Re: Re: Pain + more questions

[Guest guest]

Mylajkitten wrote: I have issues with pain and also with sleeping. When I

see my primary care she always deny's my request for stronger medicine.

Should I be asking the rheumy for this?

Ardeith writes: Your RA doctor is more up to date on your treatments for

RA......so, I'd suggest taking your pain issues there. You primary has

concerns about prescribing pain meds, because primary care physicians have

to be sure they aren't giving you enough meds that you could become

addicted, or even sell the pills.

And, perhaps, you could find a pain specialists.....I know they have a pain

management clinic here, where I live........there might be one near you.

These folks are dealing with chronic pain all the time......whereas your

primary care doc has all sorts of lesser concerns to deal with. Like colds

and infected toenails.

Ardy

[Guest guest]

RD's for everything. My PCP is useless with these things. Have your thyroid checked. It could be that you have hyperthyroid and it will raise your pressure and give you palpitations. I have a growth on my thyroid from RA. I will be taking PTU for that the rest of my life. Using Darvocet for pain will work very well before bedtime. I use Oxazepam 30mg for sleep. I also take a little soma and trazadone. There are lots of problems and your RD can rule out alot of things or rule in alot that are only associated with RA disease. A PCP will see you as an addict and hypochondiac but you RD knows what you need and can validate your concerns. Chin up. Hugs, Deborah

On 5/12/07, mylajkitten <MylaJKitten@...> wrote:

I also question this! I have issues with pain and also with sleeping. When I see my primary care she always deny's my request for stronger medicine. Should I be asking the rheumy for this? I recently have had heart palpitaions. The primary doc sent me for an echo and a 24hr holter monitor. The echo came back stating that my left atrium is at upper limits of normal in size, with everything else within normal limits. The holter came back with mixed results. The report stated that I do have a rapid heartbeat between 57 and 145, rare pac's but there isn't a significant electrical event. When I questioned whether " normal " limits also includes my size (adult at 4'10 " medium body frame makes me more child sized than adult) and the fact that I have RA and HH. She brushed me off saying that I had nothing to worry about. She even refused to prescribe any more ativan to help me sleep. Now I already know I will be looking

for a new primary care doctor. Should I be relying more on my rheumatologist for most of my care and leave the PC for the mundane tasks of colds and infected toenails? How does the health care system work? Who should be the one doctor that I should trust my care to?

>> Hi girly ,> How long have you been DXed with RA & been on embrol ? I'm 42 been DXed since 04 on remicaid once emborl for going on 6 months now Ultram for years Topamax for years allso and Loratab for bad times allso predisone two others haveing to stop MTX since the RA had effected my lungs . and I am still in a lot of pain allso so the only thing I can remember helping me much more I can no longer get the best being Bextra , the other being Motrin 800 mg tabs x2 @ a time . but still it was not a great deal of releif . If you are not on a plan for maintince meds to keep the pain from gettig bad before trying to claim it down then bad again repeating a viousious cycle over and over you may wat to talk with your dr aboult this ? It is how they keep it bearable for me but my neroologist is the one who does it for me . If you wish to talk try my email if I don't see it in the group .> > > ----- Original Message ----

> From: girly_girlteacher <paulajo0613@...>> Rheumatoid Arthritis

> Sent: Friday, April 20, 2007 8:29:30 PM> Subject: Pain> > > > > > > > > > > > > > I am 43y/o with Ra, on Enbrel and still in pain. I take Ultram and> > Neurotin, but my joints still ache. I am very active and outgoing, but> > the pain makes me depressed! Please let me know either a better pain> > medication idea or other recommendations for my situation.

> > Thank you!> > > > > > > > > > > > > > > <!--> > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;}> #ygrp-mlmsg table {font-size:inherit;font:100%;}> #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;}> #ygrp-mlmsg pre, code {font:115% monospace;}

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> #ygrp-sponsor #nc {> background-color:#eee;margin-bottom:20px;padding:0 8px;}> #ygrp-sponsor .ad{> padding:8px 0;}> #ygrp-sponsor .ad #hd1{> font-family:Arial;font-weight:bold;color:#628c2a;font-

size:100%;line-height:122%;}> #ygrp-sponsor .ad a{> text-decoration:none;}> #ygrp-sponsor .ad a:hover{> text-decoration:underline;}> #ygrp-sponsor .ad p{> margin:0;}> o {font-size:0;}

> .MsoNormal {> margin:0 0 0 0;}> #ygrp-text tt{> font-size:120%;}> blockquote{margin:0 0 0 4px;}> .replbq {margin:4;}> -->> > > > >

