Guest guest Posted June 12, 2007 Report Share Posted June 12, 2007 Hi! My name is Alondra, I'm 24, and was diagnosed with RA in 2004. Though RA is not my only problem, I was diagnosed in 2001 with LUPUS and then last year with Autoimmune Hepatitis. Not the best combination. Reason I decided join was because I need help, I need advice, I was taken off of my enbrel 2 weeks ago because it caused my liver to flare up, and since there is no medication in my system my RA is flaring with a vengeance. Is there anything that you guys do to alleviate the pain? Thanks Alondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2007 Report Share Posted June 17, 2007 Dear Alondra- Remicade is an option. You can try it to see if it bothers your liver but I have taken it for ages without a problem. You can also try cyclosporine. It is considered to be nephrotoxic (kidneys) so test need to be done every few months. You need to limit your intake of NSaids taking it as it enhances the drugs affect but can go up on steriod if needed. MTX must not be an option for you as your kidneys are sensitive. Be sure to mind your diet, eat small meals that are low carb, low fat, lots of fruit and veggies. Arava might also be an option for you. It works directly by delivery meds to your stomach and intestines first. It is a good option to try first. You are suffering mightily with everything on board. RA is hard enough. Try to find a support group in your area. It helped me so much when I was suffering so very much. See a chronic illness therapist. Email me off list anytime. yours, Deborah On 6/12/07, Nonis <sweet_nonis@...> wrote: Hi! My name is Alondra, I'm 24, and was diagnosed with RA in 2004. Though RA is not my only problem, I was diagnosed in 2001 with LUPUS and then last year with Autoimmune Hepatitis. Not the best combination. Reason I decided join was because I need help, I need advice, I was taken off of my enbrel 2 weeks ago because it caused my liver to flare up, and since there is no medication in my system my RA is flaring with a vengeance. Is there anything that you guys do to alleviate the pain? Thanks Alondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2007 Report Share Posted June 17, 2007 I have hereditary hemochromatosis which has limited the drugs I can take. I've had good luck on sulfaphalazine (sp?). If anything my liver tests have improved while on it. NTM daily heartburn is gone. It has some sort of liver healing propriety to it that I've read in the medical journals. I've also been on enbrel for 10 weeks and still waiting for something positive there. -------Original Message------- From: Deborah Bargad Date: 6/17/2007 4:31:39 PM Rheumatoid Arthritis Subject: Re: I'm New to the group... Dear Alondra- Remicade is an option. You can try it to see if it bothers your liver but I have taken it for ages without a problem. You can also try cyclosporine. It is considered to be nephrotoxic (kidneys) so test need to be done every few months. You need to limit your intake of NSaids taking it as it enhances the drugs affect but can go up on steriod if needed. MTX must not be an option for you as your kidneys are sensitive. Be sure to mind your diet, eat small meals that are low carb, low fat, lots of fruit and veggies. Arava might also be an option for you. It works directly by delivery meds to your stomach and intestines first. It is a good option to try first. You are suffering mightily with everything on board. RA is hard enough. Try to find a support group in your area. It helped me so much when I was suffering so very much. See a chronic illness therapist. Email me off list anytime. yours, Deborah On 6/12/07, Nonis <sweet_nonis > wrote: Hi! My name is Alondra, I'm 24, and was diagnosed with RA in 2004. Though RA is not my only problem, I was diagnosed in 2001 with LUPUS and then last year with Autoimmune Hepatitis. Not the best combination. Reason I decided join was because I need help, I need advice, I was taken off of my enbrel 2 weeks ago because it caused my liver to flare up, and since there is no medication in my system my RA is flaring with a vengeance. Is there anything that you guys do to alleviate the pain? Thanks Alondra Messages in this topic (0) Reply (via web post) | Start a new topic Recent Activity 2 New MembersVisit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2007 Report Share Posted June 17, 2007 If you have troubles with many medications you may benefit from antibiotic therapy (tetracycline family such as Minocycline). You can read about that at the Roadback Foundation web site. God bless. From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of ~~****~~ Sent: Sunday, June 17, 2007 2:01 PM Rheumatoid Arthritis Subject: [sPAM] Re: I'm New to the group... I have hereditary hemochromatosis which has limited the drugs I can take. I've had good luck on sulfaphalazine (sp?). If anything my liver tests have improved while on it. NTM daily heartburn is gone. It has some sort of liver healing propriety to it that I've read in the medical journals. I've also been on enbrel for 10 weeks and still waiting for something positive there. -------Original Message------- From: Deborah Bargad Date: 6/17/2007 4:31:39 PM Rheumatoid Arthritis Subject: Re: I'm New to the group... Dear Alondra- Remicade is an option. You can try it to see if it bothers your liver but I have taken it for ages without a problem. You can also try cyclosporine. It is considered to be nephrotoxic (kidneys) so test need to be done every few months. You need to limit your intake of NSaids taking it as it enhances the drugs affect but can go up on steriod if needed. MTX must not be an option for you as your kidneys are sensitive. Be sure to mind your diet, eat small meals that are low carb, low fat, lots of fruit and veggies. Arava might also be an option for you. It works directly by delivery meds to your stomach and intestines first. It is a good option to try first. You are suffering mightily with everything on board. RA is hard enough. Try to find a support group in your area. It helped me so much when I was suffering so very much. See a chronic illness therapist. Email me off list anytime. yours, Deborah On 6/12/07, Nonis <sweet_nonis > wrote: Hi! My name is Alondra, I'm 24, and was diagnosed with RA in 2004. Though RA is not my only problem, I was diagnosed in 2001 with LUPUS and then last year with Autoimmune