Re: Enbrel or Imdur causing headaches?

[Guest guest]

Shirley,

You poor girl, I'm sorry your having headaches. Do you usually take

the Enbrel and Mtx together? The Imdur med might be the cause of the

headaches. The nausea is problably from the mtx. I don't take my

mtx until I hit the bed. I don't take both meds on the same day.

You do go to the ER, if your still feeling bad. Your in my prayers,

hope you start feeling better soon, Tawny

>

> Group,

> I have just been through a horrible night and day. It seems to be a

> little better now. I can hold my head up and look at the pc.

> I took my second shot of enbrel yesterday about 7:30pm along with

my 4

> MTX. I have been up and down since midnight with the grand-daddy of

> all headaches. I took two Ultram ER and no help. I was afraid to

take

> more, but I did take extra strength tylenol until I got nauseous.

> I couldn't take my regular meds today because of nausea.

> I don't know for sure but I think the cause is Imdur that the

> cardiologist gave me. It does cause headaches but this is extreme.

> Where ever I lay my head a pressure point forms and it feels like

> something pounding my head there. I tried sleeping sitting up but

my

> neck hurt so badly that was impossible also. What sleep that I

finally

> did get today was in short periods. I had to use a towel to block

all

> light out of my eyes. If tonight is the same I will go to the ER.

> I was just wondering if anyone has any thoughts or insight into

this.

> Thanks,

> Shirley

>

[Guest guest]

Shirley,

Just a thought. Migraines cause nausea and sensitivity to light, among

other things. When I used to have them, mine were one-sided, most of

the time on the left side. Noise bothered me, too. I felt like crawling

down into a hole where it was dark and quiet. I hope it's not a

migraine.

Sue

On Saturday, September 20, 2008, at 06:41 PM, nana2livi wrote:

> Group,

> I have just been through a horrible night and day. It seems to be a

> little better now. I can hold my head up and look at the pc.

> I took my second shot of enbrel yesterday about 7:30pm along with my 4

> MTX. I have been up e and down since midnight with the grand-daddy of

> all headaches. I took two Ultram ER and no help. I was afraid to take

> more, but I did take extra strength tylenol until I got nausous.

> I couldn't take my regular meds today because of nausea.

> I don't know for sure but I think the cause is Imdur that the

> cardiologist gave me. It does cause headaches but this is extreme.

> Where ever I lay my head a pressure point forms and it feels like

> something pounding my head there. I tried sleeping sitting up but my

> neck hurt so badly that was impossible also. What sleep that I finally

> did get today was in short periods. I had to use a towel to block all

> light out of my eyes. If tonight is the same I will go to the ER.

> I was just wondering if anyone has any thoughts or insight into this.

> Thanks,

> Shirley

>

[Guest guest]

Hi- I am sorry you are in such pain. I think the heart med might be causing your headaches although I myself get terrible migraines that last into the night. If I have them during the day, I just sleep until they go away. A really deep sleep would probably help but the heart med might be affecting the blood flow to the brain causing the pain you are feeling. Try a heating pad on your neck. Definately go to the ER if not better. Deborah

On Sat, Sep 20, 2008 at 7:27 PM, nana2livi <s.p5315@...> wrote:

Group,

I have just been through a horrible night and day. It seems to be a

little better now. I can hold my head up and look at the pc.

I took my second shot of enbrel yesterday about 7:30pm along with my 4

MTX. I have been up and down since midnight with the grand-daddy of

all headaches. I took two Ultram ER and no help. I was afraid to take

more, but I did take extra strength tylenol until I got nauseous.

I couldn't take my regular meds today because of nausea.

I don't know for sure but I think the cause is Imdur that the

cardiologist gave me. It does cause headaches but this is extreme.

Where ever I lay my head a pressure point forms and it feels like

something pounding my head there. I tried sleeping sitting up but my

neck hurt so badly that was impossible also. What sleep that I finally

did get today was in short periods. I had to use a towel to block all

light out of my eyes. If tonight is the same I will go to the ER.

I was just wondering if anyone has any thoughts or insight into this.

Thanks,

Shirley

[Guest guest]

Thanks, Deborah.