> > > > > ________________________________________________________________________You snooze, you lose. Get messages ASAP with AutoCheck> in the all-new Beta.> http://advision.webevents./mailbeta/newmail_html.html>

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Just wanted to let you know that I go to my RA doctor for everything. He is also a primary care doctor. Regular doctors dont know how to treat RA properly. I have had a primary doc want to take me off alot of my meds when I had my gall bladder removed, he said I didnt need all that medication. He was insane! Good Luck! in Michiganmylajkitten <MylaJKitten@...> wrote: I also question this! I have issues with pain and also with sleeping. When I see my primary care she always deny's my request for stronger medicine. Should I be asking the rheumy for this? I recently have had heart palpitaions. The primary doc sent me for an echo and a 24hr holter monitor. The echo came back stating that my left atrium is at upper limits of normal in size, with everything else within normal limits. The holter came back with mixed results. The report stated that I do have a rapid heartbeat between 57 and 145, rare pac's but there isn't a significant electrical event. When I questioned whether "normal" limits also includes my size (adult at 4'10" medium body frame makes me more child sized than adult) and the fact that I have RA and HH. She brushed me off saying that I had nothing to worry about. She even refused to prescribe any more ativan

to help me sleep. Now I already know I will be looking for a new primary care doctor. Should I be relying more on my rheumatologist for most of my care and leave the PC for the mundane tasks of colds and infected toenails? How does the health care system work? Who should be the one doctor that I should trust my care to? >> Hi girly ,> How long have you been DXed with RA & been on embrol ? I'm 42 been DXed since 04 on remicaid once emborl for going on 6 months now Ultram for years Topamax for years allso and Loratab for bad times allso predisone two others haveing to stop MTX since the RA had effected my lungs . and I am still in a lot of pain allso so the only thing I can remember helping me much more I can no longer get the

best being Bextra , the other being Motrin 800 mg tabs x2 @ a time . but still it was not a great deal of releif . If you are not on a plan for maintince meds to keep the pain from gettig bad before trying to claim it down then bad again repeating a viousious cycle over and over you may wat to talk with your dr aboult this ? It is how they keep it bearable for me but my neroologist is the one who does it for me . If you wish to talk try my email if I don't see it in the group .> > > ----- Original Message ----> From: girly_girlteacher <paulajo0613@...>> Rheumatoid Arthritis > Sent: Friday, April 20, 2007 8:29:30 PM> Subject: Pain> > > > > > > > > > > > > > I am 43y/o

with Ra, on Enbrel and still in pain. I take Ultram and> > Neurotin, but my joints still ache. I am very active and outgoing, but> > the pain makes me depressed! Please let me know either a better pain> > medication idea or other recommendations for my situation.> > Thank you!> > > > > > > > > > > > > > > <!--> > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;}> #ygrp-mlmsg table {font-size:inherit;font:100%;}> #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;}> #ygrp-mlmsg pre, code {font:115% monospace;}> #ygrp-mlmsg * {line-height:1.22em;}> #ygrp-text{> font-family:Georgia;> }> #ygrp-text p{> margin:0 0 1em 0;}>

#ygrp-tpmsgs{> font-family:Arial;> clear:both;}> #ygrp-vitnav{> padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}> #ygrp-vitnav a{> padding:0 1px;}> #ygrp-actbar{> clear:both;margin:25px 0;white-space:nowrap;color:#666;text-align:right;}> #ygrp-actbar .left{> float:left;white-space:nowrap;}> .bld{font-weight:bold;}> #ygrp-grft{> font-family:Verdana;font-size:77%;padding:15px 0;}> #ygrp-ft{> font-family:verdana;font-size:77%;border-top:1px solid #666;> padding:5px 0;> }> #ygrp-mlmsg #logo{> padding-bottom:10px;}> > #ygrp-vital{> background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}> #ygrp-vital #vithd{>

font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:uppercase;}> #ygrp-vital ul{> padding:0;margin:2px 0;}> #ygrp-vital ul li{> list-style-type:none;clear:both;border:1px solid #e0ecee;> }> #ygrp-vital ul li .ct{> font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-right:.5em;}> #ygrp-vital ul li .cat{> font-weight:bold;}> #ygrp-vital a {> text-decoration:none;}> > #ygrp-vital a:hover{> text-decoration:underline;}> > #ygrp-sponsor #hd{> color:#999;font-size:77%;}> #ygrp-sponsor #ov{> padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}> #ygrp-sponsor #ov ul{> padding:0 0 0 8px;margin:0;}> #ygrp-sponsor #ov li{>

