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Pat:

I was told I have to get the flu shot plus I got the pneumonia shot a couple

of years ago. However, I have asthma and when I get sick, the asthma takes

over and I usually end up in the ER or the hospital. If you are taking

immune suppressants drugs, it is probably wise to get the flu shot. That's

my take on the situation.

Jeannette

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Pat..I too was told I should get the flu shot every year and also got the

pneumonvax last year(supposed to last a few yrs) as I have allergies and

asthma too.Also my kids were advised to get the shots if living with me as

they go to places (school, work) with more exposure to flu bugs, etc and will

bring it home to me. NOw since I have been getting flu shots I seem not to

get as sick when I am sick......Judy

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Dear Pat,

I don't know about anyone else, but my rheumy has advised me not to get a flu

shot. He seems to think it may do more harm than good...although he never

told me how he reached that conclusion. That is just one of the many reasons

I have for trying to find a new doctor..lol.

Wishing you all the best,

Sharon (a newbie)

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Sharon,

I've never had a flu shot, and my rheumy didn't say one way or another.

I've just heard to many people getting the flu after a shot, so I decided to

take my chances. I've never had the flu that I know of, so maybe if I had

had it before, I would want a shot. I'm 47 and so far have been lucky.

a

----- Original Message -----

From: <dixieturtle67@...>

< egroups>

Sent: Wednesday, November 01, 2000 2:25 AM

Subject: Re: [ ] Good News!

> Dear Pat,

> I don't know about anyone else, but my rheumy has advised me not to get a

flu

> shot. He seems to think it may do more harm than good...although he never

> told me how he reached that conclusion. That is just one of the many

reasons

> I have for trying to find a new doctor..lol.

>

> Wishing you all the best,

> Sharon (a newbie)

>

>

> Our websites: http://rheumatoid.arthritis.freehosting.net/

> http://www.rasupport.webprovider.com/

> Change subscription options:

>

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I had mine, yesterday.

I have had more of a reaction this year than I have in the last several

years, but let's hope that this is due to the fact that more 'mojo' is in

THIS year's shot mix than in the past.

I asked my MD about this last week. He said that I was on such a low, low

low dose of MTX that it was not a bad idea to take it.

I asked what RA issues ARE in place that would militate AGAINST taking it:

1. hEAVY AND DIVERSE USE OF DMARDS

2. LOWER IMMUNITY AND RESULTANT IMMUNE-RELATED ISSUES SUCH AS CHRONIC

INFLECTION, UPPER RESPYS, ETC.

3. TAKING COUMERIN(?) AND HEPARIN(?) I don;t know what the H those are

anyway. Oh yeah, Coumarin thins blood, right?

Jon

----- Original Message -----

From: a <aA@...>

< egroups>

Sent: Wednesday, November 01, 2000 1:59 PM

Subject: Re: [ ] Good News!

> Sharon,

> I've never had a flu shot, and my rheumy didn't say one way or another.

> I've just heard to many people getting the flu after a shot, so I decided

to

> take my chances. I've never had the flu that I know of, so maybe if I had

> had it before, I would want a shot. I'm 47 and so far have been lucky.

>

> a

>

> ----- Original Message -----

> From: <dixieturtle67@...>

> < egroups>

> Sent: Wednesday, November 01, 2000 2:25 AM

> Subject: Re: [ ] Good News!

>

>

> > Dear Pat,

> > I don't know about anyone else, but my rheumy has advised me not to get

a

> flu

> > shot. He seems to think it may do more harm than good...although he

never

> > told me how he reached that conclusion. That is just one of the many

> reasons

> > I have for trying to find a new doctor..lol.

> >

> > Wishing you all the best,

> > Sharon (a newbie)

> >

> >

> > Our websites: http://rheumatoid.arthritis.freehosting.net/

> > http://www.rasupport.webprovider.com/

> > Change subscription options:

> >

>

>

>

> Our websites: http://rheumatoid.arthritis.freehosting.net/

> http://www.rasupport.webprovider.com/

> Change subscription options:

>

>

>

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Pat, I think the B-cell delpletion theory sounds very promising. I would

like to see more details though.

