Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Sharon, Welcome to the group. At 16mm, I wouldn't have any second thoughts about banding. We needed three bands to correct my son's severe inutero plagio and i don't regret any of them, in fact I am so happy that we did it. CAROLG > > Hi my name is sharon and my son mckenzie has plagio and is measured at > 16mm. I am picking up his starband in 2 weeks and I have mixed > feelings. Does anyone regret banding thier baby or does anyone wish > they had waited and repostioned longer ? > > I think I am happy with my decision now but just want some moral > support in making my decision. > > Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 If it's any comfort - I think the best thing about this group is the support and reassurance no matter what you decide. In my couple of months on this group, I don't think I've ever read anyone saying they've regretted their decision although most struggle with it in the beginning. I had a hard time but the plagio was significant enough to make the decision a little easier - in hindsight, it wasn't so bad, my son didn't seem to mind the band and I'm sooo happy with the results!! I definitely do not regret the decision at all!! toral mom to Dillon, Doc band grad 9/28/05 > > > > Hi my name is sharon and my son mckenzie has plagio and is measured > at > > 16mm. I am picking up his starband in 2 weeks and I have mixed > > feelings. Does anyone regret banding thier baby or does anyone wish > > they had waited and repostioned longer ? > > > > I think I am happy with my decision now but just want some moral > > support in making my decision. > > > > Thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 If it's any comfort - I think the best thing about this group is the support and reassurance no matter what you decide. In my couple of months on this group, I don't think I've ever read anyone saying they've regretted their decision although most struggle with it in the beginning. I had a hard time but the plagio was significant enough to make the decision a little easier - in hindsight, it wasn't so bad, my son didn't seem to mind the band and I'm sooo happy with the results!! I definitely do not regret the decision at all!! toral mom to Dillon, Doc band grad 9/28/05 > > > > Hi my name is sharon and my son mckenzie has plagio and is measured > at > > 16mm. I am picking up his starband in 2 weeks and I have mixed > > feelings. Does anyone regret banding thier baby or does anyone wish > > they had waited and repostioned longer ? > > > > I think I am happy with my decision now but just want some moral > > support in making my decision. > > > > Thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2005 Report Share Posted October 25, 2005 Thanks for that Carol, I now find the starband cant come quick enough. We are currenlty waiting for it to arrive from Florida, I live in England so it will take 2 weeks to arrive, its going to be a lllllooooonnnnggggg 2 weeks Sharon > > > > Hi my name is sharon and my son mckenzie has plagio and is measured > at > > 16mm. I am picking up his starband in 2 weeks and I have mixed > > feelings. Does anyone regret banding thier baby or does anyone wish > > they had waited and repostioned longer ? > > > > I think I am happy with my decision now but just want some moral > > support in making my decision. > > > > Thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2005 Report Share Posted October 25, 2005 Thanks for that Carol, I now find the starband cant come quick enough. We are currenlty waiting for it to arrive from Florida, I live in England so it will take 2 weeks to arrive, its going to be a lllllooooonnnnggggg 2 weeks Sharon > > > > Hi my name is sharon and my son mckenzie has plagio and is measured > at > > 16mm. I am picking up his starband in 2 weeks and I have mixed > > feelings. Does anyone regret banding thier baby or does anyone wish > > they had waited and repostioned longer ? > > > > I think I am happy with my decision now but just want some moral > > support in making my decision. > > > > Thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2005 Report Share Posted October 25, 2005 Sharon, Two weeks is pretty normal, just hope it doesn't take longer. It is necessary for the band to be fitted within two weeks of casting or scanning to ensure a proper fit. Every mom gets that second thought feeling at the beginning, it's all part of being a mom,LOL. Once you start seeing that correction take place you will be so glad you moved forward. Keep us posted on how everything goes. Good Luck and I'll keep my fingers crossed for the band to come quickly. CAROLG > > > > > > Hi my name is sharon and my son mckenzie has plagio and is > measured > > at > > > 16mm. I am picking up his starband in 2 weeks and I have mixed > > > feelings. Does anyone regret banding thier baby or does anyone > wish > > > they had waited and repostioned longer ? > > > > > > I think I am happy with my decision now but just want some moral > > > support in making my decision. > > > > > > Thanks > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2005 Report Share Posted October 25, 2005 Sharon, Two weeks is pretty normal, just hope it doesn't take longer. It is necessary for the band to be fitted within two weeks of casting or scanning to ensure a proper fit. Every mom gets that second thought feeling at the beginning, it's all part of being