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Thank you for your reply!!!!!!!!!! My PC DOES view me as a hypochondriac!!!! I can't stand it. My rheumy is in Boston. That's about 45 mins from where we live. The PC is much closer so I've tried to rely on her for some things. I am seeing the rheumy next Monday so I'll try to cover everything with him. I've had my thyroid checked. I've had high BP since I was in my late 30's. I'm 47 now. There's never been a reason for it other than my mother also had it at the same age. I'm taking tenolol (sp?) and verapamil (sp?) for it. Both prescribed by my PC. Should I have the RD start prescribing those too? I've tried to be brave and not deal with the pain but now I realize that it is affecting my quality of life big time. Right now I'm taking tramamil (sp?) as needed but there are times when it isn't enough.

-------Original Message-------

From: Deborah Bargad

Date: 5/12/2007 5:10:59 PM

Rheumatoid Arthritis

Subject: Re: Re: Pain + more questions

RD's for everything. My PCP is useless with these things. Have your thyroid checked. It could be that you have hyperthyroid and it will raise your pressure and give you palpitations. I have a growth on my thyroid from RA. I will be taking PTU for that the rest of my life. Using Darvocet for pain will work very well before bedtime. I use Oxazepam 30mg for sleep. I also take a little soma and trazadone. There are lots of problems and your RD can rule out alot of things or rule in alot that are only associated with RA disease. A PCP will see you as an addict and hypochondiac but you RD knows what you need and can validate your concerns. Chin up. Hugs, Deborah

On 5/12/07, mylajkitten <MylaJKittengmail> wrote:

I also question this! I have issues with pain and also with sleeping. When I see my primary care she always deny's my request for stronger medicine. Should I be asking the rheumy for this? I recently have had heart palpitaions. The primary doc sent me for an echo and a 24hr holter monitor. The echo came back stating that my left atrium is at upper limits of normal in size, with everything else within normal limits. The holter came back with mixed results. The report stated that I do have a rapid heartbeat between 57 and 145, rare pac's but there isn't a significant electrical event. When I questioned whether "normal" limits also includes my size (adult at 4'10" medium body frame makes me more child sized than adult) and the fact that I have RA and HH. She brushed me off saying that I had nothing to worry about. She even refused to prescribe any more ativan to help me sleep. Now I already know I will be looking for a new primary care doctor. Should I be relying more on my rheumatologist for most of my care and leave the PC for the mundane tasks of colds and infected toenails? How does the health care system work? Who should be the one doctor that I should trust my care to? >> Hi girly ,> How long have you been DXed with RA & been on embrol ? I'm 42 been DXed since 04 on remicaid once emborl for going on 6 months now Ultram for years Topamax for years allso and Loratab for bad times allso predisone two others haveing to stop MTX since the RA had effected my lungs . and I am still in a lot of pain allso so the only thing I can remember helping me much more I can no longer get the best being Bextra , the other being Motrin 800 mg tabs x2 @ a time . but still it was not a great deal of releif . If you are not on a plan for maintince meds to keep the pain from gettig bad before trying to claim it down then bad again repeating a viousious cycle over and over you may wat to talk with your dr aboult this ? It is how they keep it bearable for me but my neroologist is the one who does it for me . If you wish to talk try my email if I don't see it in the group .> > > ----- Original Message ---- > From: girly_girlteacher <paulajo0613@...>> Rheumatoid Arthritis > Sent: Friday, April 20, 2007 8:29:30 PM> Subject: Pain> > > > > > > > > > > > > > I am 43y/o with Ra, on Enbrel and still in pain. I take Ultram and> > Neurotin, but my joints still ache. I am very active and outgoing, but> > the pain makes me depressed! Please let me know either a better pain> > medication idea or other recommendations for my situation. > > Thank you!> > > > > > > > > > > > > > > <!--> > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;}> #ygrp-mlmsg table {font-size:inherit;font:100%;}> #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;}> #ygrp-mlmsg pre, code {font:115% monospace;} > #ygrp-mlmsg * {line-height:1.22em;}> #ygrp-text{> font-family:Georgia;> }> #ygrp-text p{> margin:0 0 1em 0;}> #ygrp-tpmsgs{> font-family:Arial;> clear:both;} > #ygrp-vitnav{> padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}> #ygrp-vitnav a{> padding:0 1px;}> #ygrp-actbar{> clear:both;margin:25px 0;white-space:nowrap;color:#666;text- align:right;}> #ygrp-actbar .left{> float:left;white-space:nowrap;}> .bld{font-weight:bold;}> #ygrp-grft{> font-family:Verdana;font-size:77%;padding:15px 0;}> #ygrp-ft{> font-family:verdana;font-size:77%;border-top:1px solid #666; > padding:5px 0;> }> #ygrp-mlmsg #logo{> padding-bottom:10px;}> > #ygrp-vital{> background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}> #ygrp-vital #vithd{ > font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:uppercase;}> #ygrp-vital ul{> padding:0;margin:2px 0;}> #ygrp-vital ul li{> list-style-type:none;clear:both;border:1px solid #e0ecee; > }> #ygrp-vital ul li .ct{> font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-right:.5em;}> #ygrp-vital ul li .cat{> font-weight:bold;}> #ygrp-vital a { > text-decoration:none;}> > #ygrp-vital a:hover{> text-decoration:underline;}> > #ygrp-sponsor #hd{> color:#999;font-size:77%;}> #ygrp-sponsor #ov{> padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;} > #ygrp-sponsor #ov ul{> padding:0 0 0 8px;margin:0;}> #ygrp-sponsor #ov li{> list-style-type:square;padding:6px 0;font-size:77%;}> #ygrp-sponsor #ov li a{> text-decoration:none;font-size:130%;} > #ygrp-sponsor #nc {> background-color:#eee;margin-bottom:20px;padding:0 8px;}> #ygrp-sponsor .ad{> padding:8px 0;}> #ygrp-sponsor .ad #hd1{> font-family:Arial;font-weight:bold;color:#628c2a;font- size:100%;line-height:122%;}> #ygrp-sponsor .ad a{> text-decoration:none;}> #ygrp-sponsor .ad a:hover{> text-decoration:underline;}> #ygrp-sponsor .ad p{> margin:0;}> o {font-size:0;} > .MsoNormal {> margin:0 0 0 0;}> #ygrp-text tt{> font-size:120%;}> blockquote{margin:0 0 0 4px;}> .replbq {margin:4;}> -->> > > > > > > > > > ________________________________________________________________________You snooze, you lose. Get messages ASAP with AutoCheck> in the all-new Beta.> http://advision.webevents./mailbeta/newmail_html.html>