Hepatitis. Not the best combination. Reason I decided join was because I need help, I need advice, I was taken off of my enbrel 2 weeks ago because it caused my liver to flare up, and since there is no medication in my system my RA is flaring with a vengeance. Is there anything that you guys do to alleviate the pain? Thanks Alondra Messages in this topic (0) Reply (via web post) | Start a new topic Recent Activity 2 New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2007 Report Share Posted June 17, 2007 To take care of a flare a lot of us use Prednisone. That is a strong anti-inflammatory that usually acts quickly to help the symptoms of RA. It has some bad side effects when used for long periods at high doses so we usually try to get off it again as soon as we can, but it really does help us to function when we need it. Another thing to consider is antibiotic therapy. That uses a medication such as Minocycline. You can read about that on the Roadback Foundation website. God bless. From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of Nonis Sent: Tuesday, June 12, 2007 8:52 AM Rheumatoid Arthritis Subject: [sPAM] I'm New to the group... Hi! My name is Alondra, I'm 24, and was diagnosed with RA in 2004. Though RA is not my only problem, I was diagnosed in 2001 with LUPUS and then last year with Autoimmune Hepatitis. Not the best combination. Reason I decided join was because I need help, I need advice, I was taken off of my enbrel 2 weeks ago because it caused my liver to flare up, and since there is no medication in my system my RA is flaring with a vengeance. Is there anything that you guys do to alleviate the pain? Thanks Alondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2007 Report Share Posted June 18, 2007 I recently talked to my doctor about going back on predisone and he didnt want to do that so he suggested that I get a depo medrol shot in my shoulder once a month. I felt great the first two weeks but this last two weeks have been back to feeling horrible again. Going to doc tomorrow and cant wait for that shot again. Anyone else in the group get the depo medrol? I'm curious if anyone has had any bad side affects from it. I'm hoping my doc can do something to make it last longer though. It has changed my energy level drastically. Thanks for any input in MichiganHarold Van Tuyl <hvantuyl@...> wrote: To take care of a flare a lot of us use Prednisone. That is a strong anti-inflammatory that usually acts quickly to help the symptoms of RA. It has some bad side effects when used for long periods at high doses so we usually try to get off it again as soon as we can, but it really does help us to function when we need it. Another thing to consider is antibiotic therapy. That uses a medication such as Minocycline. You can read about that on the Roadback Foundation website. God bless. From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of NonisSent: Tuesday, June 12, 2007 8:52 AMRheumatoid Arthritis Subject: [sPAM] I'm New to the group... Hi! My name is Alondra, I'm 24, and was diagnosed with RA in 2004. Though RA is not my only problem, I was diagnosed in 2001 with LUPUS and then last year with Autoimmune Hepatitis. Not the best combination. Reason I decided join was because I need help, I need advice, I was taken off of my enbrel 2 weeks ago because it caused my liver to flare up, and since there is no medication in my system my RA is flaring with a vengeance. Is there anything that you guys do to alleviate the pain? Thanks Alondra Got a little couch potato? Check out fun summer activities for kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2007 Report Share Posted June 18, 2007 Depo doesnt work for me. I'd rather stay on pred at a low dose (5-10 mg per day). I also take mtx and sulfasalasine. That combo works best for me. I haven't had any bad side effects from sulfasalasine or pred. Mtx makes my hair oily and fall out --- <angelac71@...> wrote: > I recently talked to my doctor about going back on > predisone and he didnt want to do that so he > suggested that I get a depo medrol shot in my > shoulder once a month. I felt great the first two > weeks but this last two weeks have been back to > feeling horrible again. Going to doc tomorrow and > cant wait for that shot again. Anyone else in the > group get the depo medrol? I'm curious if anyone has > had any bad side affects from it. I'm hoping my doc > can do something to make it last longer though. It > has changed my energy level drastically. > Thanks for any input > in Michigan > > Harold Van Tuyl <hvantuyl@...> wrote: > To take care of a flare a lot of us > use Prednisone. That is a strong anti-inflammatory > that usually acts quickly to help the symptoms of > RA. It has some bad side effects when used for long > periods at high doses so we usually try to get off > it again as soon as we can, but it really does help > us to function when we need it. > > Another thing to consider is antibiotic therapy. > That uses a medication such as Minocycline. You can > read about that on the Roadback Foundation website. > God bless. > > > --------------------------------- > > From: Rheumatoid Arthritis > [mailto:Rheumatoid Arthritis ] On > Behalf Of Nonis > Sent: Tuesday, June 12, 2007 8:52 AM > Rheumatoid Arthritis > Subject: [sPAM] I'm New to > the group... > > > Hi! My name is Alondra, I'm 24, and was > diagnosed with RA in 2004. > Though RA is not my only problem, I was diagnosed in > 2001 with LUPUS > and then last year with Autoimmune Hepatitis. Not > the best > combination. > > Reason I decided join was because I need help, I > need advice, I was > taken off of my enbrel 2 weeks ago because it caused > my liver to flare > up, and since there is no medication in my system my > RA is flaring > with a vengeance. > > Is there anything that you guys do to alleviate the > pain? > > Thanks > Alondra > > > > > > > > > > > > > --------------------------------- > Got a little couch potato? > Check out fun summer activities for kids. ________________________________________________________________________________\ ____ Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when. http://tv./collections/222 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2007 Report Share Posted June 18, 2007 >Anyone else in the> group get the depo medrol? I'm curious if anyone has> had any bad side affects from it. I'm hoping my doc> can do