Shirley

>

> Hi- I am sorry you are in such pain. I think the heart med might

be causing

> your headaches although I myself get terrible migraines that last

into the

> night. If I have them during the day, I just sleep until they go

away. A

> really deep sleep would probably help but the heart med might be

affecting

> the blood flow to the brain causing the pain you are feeling. Try

a heating

> pad on your neck. Definately go to the ER if not better. Deborah

>

[Guest guest]

Shirley

I have similar headaches, i used to get them and not understand what they were

all i knew was they built up all day until so bad i HAD to go to bed, and even

then i sometimes couldnt get relief. My GP told me they were from the

inflammation in my neck and shoulders, this year it all hit a peak when my neck

muscles went into spasm now a rough day with my neck means the headache will

come at some point in that day.

The things i do ease it are - lie down with a wet flannel over my eyes, or i

have the eye masks you can keep in the fridge and these help too, take

painkillers which dont always help cause if i wait until its at its peak they

dont even take the edge off, do neck exercises throughout the day and now my

neck is a little better i go swimming to try and build my muscles up again, i do

attend hydrotherapy also and i have a soft collar that i only wear in bed at

night, also on friday i had acupuncture for the first time and the relief was

amazing!!

I hope something from here helps you but i guess we all know that its different

for everybody!

Take Care

Sharon xx

[ ] Enbrel or Imdur causing headaches?

Group,

I have just been through a horrible night and day. It seems to be a

little better now. I can hold my head up and look at the pc.

I took my second shot of enbrel yesterday about 7:30pm along with my 4

MTX. I have been up and down since midnight with the grand-daddy of

all headaches. I took two Ultram ER and no help. I was afraid to take

more, but I did take extra strength tylenol until I got nauseous.

I couldn't take my regular meds today because of nausea.

I don't know for sure but I think the cause is Imdur that the

cardiologist gave me. It does cause headaches but this is extreme.

Where ever I lay my head a pressure point forms and it feels like

something pounding my head there. I tried sleeping sitting up but my

neck hurt so badly that was impossible also. What sleep that I finally

did get today was in short periods. I had to use a towel to block all

light out of my eyes. If tonight is the same I will go to the ER.

I was just wondering if anyone has any thoughts or insight into this.

Thanks,

Shirley

[Guest guest]

Tawny and Sue,

From what I know about Magraines this must have been a drug induced

one. It definitely was the Imdur.

I did not take it last night and thank God, I slept.

I feel like a different person today. I have my usual headache but no

way the same thing.

Thanks,

Shirley

>

> Shirley,

>

> Just a thought. Migraines cause nausea and sensitivity to light,

among

> other things. When I used to have them, mine were one-sided, most of

> the time on the left side. Noise bothered me, too. I felt like

crawling

> down into a hole where it was dark and quiet. I hope it's not a

> migraine.

>

> Sue

[Guest guest]

Aw, Shirley, I am so sorry you are in such pain. I pray the headache

eases up and you are feeling better soon. I Googled both Enbrel and

Imdur and it seems they both can cause headaches. Perhaps its the

combination of both of them that is causing it in you. Please keep us

posted.

OH! Before I forget, I put your name on the sign up sheet for that

" reset button " right under mine. They said they'll let us know *lol*.

Doreen

>

> Group,

> I have just been through a horrible night and day. It seems to be a

> little better now. I can hold my head up and look at the pc.

> I took my second shot of enbrel yesterday about 7:30pm along with

> my 4 MTX. I have been up and down since midnight with the

> grand-daddy of all headaches. I took two Ultram ER and no help. I

> was afraid to take

> more, but I did take extra strength tylenol until I got nauseous.

> I couldn't take my regular meds today because of nausea.

> I don't know for sure but I think the cause is Imdur that the

> cardiologist gave me. It does cause headaches but this is extreme.

> Where ever I lay my head a pressure point forms and it feels like

> something pounding my head there. I tried sleeping sitting up but

> my neck hurt so badly that was impossible also. What sleep that I

> finally did get today was in short periods. I had to use a towel to

> block all light out of my eyes. If tonight is the same I will go to

> the ER.

> I was just wondering if anyone has any thoughts or insight into

> this.

> Thanks,

> Shirley

>

[Guest guest]

Doreen,

Thanks, Hon. I am back to my normal headache now. I thought it was a

problem, I am just happy to have it. So far all of the heart meds that

I have tried caused adverse reactions. I see the cardiologist again

Tuesday and will ask what happens if I take nothing. Which is where I

am now.

I hope they get to our names soon!