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Normaly your family or pirmary care Dr will treat you for the pain , Mine is the one that treats me for my bad pain but I allso have a nerroligost where my disk is messed up badly he keeps me on the maintince medicen to keep the pain from getting very bad before takeing the meds . Which was what I was doing afrist I would wind up in so much pain I would be in tears crying and have to take enought stuff to put me to sleep to get out of it it took a long time for him to get the meds right and me to learn to use them properly . I still am in pain but I can bear it unless something goes aray now . As for my rhumy he does not give me pain meds , maybe because he knows what I take and don't ask for anything

else ? Well other than , the shots in the joints when I need them and my RA meds. -----

Original Message ----From: <angelac71@...>Rheumatoid Arthritis Sent: Saturday, May 12, 2007 5:28:32 PMSubject: Re: Re: Pain + more questions

Just wanted to let you know that I go to my RA doctor for everything. He is also a primary care doctor. Regular doctors dont know how to treat RA properly. I have had a primary doc want to take me off alot of my meds when I had my gall bladder removed, he said I didnt need all that medication. He was insane! Good Luck! in Michiganmylajkitten <MylaJKitten@ gmail.com> wrote: I also question this! I have issues with pain and also with sleeping. When I see my primary care she always deny's my request for stronger medicine. Should I be asking the rheumy for this? I recently have had heart

palpitaions. The primary doc sent me for an echo and a 24hr holter monitor. The echo came back stating that my left atrium is at upper limits of normal in size, with everything else within normal limits. The holter came back with mixed results. The report stated that I do have a rapid heartbeat between 57 and 145, rare pac's but there isn't a significant electrical event. When I questioned whether "normal" limits also includes my size (adult at 4'10" medium body frame makes me more child sized than adult) and the fact that I have RA and HH. She brushed me off saying that I had nothing to worry about. She even refused to prescribe any more ativan

to help me sleep. Now I already know I will be looking for a new primary care doctor. Should I be relying more on my rheumatologist for most of my care and leave the PC for the mundane tasks of colds and infected toenails? How does the health care system work? Who should be the one doctor that I should trust my care to? >> Hi girly ,> How long have you been DXed with RA & been on embrol ? I'm 42 been DXed since 04 on remicaid once emborl for going on 6 months now Ultram for years Topamax for years allso and Loratab for bad times allso predisone two others haveing to stop MTX since the RA had effected my lungs . and I am still in a lot of pain allso so the only thing I can remember helping me much more I can no