something to make it last longer though. It> has changed my energy level drastically. My current treatment includes Plaquenil and depo medrol shots. The depo medrol does more for me than the plaquenil, but I have gained weight on it and my blood pressure has increased so I try to stay off the shots as much as possible. I am allergic to sulfa drugs so I cannot take sulfasalasine. The depo medrol lasts for 2-3 weeks, then it passes out of the system. Vioxx did more for me as far as pain than the depo medrol. Has anyone heard anything about the replacement drug Merck is working on? ~Marie Find information on:American Singer Canaries- one of the most popular breeds in the United States at www.americansingercanary.comThe Practical Canary Handbook - A Guide to Breeding and Keeping Canaries at www.practicalcanary.comAmerican Singer Canary Breeders - www.americansingercanaries.comASC Chapter 22 (DRAGON) at www.dragon.americansingercanary.comASC Chapter 6 at www.chapter6.americansingercanary.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2007 Report Share Posted June 18, 2007 Dear , I have two of these shots in the last 8 weeks - the last one being on Friday last. Because I am suffering such widespread pain my consultant put the shot into my bottom to give widespread relief. I am feeling so much better today - for the first time in ages I have been able to push the vacuum cleaner around and mop my floor - still very painful but at least I can do it !! The last shot I had only lasted for approx. 1 week, I am hoping that this one lasts longer as my ESR levels have dropped a little also. I am also taking methotrexate and celebrex amongst other drugs, which I have been on for 12 weeks now. One side effect of the shot that I have noticed is that I have had palpitations (quite bad the day I had the shot) - lessenning now but still there. Also as I am diabetic my sugar levels rose slightly for a couple of days but they are reducing now. Best wishes Lynda <angelac71@...> wrote: I recently talked to my doctor about going back on predisone and he didnt want to do that so he suggested that I get a depo medrol shot in my shoulder once a month. I felt great the first two weeks but this last two weeks have been back to feeling horrible again. Going to doc tomorrow and cant wait for that shot again. Anyone else in the group get the depo medrol? I'm curious if anyone has had any bad side affects from it. I'm hoping my doc can do something to make it last longer though. It has changed my energy level drastically. Thanks for any input in MichiganHarold Van Tuyl <hvantuylcharter (DOT) net> wrote: To take care of a flare a lot of us use Prednisone. That is a strong anti-inflammatory that usually acts quickly to help the symptoms of RA. It has some bad side effects when used for long periods at high doses so we usually try to get off it again as soon as we can, but it really does help us to function when we need it. Another thing to consider is antibiotic therapy. That uses a medication such as Minocycline. You can read about that on the Roadback Foundation website. God bless. From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of NonisSent: Tuesday, June 12, 2007 8:52 AMRheumatoid Arthritis Subject: [sPAM] I'm New to the group... Hi! My name is Alondra, I'm 24, and was diagnosed with RA in 2004. Though RA is not my only problem, I was diagnosed in 2001 with LUPUS and then last year with Autoimmune Hepatitis. Not the best combination. Reason I decided join was because I need help, I need advice, I was taken off of my enbrel 2 weeks ago because it caused my liver to flare up, and since there is no medication in my system my RA is flaring with a vengeance. Is there anything that you guys do to alleviate the pain? Thanks Alondra Got a little couch potato? Check out fun summer activities for kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2007 Report Share Posted June 18, 2007 , I take a shot like this every 3 months, my doctor won’t give it to me anymore often because of fear of making a joint brittle or other side effects. Mine is given inner muscularly, (usually kenolog 60mgs) so it is wide spread benefits. I also take sulphasalaine , plaquenil, and relefan. Lately It doesn’t work as well as it use to either, I usually get about a month out of it. It works really well for me and the only side effects I have are a day or two after, I feel kind of flushed and maybe a little cranky. -----Original Message----- From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of Sent: Sunday, June 17, 2007 10:41 PM To: Rheumatoid Arthritis Subject: RE: I'm New to the group... I recently talked to my doctor about going back on predisone and he didnt want to do that so he suggested that I get a depo medrol shot in my shoulder once a month. I felt great the first two weeks but this last two weeks have been back to feeling horrible again. Going to doc tomorrow and cant wait for that shot again. Anyone else in the group get the depo medrol? I'm curious if anyone has had any bad side affects from it. I'm hoping my doc can do something to make it last longer though. It has changed my energy level drastically. Thanks for any input in Michigan Harold Van Tuyl <hvantuylcharter (DOT) net> wrote: To take care of a flare a lot of us use Prednisone. That is a strong anti-inflammatory that usually acts quickly to help the symptoms of RA. It has some bad side effects when used for long periods at high doses so we usually try to get off it again as soon as we can, but it really does help us to function when we need it. Another thing to consider is antibiotic therapy. That uses a medication such as Minocycline. You can read about that on the Roadback [mailto:Rheumatoid Arthritis ] On Behalf Of Nonis Sent: Tuesday, June 12, 2007 8:52 AM Rheumatoid Arthritis Subject: [sPAM] I'm New to the group... Hi! My name is Alondra, I'm 24, and was diagnosed with RA in 2004. Though RA is not my only problem, I was diagnosed in 2001 with LUPUS and then last year with Autoimmune Hepatitis. Not the best combination. Reason I decided join wa because I need help, I need advice, I was taken off of my enbrel 2 weeks ago because it caused my liver to flare up, and since there is no medication in my system my RA is flaring with a vengeance. Is there anything that you guys do to alleviate the pain? Thanks Alondra Got a little couch potato? Check out fun summer activities for kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2007 Report Share Posted June 18, 2007 I have been on Presnisone for many many years. I was given a depot shot once, but it wore off too quickly. The initial dosage is higher and does too much damage in higher doses most especially to my bones. I take a 5 mg and a 1mg when I get up, and then one or two before I go to bed. I take more when I need to be active and leave a little during the night. When you break up the dose, it tends to last longer and work better. I hope this helps. Good Luck. Deborah On 6/18/07, Emge Mosoriak <lemge1@...