Shirley

>

> Aw, Shirley, I am so sorry you are in such pain. I pray the headache

> eases up and you are feeling better soon. I Googled both Enbrel and

> Imdur and it seems they both can cause headaches. Perhaps its the

> combination of both of them that is causing it in you. Please keep us

> posted.

>

> OH! Before I forget, I put your name on the sign up sheet for that

> " reset button " right under mine. They said they'll let us know

*lol*.

>

> Doreen

[Guest guest]

Shirley,

So happy to hear your feeling better today. I hope your doctor can

find you another med, one that doesn't cause migraines.

Have a good day, Tawny

>

> Tawny and Sue,

> From what I know about Magraines this must have been a drug induced

> one. It definitely was the Imdur.

> I did not take it last night and thank God, I slept.

> I feel like a different person today. I have my usual headache but

no

> way the same thing.

> Thanks,

> Shirley

>

[Guest guest]

Sharon,

Thanks. As you could tell, this was my first and I pray my last.

I truly believe that it was drug induced. The worse pain lasted for

14hrs and then it was down to a really bad throbbing headache for

about 12 more hours.

I was contemplating calling my neuro-surgeon. I figured anything

that bad for that long was something major. I am happy to say, once

again I was wrong.

Thank you for the suggestions and I will save this email, just in

case.

Shirley

--- In , Sharon Turtnbull <rupertsmum@...>

wrote:

>

> Shirley

>

> I have similar headaches, i used to get them and not understand

what they were all i knew was they built up all day until so bad i

HAD to go to bed, and even then i sometimes couldnt get relief. My

GP told me they were from the inflammation in my neck and shoulders,

this year it all hit a peak when my neck muscles went into spasm now

a rough day with my neck means the headache will come at some point

in that day.

>

> The things i do ease it are - lie down with a wet flannel over my

eyes, or i have the eye masks you can keep in the fridge and these

help too, take painkillers which dont always help cause if i wait

until its at its peak they dont even take the edge off, do neck

exercises throughout the day and now my neck is a little better i go

swimming to try and build my muscles up again, i do attend

hydrotherapy also and i have a soft collar that i only wear in bed

at night, also on friday i had acupuncture for the first time and

the relief was amazing!!

>

> I hope something from here helps you but i guess we all know that

its different for everybody!

>

> Take Care

>

>

>

> Sharon xx

>

[Guest guest]

to sharon,hi could u please tell me a lil more about the acupuncture? my massage

theapist told me i should try it but i didn't ask to

much about it. i would greatly appreciate it.god bless,melyndagamez 9/21/08

[ ] Re: Enbrel or Imdur causing headaches?

Sharon,

Thanks. As you could tell, this was my first and I pray my last.

I truly believe that it was drug induced. The worse pain lasted for

14hrs and then it was down to a really bad throbbing headache for

about 12 more hours.

I was contemplating calling my neuro-surgeon. I figured anything

that bad for that long was something major. I am happy to say, once

again I was wrong.

Thank you for the suggestions and I will save this email, just in

case.

Shirley

--- In , Sharon Turtnbull <rupertsmum@...>

wrote:

>

> Shirley

>

> I have similar headaches, i used to get them and not understand

what they were all i knew was they built up all day until so bad i

HAD to go to bed, and even then i sometimes couldnt get relief.  My

GP told me they were from the inflammation in my neck and shoulders,

this year it all hit a peak when my neck muscles went into spasm now

a rough day with my neck means the headache will come at some point

in that day. 

>

> The things i do ease it are - lie down with a wet flannel over my

eyes, or i have the eye masks you can keep in the fridge and these

help too, take painkillers which dont always help cause if i wait

until its at its peak they dont even take the edge off, do neck

exercises throughout the day and now my neck is a little better i go

swimming to try and build my muscles up again, i do attend

hydrotherapy also and i have a soft collar that i only wear in bed

at night, also on friday i had acupuncture for the first time and

the relief was amazing!!

>

> I hope something from here helps you but i guess we all know that

its different for everybody!

>

> Take Care

>

>

>

>  Sharon xx

>

------------------------------------

[Guest guest]

So glad you are feeling better, Shirley.

Not an MD

On Sun, Sep 21, 2008 at 6:46 AM, nana2livi <s.p5315@...> wrote:

> Tawny and Sue,

> From what I know about Magraines this must have been a drug induced

> one. It definitely was the Imdur.

> I did not take it last night and thank God, I slept.

