Guest guest Posted February 18, 2007 Report Share Posted February 18, 2007 Dear Jeanne- The unknown is always scary. You might want to consider an infusion instead of an injectible like remicade. There is only one needle once every 8 weeks and I was scared to death when I first got it, but have been on it since 2000 without a problem. Very well tolerated. Giving yourself needles is just not something I can do. A two hour infusion that lasts a long time vs. the care of sharps and so forth every few days can be a daunting decision. You should find a physical support group through the arthritis foundation chapter office in your area. Whatever the doctors dont tell you or anything questions you might have, we are all here to support and inform you. Hugs, Deborah On 2/17/07, jeanne <jeanneteter@...> wrote: anyone hereon humia - i have just been diagnosed with ra and my doctor recommended humira and i am scared Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2007 Report Share Posted February 18, 2007 Hello guys, I have been now a member here for almost a year. I am diagnosed with RA since march 2006. Since that time and I am on methotrexate only. I started with 12.5mg weekly and now it is 10mg weekly. I take with it Folic Acid, Vitamin B, Garlic supplements, Selinium AC and Omega 3. I am feeling much better but from time to time I get some pain for 1 day. I am in a country where doctors are not up to date and I want to make sure that I am on the right track. Montly I do some blood tests to control methotrexate. What else should I do? I mean you do other things like scanning on joints regularly? Is the medication I take enough? Is it normal to be on methotrexate for a year and still you are OK? Thank you, Mostafa.Deborah Bargad <dbargad@...> wrote: Dear Jeanne- The unknown is always scary. You might want to consider an infusion instead of an injectible like remicade. There is only one needle once every 8 weeks and I was scared to death when I first got it, but have been on it since 2000 without a problem. Very well tolerated. Giving yourself needles is just not something I can do. A two hour infusion that lasts a long time vs. the care of sharps and so forth every few days can be a daunting decision. You should find a physical support group through the arthritis foundation chapter office in your area. Whatever the doctors dont tell you or anything questions you might have, we are all here to support and inform you. Hugs, Deborah On 2/17/07, jeanne <jeannetetersbcglobal (DOT) net> wrote: anyone hereon humia - i have just been diagnosed with ra and my doctor recommended humira and i am scared Don't get soaked. Take a quick peak at the forecast with the Search weather shortcut. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2007 Report Share Posted February 19, 2007 I have been on Humira since October, and for me it was a godsend. The first rheumy visit got me MTX. The second, four weeks later got me the Humira. I was in the middle of a HUGE flare for the second visit - from two joints to twenty in one short month! Since I am an insulin dependent diabetic the shots were not an issue for me. (Though I DO sympathize with those who have issue with them. I remember getting used to my insulin shots - but that may have been an easier adjustment since I take 5 a day, and humira is only twice a month...) There are altenate delivery devices available, but I opted for a normal syringe... I was fortunate that there were no problems with insurance paying for the humira. One phone call (to locate a pharmacy that would handle it properly) and I was ready to go. I am happy to say that I have had extremely good luck with Humira. No reaction to the injection. Within HOURS of the first injection, some of my aches were gone. Swelling was reduced by day two AND, joy of joys, the brain fog lifted. For me, it is truly a miracle drug...It has made a difference in my life. Before Humira I struggled to cope. Now I have a life - a different one to be sure. But a LIFE! and I posted this beside my desk: Accept that you are a living organism with limitations and do not measure yourself by what you used to do or by what others expect of you. Accept that you have a life-altering disease. Do the best you can. Joy is still there. (And, for the record, I do not have RA. I have Psoriatic Arthritis, RA's scaly sister...Symptoms and treatment are almost identical) CMPete Quilts With Poodle '.....now times are rough and I've got too much STUFF!!' J.D. Buffett I have a blog now!! And there is ACTUALLY stuff on it! http://cmpetequiltspoodle.blogspot.com/ ________________________________________________________________________________\ ____ Be a PS3 game guru. Get your game face on with the latest PS3 news and previews at Games. http://videogames./platform?platform=120121 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2007 Report Share Posted February 22, 2007 > > Hello guys, > > I have been now a member here for almost a year. I am diagnosed with RA since march 2006. Since that time and I am on methotrexate only. I started with 12.5mg weekly and now it is 10mg weekly. I take with it Folic Acid, Vitamin B, Garlic supplements, Selinium AC and Omega 3. > > I am feeling much better but from time to time I get some pain for 1 day. I am in a country where