a mom,LOL. Once you start seeing that correction take place you will be so glad you moved forward. Keep us posted on how everything goes. Good Luck and I'll keep my fingers crossed for the band to come quickly. CAROLG > > > > > > Hi my name is sharon and my son mckenzie has plagio and is > measured > > at > > > 16mm. I am picking up his starband in 2 weeks and I have mixed > > > feelings. Does anyone regret banding thier baby or does anyone > wish > > > they had waited and repostioned longer ? > > > > > > I think I am happy with my decision now but just want some moral > > > support in making my decision. > > > > > > Thanks > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 Hi , I am also new to this site, but I am not knew to the problem. My first son had plagiocephaly now my second has brachycephaly. They both had torticolis which caused the problem. We ended up getting the DOC band. Our insurance paid 80%. We also were against getting the Doc band but the repositioning wasn't working and we didn't want to live with the what if's. I know what you are feeling. I do not regret getting the band for him. I saw a big difference when I saw the before and after pictures. My advice is to get him to do as much tummy time as possible. We bought a Boppy head noggin for when he is in the swing and bouncy seat. Both of my sons hated tummy time but the more time they are off the flat spots the better. Good luck > > Hi there. My name is and I have a 4 month old son who has > plagiocephaly. He only has it moderately and we have tried to lay him > on his side, turn his head, etc and he is so stubborn about it! Any > suggestions would be very helpful! Our insurance will not cover a > helmet and we really don't want one to be honest. Glad I found this > group, I am paranoid about this condition! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 Hi , I am also new to this site, but I am not knew to the problem. My first son had plagiocephaly now my second has brachycephaly. They both had torticolis which caused the problem. We ended up getting the DOC band. Our insurance paid 80%. We also were against getting the Doc band but the repositioning wasn't working and we didn't want to live with the what if's. I know what you are feeling. I do not regret getting the band for him. I saw a big difference when I saw the before and after pictures. My advice is to get him to do as much tummy time as possible. We bought a Boppy head noggin for when he is in the swing and bouncy seat. Both of my sons hated tummy time but the more time they are off the flat spots the better. Good luck > > Hi there. My name is and I have a 4 month old son who has > plagiocephaly. He only has it moderately and we have tried to lay him > on his side, turn his head, etc and he is so stubborn about it! Any > suggestions would be very helpful! Our insurance will not cover a > helmet and we really don't want one to be honest. Glad I found this > group, I am paranoid about this condition! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Hello and welcome. You still have some time to focus on the repositioning as he is only 4 months old. Repositioning is most effective until about 6 mo. At that point you would need to make a decision as to whether or not to band him. MANY Insurances deny coverage for a band/helmet, but then once appealed, it gets covered. Can I ask why you wouldn't want to get him one? I understand about the cost, however, it's often the case that the Insurance will issue a partial or full refund once the decision is appealed. My best advice would be to continue with repositioning and stress tummy time. In a nother month or 2 you'll want to make the decision as to whether or not you are happy with his head shape. If you aren't at that point, then banding is certainly an option. You would NOT regret banding him. Jen (18 mo), Hanger Band Grad (4 years) > > Hi there. My name is and I have a 4 month old son who has > plagiocephaly. He only has it moderately and we have tried to lay him > on his side, turn his head, etc and he is so stubborn about it! Any > suggestions would be very helpful! Our insurance will not cover a > helmet and we really don't want one to be honest. Glad I found this > group, I am paranoid about this condition! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Hello and welcome. You still have some time to focus on the repositioning as he is only 4 months old. Repositioning is most effective until about 6 mo. At that point you would need to make a decision as to whether or not to band him. MANY Insurances deny coverage for a band/helmet, but then once appealed, it gets covered. Can I ask why you wouldn't want to get him one? I understand about the cost, however, it's often the case that the Insurance will issue a partial or full refund once the decision is appealed. My best advice would be to continue with repositioning and stress tummy time. In a nother month or 2 you'll want to make the decision as to whether or not you are happy with his head shape. If you aren't at that point, then banding is certainly an option. You would NOT regret banding him. Jen (18 mo), Hanger Band Grad (4 years) > > Hi there. My name is and I have a 4 month old son who has > plagiocephaly. He only has it moderately and we have tried to lay him > on his side, turn his head, etc and he is so stubborn about it! Any > suggestions would be very helpful! Our insurance will not cover a > helmet and we really don't want one to be honest. Glad I found this > group, I am paranoid about this condition! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Hi ! Welcome to the group! I don't think anyone of honestly wanted helmets or bands! Just something that needed to be done. You're not alone in feeling that way. Check out " repositioning headquarters " in the files section for a lot of grat ideas. Does your son also have torticollis (tight neck muscle)? That makes repositioning impossible in some cases. I will say your son is at an amazing age for correction. My son had severe plagio and was banded at 5 months. He corrected wonderfully. His pictures are in the before and after DOC band photo album. Cranial Technologies (cranialtech.com) offers free consults and will give you an honest opinion. I always wished I had gone for a consult before repositioning so I could compare how well it did actually work for us. You can always appeal insurance to see if they will pay for it. It can take a while to get everything in order so you may want to get the ball rolling now. Then if you decide to band later you'll have less waiting. Mom to Dane (4 yo) and Cece (13 mo) DOC Grads --- In Plagiocephaly , " " <jen39327@...> wrote: > > Hi there. My name is and I have a 4 month old son who has > plagiocephaly. He only has it moderately and we have tried to lay him > on his side, turn his head, etc and he is so stubborn about it! Any > suggestions would be very helpful! Our insurance will not cover a > helmet and we really don't want one to be honest. Glad I found this > group, I am paranoid about this condition! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Hi ! Welcome to the group! I don't think anyone of honestly wanted helmets or bands! Just something that needed to be done. You're not alone in feeling that way. Check out " repositioning headquarters " in the files section for a lot of grat ideas. Does your son also have torticollis (tight neck muscle)? That makes repositioning impossible in some cases. I will say your son is at an amazing age for correction. My son had severe plagio and was banded at 5 months. He corrected wonderfully. His pictures are in the before and after DOC band photo album. Cranial Technologies (cranialtech.com) offers free consults and will give you an honest opinion. I always wished I had gone for a consult before repositioning so I could compare how well it did actually work for us. You can always appeal insurance to see if they will pay for it. It can take a while to get everything in order so you may want to get the ball rolling now. Then if you decide to band later you'll have less waiting. Mom to Dane (4 yo) and Cece (13 mo) DOC Grads --- In Plagiocephaly , " " <jen39327@...> wrote: > > Hi there. My name is and I have a 4 month old son who has > plagiocephaly. He only has it moderately and we have tried to lay him > on his side, turn his head, etc and he is so stubborn about it! Any > suggestions would be very helpful! Our insurance will not cover a > helmet and we really don't want one to be honest. Glad I found this > group, I am paranoid about this condition! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Welcome, Bonnie! Sorry that you aren't feeling well. Congratulations on quitting smoking. It's no good that you are in an abusive relationship. I hope you will do something about that. If you suspect you may have lupus, you should schedule an appointment with a physician to discuss your symptoms. There are several types of lupus. Individuals with lupus may be affected to varying degrees. Some forms of lupus are life-threatening and require prompt treatment, so please do make an appointment. The Lupus Foundation of America site has a lot of useful information: http://www.lupus.org/ Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Hi I am new >I have not been diagnosed with lupus but I read up on it and it seems like >I have most of the symtoms. Do you all have good and bad days? I also have >copd and it seems like when I get flare ups my copd acts up too. I am 51 >and have always been healthy. Never broke a bone, never had an operation, >never got sick. Now that I quit smoking my body is going wacky on me. Its >like its retaliating for not getting the nicotine. Its been 9 months. I >think it was the best thing I ever did. I hated being a slave to cigs. But >now I am sick all the time. I am not use to this. I also suffer from >depression, anxiety and ocd. I am in an abusive marriage which does not >help. Is there anything to take or do for Lupus or is it like fibromialgia >where the drs are baffled and do not know how to treat you? > God Bless > Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 hi bonnie from bonnie . . . . i'm pretty new here too but i would honestly tell you that rather than self-diagnose, it would be a good idea to see your doctor and tell him *all* your symptoms, physical, emotional, psychological. it took me a while to do that but he had me at the rheumy's two days later and the rest, as they say, is history. btw, congreyts on quitting smoking . . . . . hardest thing i ever did but you *will* eventually get used to it <g> bonnie/boys > > I have not been diagnosed with lupus but I read up on it and it seems like I have most of the symtoms. Do you all have good and bad days? I also have copd and it seems like when I get flare ups my copd acts