> wrote: Depo doesnt work for me. I'd rather stay on pred at alow dose (5-10 mg per day). I also take mtx andsulfasalasine. That combo works best for me.I haven't had any bad side effects from sulfasalasine or pred. Mtx makes my hair oily and fall out --- <angelac71@...> wrote: > I recently talked to my doctor about going back on> predisone and he didnt want to do that so he> suggested that I get a depo medrol shot in my> shoulder once a month. I felt great the first two > weeks but this last two weeks have been back to> feeling horrible again. Going to doc tomorrow and> cant wait for that shot again. Anyone else in the> group get the depo medrol? I'm curious if anyone has > had any bad side affects from it. I'm hoping my doc> can do something to make it last longer though. It> has changed my energy level drastically. > Thanks for any input> in Michigan > > Harold Van Tuyl <hvantuyl@...> wrote:> To take care of a flare a lot of us > use Prednisone. That is a strong anti-inflammatory> that usually acts quickly to help the symptoms of> RA. It has some bad side effects when used for long> periods at high doses so we usually try to get off > it again as soon as we can, but it really does help> us to function when we need it.> > Another thing to consider is antibiotic therapy. > That uses a medication such as Minocycline. You can > read about that on the Roadback Foundation website. > God bless.> > > ---------------------------------> > From: Rheumatoid Arthritis > [mailto:Rheumatoid Arthritis ] On> Behalf Of Nonis> Sent: Tuesday, June 12, 2007 8:52 AM> Rheumatoid Arthritis > Subject: [sPAM] I'm New to> the group...> > > Hi! My name is Alondra, I'm 24, and was> diagnosed with RA in 2004. > Though RA is not my only problem, I was diagnosed in > 2001 with LUPUS > and then last year with Autoimmune Hepatitis. Not> the best > combination. > > Reason I decided join was because I need help, I> need advice, I was > taken off of my enbrel 2 weeks ago because it caused> my liver to flare > up, and since there is no medication in my system my> RA is flaring > with a vengeance. > > Is there anything that you guys do to alleviate the > pain? > > Thanks > Alondra > > > > > > > > > > > > > ---------------------------------> Got a little couch potato? > Check out fun summer activities for kids.__________________________________________________________Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when. http://tv./collections/222 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2007 Report Share Posted June 19, 2007 I'm surprised you can take pred at night. When I did that, I had sleep disturbances--couldn't sleep through the night. that is a common side effect I didn't know about until I had it happen to me. That's a warning to those that may be first starting pred. I suggest taking it in the morning. That is also when our body naturally produces it the most. --- Deborah Bargad <dbargad@...> wrote: > I have been on Presnisone for many many years. I > was given a depot shot > once, but it wore off too quickly. The initial > dosage is higher and does > too much damage in higher doses most especially to > my bones. I take a 5 mg > and a 1mg when I get up, and then one or two before > I go to bed. I take > more when I need to be active and leave a little > during the night. When you > break up the dose, it tends to last longer and work > better. I hope this > helps. Good Luck. Deborah > > On 6/18/07, Emge Mosoriak <lemge1@...> > wrote: > > > > Depo doesnt work for me. I'd rather stay on pred > at a > > low dose (5-10 mg per day). I also take mtx and > > sulfasalasine. That combo works best for me. > > I haven't had any bad side effects from > sulfasalasine > > or pred. Mtx makes my hair oily and fall out > > > > --- <angelac71@... > <angelac71%40>> wrote: > > > > > I recently talked to my doctor about going back > on > > > predisone and he didnt want to do that so he > > > suggested that I get a depo medrol shot in my > > > shoulder once a month. I felt great the first > two > > > weeks but this last two weeks have been back to > > > feeling horrible again. Going to doc tomorrow > and > > > cant wait for that shot again. Anyone else in > the > > > group get the depo medrol? I'm curious if anyone > has > > > had any bad side affects from it. I'm hoping my > doc > > > can do something to make it last longer though. > It > > > has changed my energy level drastically. > > > Thanks for any input > > > in Michigan > > > > > > Harold Van Tuyl <hvantuyl@... > <hvantuyl%40charter.net>> wrote: > > > To take care of a flare a lot of us > > > use Prednisone. That is a strong > anti-inflammatory > > > that usually acts quickly to help the symptoms > of > > > RA. It has some bad side effects when used for > long > > > periods at high doses so we usually try to get > off > > > it again as soon as we can, but it really does > help > > > us to function when we need it. > > > > > > Another thing to consider is antibiotic therapy. > > > That uses a medication such as Minocycline. You > can > > > read about that on the Roadback Foundation > website. > > > God bless. > > > > > > > > > --------------------------------- > > > > > > From: > Rheumatoid Arthritis <Rheumatoid Arthritis%40> > > > > [mailto:Rheumatoid Arthritis <Rheumatoid Arthritis%40groups.