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,

Dry skin is my middle name. Always has been. Mine is accompanied by my

excema and skin allergies. I was about 2 or 3 years old with finger

cracks and bleeding and my Mom had to put special soap and creme on me.

We used an awful smelling pine tar soap then, but it sure soothed my

hands. I have tried just about everything. Including a bathtub soak of

oatmeal, olive oil and milk! I also tried plain olive oil after a bath

or shower while I am still wet and sort of just pat myself dry. Several

courses of allergy shots did help immensely. I also try to remember to

wear gloves outside and on windy days.

Now, for something practical: I have 3 main soaps I use and alternate,

depending on my day, the weather and my aquatics work. I use Neutrogena

Fragrance Free, Ivory and another one - Rose cold cream soap by Crabtree

and . Another thing I do about 3 times a week is soak in a bath

with baking soda. I put about 1/2 a box in a bath and also make a paste

of it on my skin. I buy the stuff in bulk, the largest boxes, lol, the

checkers at the market tease me about how much baking I must do!

For a great all purpose lotion, Vaseline Advanced Healing Formula works

wonders and it is fragrance free too, I use it everywhere and often.

More so on feet and hands. If my hands are chapped from wind or after

gardening, I also use a prescription of triamcinolone cream, plus the

lotion, then I cover my hands in those plastic gloves the doctors use.

The cream soaks in well and I can still type or write or cook or

anything with them on. With my feet, I use the same lotion and cream and

put on a pair of bulky cotton socks - bulky so my toes can move, but

also the socks help keep the cream in.

Sounds like alot of work, but it's not. Caring for my skin like this is

worth it! Most of the time my trigger areas don't even bother me

anymore.

~ Gretchen

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My hands used to crack and bleed when I lived up north and was

exposed to colder, harsher climates. The cracking and bleeding has

not been a major problem since I moved to the south. The cold

weather was the biggest culprit for my CMT hands.

Regarding dry skin, I have become a huge fan of the salt and/or sugar

scrubs that are on the market now. Bath and Body Works carries a

nice line of these scrubs. They are a combination of a gritty sand-

like substance to exfoliate AND essential oils to soften and soothe

the skin. The combination is wonderful. My skin has NEVER been

softer in my life than it is now, and I have always had overly dry

skin! I use them every time I bathe or shower. They might be worth

a try. Because it is an oil-based product, you do need to be careful

and wipe out your tub and showers after you use them so you don't

leave a slick film that could cause a fall the next time.

Ruth in Raleigh

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Ask your Doc about Aquafilic. It is put on after a shower. I live in

Colorado where the dry air sucks the moisture out of you. I use this

everyday. Also try not to use soap on the feet unless necessary. Soap

really dry's. Hope this helps........

Martha

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Strange, I was driving this morning and I thought about my dry skin

problems when I was a kid and whether they could be CMT related. I no

longer have severe dry skin but when I was a young my feet would

crack and bleed. I was wondering if this is common with CMT?

JD

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Well, the whole dry skin thing is an ongoing challenge. I once

heard a guy say that his dry skin went away after he was treated for

skin cancer! It seems that his family was all dark and they lived

by the beach, and he really WAS the red-haired, fair-skinned

stepchild. He was sunburned all the time, and got skin cancer at a

young age. They did some chemotherapy thing to his face, and he was

surprised that his " dry skin " went away. I know my most troublesome

areas are those that I sunburned when I was a kid.

I finally started using -- I know this sounds weird, but it really

works for me -- Crisco. It is so much cheaper than lotion, and it

has no scent. I just rub it on after a shower, and it is a big

help. I still use hand lotion throughout the day.

-- Folly

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Rochelle-

Great posting! I especially chuckled about staying

single and staying young. That makes plenty of sense

to me especially if you're talking about taking care

of a husband and kids rather than just taking care of

yourself.

All of these postings about dry skin have come as a

big surprise to me. I've always had dry skin too and I

attributed it completely to the fact that I've been a

lifelong competitive swimmer and I've spent my entire

30+ year career working in a pool, much of the time

outdoors. I can understand how CMT could affect the

skin but are there any studies on the topic or is all

of this anecdotal evidence?

Deni Gillespie

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Hi folks,

My secret weapon for dry skin (hands) and minor foot

sores.....BAG BALM, the stuff dairy farmers use on

cow's udders, has lanolin, vasoline, vitamins A & E and

a little Aloe thrown in. This stuff will even heal a

near fatal hangnail. I swear by it.

Jim Nash in Ohio

P.S. Because it works so well on hands it has saved a

lot of farmers from getting kicked!

