Guest guest Posted August 15, 2002 Report Share Posted August 15, 2002 Hi Tess, Maybe you will be able to take the oxy again when they reformulate it to where it can't be crushed and therefore, the addicts will loose interest. --- Tess_St_Pierre@... wrote: > Hi Judy...MA is Medical Assistant. Mine is a young > fellow named Bruce, > who is excellent at hs job. He learned his trade in > the Navy, and > usually has no problems with my IV. > > Love... > > Tess > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2002 Report Share Posted August 15, 2002 Hi Tess, Maybe you will be able to take the oxy again when they reformulate it to where it can't be crushed and therefore, the addicts will loose interest. --- Tess_St_Pierre@... wrote: > Hi Judy...MA is Medical Assistant. Mine is a young > fellow named Bruce, > who is excellent at hs job. He learned his trade in > the Navy, and > usually has no problems with my IV. > > Love... > > Tess > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2002 Report Share Posted August 15, 2002 Hi Tess, Well Duh! I should have figured that out on my own. Thanks, Judy > Hi Judy...MA is Medical Assistant. Mine is a young fellow named > Bruce, > who is excellent at hs job. He learned his trade in the Navy, and > usually has no problems with my IV. > > Love... > > Tess > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2002 Report Share Posted August 15, 2002 OK..now I want to get to say DUH....Is a MA and a PA the same thing here in the army hospital there is alot of PAs which are physicians assistant....same thing? --- J-J-W@... wrote: > Hi Tess, > > Well Duh! I should have figured that out on my own. > > Thanks, > Judy > > > Hi Judy...MA is Medical Assistant. Mine is a > young fellow named > > Bruce, > > who is excellent at hs job. He learned his trade > in the Navy, and > > usually has no problems with my IV. > > > > Love... > > > > Tess > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2002 Report Share Posted August 15, 2002 Hi Judy, Yes, we all have. What's great about our group is that we have all been there and can celebrate the peaks and offer support in the valleys. You have all become so important to me. And no, I can't win the lotto... Take care, Al in IL > Hi Al, > > Weren't you the lucky one to get something so rare. And I bet you can't > win the lottery. Seriously though, you have really been through the > mill. I guess all of you have and now I am. It's great to have a list > where we can have so many people to listen to us and send support. > Please don't apologize, and you're not ranting. This is our place for > sharing what we are going through and I know everyone will agree that we > are all here for each other. > > Judy - FL > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 on 8/14/02 3:49 PM, kb9vrq at kb9vrq@... wrote: > I remember well when I was first diagnosed with RA. After a Gallium > scan my rheumatologist told me my wrists were lit up like a Christmas > tree. Al, what is a Gallium scan? I've never heard of it. Sue in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 Hi Sue, It's a test to check for inflammation throughout the body. It's radioactive and injected into your body. You get the injection and come back and are scanned. Your hands and feet are bound and a machine slowly moves over you. Sometimes you need to come back. Eventually, the Gallium is passed through your bowels. Any inflammation will appear on the scan because the Gallium congregates where your inflammation is. Take care, Sue. Al in IL > > > I remember well when I was first diagnosed with RA. After a Gallium > > scan my rheumatologist told me my wrists were lit up like a Christmas > > tree. > > Al, what is a Gallium scan? I've never heard of it. > > Sue in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 Thanks, Al, for the information. It sounds very interesting. I'd probably be lit up like a Christmas tree in many different places. Sue on 8/15/02 10:34 PM, kb9vrq at kb9vrq@... wrote: > Hi Sue, > > It's a test to check for inflammation throughout the body. It's > radioactive and injected into your body. You get the injection and > come back and are scanned. Your hands and feet are bound and a > machine slowly moves over you. Sometimes you need to come back. > Eventually, the Gallium is passed through your bowels. > > Any inflammation will appear on the scan because the Gallium > congregates where your inflammation is. > > Take care, Sue. > > Al in IL > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 Okay Al, are you a Dr. or just simply someone who knows everything about everything? You seem to have the answers for everyones questions! It's