\ com>] > > On > > > Behalf Of Nonis > > > Sent: Tuesday, June 12, 2007 8:52 AM > > > To: > Rheumatoid Arthritis <Rheumatoid Arthritis%40> > > > Subject: [sPAM] I'm New > to > > > the group... > > > > > > > > > Hi! My name is Alondra, I'm 24, and was > > > diagnosed with RA in 2004. > > > Though RA is not my only problem, I was > diagnosed in > > > 2001 with LUPUS > > > and then last year with Autoimmune Hepatitis. > Not > > > the best > > > combination. > > > > > > Reason I decided join was because I need help, I > > > need advice, I was > > > taken off of my enbrel 2 weeks ago because it > caused > > > my liver to flare > > > up, and since there is no medication in my > system my > > > RA is flaring > > > with a vengeance. > > > > > > Is there anything that you guys do to alleviate > the > > > pain? > > > > > > Thanks > > > Alondra > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > Got a little couch potato? > > > Check out fun summer activities for kids. > > > > > __________________________________________________________ > > Sick sense of humor? Visit TV's > > Comedy with an Edge to see what's on, when. > > http://tv./collections/222 > > > > > ________________________________________________________________________________\ ____ Get the free toolbar and rest assured with the added security of spyware protection. http://new.toolbar./toolbar/features/norton/index.php Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2007 Report Share Posted June 19, 2007 Thanks everyone for the comments on Depo Medrol. I went to the doc yesterday with severe pain in my hand near my thumb so he injected with kenlog instead of giving me the depo shot. Still hurts pretty bad today but I know it will get better in the next few days, it always does. He didnt do the depo so I think I will be feeling horrible again in the next week or so. I will give it a try again maybe next month but if it doesnt work or last long again I think I will talk with him about the salsalazine (sp) or the prednisone again. I'm not really sure what the salsalazine is I'll will have to look that one up. I really appriciate everyone in this group!!! in michigan Deborah Bargad <dbargad@...> wrote: I have been on Presnisone for many many years. I was given a depot shot once, but it wore off too quickly. The initial dosage is higher and does too much damage in higher doses most especially to my bones. I take a 5 mg and a 1mg when I get up, and then one or two before I go to bed. I take more when I need to be active and leave a little during the night. When you break up the dose, it tends to last longer and work better. I hope this helps. Good Luck. Deborah On 6/18/07, Emge Mosoriak <lemge1 > wrote: Depo doesnt work for me. I'd rather stay on pred at alow dose (5-10 mg per day). I also take mtx andsulfasalasine. That combo works best for me.I haven't had any bad side effects from sulfasalasine or pred. Mtx makes my hair oily and fall out --- <angelac71 > wrote: > I recently talked to my doctor about going back on> predisone and he didnt want to do that so he> suggested that I get a depo medrol shot in my> shoulder once a month. I felt great the first two > weeks but this last two weeks have been back to> feeling horrible again. Going to doc tomorrow and> cant wait for that shot again. Anyone else in the> group get the depo medrol? I'm curious if anyone has > had any bad side affects from it. I'm hoping my doc> can do something to make it last longer though. It> has changed my energy level drastically. > Thanks for any input> in Michigan > > Harold Van Tuyl <hvantuylcharter (DOT) net> wrote:> To take care of a flare a lot of us > use Prednisone. That is a strong anti-inflammatory> that usually acts quickly to help the symptoms of> RA. It has some bad side effects when used for long> periods at high doses so we usually try to get off > it again as soon as we can, but it really does help> us to function when we need it.> > Another thing to consider is antibiotic therapy. > That uses a medication such as Minocycline. You can > read about that on the Roadback Foundation website. > God bless.> > > ---------------------------------> > From: Rheumatoid Arthritis > [mailto:Rheumatoid Arthritis ] On> Behalf Of Nonis> Sent: Tuesday, June 12, 2007 8:52 AM> Rheumatoid Arthritis > Subject: [sPAM] I'm New to> the group...> > > Hi! My name is Alondra, I'm 24, and was> diagnosed with RA in 2004. > Though RA is not my only problem, I was diagnosed in > 2001 with LUPUS > and then last year with Autoimmune Hepatitis. Not> the best > combination. > > Reason I decided join was because I need help, I> need advice, I was > taken off of my enbrel 2 weeks ago because it caused> my liver to flare > up, and since there is no medication in my system my> RA is flaring > with a vengeance. > > Is there anything that you guys do to alleviate the > pain? > > Thanks > Alondra > > > > > > > > > > > > > ---------------------------------> Got a little couch potato? > Check out fun summer activities for kids.__________________________________________________________Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when. http://tv./collections/222 Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2007 Report Share Posted June 22, 2007 Hi Alondra, my name is mimi and i have ra. i take enbrel, imuran, prednisone, and plaquinile (i think i spelled that wrong) i also have meniers and scleroderma. you have full plate also. i hope this helps in some way. keep me posted. Nonis <sweet_nonis@...> wrote: Hi! My name is Alondra, I'm 24, and was diagnosed with RA in 2004. Though RA is not my only problem, I was diagnosed in 2001 with LUPUS and then last year with Autoimmune Hepatitis. Not the best combination. Reason I decided join was because I need help, I need advice, I was taken off of my enbrel 2 weeks ago because it caused my liver to flare up, and since there is no medication in my system my RA is flaring with a vengeance. Is there anything that you guys do to alleviate the pain? Thanks Alondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 I have another option of treatment for you if you find many methods not effective. There is a Chinese herbal medicine patch which I find very effective in eliminating and relieving pain caused by hyperostosis, rheumatism, arthritis, accidents or any unknown causes. It can also be used to treat bruises and swollen parts appeared on the body. I have used it once to cure my pain that has troubled me for about a year. I find this perfectly safe to use since it is made by herbs. Most patients can fully eliminate and recover from the pain after the treatment. You may contact me if you want to know more about it. And I hope this can help you. > Thanks everyone for the comments on Depo Medrol. I went to the doc yesterday with severe pain in my hand near my thumb so he injected with kenlog instead of giving me the depo shot. Still hurts pretty bad today but I know it will get better in the next few days, it always does. He didnt do the depo so I think I will be feeling horrible again in the next week or so. I will give it a try again maybe next month but if it doesnt work or last long again I think I will talk with him about the salsalazine (sp) or the prednisone again. I'm not really sure what the salsalazine is I'll will have to look that one up. > I really appriciate everyone in this group!!! > > in michigan > > > Deborah Bargad <dbargad@...