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I thought I had dry skin on my feet. But I went to a new podiatrist who said

I have a fungal infection. She wanted me to take the antifungal med where

you have to have your liver functions check every few months. But I was

hesitant to take that. So she gave me her own brand of cream but it did no

good. Now I am spraying with over-the-counter stuff.

Any ideaas or advice. I thought that liver checking med might not be good

with CMT.

Joan

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  • 4 years later...
Guest guest

My skin is dry and very itchy all yr round. I scratch it so badly

that I have scabs all over me. Used to be only winter, but now is yr

round. Iwondered if it is RA or RA meds that might contribute to

this. I have been on mtx for many yrs, also embrel. Anyone w/ similar

situation? I have also wondered if a water softener would make a

difference.

Thanks,

Margie

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I have itchy skin also. I get dry patches that are real flaky and mildly red. I was thinking possible psoriatic arthritis. Lotion doesn't even seem to help.

I take mtx but not enbrel. I use Arava instead.

Vicki

----- Original Message ----From: emhenry2002 <emhenry2002@...>Rheumatoid Arthritis Sent: Sunday, May 13, 2007 9:54:52 AMSubject: dry skin

My skin is dry and very itchy all yr round. I scratch it so badlythat I have scabs all over me. Used to be only winter, but now is yrround. Iwondered if it is RA or RA meds that might contribute tothis. I have been on mtx for many yrs, also embrel. Anyone w/ similarsituation? I have also wondered if a water softener would make adifference.Thanks,Margie

Don't pick lemons.

See all the new 2007 cars at Autos.

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Dear Margie- You might think of seeing a dermatologist. MTX can cause itchiness. I must say that Using Aveeno Anti Itch has been a god send for me. Taking Calahist Gel and slathering will help too. Lastly they do have tar cream or something diabetics use. You might think about taking low dose benadryl or claritin to help. Also a steriod topical cream might help. You may also have a food allergy. I hope this helps. I have been getting flea bites that sting and bleed. The Aveeno Calamine really really helped. I am fine right now. Please resist the urge to itch. Use Ice to numb the area and think about seeing a specialist for this or stop MTX for a week to see if the itchiness is lessened. There are many alternatives to MTX that are just as or more effective. Hugs, Deborah

On 5/13/07, emhenry2002 <emhenry2002@...> wrote:

My skin is dry and very itchy all yr round. I scratch it so badlythat I have scabs all over me. Used to be only winter, but now is yrround. Iwondered if it is RA or RA meds that might contribute tothis. I have been on mtx for many yrs, also embrel. Anyone w/ similar

situation? I have also wondered if a water softener would make adifference.Thanks,Margie

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I've had the same problem myself! My legs and arms especially. I kept going from one dermatologists to another without an answer. Finally the last one I saw said it was folliculitus (sp?). Basically it means that the skin does not shed itself naturally. The dead skin cells rather that fall off stay in and clog the pores. I started using a loofah brush. My skin got worse before it got better. I also find that lotions and things like that seem to make my skin itchier and only clogs the pores worse.

-------Original Message-------

From: emhenry2002

Date: 5/13/2007 10:59:37 AM

Rheumatoid Arthritis

Subject: dry skin

My skin is dry and very itchy all yr round. I scratch it so badlythat I have scabs all over me. Used to be only winter, but now is yrround. Iwondered if it is RA or RA meds that might contribute tothis. I have been on mtx for many yrs, also embrel. Anyone w/ similarsituation? I have also wondered if a water softener would make adifference.Thanks,Margie

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Hi All,

My skin is doing very strange things as well. I have little crusty looking bumps all over my arms and legs. Nothing surprises me anymore.

My hubby and I are having a little r & r on the lake, and I came home for a bit to go to church and to do the laundry. I am having alot of trouble getting the ole stress level down, so we got in our rv and went to the lake because it seems that nature and water seems to calm me. I need to get a laptop so that I can keep up with yu all. lol

Hugs from Ok.,

Gloria> > My skin is dry and very itchy all yr round.> Anyone w/ similar situation?> > Ardeith writes: My rheumy says RA can affect every organ in our bodies, and> the skin is the largest organ. The skin that was exposed to the weather> most...my lower arms and legs below the knee is itchy, and flakey.....year> round. If I don't use something like benedryl cream, I will scratch till I> break the skin....just like you.> > My skin is also very fragile. You can run your fingernail down my arm,> without breaking the skin, and break the little capillaries under the skin,> raising a long blood- blister that looks awful. The slightest little bump> will do the same. My rheumy says the fragility comes from many years on> aspirin and cortisone-type drugs...> Ardy>

