer. Bet -------Original Message------- From: Vicki Hoyt Date: 3/6/2007 8:33:10 AM Rheumatoid Arthritis Subject: Re: Welcome Members I've been on antidepressants since before I was diagnosed with RA. Thinking back I'm sure I had RA long before I was dxd. I also had a sleep study done in 2001. Now I use a machine to keep me breathing. When the docs ask if I feel more awake and energized after using the machine, I say no. I always wondered why I was still so tired when I was sleeping better. Then I was dxd with RA. Guess I got my answer. I also take sleeping pills which help because I am such a worrier. I tried going off my antidepressant mades last year but that was a big mistake. I would talk to a professional about the connection. I know I feel better with the meds I take. Good Luck, Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 im taking 60 - predisone is lowering my blood sugar so the doc wants me off - my reume wants me to try enbrel ----- Original Message ----- From: Bet Rheumatoid Arthritis Sent: Tuesday, March 06, 2007 1:40 PM Subject: Re: Welcome Members What is the dose of the cymbalta if I may ask.. I am taking 30mg.. Bet -------Original Message------- From: jeanneteter Date: 3/6/2007 11:17:20 AM Rheumatoid Arthritis Subject: Re: Welcome Members i have the sleep machine too but cant get started on it -is it difficult to get used too - i just got ra this past summer - take mtx,predisone, and cymbalta - im 71 and not excepting it very well ----- Original Message ----- From: Bet Rheumatoid Arthritis Sent: Tuesday, March 06, 2007 10:50 AM Subject: Re: Welcome Members Thanks for the reply Vicki.. I know they give cymbalta For fibromyalgia (sp) excuse my spelling even my spell check has a problem with it lol.. I hate to go back on them but if it helps me to get around And active I will.. I am going to call the recreation center today and find what They have to offer. Bet -------Original Message------- From: Vicki Hoyt Date: 3/6/2007 8:33:10 AM Rheumatoid Arthritis Subject: Re: Welcome Members I've been on antidepressants since before I was diagnosed with RA. Thinking back I'm sure I had RA long before I was dxd. I also had a sleep study done in 2001. Now I use a machine to keep me breathing. When the docs ask if I feel more awake and energized after using the machine, I say no. I always wondered why I was still so tired when I was sleeping better. Then I was dxd with RA. Guess I got my answer. I also take sleeping pills which help because I am such a worrier. I tried going off my antidepressant mades last year but that was a big mistake. I would talk to a professional about the connection. I know I feel better with the meds I take. Good Luck, Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 I am 66 and I know it is hard.. I must have had this a long time.. I just didn't know the symptoms .. And was just tested for it.. Bet -------Original Message------- From: jeanneteter Date: 3/6/2007 11:17:20 AM Rheumatoid Arthritis Subject: Re: Welcome Members i have the sleep machine too but cant get started on it -is it difficult to get used too - i just got ra this past summer - take mtx,predisone, and cymbalta - im 71 and not excepting it very well ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
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