How off were your neutrophils and lymphocytes? Did you have both the

absolute numbers and the percentages? It may not mean too much if it only

happened this once and they were only borderline high and low.

High neutrophils and low lymphocytes can also be a function of having a

connective tissue disease, among other things.

Here are some links about white blood cells that should help:

http://www.merck.com/pubs/mmanual_home/sec14/156.htm

http://www.dml.co.nz/doctoronly/handbook/lymphocytes.htm

http://www.dml.co.nz/doctoronly/handbook/neutrophils.polymorphs..htm

http://www.ultranet.com/~jkimball/BiologyPages/B/Blood.html

As for the flu shot, I've read lots on both sides, but the most important

thing to remember is that, in people with suppressed immune systems (either

by disease or drugs), vaccines with " killed " material should be used as

opposed to the " live " immunizations. I've never had a flu shot, I don't seem

to be susceptible to it so far, and I'm not in a high-risk category anyway.

Glad you had some fun celebrating Halloween.

Have fun with yoga.

----- Original Message -----

From: <pengland@...>

< egroups>

Sent: Tuesday, October 31, 2000 11:01 AM

Subject: [ ] Good News!

>

> > Subject: RE: [is this to good to be true!

> > Importance: High

> >

> > Check this out! Is this to good to be true!

> > Has anyone heard of this?

> >

> >

> > http://www.foxnews.com/health/103000/arthritis.sml

> >

> >

> > Welcome all the newbies! Thanks for sharing your stories!

> >

> > Happy Halloween!!! We had our annual party and the costumes were

> great!

> > We have such creative friends.

> >

> > The ARAVA is still med of choice. Going on 9 months. I just went

> > through about 4 bad weeks.

> > Doc thought it was a virus. I agree. Getting back to ARAVA normal.

> > Pretty pain free.

> > Do any of you understand the neutrophils% and Lymphocytes% in our

> blood

> > test results?

> > My Neurtrophils were high and my lymphocytes were low. I figure it

> was

> > because of the virus.

> > I did not get to ask my doc about this. He seemed to be in a hurry

> and I

> > asked him how my blood

> > looked he said liver fine, kidneys fine your fine! Then I got a copy

> of my

> > blood work and these two test

> > were out of whack. hmmm. I looked this up and it I think I

> understood it

> > as the neutrophils are the virus fighters

> > and the lympcytes are your immune builders.

> >

> > Another question of the day: Should we get flu shots?

> >

> > I started beginner YOGA a month ago. It is really nice. It is very

> good

> > stretching. My hands and toes are

> > a bit of a problem for some things but I work around it. I think it

> is

> > wonderful and very relaxing. I just bought

> > a CD with beginning yoga and it only takes 20 minutes a day.

> fabulous!

> > Has anyone tried this?

> > I like to ski and it is so important to be limber for that. I

> really have

> > not exercised much for 2 1/2 years and

> > this is the first thing that seems to be accomodating my body. YEA.

> >

> > Okay I gotta go! Take care all! Keep on writing and stay well.

> > Pat

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  • 3 years later...

Just wanted to let everyone know that I gave LDN information to a friend of mine who has been having lots of weird neurological problems. About 10 years ago, doctors thought she had Bells Palsy, but it turned out not to be. Nobody really knew what the problem was, but she did get better. She had begun to have more trouble a couple of years ago. Turned out that her mouth was a terrible mess of metal and root canals. She began getting all of these problems taken care of. In the meantime, she made several trips to Minnesota to the Mayo, but they couldn't really put their finger on anything either. She took the LDN info to her holistic dentist in Big Spring, Texas and he was quite impressed! He's writing her the script and wants to talk to three other patients about it!! I thought this was exciting!

Marcie (PPMS)

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  • 3 years later...
Guest guest

I called to see if my third opinion doctor had a cancellation and they moved me

up 3 weeks! I

go next week! This is perfect b/c the day after I am scheduled to see the hand

specialist.

I will keep you posted,

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