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Hi Gloria, Are the spots itchy? Do you take Methotrexate? Since taking mtx I have an allergy to the sun now. Especially on my arms. When exposed to the sun for a very very short time I get itchy red bumps on my arms. I havent found anything that really helps yet. I use shea butter lotion on my skin daily and it seems to help a bit. Especially after exposure to the sun. Not even sunscreen has prevented it from happening. My doc says to wear long sleeves but there is no way I can do that in the middle of summer when I am burning up anyway. Hope this helps. glokay20022002 <glokay20022002@...> wrote: Hi All, My skin is doing very strange things as well. I have little crusty looking bumps all over my arms and legs. Nothing surprises me anymore. My hubby and I are having a little r & r on the lake, and I came home for a bit to go to church and to do the laundry. I am having alot of trouble getting the ole stress level down, so we got in our rv and went to the lake because it seems that nature and water seems to calm me. I need to get a laptop so that I can keep up with yu all. lol Hugs from Ok., Gloria> > My skin is dry and very itchy all yr round.> Anyone w/ similar situation?> > Ardeith writes: My rheumy says RA can affect every organ in our bodies, and> the skin is the largest organ. The skin that was exposed to the weather> most...my lower arms and legs below the knee is itchy, and flakey.....year> round. If I don't use something like benedryl cream, I will scratch till I> break the skin....just like you.> > My skin is also very fragile. You can run your fingernail down my arm,> without breaking the skin, and break the little capillaries under the skin,> raising a long blood- blister that looks awful. The slightest little

bump> will do the same. My rheumy says the fragility comes from many years on> aspirin and cortisone-type drugs...> Ardy>

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Hi everyone- Since MTX can cause dermatologic symptoms because after all it is chemotherapy, using a steriod cream can help or a calamine lotion. I use Aveeno Anti Itch and it really helps alot. I havent been out in the sun for ever. Its amazing how aging shows from past exposure in those sun spots after 40. I am 46 now and am try ing to fade them on my face but having little luck. I have to go out in the sunlight for 20 minutes to absorb vitamin D but thats really it. I dont go outside until much later in the day anyway so risk of sunburn passed after 5pm. Hugs, Deborah

On 5/21/07, <angelac71@...> wrote:

Hi Gloria,

Are the spots itchy? Do you take Methotrexate? Since taking mtx I have an allergy to the sun now. Especially on my arms. When exposed to the sun for a very very short time I get itchy red bumps on my arms. I havent found anything that really helps yet. I use shea butter lotion on my skin daily and it seems to help a bit. Especially after exposure to the sun. Not even sunscreen has prevented it from happening. My doc says to wear long sleeves but there is no way I can do that in the middle of summer when I am burning up anyway. Hope this helps.

glokay20022002 <glokay20022002

> wrote:

Hi All,

My skin is doing very strange things as well. I have little crusty looking bumps all over my arms and legs. Nothing surprises me anymore.

My hubby and I are having a little r & r on the lake, and I came home for a bit to go to church and to do the laundry. I am having alot of trouble getting the ole stress level down, so we got in our rv and went to the lake because it seems that nature and water seems to calm me. I need to get a laptop so that I can keep up with yu all. lol

Hugs from Ok.,

Gloria> > My skin is dry and very itchy all yr round.> Anyone w/ similar situation?> > Ardeith writes: My rheumy says RA can affect every organ in our bodies, and> the skin is the largest organ. The skin that was exposed to the weather

> most...my lower arms and legs below the knee is itchy, and flakey.....year> round. If I don't use something like benedryl cream, I will scratch till I> break the skin....just like you.>

> My skin is also very fragile. You can run your fingernail down my arm,> without breaking the skin, and break the little capillaries under the skin,> raising a long blood- blister that looks awful. The slightest little bump

> will do the same. My rheumy says the fragility comes from many years on> aspirin and cortisone-type drugs...> Ardy>

Be a better Heartthrob.

Get better relationship answers from someone who knows. Answers - Check it out.

