Re: Hello!..adding Peripheral Neurotomy

[Guest guest]

Hello , Heidi

I have had PN for some time and then was diagosed for RA, however I

think the RA preceded the PN by a great number of years, but was not

tested for it until I had a humongous RA flare which incapasitated me

for about 3 months. It has been 6 or 7 years sice that huge flare ad

while I have flares now and then, so far noe that bad.

I suspect that that one was possibly caused by the delicious soups I

made all that year! All kinds of vegetables, ***including lots and I

mean LOTS of tomatoes and bell peppers as well as black

peppers*******.

I learned later from articals from Arthritis Foundation that,they as

well as eggplant, and white potatoes are members of the Night Shade

plant family and have toxins that persons with RA should avoid. I no

longer eat them so only seem to flare more than usual if I get crazy

and have food containing them. They also negatively effect my

digestion. Eat a pizza and suffer the consequences.

Both RA and PN are getting worse through time, especially my left

hand with both the RA ane PN. It seems that the same meds are used

for both (???) so at least I don't have to take duel meds <G>

Also I try to get my C vitamins from other than oranges, as they,

too, are listed as a no-no. also raw onions seem to be a problem. Can

eat them steamed or cooked in other foods.

Hope this gives you some idea of things you might avoid (consult your

DR, though,)to keep the pain down somewhat..

I know this might sound rediculous, but I was in a way thankfull to

get rx'd positive as it relieved my mind that I wasn't imagining all

the pain I felt. Now I can deal with it.

I am wondering if you have hot knees and legs pain directly after

eating or after drinking an alcholic beverage?

P.S. sometimes several tests for RA have to be made as it doesn't

show up with every test.

Leo

> Hi, my name is Heidi, I am 37 and have two small girls, and I live

> in Minnesota. I was just tested and found out the tests were

> negative for RA though I have all the symptoms - stiff feet and

> hands in the morning, red and swollen toes and fingers, that have

> been going on for about two months. My doctor is taking a " wait

and

> see " approach.

>

> My question to the group is the following - about three years ago I

> became very, very ill and went to Mayo clinic. There it was

> determined I had peripheral neuropathy of an unknown origin. I

have

> read that RA can cause neuropathy and am curious if any of you

> experienced neuropathy BEFORE your RA diagnosis?

>