up too. I am 51 and have always been healthy. Never broke a bone, never had an operation, never got sick. Now that I quit smoking my body is going wacky on me. Its like its retaliating for not getting the nicotine. Its been 9 months. I think it was the best thing I ever did. I hated being a slave to cigs. But now I am sick all the time. I am not use to this. I also suffer from depression, anxiety and ocd. I am in an abusive marriage which does not help. Is there anything to take or do for Lupus or is it like fibromialgia where the drs are baffled and do not know how to treat you? > God Bless > Bonnie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 I would definitely ask your pediatrician for a referral for an evaluation. My son (now almost 4) did the exact same thing with " mama and dada. " He didn't actually say it with meaning until he was 18 mos. As an infant, did he babble or coo much? You might want to teach him sign language to help with communication. There are all kinds of great resources out there to help you with that. My son became very frustrated in his inability to communicate. On 1/29/07, haschmidt26 <haschmidt26@...> wrote: > > My Name is and I have an 18 month old son Riley. He doesn't > say anything yet. mamma and dadda but I don't know if he knows that > that is us. > > I know he can hear and understand what we say but when he wants > something form us he just whines and reaches for things. I haven't > really worried about it because he has always done everythign slowly > but I dont think he is even close to talking yet. > > I was hopeing to get some helpful suggestions on teaching him or something > > Thanks > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 I know that many people on this site are more experienced than me but I was just wondering if you had spoken to your pediatrician yet. Also, we found that they signs that we learned and incorporated into our day really helped my daughter to attempt words. She doesn't have alot of words mastered even at 4 but we are able to understand some. We would sign as well as say the word ie. all done, eat, drink, ball, play. Just simple words. Signing Times is a great resource and even on some PBS channels on Sunday mornings. It is geared towards little ones and has great songs. I hope this helps. Amy > > My Name is and I have an 18 month old son Riley. He doesn't > say anything yet. mamma and dadda but I don't know if he knows that > that is us. > > I know he can hear and understand what we say but when he wants > something form us he just whines and reaches for things. I haven't > really worried about it because he has always done everythign slowly > but I dont think he is even close to talking yet. > > I was hopeing to get some helpful suggestions on teaching him or something > > Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 Have you talked to your doctor yet? If your doctor checks him and has no concerns, he may suggest that you go in for a partial hearing test (full hearing tests may not be done until the child is over.) My son had some warning signs very early that my doctor dismissed as unimportant. My son would have milk leak out of his nose during breastfeeding, and when I started him on solid foods at 4 months, he would gag, everytime. The doctor said it was reflux and gave us medication that was worse than the gagging. It wasn't until he was 3 years old that he was diagnosed appropriately. (And this was after he was examined by the audiologist and otolaryngealogist ?sp). The developmental pediatrician (you may want to find a good one in your area) noticed immediately that my son had hypotonia, or low muscle tone. It was slight, but still enough to cause problems. The low muscle tone in his mouth was causing part of the delays of speech. The gagging and the leaking of milk from the nose during breastfeeding were both signs of low muscle tone of his mouth. If you are seeing any of these symptoms, or if you notice that your child is off-balance or extremely accident-prone (even though most children seem to be anyway), you may want to ask your pedi to examine your son for hypotonia. If you don't think your pedi can do it, get a good developmental pedi to examine your son. Hypotonia is a condition that often requires OT and S & L therapy, and is usually covered by insurance. This isn't to say that my son doesn't have other problems. He's been diagnosed with SPD/SID, dyspraxia, and is suspected of having APD (CAPD), although it is too soon to tell by some of the testing available. You'll discover that a lot of the testing requires the child to be a certain age, for one reason or another. A lot of times the child has to cooperate, and that can't happen until the child is older. But there are a lot of things that can be done if caught early enough. Talk to your doctor about your concerns. You may even want to see what programs are available (early childhood intervention, school programs). Keep a journal, too. Write down when and what your child does, even if you don't think it may be significant. Share the journal info with each professional you go to, bc one may not miss what others have. Hope this helps. > > My Name is and I have an 18 month old son Riley. He doesn't > say anything yet. mamma and dadda but I don't know if he knows that > that is us. > > I know he can hear and understand what we say but when he wants > something form us he just