great! OOPS! Is that Al's head inflating? Sorry everyone there's no more room in this group. Al's head has taken over! Only Joking! Please laugh! hee-hee! I only said that because you seem to have a good sense of huumor too! Seriously, I am glad to have crossed paths w/you! Keri/MI > > > > > I remember well when I was first diagnosed with RA. After a > Gallium > > > scan my rheumatologist told me my wrists were lit up like a > Christmas > > > tree. > > > > Al, what is a Gallium scan? I've never heard of it. > > > > Sue in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 You're welcome Sue. > > > Hi Sue, > > > > It's a test to check for inflammation throughout the body. It's > > radioactive and injected into your body. You get the injection and > > come back and are scanned. Your hands and feet are bound and a > > machine slowly moves over you. Sometimes you need to come back. > > Eventually, the Gallium is passed through your bowels. > > > > Any inflammation will appear on the scan because the Gallium > > congregates where your inflammation is. > > > > Take care, Sue. > > > > Al in IL > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 No Keri, but I play one on TV... I am glad to have met you also. I guess I know a bit from my experiences thus far and my desire to read up on as much as possible. I do get some great advice here as well. Take care and thanks! Al > > > > > > > I remember well when I was first diagnosed with RA. After a > > Gallium > > > > scan my rheumatologist told me my wrists were lit up like a > > Christmas > > > > tree. > > > > > > Al, what is a Gallium scan? I've never heard of it. > > > > > > Sue in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 Welcome to this group it is the greatest. in Ok Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2003 Report Share Posted September 2, 2003 Welcome to our group. I'm 53 yrs old and was diagnosed at 15. You will find it very imformative and supportive. You have a very positive attitude and for me I have found that my best friend dealing with CMT. in Nebraska Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 Now would be the time to go to a specialist. Before the joint damage - is either done- or gets worse. Obviously your doctor has your bloodwork, xrays, etc. but so would a rheumatologist. I worry about the Vioxx scrip as your only med. Back in the old days when I was diagnosed ( or at least treated with probable diagnosis - I didn't have a positive rheumatoid factor either) I was given coated aspirin and indocin ( Back in mid to late 1970's) and I have had tummy problems for the last umpteen years- am on Aciphex to control drug symptoms. Your doctor shouldn't be offended by a request for referral. Mine was not - although I was in grad school in St. Louis - so referral was pretty common. Anyway, for the sake of your long term living with this stuff and your peace of mind and tummy - I think going to a rheumatologist from the beginning makes a lot of sense. Good luck and welcome. > Hi. I'm Michele. I'm 35, live in California with my husband and two > darling children (5 and 3). I was just diagnosed with rheumatoid > arthritis. We knew something was wrong for a while. I haven't been > able to wear my rings other than my wedding band since my 3-year old > was born, have had a lot of joint pain, swelling, and have been > incredibly exhausted -- an xray about 2 weeks ago confirmed that the > pain in my hands (feet, ankles, hips, knees, elbows and shoulders) > was in fact RA. Blood tests last summer and again this month > were negative for RH factor (and a bunch of other stuff), but I > understand that can happen. > > My family dr. has me taking 25 mg Vioxx once a day, which helps, but > not 100 percent. He said to keep taking it, and to let him know when > it stopped helping, as that would be the time to see a > rheumatologist. I'm tempted to go now to a specialist, if for no > other reason than to gather information. I have no idea what my long > term prognosis is at this point.... > > Any tips or hints on what to do at the early stages of RA would be > most appreciated! I am definitely interested in any experiences > others have had with alternative therapies. > > I look forward to meeting all of you. > > Michele > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 > Now would be the time to go to a specialist. Before the joint damage - is either done- or gets worse. Your doctor shouldn't be offended by a request for referral. Mine was not - I strongly agree that seeing a rheumatologist is the best thing to do ASAP. Some types of insurance do not require a referral to see a specialist (mine doesn't). Good luck! Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 Hi Michele! I'm , 30 years old, full time working mother to a 3 year old and a 1 year old. I am very sorry to hear of your diagnosis. We are basically in the same stage of life. Tough to slow down for pain when the family needs to go, go go, huh? This won't be easy, that's for sure. I don't post here too often, but do when I feel that I can help or offer support. I would strongly suggest that you see a rheumatologist now. I was given the diagnosis of probable RA shortly before becoming pregnant with my first. I still have not had a positive RH factor. X-rays on my hands show some narrowing of the spaces already, however. I also have a positive ana (test for lupus and other mixed connective tissue disease). My joints hurt, I get flares, I have extreme fatigue, and muscle weakness. I am now being treated with plaquenil, but I was on methotrexate for about 2 months before this. I hope that you do get in to see a specialist, because while a family doctor is great for many things, this is not something I would treat lightly. What you do now could greatly impact how you function later. When this diagnosis has sunk in a bit, please let us know what you've decided. What I will tell you, is that there are many knowledgable, supportive people here. (Even ones who rarely post!) Sorry you had to find us, but welcome. > Hi. I'm Michele. I'm 35, live in California with my husband and two > darling children (5 and 3). I was just diagnosed with rheumatoid > arthritis. We knew something was wrong for a while. I haven't been > able to wear my rings other than my wedding band since my 3-year old > was born, have had a lot of joint pain, swelling, and have been > incredibly exhausted -- an xray about 2 weeks ago confirmed that the > pain in my hands (feet, ankles, hips, knees, elbows and shoulders) > was in fact RA. Blood tests last summer and again this month > were negative for RH factor (and a bunch of other stuff), but I > understand that can happen. > > My family dr. has me taking 25 mg Vioxx once a day, which helps, but > not 100 percent. He said to keep taking it, and to let him know when > it stopped helping, as that would be the time to see a > rheumatologist. I'm tempted to go now to a specialist, if for no > other reason than to gather information. I have no idea what my long > term prognosis is at this point.... > > Any tips or hints on what to do at the early stages of RA would be > most appreciated! I am definitely interested in any experiences > others have had with alternative therapies. > > I look forward to meeting all of you. > > Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 Welcome, Michele! Sorry that you have not been well for so long. I recommend that you make an appointment with a rheumatologist ASAP - like tomorrow. The wait to get in can be rather long depending on where you are and what your particular situation is. A rheumatologist can confirm your diagnosis and, if it is RA, suggest more aggressive treatment. For RA, a disease-modifying antirheumatic drug (DMARD) is in order. Vioxx won't stop or slow the progression of your disease. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Newly diagnosed > Hi. I'm Michele. I'm 35, live in California with my husband and two > darling children (5 and 3). I was just diagnosed with rheumatoid > arthritis. We knew something was wrong for a while. I haven't been > able to wear my rings other than my wedding band since my 3-year old > was born, have had a lot of joint pain, swelling, and have been > incredibly exhausted -- an xray about 2 weeks ago confirmed that the > pain in my hands (feet, ankles, hips, knees, elbows and shoulders) > was in fact RA. Blood tests last summer and again this month > were negative for RH factor (and a bunch of other stuff), but I > understand that can happen. > > My family dr. has me taking 25 mg Vioxx once a day, which helps, but > not 100 percent. He said to keep taking it, and to let him know when > it stopped helping, as that would be the time to see a > rheumatologist. I'm tempted to go now to a specialist, if for no > other reason than to gather information. I have no idea what my long > term prognosis is at this point.... > > Any tips or hints on what to do at the early stages of RA would be > most appreciated! I am definitely interested in any experiences > others have had with alternative therapies. > > I look forward to meeting all of you. > > Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 Hi Michele, I want to welcome you to the group. You have already got some great advice from everyone. I do agree, you must seek a rheumatologist now that you have been