> wrote: > I have been on Presnisone for many many years. I was given a depot shot once, but it wore off too quickly. The initial dosage is higher and does too much damage in higher doses most especially to my bones. I take a 5 mg and a 1mg when I get up, and then one or two before I go to bed. I take more when I need to be active and leave a little during the night. When you break up the dose, it tends to last longer and work better. I hope this helps. Good Luck. Deborah > > On 6/18/07, Emge Mosoriak <lemge1@...> wrote: Depo doesnt work for me. I'd rather stay on pred at a > low dose (5-10 mg per day). I also take mtx and > sulfasalasine. That combo works best for me. > I haven't had any bad side effects from sulfasalasine > or pred. Mtx makes my hair oily and fall out > > --- <angelac71@...> wrote: > > > I recently talked to my doctor about going back on > > predisone and he didnt want to do that so he > > suggested that I get a depo medrol shot in my > > shoulder once a month. I felt great the first two > > weeks but this last two weeks have been back to > > feeling horrible again. Going to doc tomorrow and > > cant wait for that shot again. Anyone else in the > > group get the depo medrol? I'm curious if anyone has > > had any bad side affects from it. I'm hoping my doc > > can do something to make it last longer though. It > > has changed my energy level drastically. > > Thanks for any input > > in Michigan > > > > Harold Van Tuyl <hvantuyl@...> wrote: > > To take care of a flare a lot of us > > use Prednisone. That is a strong anti-inflammatory > > that usually acts quickly to help the symptoms of > > RA. It has some bad side effects when used for long > > periods at high doses so we usually try to get off > > it again as soon as we can, but it really does help > > us to function when we need it. > > > > Another thing to consider is antibiotic therapy. > > That uses a medication such as Minocycline. You can > > read about that on the Roadback Foundation website. > > God bless. > > > > > > --------------------------------- > > > > From: Rheumatoid Arthritis > > [mailto:Rheumatoid Arthritis ] On > > Behalf Of Nonis > > Sent: Tuesday, June 12, 2007 8:52 AM > > Rheumatoid Arthritis > > Subject: [sPAM] I'm New to > > the group... > > > > > > Hi! My name is Alondra, I'm 24, and was > > diagnosed with RA in 2004. > > Though RA is not my only problem, I was diagnosed in > > 2001 with LUPUS > > and then last year with Autoimmune Hepatitis. Not > > the best > > combination. > > > > Reason I decided join was because I need help, I > > need advice, I was > > taken off of my enbrel 2 weeks ago because it caused > > my liver to flare > > up, and since there is no medication in my system my > > RA is flaring > > with a vengeance. > > > > Is there anything that you guys do to alleviate the > > pain? > > > > Thanks > > Alondra > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > Got a little couch potato? > > Check out fun summer activities for kids. > > __________________________________________________________ > Sick sense of humor? Visit TV's > Comedy with an Edge to see what's on, when. > http://tv./collections/222 > > > > > > > > > > > > > > > --------------------------------- > Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2007 Report Share Posted July 5, 2007 Dear Marie- Depot Medrol shots are a temporary fix for a permanent problem. It is a high amount of synthetic cortisol or adrenaline. Our bodies make 5mg naturally and when we more than that our adrenal gland stops working. Prednisone works on your metabolism and triggers the starvation response in the body turning whatever we eat or drink and stores it. It basically tricks out bodies into hoarding everything and storing it. It will hit your face, abdomen etc and you will bloat and your whole body can change shape with it. The medrol shot can do alot more harm to your body than anyone imagines. I call it the eraser. It erases your pain but not forever. I would definately explore www.google.com and type in " prednisone and how it works " into the search bar. Find another alternative to vioxx for pain, namely indocin, ibuprofen, darvocet and anything like that in the class. Prednisone in higher than 10mg a day can cause osteoporosis and fractures very quickly. You should have a bone density done. Taking a BID dose works well. I get a remicade infusion once every 8 weeks but it isnt effective unless I take MTX along with it and every day in the AM dose a 5mg tab and a 1mg tab of prednisone. That is six because I need more in my waking hours. I take only 1mg at night. I also take plaquenil and Ibuprofen with the Prednisone. Depot shots cause dangerous spikes in your blood pressure and metabolic rates. I would find a serious long lasting alternative. You might ask your doctor about Cyclosporine also. Its a disease modifier but at a lower cost that might work for you. I was on that for 5 years before I started Remicade. Be your own advocate and research everything. Its your body after all. Please email me off list if you need additional information. Yours, Deborah On 6/18/07, Marie Miley- <mrussell@...> wrote: >Anyone else in the> group get the depo medrol? I'm curious if anyone has> had any bad side affects from it. I'm hoping my doc> can do something to make it last longer though. It> has changed my energy level drastically. My current treatment includes Plaquenil and depo medrol shots. The depo medrol does more for me than the plaquenil, but I have gained weight on it and my blood pressure has increased so I try to stay off the shots as much as possible. I am allergic to sulfa drugs so I cannot take sulfasalasine. The depo medrol lasts for 2-3 weeks, then it passes out of the system. Vioxx did more for me as far as pain than the depo medrol. Has anyone heard anything about the replacement drug Merck is working on? ~Marie Find information on:American Singer Canaries- one of the most popular breeds in the United States at www.americansingercanary.comThe Practical Canary Handbook - A Guide to Breeding and Keeping Canaries at www.practicalcanary.comAmerican Singer Canary Breeders - www.americansingercanaries.com ASC Chapter 22 (DRAGON) at www.dragon.americansingercanary.comASC Chapter 6 at www.chapter6.americansingercanary.