> I feel like a different person today. I have my usual headache but no

> way the same thing.

> Thanks,

> Shirley

[Guest guest]

hi shirley, i too get massive headaches. i take alot of meds so i would not know

if it's one of them or not. as a matter of fact i had one TODAY!!!! i had to lie

down for like 3 hours or so cuz it was horrific.. i told my hub & daughter to

please try to keep the noise level to a

medium. i take AXZERT it works really well for me. maybe u should ask your dr.

about it.. i hope u feel better soon. god bless,melyndagamez 9/21/08

[ ] Re: Enbrel or Imdur causing headaches?

Aw, Shirley, I am so sorry you are in such pain. I pray the headache

eases up and you are feeling better soon. I Googled both Enbrel and

Imdur and it seems they both can cause headaches. Perhaps its the

combination of both of them that is causing it in you. Please keep us

posted.

OH! Before I forget, I put your name on the sign up sheet for that

" reset button " right under mine. They said they'll let us know *lol*.

Doreen

>

> Group,

> I have just been through a horrible night and day. It seems to be a

> little better now. I can hold my head up and look at the pc.

> I took my second shot of enbrel yesterday about 7:30pm along with

> my 4 MTX. I have been up and down since midnight with the

> grand-daddy of all headaches. I took two Ultram ER and no help. I

> was afraid to take

> more, but I did take extra strength tylenol until I got nauseous.

> I couldn't take my regular meds today because of nausea.

> I don't know for sure but I think the cause is Imdur that the

> cardiologist gave me. It does cause headaches but this is extreme.

> Where ever I lay my head a pressure point forms and it feels like

> something pounding my head there. I tried sleeping sitting up but

> my neck hurt so badly that was impossible also. What sleep that I

> finally did get today was in short periods. I had to use a towel to

> block all light out of my eyes. If tonight is the same I will go to

> the ER.

> I was just wondering if anyone has any thoughts or insight into

> this.

> Thanks,

> Shirley

>

------------------------------------

[Guest guest]

Group;

WHAT RESET BUTTION? AND WHAT FOR?? HOW DO I PUT MY NAME ON THE

RESET BUTTION I LOOKDED FOR IT EVERYWHERE.

I am so sorry everyone has such aweful headaches. I get them all

the time. I been getting them since I was 22. I am 54 now. I have

been trying to figure out what from. I get little sparkless in my

eyes with the worse headaches. I also get a form of tunnel vision

with the severe headaches.

I do like everyone else with my headaches. Lie down, put a hot

compress on my neck. Put a cool compress on my forhead. Darken the

room. These things help a lot. I didnt takes meds when I started

out with massive headaches. These headaches has been the same for

34 years.

Maybe our government should stop all this space travel and work on

our health problems. I know the satelites are important, but

walking on the moon occomplished nothing. That is only my opinion.

gentle hugs

Clora

> hi shirley, i too get massive headaches. i take alot of meds so i

would not know if it's one of them or not. as a matter of fact i had

one TODAY!!!! i had to lie down for like 3 hours or so cuz it was

horrific.. i told my hub & daughter to please try to keep the noise

level to a

> medium. i take AXZERT it works really well for me. maybe u should

ask your dr. about it.. i hope u feel better soon. god

bless,melyndagamez 9/21/08

>

>

>

> [ ] Re: Enbrel or Imdur causing headaches?

>

> Aw, Shirley, I am so sorry you are in such pain. I pray the

headache

> eases up and you are feeling better soon. I Googled both Enbrel and

> Imdur and it seems they both can cause headaches. Perhaps its the

> combination of both of them that is causing it in you. Please keep

us

> posted.

>

> OH! Before I forget, I put your name on the sign up sheet for that

> " reset button " right under mine. They said they'll let us know

*lol*.

>

> Doreen

>

>

> >

> > Group,

> > I have just been through a horrible night and day. It seems to

be a

> > little better now. I can hold my head up and look at the pc.

> > I took my second shot of enbrel yesterday about 7:30pm along

with

> > my 4 MTX. I have been up and down since midnight with the

> > grand-daddy of all headaches. I took two Ultram ER and no help.

I

> > was afraid to take

> > more, but I did take extra strength tylenol until I got nauseous.

> > I couldn't take my regular meds today because of nausea.

> > I don't know for sure but I think the cause is Imdur that the

> > cardiologist gave me. It does cause headaches but this is

extreme.