diagnosed. I hope that you enjoy the group, Tawny > Hi. I'm Michele. I'm 35, live in California with my husband and two > darling children (5 and 3). I was just diagnosed with rheumatoid > arthritis. We knew something was wrong for a while. I haven't been > able to wear my rings other than my wedding band since my 3-year old > was born, have had a lot of joint pain, swelling, and have been > incredibly exhausted -- an xray about 2 weeks ago confirmed that the > pain in my hands (feet, ankles, hips, knees, elbows and shoulders) > was in fact RA. Blood tests last summer and again this month > were negative for RH factor (and a bunch of other stuff), but I > understand that can happen. > > My family dr. has me taking 25 mg Vioxx once a day, which helps, but > not 100 percent. He said to keep taking it, and to let him know when > it stopped helping, as that would be the time to see a > rheumatologist. I'm tempted to go now to a specialist, if for no > other reason than to gather information. I have no idea what my long > term prognosis is at this point.... > > Any tips or hints on what to do at the early stages of RA would be > most appreciated! I am definitely interested in any experiences > others have had with alternative therapies. > > I look forward to meeting all of you. > > Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 Thanks to everyone for the very kind welcomes! I think it is unanimous, and clearly my instincts were right. I guess I'd better face reality and make that appointment with a specialist. Michele Michele Lynch Marketing Executive Stayin Home and Lovin It!!! mich.lynch@... 949.388.8573 949.292.7452 http://mlynch.stayinhomeandlovinit.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 Hi Michele, Family doctors are great but 99 percent do not know RA. The best thing you can do for yourself and your family is get to a Rheumatologist as soon as possible. The earlier they can start treatment the less problems you will have later. NY - Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2004 Report Share Posted May 6, 2004 Hey Michele- Did you have any luck with getting into a Rheumy? I'm sure you probably had to get on a waiting list, but I wanted to check in and see how you're doing. I got really sick from the Methotrexate about a month ago, and finally decided just to quit taking it. . .along with everything else I was on. Why ever in the world was that a good idea?! I am so sore and so sleepy, I could die. My kids are little wild indians right now! And, the cat had kittens in the closet. . . it just gets to be more and more fun! I did make it into a dosage trial for remicade at UCSD though. I start next week! YEAH! Jan- those beef cups are yummy, and even work well if you change the barbeque sauce to spaghetti sauce and use mozerella cheese. A pain-free night to all! Lissa > Thanks to everyone for the very kind welcomes! I think it is unanimous, and clearly my instincts were right. I guess I'd better face reality and make that appointment with a specialist. > > Michele > > > > > Michele Lynch > Marketing Executive > Stayin Home and Lovin It!!! > mich.lynch@c... > 949.388.8573 > 949.292.7452 > http://mlynch ..stayinhomeandlovinit.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2004 Report Share Posted May 6, 2004 Oh my you are BUSY! Yes, I actually saw a specialist last week. He put me on Celebrex, which doesn't seem to have the same side effects as the Vioxx did. We ran a bunch of blood tests, looked at my hand xrays, which of course were inconclusive, and then he had me get my feet xrayed as well. I see him again next week. He was recommended by a colleague of mine, and seems to be fairly easy to reach, which is nice. We will see. I am very skeptical about taking much of anything, drug wise..... I can symptathize with your wanting to stop taking everything. I think it is hard to find a balance. And from what I've been reading, it seems as if all of the " serious " RA drugs have some significant side effects. I'd type more but it hurts. Maybe you need to pick back up on some of that medication, huh?! The last couple days have been misearable -- my hands feel like balloons -- maybe its the heat? Thanks from checking on me!! Michele [ ] Re: Newly diagnosed Hey Michele- Did you have any luck with getting into a Rheumy? I'm sure you probably had to get on a waiting list, but I wanted to check in and see how you're doing. I got really sick from the Methotrexate about a month ago, and finally decided just to quit taking it. . .along with everything else I was on. Why ever in the world was that a good idea?! I am so sore and so sleepy, I could die. My kids are little wild