longer get the

best being Bextra , the other being Motrin 800 mg tabs x2 @ a time . but still it was not a great deal of releif . If you are not on a plan for maintince meds to keep the pain from gettig bad before trying to claim it down then bad again repeating a viousious cycle over and over you may wat to talk with your dr aboult this ? It is how they keep it bearable for me but my neroologist is the one who does it for me . If you wish to talk try my email if I don't see it in the group .> > > ----- Original Message ----> From: girly_girlteacher <paulajo0613@ ...>> rheumatoid_arthriti sgroups (DOT) com> Sent: Friday, April 20, 2007 8:29:30 PM> Subject: [rheumatoid_ arthritis] Pain> > > > > > > > > > > > >

> I am 43y/o

with Ra, on Enbrel and still in pain. I take Ultram and> > Neurotin, but my joints still ache. I am very active and outgoing, but> > the pain makes me depressed! Please let me know either a better pain> > medication idea or other recommendations for my situation.> > Thank you!> > > > > > > > > > > > > > > <!--> > #ygrp-mlmsg {font-size:13px; font-family: arial, helvetica, clean, sans-serif;}> #ygrp-mlmsg table {font-size:inherit; font:100% ;}> #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;}> #ygrp-mlmsg pre, code {font:115% monospace;}> #ygrp-mlmsg * {line-height: 1.22em;}> #ygrp-text{> font-family: Georgia;> }> #ygrp-text p{> margin:0 0 1em 0;}>

#ygrp-tpmsgs{> font-family: Arial;> clear:both;}> #ygrp-vitnav{> padding-top: 10px;font- family:Verdana; font-size: 77%;margin: 0;}> #ygrp-vitnav a{> padding:0 1px;}> #ygrp-actbar{> clear:both;margin: 25px 0;white-space: nowrap;color: #666;text-align:right; }> #ygrp-actbar .left{> float:left;white- space:nowrap; }> .bld{font-weight: bold;}> #ygrp-grft{> font-family: Verdana;font- size:77%; padding:15px 0;}> #ygrp-ft{> font-family: verdana;font- size:77%; border-top: 1px solid #666;> padding:5px 0;> }> #ygrp-mlmsg #logo{> padding-bottom: 10px;}> > #ygrp-vital{> background-color: #e0ecee;margin- bottom:20px; padding:2px 0 8px 8px;}> #ygrp-vital #vithd{>

font-size:77% ;font-family: Verdana;font- weight:bold; color:#333; text-transform:uppercase ;}> #ygrp-vital ul{> padding:0;margin: 2px 0;}> #ygrp-vital ul li{> list-style-type: none;clear: both;border: 1px solid #e0ecee;> }> #ygrp-vital ul li .ct{> font-weight: bold;color: #ff7900;float: right;width: 2em;text-align:right; padding-right: .5em;}> #ygrp-vital ul li .cat{> font-weight: bold;}> #ygrp-vital a {> text-decoration: none;}> > #ygrp-vital a:hover{> text-decoration: underline; }> > #ygrp-sponsor #hd{> color:#999;font- size:77%; }> #ygrp-sponsor #ov{> padding:6px 13px;background- color:#e0ecee; margin-bottom: 20px;}> #ygrp-sponsor #ov ul{> padding:0 0 0 8px;margin:0; }> #ygrp-sponsor #ov li{>

list-style-type: square;padding: 6px 0;font-size: 77%;}> #ygrp-sponsor #ov li a{> text-decoration: none;font- size:130% ;}> #ygrp-sponsor #nc {> background-color: #eee;margin- bottom:20px; padding:0 8px;}> #ygrp-sponsor .ad{> padding:8px 0;}> #ygrp-sponsor .ad #hd1{> font-family: Arial;font- weight:bold; color:#628c2a; font-size:100%;line- height:122% ;}> #ygrp-sponsor .ad a{> text-decoration: none;}> #ygrp-sponsor .ad a:hover{> text-decoration: underline; }> #ygrp-sponsor .ad p{> margin:0;}> o {font-size:0; }> .MsoNormal {> margin:0 0 0 0;}> #ygrp-text tt{> font-size:120% ;}> blockquote{margin: 0 0 0 4px;}> .replbq {margin:4;}> -->> > > > > > > > > >

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