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Re: In remission

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In a message dated 2/27/03 10:42:13 AM Central Standard Time,

girliegirlj2001@... writes:

> Subj: In remission

> Date: 2/27/03 10:42:13 AM Central Standard Time

> From: <A

HREF= " mailto:girliegirlj2001@... " >girliegirlj2001@...</A>

> Reply-to: <A

HREF= " mailto:hyperthyroidism " >hyperthyroidism </A\

>

> <A

HREF= " mailto:hyperthyroidism " >hyperthyroidism </A\

>

> Sent from the Internet

>

>

>

> Went to Endo yesterday and my Graves is in remission. I just wanted

> to say thanks for the advice I found on this board. After researching

> on here and some other sites/books - I opted against RAI and just had

> a Tapezole perscription. That was enough (over a year) to bring my

> levels back to normal. Now I'm off all meds and am doing fine.

>

> So just wanted to pass on the news.

>

> Jen

Jen, Congrats..what all did you do? Did you eat any iodine? take vitamins?

Did you get it after you have a baby? I don't remember what you said in the

beginning..thanks Kim

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>

> Jen, Congrats..what all did you do? Did you eat any iodine? take vitamins?

> Did you get it after you have a baby? I don't remember what you said in the

> beginning..thanks Kim

>

>

>

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  • 2 weeks later...
Guest guest

Jen,

Congrats on the remission!!!! I've been in remission 2 years!!! There is

life WITHOUT RAI!!! mona

In remission

> Went to Endo yesterday and my Graves is in remission. I just wanted

> to say thanks for the advice I found on this board. After researching

> on here and some other sites/books - I opted against RAI and just had

> a Tapezole perscription. That was enough (over a year) to bring my

> levels back to normal. Now I'm off all meds and am doing fine.

>

> So just wanted to pass on the news.

>

> Jen

>

>

>

>

>

>

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  • 7 months later...

Great news, Liz! Sorry, but I can't tell you how to remain in remission.

That's still one of life's mysteries. I wouldn't go off the MTX though.

Do tell your physician what happened with the Trilisate.

I hope it lasts!

[ ] In Remission

> Hi all, good news I've been off of my medicine Trilisate for about 2

weeks and I feel GREAT!!! I am only taking the methotrexate once a

week. I feel good and happy, Trilisate was giving bad somach problems,

so I decided to get off of it on my own with out doctor's consent (he

doesn't know, but I will tell him on my next doctor's visit). I was

wondering if anyone has any advice on how someone can help STAY in

remission : ) I would greatly appreciate it, thanks Liz.

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  • 3 years later...
Guest guest

Great to hear you are feeling so much better, that's such good news ! I am 12 weeks into my methotrexate treatment and I am also glad to say I am feeling a little better. My rheumatologist says that when I return to see him in September that I will be bounding through his door !! hope he's Right. I also suffer from osteo arthritis and had 2 small fractures in my spine and of course these will always give me problems, but at the moment my pain levels from RA have dropped by at least a half and that I am so grateful for, and also finding a simply wonderful rheumatologist here in Shropshire, E Best wishes to you and hope you continue to keep well !! Lynda sugarcookie59 <sugarcookie59@...> wrote: Well Im finally there after 3 years of meds ~ My appts with rhumetologist last about 5 minutes now ~ I take 8 tablets of methotrexate a week, azulfasalazine daily, plaquenil daily and I finally stopped taking mobic. I am feeling as good as new with the exception of rainy days ~ they take their tole. I have a hot tub which I try to use every other day ~ sometimes I make it once a week ~ but I am honestly feeling like "ME" once again ~ long hard road but Im back ! Other people I speak with have been told by rhumatologist to stay away from beef products. I dont notice any difference

when I eat beef. Due to the methotrexate I have monthly blood tests ~ which I could live without if it were up to me ~ I am back wearing a size 8 1/2 shoe, oooooooo~ I was buying a size 9 due to the inflammation. Boy its been a long tough battle. When I was first diagnosed, I thought I had the flu ~ hurt to walk ~ feet hurt ~ hands hurt ~ I thank god that there is NO destruction to any joints. I dont know what is in the future as far as what will happen if the methotrexate combo dosnt work any more ~ I hope and keep my fingers crossed that I just keep on the path I am on ~ I was having trouble sleeping ~ seems like a vicious circle ~ so I am on a muscle relaxant which helps me nightly to get a good nights sleep ~ It sure has helped ~ I wake up refreshed and feel good ~ not like before ~ I think about you all and hope that you are getting the care that you need ~ if you dont

have access to a hot tub ~ find a nearby hotel ~ a place that has one ~ and try it ! One trip should begin to help~ a heated pool ~ get some light swimming in ~ and it will help ~ I wish they would find the cause ~ and a cure !

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Guest guest

I'm glad you are feeling better, but sorry it took 3 years. It took

about 12 weeks for me to start feeling better including being able to

mostly sleep through the night. However, it was about 1 year until I as

feeling fairly normal.

No, I was never told to stay away from beef. I was told to try and get

3 servings of salmon each week.

Jean

> Well Im finally there after 3 years of meds ~ My appts with

> rhumetologist last about 5 minutes now ~ I take 8 tablets of

> methotrexate a week, azulfasalazine daily, plaquenil daily and I

> finally stopped taking mobic.

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  • 2 weeks later...
Guest guest

I've been in remissin for two years now. I take 7 methotrexate tabs a

week, and one 220mg Aleve per day. I am flaring right now for the

first time in years as a result of an allergic reaction to Levaquin,

but hopefully it will go back to normal once I am off the antibiotic.

Sharon

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