indians right now! And, the cat had kittens in the closet. . . it just gets to be more and more fun! I did make it into a dosage trial for remicade at UCSD though. I start next week! YEAH! Jan- those beef cups are yummy, and even work well if you change the barbeque sauce to spaghetti sauce and use mozerella cheese. A pain-free night to all! Lissa > Thanks to everyone for the very kind welcomes! I think it is unanimous, and clearly my instincts were right. I guess I'd better face reality and make that appointment with a specialist. > > Michele > > > > > Michele Lynch > Marketing Executive > Stayin Home and Lovin It!!! > mich.lynch@c... > 949.388.8573 > 949.292.7452 > http://mlynch .stayinhomeandlovinit.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2005 Report Share Posted May 28, 2005 hi! i live in palm beach gardens. there is a neuro named david perlmudder who is in naples or my doctor will prescribe it. i know you are an hour away on the turnpike but her number is 561-625-1263. doctor gabrielle knauss. she is an md and a homeopath as well. good luck!!! [low dose naltrexone] newly diagnosed hi everyone!i've been having symptoms for two months now and was just diagnosed , have been researching different treatments and came across LDN....i live in FT Lauderdale, Florida...does anyone know of a neurologist that knows about LDN in the FT Lauderdale area and will order it? any suggestions for the newly diagnosed? thanks, Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2005 Report Share Posted May 28, 2005 Hi Lynn My sister started LDN more than 2 years ago as a newly diagnosed. She has never tried specific MS drugs other than LDN. Later this year she went seeing Bihari and she is now followed by himself. She had an MRI few days ago in Italy and the result is NO progression at all. Don' t get me wrong: Nothing is really easy as it looks, nor LDN. You will have a lot of good and bad days, especially at the beginning. You decision about getting into LDN will be often in doubt and, for sure, there will be a lot of times you will question it. I really wish you the same luck and to find a good doctor to support you during this trial, Massimo Italy > hi! i live in palm beach gardens. there is a neuro named david perlmudder who is in naples or my doctor will prescribe it. i know you are an hour away on the turnpike but her number is 561-625-1263. doctor gabrielle knauss. she is an md and a homeopath as well. good luck!!! > [low dose naltrexone] newly diagnosed > > > hi everyone! > i've been having symptoms for two months now and was just diagnosed , > have been researching different treatments and came across LDN....i > live in FT Lauderdale, Florida...does anyone know of a neurologist that > knows about LDN in the FT Lauderdale area and will order it? any > suggestions for the newly diagnosed? > thanks, > Lynn > > > > > > -------------------------------------------------------------------- ---------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2005 Report Share Posted July 19, 2005 Hi , I was diagnosed with RA 7 weeks ago, very confusing time for all of us. Some people have reacted very odd ways. My mother in law began to discuss her aches and pains with me. Husband has acted kinda weird about it, but my kids have been fantastic. The general population doesn't really understand it and how it affects the body. I work in a hospital so most of my coworkers have a basic understanding of it. I am in a lot of pain, went to DR today for xrays on my feet. I see a rheumatologist next week, looking forward to that so we can get started on the a good treatment plan. Heres hoping for pain free days! Cassy --- In , Davenport <jennay43334@y...> wrote: > I was diagnosed with RA last week. In the last week I > have had really bad pain. I was put on Ultram for pain > control. They are testing me for some other suspected > illnesses, one being slceroderma. Is it common to have > more than one type illness ? Any suggestions on where > to go for info would be appreciated. I also wondered > if anyone else's family members reacted oddly to the > fact you have RA ? My son said off hand today, " Well > I know other people who have arthritis and they do > alright , you make it sound like you are done and > can't do anything. " I'm keeping in mind he doesn't > have a clue to the pain of RA, and I hope he never > does , but is this a normal reaction ? Thanks for your > ears.. > > > > ____________________________________________________ > Start your day with - make it your home page > http://www./r/hs Quote Link to comment Share on other sites More sharing options...
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