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2007 Report Share Posted July 5, 2007 For Your Information. http://groups.msn.com/DepoMedrolDidItHarmYou/newdepomedrolesicomplication.msnw On 7/5/07, Deborah Bargad <dbargad@...> wrote: Dear Marie- Depot Medrol shots are a temporary fix for a permanent problem. It is a high amount of synthetic cortisol or adrenaline. Our bodies make 5mg naturally and when we more than that our adrenal gland stops working. Prednisone works on your metabolism and triggers the starvation response in the body turning whatever we eat or drink and stores it. It basically tricks out bodies into hoarding everything and storing it. It will hit your face, abdomen etc and you will bloat and your whole body can change shape with it. The medrol shot can do alot more harm to your body than anyone imagines. I call it the eraser. It erases your pain but not forever. I would definately explore www.google.com and type in " prednisone and how it works " into the search bar. Find another alternative to vioxx for pain, namely indocin, ibuprofen, darvocet and anything like that in the class. Prednisone in higher than 10mg a day can cause osteoporosis and fractures very quickly. You should have a bone density done. Taking a BID dose works well. I get a remicade infusion once every 8 weeks but it isnt effective unless I take MTX along with it and every day in the AM dose a 5mg tab and a 1mg tab of prednisone. That is six because I need more in my waking hours. I take only 1mg at night. I also take plaquenil and Ibuprofen with the Prednisone. Depot shots cause dangerous spikes in your blood pressure and metabolic rates. I would find a serious long lasting alternative. You might ask your doctor about Cyclosporine also. Its a disease modifier but at a lower cost that might work for you. I was on that for 5 years before I started Remicade. Be your own advocate and research everything. Its your body after all. Please email me off list if you need additional information. Yours, Deborah On 6/18/07, Marie Miley- <mrussell@... > wrote: >Anyone else in the> group get the depo medrol? I'm curious if anyone has> had any bad side affects from it. I'm hoping my doc> can do something to make it last longer though. It> has changed my energy level drastically. My current treatment includes Plaquenil and depo medrol shots. The depo medrol does more for me than the plaquenil, but I have gained weight on it and my blood pressure has increased so I try to stay off the shots as much as possible. I am allergic to sulfa drugs so I cannot take sulfasalasine. The depo medrol lasts for 2-3 weeks, then it passes out of the system. Vioxx did more for me as far as pain than the depo medrol. Has anyone heard anything about the replacement drug Merck is working on? ~Marie Find information on:American Singer Canaries- one of the most popular breeds in the United States at www.americansingercanary.comThe Practical Canary Handbook - A Guide to Breeding and Keeping Canaries at www.practicalcanary.comAmerican Singer Canary Breeders - www.americansingercanaries.com ASC Chapter 22 (DRAGON) at www.dragon.americansingercanary.comASC Chapter 6 at www.chapter6.americansingercanary.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2007 Report Share Posted July 5, 2007 Please do not send me any more emails as I am no longer wishing to bea member many thanks. ----- Original Message ----From: Deborah Bargad <dbargad@...>Rheumatoid Arthritis Sent: Thursday, 5 July, 2007 9:55:13 AMSubject: Re: I'm New to the group... For Your Information. http://groups. msn.com/DepoMedr olDidItHarmYou/ newdepomedrolesi complication. msnw On 7/5/07, Deborah Bargad <dbargadgmail (DOT) com> wrote: Dear Marie- Depot Medrol shots are a temporary fix for a permanent problem. It is a high amount of synthetic cortisol or adrenaline. Our bodies make 5mg naturally and when we more than that our adrenal gland stops working. Prednisone works on your metabolism and triggers the starvation response in the body turning whatever we eat or drink and stores it. It basically tricks out bodies into hoarding everything and storing it. It will hit your face, abdomen etc and you will bloat and your whole body can change shape with it. The medrol shot can do alot more harm to your body than anyone imagines. I call it the eraser. It erases your pain but not forever. I would definately explore www.google.com and type in "prednisone and how it works" into the search bar. Find another alternative to vioxx for pain, namely indocin, ibuprofen, darvocet and anything like that in the class. Prednisone in higher than 10mg a day can cause osteoporosis and fractures very quickly. You should have a bone density done. Taking a BID dose works well. I get a remicade infusion once every 8 weeks but it isnt effective unless I take MTX along with it and every day in the AM dose a 5mg tab and a 1mg tab of prednisone. That is six because I need more in my waking hours. I take only 1mg at night. I also take plaquenil and Ibuprofen with the Prednisone. Depot shots cause dangerous spikes in your blood pressure and metabolic rates. I would find a serious long lasting alternative. You might ask your doctor about Cyclosporine also. Its a disease modifier but at a lower cost that might work for you. I was on that for 5 years before I started Remicade. Be your own advocate and research everything. Its your body after all. Please email me off list if you need additional information. Yours, Deborah On 6/18/07, Marie Miley- <mrussellchartermi (DOT) net > wrote: >Anyone else in the> group get the depo medrol? I'm curious if anyone has> had any bad side affects from it. I'm hoping my doc> can do something to make it last longer though. It> has changed my energy level drastically. My current treatment includes Plaquenil and depo medrol shots. The depo medrol does more for me than the plaquenil, but I have gained weight on it and my blood pressure has increased so I try to stay off the shots as much as possible. I am allergic to sulfa drugs so I cannot take sulfasalasine. The depo medrol lasts for 2-3 weeks, then it passes out of the system. Vioxx did more for me as far as pain than the depo medrol. Has anyone heard anything about the replacement drug Merck is working on? ~Marie Find information on:American Singer Canaries- one of the most popular breeds in the United States at www.americansingerc anary.comThe Practical Canary Handbook - A Guide to Breeding and Keeping Canaries at www.practicalcanary .comAmerican Singer Canary Breeders - www.americansingerc anaries.comASC Chapter 22 (DRAGON) at www.dragon.american singercanary. comASC Chapter 6 at www.chapter6. americansingerca nary.com Answers - Get better answers from someone who knows. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2007 Report Share Posted July 5, 2007 sHi Marie, My doctor gave me a depo medrol shot before I went on vacation to Disney world. It was AMAZING. I couldnt believe how great I felt. Since then I've had one other depo shot but he wouldnt give one to me the last time I was there because I had a coritsone shot in my hand near my thumb, he said that would help all over like the depo but I didnt think it did. I go back on the 16 of this month and cant wait to get another depo. So far I have lost 5 pounds, I hope I dont gain weight on this shot but I think I could live with it because I havent felt that "normal" in a long time. Good Luck and keep me posted. I'll let you know if I start to see any of the side affects after I use it for awhile. In MichiganMarie Miley- <mrussell@...> wrote: >Anyone else in the> group get the depo medrol? I'm curious if anyone has> had any bad side affects from it. I'm hoping my doc> can do something to make it last longer though. It> has changed my energy level drastically. My current treatment includes Plaquenil and depo medrol shots. The depo medrol does more for me than the plaquenil, but I have gained weight on it and my blood pressure has increased so I try to stay off the shots as much as possible. I am allergic to sulfa drugs so I cannot take sulfasalasine. The depo medrol lasts for 2-3 weeks, then it passes out of the system. Vioxx did more for me as far as pain than the depo medrol. Has anyone heard anything about the replacement drug Merck is working on? ~Marie Find information on:American Singer Canaries- one of the most popular breeds in the United States at www.americansingercanary.comThe Practical Canary Handbook - A Guide to Breeding and Keeping Canaries at www.practicalcanary.comAmerican Singer Canary Breeders - www.americansingercanaries.comASC Chapter 22 (DRAGON) at www.dragon.americansingercanary.comASC Chapter 6 at www.chapter6.americansingercanary.com The fish are biting. Get more visitors on your site using Search Marketing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2007 Report Share Posted July 5, 2007 Way to go Deborah, I was all excited about my kennolog and depo medrol shots and then I read the dreaded article. I have been taking them for several years religiously. I do get pain in my hip upon resting sometimes. Shoot. That was the only fast fix I have for this stupid disease. Ha ha -----Original Message----- From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of Deborah Bargad Sent: Thursday, July 05, 2007 3:55 AM To: Rheumatoid Arthritis Subject: Re: I'm New to the group... For Your Information. http://groups.msn.com/DepoMedrolDidItHarmYou/newdepomedrolesicomplication.msnw On 7/5/07, Deborah Bargad <dbargadgmail> wrote: Dear Marie- Depot Medrol shots are a temporary fix for a permanent problem. It is a high amount of synthetic cortisol or adrenaline. Our bodies make 5mg naturally and when we more than that our adrenal gland stops working. Prednisone works on your metabolism and triggers the starvation response in the body turning whatever we eat or drink and stores it. It basically tricks out bodies into hoarding everything and storing it. It will hit your face, abdomen etc and you will bloat and your whole body can change shape with it. The medrol shot can do alot more harm to your body than anyone imagines. I call it the eraser. It erases your pain but not forever. I would definately explore www.google.com and type in " prednisone and how it works " into the search bar. Find another alternative to vioxx for pain, namely indocin, ibuprofen, darvocet and anything like that in the class. Prednisone in higher than 10mg a day can cause osteoporosis and fractures very quickly. You should have a bone density done. Taking a BID dose works well. I get a remicade infusion once every 8 weeks but it isnt effective unless I take MTX along with it and every day in the AM dose a 5mg tab and a 1mg tab of prednisone. That is six because I need more in my waking hours. I take only 1mg at night. I also take plaquenil and Ibuprofen with the Prednisone. Depot shots cause dangerous spikes in your blood pressure and metabolic rates. I would find a serious long lasting alternative. You might ask your doctor about Cyclosporine also. Its a disease modifier but On 6/18/07, Marie Miley- <mrussellchartermi (DOT) net > wrote: >Anyone else in the > group get the depo medrol? I'm curious if anyone has > had any bad side affects from it. I'm hoping my doc > can do something to make it last longer though. It > has changed my energy level drastically. My current treatment includes Plaquenil and depo medrol shots. The depo medrol does more for me than the plaquenil, but I have gained weight on it and my blood pressure has increased so I try to stay off the shots as much as possible. I am allergic to sulfa drugs so I cannot take sulfasalasine. The depo medrol lasts for 2-3 weeks, then it passes out of the system. Vioxx did more for me as far as pain than the depo medrol. Has anyone heard anything about the replacement drug Merck is working on? ~Marie Find information on: American Singer Canaries- one of the most popular breeds in the United States at www.americansingercanary.com The Practical Canary Handbook - A Guide to Breeding and Keeping Canaries at www.practicalcanary.com American Singer Canary Breeders - www.americansingercanaries.com ASC Chapter 22 (DRAGON) at www.dragon.americansingercanary.com ASC Chapter 6 at www.chapter6.americansingercanary.com Quote Link to comment Share on other sites More sharing options...
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