RE: [SPAM] New Member

[Guest guest]

Wonderful. Glad you joined us.

-- [sPAM] New Member

Hi All - I saw Carol post a link to this on the Down-Syn list. This sounds like a great starting of a group! We do all kinds of research on DS and like to find out all we can about DS. We're on Pubmed *all the time!*I'll take a look around at the files that have been uploaded so far. QadoshyahSister to 10 siblings including boy(DS)/girl twins - Feb. 05Got Down Syndrome?www.gotdownsyndrome.net

[Guest guest]

I think we can...... testing

-- [sPAM] New Member

Hello everyone!

Looking forward to lively and informative discussions with old friends and new!

Can we send pictures to this list?

ette

mom to Tim(27)Joy(23)Faith(8)DS Nana to (23 mo)Dakota(7mo)

[Guest guest]

Oh my.. that is THE funniest picture!!!

I forgot what he got into again.. vaseline or crisco???

My older boys got into a large jar of vaseline once as little people and oh my gosh.. I think it took a weeks worth of shampooing to get it all out of their hair!!

I have never bought another large jar vaseline AGAIN! ;-)

It certainly had to be good a sensory exercise for him ;-)

--Carol in IL

-------------- Original message -------------- From: "~ ~" <jules@...>

I think we can...... testing

-------Original Message-------

[Guest guest]

It was butter. He had a blast, and man he is quick... Geeeeeeze.

It came out very easily. I waggled him to the bathroom, (think of a greased pig, laughing and wiggling) and after I got there, thought well shoots, I shoulda grabbed the dawn, cause Imma need it to get it out. But Suave for kids worked very quickly and easily.

Didn't come out so easily from dog fur. Lol

Hugs,

-- Re: [sPAM] New Member

Oh my.. that is THE funniest picture!!!

I forgot what he got into again.. vaseline or crisco???

My older boys got into a large jar of vaseline once as little people and oh my gosh.. I think it took a weeks worth of shampooing to get it all out of their hair!!

I have never bought another large jar vaseline AGAIN! ;-)

It certainly had to be good a sensory exercise for him ;-)

--Carol in IL

-------------- Original message -------------- From: "~ ~" <jules@...>

I think we can...... testing

-------Original Message-------

[Guest guest]

Welcome to the board. This just

appeared today (10/20) even though it is dated 10/17. A general reference

I like is British but I don’t think there is much difference in treatment

from how it is done here.

http://www.arc.org.uk/about_arth/booklets/6033/6033.htm

For quick relief most of us use Prednisone, a strong corticosteroid

that usually acts quickly (a day or so) to help the symptoms of RA and it does

some good to slow down the progress. However, it has a lot of troublesome

side effects if used at high concentrations for long times. While we use

it when we need it so we can function, we also try to get away from it when we

get fairly well controlled with something else.

I started about 6 years ago at age 74 with Arava and when that did

little I switched to Methotrexate. That also was not enough so we added

Remicade (given by IV) and kept increasing the dose and decreasing the time

between infusions till I could get off Prednisone. Since then I have

slowly decreased the dose and extended the time between infusions till I am

back to where I started with Remicade. Different things work for

different people.

Most people start with Methotrexate but that is not good with pregnancy

or for men trying to conceive so at your age they may use Sulfasalazine or

Plaquenil instead. Medications given by injection or infusion (called

biologics) are much more expensive and most insurances will not pay for them

until you have demonstrated that less expensive medications are not sufficient

for you. However, they do work so much better for some people that a few

insurance companies will give them earlier. At one time the full price of

my medications was over $8,000 every 6 weeks but now it is only a bit over

$5,000 every 8 weeks. With insurance I just pay $2,200 a year for

medications. Also some insurances treat injections and infusions

differently. An infusion is considered a medical treatment and is covered

by medical insurance while injections are medications and are covered by the

drug insurance program.

http://www.roadback.org

Antibiotic therapy is recognized by the American College of Rheumatology as a suitable

treatment for RA but it is inexpensive so it is not pushed by drug

companies. I have no idea why insurance companies don’t push it but

then insurance companies are odd in other ways also. The Roadback

Foundation has lots of information about antibiotic therapy using Tetracycline

derivatives such as Minocycline. This is a common acne medication so

there is lots of information about side effects. I got started on other

things and they work well for me so I’ve never tried antibiotics myself

but there have been several small clinical trials and it compares favorably

with other RA medications.

Some people do well with diet modification

but I think it is hit or miss to find whether it will help you. One way

is to get some specialized lab tests to see if you have sensitivity to certain

foods. I’ve heard mixed reports about the value of these. Another

way is to use a specialized bland diet for a few weeks to remove any possibly

harmful foods from your system. If this helps your RA, then you add back

in one food group at a time to see if you tolerate that food group. It is

tedious and difficult so I haven’t tried it. The link below is to

one such scheme.

http://www.drcranton.com/elimination_diet.htm

This board hasn’t been very active

lately but I think there are some very good people who still monitor the board

and may well reply. Post again if you want more information. God

bless.

From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of msalthema

Sent: Wednesday, October 17, 2007

1:33 PM

Rheumatoid Arthritis

Subject:

[sPAM] New Member

Good Day All,

My name is Althema and I'm from NY. I am 24 years old the doctor's

believe that i Have RA. The pain is rapidly increasing and I just want

to know some tips and things besides taking traditional medicine that I

can do to ease the pain. I am also looking into alternative medicine

as well. I look forward to speaking with you all..

have a good day

althema