doctors are not up to date and I want to make sure that I am on the right track. > > Montly I do some blood tests to control methotrexate. What else should I do? I mean you do other things like scanning on joints regularly? Is the medication I take enough? Is it normal to be on methotrexate for a year and still you are OK? > > Thank you, > Mostafa. > Mostafa-- I'm glad you are doing so well on methotrexate. It's good that you are getting blood tests done regularly, and that you are taking Folic Acid. Many people have good luck on MTX alone, and that is all they need for years. I think most doctors here in United States like us to have x-rays every one to two years to make sure that the joint damage is under control. Good luck! dordale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 Greetings all..hope everyone is well, w/ minimal or no pain. I have a question about Humira. I recently started taking Humira Injections (subcutaneous) and they are very very painful. I have tried ice, but my rheumy said he doesn't like for me to use it because it can slow absorption due to constriction from the ice around injection site. What do you guys do about the pain???? Any ideas.....let me know. Thanks in WV Don't be flakey. Get for Mobile and always stay connected to friends. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2007 Report Share Posted March 18, 2007 When I used Humira, I injected it very slowly. That seemed to help with the pain. Vicki ----- Original Message ----From: Gleason <gleasongirl76@...>Rheumatoid Arthritis Sent: Saturday, March 17, 2007 5:01:42 PMSubject: Humira Greetings all..hope everyone is well, w/ minimal or no pain. I have a question about Humira. I recently started taking Humira Injections (subcutaneous) and they are very very painful. I have tried ice, but my rheumy said he doesn't like for me to use it because it can slow absorption due to constriction from the ice around injection site. What do you guys do about the pain???? Any ideas.....let me know. Thanks in WV Don't be flakey. Get for Mobile and always stay connected to friends. Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Travel to find your fit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 I was prescribed Arava by my rheumatologist. After using it, I experienced what felt like electrical shocks in my feet and one finger. I called my rheumatologist and she prescribed -- vitamins. The feeling progressed to tingling, to numbness to lack of any feeling in parts of my feet over a six month period. I constantly called, visited and emailed my rheumatologist, but she continued to ignore my symptoms. Long story short: I now have permanent nerve damage in my feet from the Arava, which can cause peripheral neuropathy, a known side-effect. While my rheumatologist was prescribing vitamins, she never took me off the Arava and I stayed on it for 6 months and during that time it was slowly poisoning me. I filed a complaint with my HMO about the doctor, but I don't have much hope that they will do anything, and this doc will continue to ignore side effects of her patients. Regards, BeingIrish**************Make your life easier with all your friends, email, and favorite sites in one place. Try it now. (http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000010) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 You are so, so wright, Orencia almost killed me......... > Hi everyone just letting people know what happened two me on humira! I was in a full flare up when put on humira and it seemed two work good but felt i had no energy but because the pain had eased i was thankful. Over the next six mths I slowly deterrated as joints that were ok before the drug began to flare to the point i was chair bound. Then my doctor told me my body was rebelling against the drug hence no energy. so my experience of humira has not been good, nor the doctor who took so long to take action even though he had blood tests showing negative results! Hard to work out sometimes whether its the disease or the drugs, been through them all. Pity they can't find a cure rather than using drugs to kill our immune system and all the complications that follow. Oh well we live in hope hve a merry xmas read e-mails but only contribute occasionally. > _________________________________________________________________ > Free Windows Live software. Chat, search, share pics and more > http://get.live.com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 What happened? I’m about to start on it… From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of Marika Sent: Wednesday, December 03, 2008 3:29 PM Rheumatoid Arthritis Subject: Re: Humira You are so, so wright, Orencia almost killed me......... > Hi everyone just letting people know what happened two me on humira! I was in a full flare up when put on humira and it seemed two work good but felt i had no energy but because the pain had eased i was thankful. Over the next six mths I slowly deterrated as joints that were ok before the drug began to flare to the point i was chair bound. Then my doctor told me my body was rebelling against the drug hence no energy. so my experience of humira has not been good, nor the doctor who took so long to take action even though he had blood tests showing negative results! Hard to