Remicade

[Guest guest]

My Mom's neighbor swears by the stuff.

Joy

MissRugby@... wrote:

I was just wondering if someone could tell me a little bit about this.

My mom is going to be starting this on Monday, and she just found out that it is

not a pill but rather IV Infusion, and she is a little worried about it. I know

she will be okay, but does it hurt? She said that they told her it takes two

hours, and it will be every 8 weeks. We are just so new to RA and not sure what

to expect.

Thank you,

Sonya

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[Guest guest]

Hi everyone,

This is Steph in VA. I'm a little behind on my email since I had my wisdom

teeth out this week. I have been on Remicade since 2000. I started it about 9

months after I was dx'd with RA.

Sonya: Remicade has worked well for me. Remicade is delivered by IV. The first

4 treatments are close together: week 0, 2 weeks , 4 weeks, 6 weeks & 8 weeks.

Joanne: I've never heard what your rheumy said about being on a schedule. The

reason I switched from Enbrel to Remicade was b/c it didn't require a crazy

schedule. (in 2000 Enbrel could only be taken every 72 hours). My life has

always been crazy -- I've been unemployed, working part time and working at

non-profits (low pay & insane hours).

Laurie: I have not had any side effects. I take 25 mg Benadryl & 500mg of

Tylenol 20 minutes before my treatment starts to prevent an allergic reaction.

Take care,

Steph in VA

My doctor stated that the people who benefit most on this treatment are those

on a set schedule. If I could just stay on that schedule, that would be great

Joanne

--- Laurie Randall <dlriowagmail (DOT) com> wrote:

I was told to take a zytrec or something similair the day before and morning

before. Do you get any more energy from being on it?

Laurie

--- MissRugbyaol (DOT) com <MissRugby%40aol. com> wrote:

I was just wondering if someone could tell me a little bit about this. My mom is

going to be starting this on Monday, and she just found out that it is not a

pill but rather IV Infusion, and she is a little worried about it. I know she

will be okay, but does it hurt? She said that they told her it takes two hours,

and it will be every 8 weeks. We are just so new to RA and not sure what to

expect.

Thank you,

Sonya

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[Guest guest]

Hi Steph,

Ouch!!! I hope you heal quickly, and no problems. You take care, and

glad to see you posting, Tawny

[Guest guest]

Joy wrote:

>

> >My Mom's neighbor swears by the stuff.

>

I have not tried Remicade because (according to my rheumy) it is in the

same category as Enbrel and Humira and neither of those worked for me.

He said if they didn't work, Remicade wouldn't work. I'm on Orencia.

The only effects I've seen from those taking Remicade infusions (while

in there getting my Orencia infusion) iare reactions (having difficulty

breathing, throat and tongue swelling and itching). The infusion nurse

said they come primarily if you start the drug, then stop the drug, then

start again. Two women had reactions to it when I was being infused

last month and both had started and stopped and started Remicade again.

They now have to take a shot of steroids and benadryl before the

Remicade infusion starts.

Nina

[Guest guest]

I am on Remecade. I love it. I used to take Enbrel and then had to stop to

have my baby. I started it again and it just stopped working. The remecade

is great too though. I have had a reaction to it twice which comes in the

form of a rash on the back of my leg. They give me a high dose of steroids

and it goes away.

I also wanted to let you all know that my tubal went fine. I am home and

doing pretty well. My shoulders and neck hurt from being filled with air but

my incisions aren't too bad.

Zoni

From: Nina [mailto:ncampbell@...]

Sent: Friday, May 11, 2007 10:15 PM

Subject: Re: [ ] Remicade

Joy wrote:

>

> >My Mom's neighbor swears by the stuff.

>

I have not tried Remicade because (according to my rheumy) it is in the

same category as Enbrel and Humira and neither of those worked for me.

He said if they didn't work, Remicade wouldn't work. I'm on Orencia.

The only effects I've seen from those taking Remicade infusions (while

in there getting my Orencia infusion) iare reactions (having difficulty

breathing, throat and tongue swelling and itching). The infusion nurse

said they come primarily if you start the drug, then stop the drug, then

start again. Two women had reactions to it when I was being infused

last month and both had started and stopped and started Remicade again.

They now have to take a shot of steroids and benadryl before the

Remicade infusion starts.

Nina

[Guest guest]

Hi,

I've been on Remicade for almost a year now. I go every six weeks to an

Ambulatory Infusion Center right in my hospital. And I have to say that I

almost look forward to it! It gets me out of the office for an afternoon,

and keeps me in one spot for three hours- not running after my 4 kids, they

have big cushy Lazy Boy chairs, get me lunch, and let me snooze. Aside from

all that fluff: they start an IV when I get there with just saline (usually

by my wrist), give me Tylenol and Benadryl, and then start the Remicade

drip. The drip starts out very slowly, and they increase it every 15

minutes until it's done. Then they change the drip back to saline solution

for a 1/2 hour. That's for two reasons: 1. To make sure you get all the

Remicade in the line, and 2. To watch for a possible reaction. I'm always

fine; I even go by myself and drive myself home. I do feel a little " washed

out " for the rest of the evening, but I think that's from the Benadryl.

Best wishes-

Patty

[Guest guest]

I just started Remicade this past month and I have had some delayed reactions;

flu like symstoms and those lasted no more than a couple of days. At my last

appt my Rhemy said he could finally feel space inbetween my hand joints so it

must be helping. I am still tired though I also have fibro so and depression.

On meds for the depression so that is no surprise to me. I just try to start

each day thanking God for the blessings I do have because I know things could

always be worse even though I wish they were better. I am so thankful I do

live in America and can get the care I do. I talked to a clerk at Walgreens who

had been stationed in Iraq and he told my Mom and me that if the troups left it

would be total caouse as it's like gansters over there, like the 1930's were

here in the US. Crime and terror would be so much worse there if the troops all

came home. There is no real moral compass over there because the beliefs are so

skewed. , I was nervous, too, about

receiving Remicade, other than being poked with those IV needles it has went

fine so far. Hang in there. Laurie

DeNicola- <stephdenicola@...> wrote: Hi ,

This is Steph in VA. I have had RA for 7.5 years and have been on Remicade for

6.5 years. I haven't had any problems either. I have gotten it my rheumy's

office, hospital outpatient & home health. Home health, which of done for 3

years, is the best. I get Tylenol and Benadryl to prevent an allergic reaction.

I get the best sleep right after from the Benadryl. My next treatment is a week

from Thursday.

Take care,

Steph in VA

Hello Everyone,

I am new to this group but I've had RA for 7 years. I've been on methotrexate

for that time but I will be starting Remicade tomorrow and I'm a little nervous

about it. The doctor's practice makes it seem like no big deal but I've only

been able to find a little on the web about the injections and it's not so

rosey. Can anyone give me their experiences and hopefully calm my nerves before

I'm up all night. Thanks so much,

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

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We raised just over $30,000 for research & programs for people with arthritis!

" Never underestimate the power of a small, dedicated group of people to change

the world -- indeed, it's the only thing that ever has. " (Margaret Mead)

---------------------------------

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