whines and reaches for things. I haven't > really worried about it because he has always done everythign slowly > but I dont think he is even close to talking yet. > > I was hopeing to get some helpful suggestions on teaching him or something > > Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2007 Report Share Posted January 29, 2007 Thankyou everybody so much for your help. I haven't spoken to his dr yet I know i need to. I guess I just wasnt really worried because he has done everything pretty slow. He didn't start crawling until he was 10 months old. He has always been so busy checking out everything around him, that I think he doesn't bother with the big stuff. I know he can hear well and understand. He hears me when I whisper he even mimiked my husband when he lost his voice (that was pretty funny) Well it's time for his 18 month well baby anyway so I guess we will see what happens Thanks again > > > > My Name is and I have an 18 month old son Riley. He doesn't > > say anything yet. mamma and dadda but I don't know if he knows that > > that is us. > > > > I know he can hear and understand what we say but when he wants > > something form us he just whines and reaches for things. I haven't > > really worried about it because he has always done everythign slowly > > but I dont think he is even close to talking yet. > > > > I was hopeing to get some helpful suggestions on teaching him or > something > > > > Thanks > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 I don’t think anything about RA is normal. Most people have more trouble with RA during the first couple of years as we find out how different medications work for us. Once they find the right medications and doses they usually do a lot better. It is important to be seeing a board-certified rheumatologist because few other doctors really know how to diagnose or treat RA. I have rather mild OA along with fairly severe RA but my RA is pretty well controlled with Methotrexate and Remicade. It is important to start aggressive treatment early because without adequate treatment RA can lead to a wheel chair fairly quickly. With treatment most people can lead a pretty normal life in spite of occasional flares of RA pain and swelling. I hope you get things controlled soon. God bless. From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of chrispreston56 Sent: Friday, February 02, 2007 8:47 AM Rheumatoid Arthritis Subject: Hi I am new Hello I have just been diagnosed with RA and I have had OA for awhile does anyone know if this is normal as these symptoms with RA are worrying. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 You probably got OA from having RA. Be sure to get yourself on fosamax or other bone saving medications, have a bone density if you havent already and see a rheumatologist. Visit www.arthritisfoundation.org for lots of valuable information for newly diagnosed patients. Hugs, Deborah USA On 2/2/07, chrispreston56 <chrispreston56@...> wrote: Hello I have just been diagnosed with RA and I have had OA for awhile does anyone know if this is normal as these symptoms with RA are worrying. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2008 Report Share Posted November 20, 2008 Dr. Schultz has his own website. You can probably get all the info you need right there. ar On Fri, 21 Nov 2008 04:54:41 -0000, " oopsanpat " <oopsanpat@...> said: > has any one heard of DR schultz and a cleanser called ( the incurables ) > if so ... where cant i get info on it??? > thank you for your time and god bless you all that are fight this,,, > may god heal you all > > thanks > > jackie > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2008 Report Share Posted November 21, 2008 I'm curious about the rationale for cleansing to treat cancers, and the evidence that supports it. Are there published studies showing it can reverse or slow an existing cancer? Objective, independently reviewed studies that provide also a numerator and a denominator (number of responses / number of participants)? I don't think cell culture experiments(in pure medium) suggest that cell mutations (which causes malignant cell behaviors) are reversed by removing what might have caused it? If this was true, lung cancer could be reversed by cessation of smoking. See for What's Lymphoma: http://www.lymphomation.org/about-lay.htm Karl Patients Against Lymphoma www.lymphomation.org > > has any one heard of DR schultz and a cleanser called ( the incurables ) > if so ... where cant i get info on it??? > thank you for your time and god bless you all that are fight this,,, > may god heal you all > > thanks > > jackie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2008 Report Share Posted November 21, 2008 I have heard about it but have not used it. But I have a friend via internet who is almost a fanatic over his products who had breast cancer and she is now well. But she did the whole line or treatment which gets pretty expensive and really can be replicated at home for the most part as it consists of raw foods juiced for the most part. Cheri > > has any one heard of DR schultz and a cleanser called ( the incurables ) > if so ... where cant i get info on it??? > thank you for your time and god bless you all that are fight this,,, > may god heal you all > > thanks > > jackie > Quote Link to comment Share on other sites More sharing options...
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