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  • 2 weeks later...
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Thank you . I am sorry that it has taken me so long to respond. I have been at the lake for 3 wks. There have been so very many stressful things happen in my life the past month that my hubby thought that the lake would be good. The spots that I have are raised and crusty like a wart, but are not warts. Just weird. I will try the shea butter. I have some from bath and body so I will put it to use. Hugs, Gloria <angelac71@...> wrote: Hi Gloria, Are the spots itchy? Do you take Methotrexate? Since taking mtx I have an allergy to the sun now. Especially on my arms. When exposed to the sun for a very very short time I get itchy red bumps on my arms. I havent found anything that really helps yet. I use shea butter lotion on my skin daily and it seems to help a bit. Especially after exposure to the sun. Not even sunscreen has prevented it from happening. My doc says to wear long sleeves but there is no way I can do that in the middle of summer when I am burning up anyway. Hope this helps. glokay20022002 <glokay20022002 > wrote: Hi All, My skin is doing very strange things as well. I have little crusty looking bumps all over my arms and legs. Nothing surprises me anymore. My hubby and I are having a little r & r on the lake, and I came home for a bit to go to church and to do the laundry. I am having alot of trouble getting the ole stress level down, so we got in our rv and went to the lake because it seems that nature and water seems to calm me. I need to get a laptop so that I can keep up with yu all. lol Hugs from Ok., Gloria> > My skin is dry and very itchy all yr round.> Anyone w/ similar situation?> > Ardeith writes: My rheumy says RA can affect every organ in our bodies, and> the skin is the largest organ. The skin that was exposed to the weather> most...my lower arms and legs below the knee is itchy, and flakey.....year> round. If I don't use something like benedryl cream, I will scratch till I> break the skin....just like you.> > My skin is also very fragile. You can run your fingernail down my arm,> without breaking the skin, and break the little capillaries under the skin,> raising a long blood- blister that looks awful. The slightest little bump> will do the same. My rheumy says the fragility comes from many years on> aspirin and cortisone-type drugs...> Ardy> Be a better Heartthrob. Get better relationship answers from someone who knows. Answers - Check it out.

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You could also try some Honey....here's an insert about Honey .......

As a humectant, honey draws moisture into the skin, making it a good choice for dry skin sufferers. It also has antimicrobial properties that inhibit the growth of bacteria and help thwart acne flare ups.

" Honey is good for all skin types. It is the purest beauty ingredient available today, " says Watt. " Literally, it goes from the hive to the bottle. "

-- .-.. .-.. ( o )_( o ) __ / '-' '-' \ __

/ / " \ \ | \ \___/ / | \ \`-. ____ .-' / / - ' /\ /\ '-.

( (_// (_ _) \\_) ) frogge ºÜº http://www.myspace.com/froggelady

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I tend to drink tea with honey every night. I love it. I really think it helps my skin and my overall health as its a free radical scavenger. Hugs, Deborah

On 6/1/07, Frogge <lilypadluxuries@...> wrote:

You could also try some Honey....here's an insert about Honey .......

As a humectant, honey draws moisture into the skin, making it a good choice for dry skin sufferers. It also has antimicrobial properties that inhibit the growth of bacteria and help thwart acne flare ups.

" Honey is good for all skin types. It is the purest beauty ingredient available today, " says Watt. " Literally, it goes from the hive to the bottle. " -- .-.. .-.. ( o )_( o ) __ / '-' '-' \ __

/ / " \ \ | \ \___/ / | \ \`-. ____ .-' / / - ' /\ /\ '-.

( (_// (_ _) \\_) ) frogge ºÜº

http://www.myspace.com/froggelady

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OK....I'm confused. Is using honey in tea as good for the skin as just rubbing it on the skin?

Ardy

----- Original Message -----

From: Deborah Bargad

Rheumatoid Arthritis

Sent: Saturday, June 02, 2007 12:56 PM

Subject: Re: Re: dry skin

I tend to drink tea with honey every night. I love it. I really think it helps my skin and my overall health as its a free radical scavenger. Hugs, Deborah

On 6/1/07, Frogge <lilypadluxuries@...> wrote:

You could also try some Honey....here's an insert about Honey .......

As a humectant, honey draws moisture into the skin, making it a good choice for dry skin sufferers. It also has antimicrobial properties that inhibit the growth of bacteria and help thwart acne flare ups.

"Honey is good for all skin types. It is the purest beauty ingredient available today," says Watt. "Literally, it goes from the hive to the bottle." -- .-.. .-.. ( o )_( o ) __ / '-' '-' \ __ / / " \ \ | \ \___/ / | \ \`-. ____ .-' / / - ' /\ /\ '-. ( (_// (_ _) \\_) ) frogge ºÜº http://www.myspace.com/froggelady

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Ohhhh ...sorry......I was talking about for the skin via the outside. I'm on a list where the discussion was masks and dry skin etc. Honey was brought up.

Apply to damp skin, let set as you would any mask, and wash off gently with warm water. Unless you have allergies....can't hurt to try :)

I know lots of people use Honey as their sweetner instead of sugar....:)

Carla :)-- .-.. .-.. ( o )_( o ) __ / '-' '-' \ __ / / " \ \

| \ \___/ / | \ \`-. ____ .-' / / - ' /\ /\ '-. ( (_// (_ _) \\_) )

frogge ºÜº http://www.myspace.com/froggelady

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