work out sometimes whether its the disease or the drugs, been through them all. Pity they can't find a cure rather than using drugs to kill our immune system and all the complications that follow. Oh well we live in hope hve a merry xmas read e-mails but only contribute occasionally. > __________________________________________________________ > Free Windows Live software. Chat, search, share pics and more > http://get.live.com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 Dear Irish- I was put on Arava as well for only two weeks and I have lasting internal side effects from it. Arava is a dangerous drug. Its side effects far out weight its benefits. You should see a lawyer about filing a malpractice suit especially if you have documention and your damage is permanent. I would also file with the AMA about it if you feel strongly and perhaps even the attorney general of your state. Yours, Deborah On Thu, Dec 4, 2008 at 12:51 AM, Marika <tobytoby99350@...> wrote: Dear beingIrish So soryy to hear about your problems with your rheumatoligist I was on Orencia, and had all sort of side effects but she just ignored them all, and i still was in pain, So guess what, i landet up in the hospital with pneumonia,I was so made, i changed DR, Plus i was writing her a letter letting her know how i was feeling, I told her a pations savety should come first before all the money the are making on those so called new super drugs,PS, She once mentioned Arava to me,I dont know how old you are, but older people just dont tolerate some drugs like a youg one, but the Dr`s just dont care Please take care, listen to your body,don`t take the crap, the are feeding you.I have chronic lung problems, and all those newer drugs are affecting sometimes your lungs,I did not wanted to take that drug at all, but she scamed me in to it,after all, she made big bucks on it Agein, listen to your body, not to those Dr`s Love Marika > I was prescribed Arava by my rheumatologist. After using it, I experienced > what felt like electrical shocks in my feet and one finger. I called my > rheumatologist and she prescribed -- vitamins. The feeling tingling, to numbness to lack of any feeling in parts of my feet over a six month > period. I constantly called, visited and emailed my rheumatologist, but she > continued to ignore my symptoms. Long story short: I now have permanent nerve > damage in my feet from the Arava, which can cause peripheral neuropathy, a > known side-effect. While my rheumatologist was prescribing vitamins, she never > took me off the Arava and I stayed on it for 6 months and during that time it > was slowly poisoning me. I filed a complaint with my HMO about the doctor, > but I don't have much hope that they will do anything, and this doc will > continue to ignore side effects of her patients. > > Regards, > BeingIrish > > > ************** > Make your life easier with all your friends, email, > and favorite sites in one place. Try it now. (http://www.aol.com/? optin=new-dp & amp; > icid=aolcom40vanity & amp;ncid=emlcntaolcom00000010) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 Dbargad, I cannot file a law suit regarding the Arava because I am with an HMO and am on Medicare, and there are many restrictions. Lawyers won't even talk to people with Kaiser because they know that whatever the mistake, there is a $25,000 limit and all disputes have to go to arbitration (that's a requirement for all Kaiser members). The best I can do is file an internal complaint, which I have done. BeingIrish**************Make your life easier with all your friends, email, and favorite sites in one place. Try it now. (http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000010) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 > > Dbargad, > > I cannot file a law suit regarding the Arava because I am with an HMO and am > on Medicare, and there are many restrictions. Lawyers won't even talk to > people with Kaiser because they know that whatever the mistake, there is a > $25,000 limit and all disputes have to go to arbitration (that's a requirement for > all Kaiser members). The best I can do is file an internal complaint, which I > have done. > > BeingIrish > > > ************** > Make your life easier with all your friends, email, > and favorite sites in one place. Try it now. (http://www.aol.com/? optin=new-dp & amp; > icid=aolcom40vanity & amp;ncid=emlcntaolcom00000010) > I think all the Lawyers sticking together with the Dr`s Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 > > Dbargad, > > I cannot file a law suit regarding the Arava because I am with an HMO and am > on Medicare, and there are many restrictions. Lawyers won't even talk to > people with Kaiser because they know that whatever the mistake, there is a > $25,000 limit and all disputes have to go to arbitration (that's a requirement for > all Kaiser members). The best I can do is file an internal complaint, which I > have done. > > BeingIrish > > > ************** > Make your life easier with all your friends, email, > and favorite sites in one place. Try it now. (http://www.aol.com/? optin=new-dp & amp; > icid=aolcom40vanity & amp;ncid=emlcntaolcom00000010) > Quote Link to comment Share on other sites More sharing options...
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