> > Where ever I lay my head a pressure point forms and it feels

like

> > something pounding my head there. I tried sleeping sitting up but

> > my neck hurt so badly that was impossible also. What sleep that

I

> > finally did get today was in short periods. I had to use a towel

to

> > block all light out of my eyes. If tonight is the same I will go

to

> > the ER.

> > I was just wondering if anyone has any thoughts or insight into

> > this.

> > Thanks,

> > Shirley

> >

>

>

>

> ------------------------------------

>

>

[Guest guest]

,

Thank you for being such a caring person and all that you do.

Shirley

>

> So glad you are feeling better, Shirley.

>

>

>

> Not an MD

[Guest guest]

shirley, i take sooo many meds & i get HEADACHES as well. i mean bad.. i take

AXZERT for my migraines, mayb u should ask your dr. about this med. it WORKS for

me. today as a matter of fact i had one, i told my hub & lil girl to please try

to b quiet cuz my head was so THROBBING!! it's like i got hit by a train..

anyway,sweetie i hope u feel bettet soon. god bless,melyndagamez 9/21/08

[ ] Re: Enbrel or Imdur causing headaches?

Aw, Shirley, I am so sorry you are in such pain. I pray the headache

eases up and you are feeling better soon. I Googled both Enbrel and

Imdur and it seems they both can cause headaches. Perhaps its the

combination of both of them that is causing it in you. Please keep us

posted.

OH! Before I forget, I put your name on the sign up sheet for that

" reset button " right under mine. They said they'll let us know *lol*.

Doreen

>

> Group,

> I have just been through a horrible night and day. It seems to be a

> little better now. I can hold my head up and look at the pc.

> I took my second shot of enbrel yesterday about 7:30pm along with

> my 4 MTX. I have been up and down since midnight with the

> grand-daddy of all headaches. I took two Ultram ER and no help. I

> was afraid to take

> more, but I did take extra strength tylenol until I got nauseous.

> I couldn't take my regular meds today because of nausea.

> I don't know for sure but I think the cause is Imdur that the

> cardiologist gave me. It does cause headaches but this is extreme.

> Where ever I lay my head a pressure point forms and it feels like

> something pounding my head there. I tried sleeping sitting up but

> my neck hurt so badly that was impossible also. What sleep that I

> finally did get today was in short periods. I had to use a towel to

> block all light out of my eyes. If tonight is the same I will go to

> the ER.

> I was just wondering if anyone has any thoughts or insight into

> this.

> Thanks,

> Shirley

>

------------------------------------

[Guest guest]

Melynda,

Thanks, Sweetie. I am much better.

I plan on calling my rheummy tomorrow and I see the cardiologist again

on Tuesday.

I am up waiting to hear from my daughter. She had to take my

granddaughter (13yrs old) to the ER. She is having servere stomach

pains. It's not her abdomin, so I don't think it is a female thing. I

am glad that I am feeling better so that I could be compassionate and

nurturing with her.

God's timing is perfect, one crisis at a time!

Shirley

--- In , Melynda Gamez <melyndagamez@...>

wrote:

>

> shirley, i take sooo many meds & i get HEADACHES as well. i mean

bad.. i take AXZERT for my migraines, mayb u should ask your dr. about

this med. it WORKS for me. today as a matter of fact i had one, i told

my hub & lil girl to please try to b quiet cuz my head was so

THROBBING!! it's like i got hit by a train.. anyway,sweetie i hope u

feel bettet soon. god bless,melyndagamez 9/21/08

[Guest guest]

Shirley, Just a few days ago I was questioning the group if anyone had migraines while taking Humera. I started on humera and every day I was having a severe headache. I have migranes all the time, but never this often or severe. I may be your arthritis med in stead of what your cardiologist prescribes. I have been off humera for four weeks and I am not having the headaches now. Jo Nell

From: nana2livi <s.p5315@...>Subject: Enbrel or Imdur causing headaches?Rheumatoid Arthritis Date: Saturday, September 20, 2008, 5:27 PM

Group,I have just been through a horrible night and day. It seems to be a little better now. I can hold my head up and look at the pc.I took my second shot of enbrel yesterday about 7:30pm along with my 4 MTX. I have been up and down since midnight with the grand-daddy of all headaches. I took two Ultram ER and no help. I was afraid to take more, but I did take extra strength tylenol until I got nauseous.I couldn't take my regular meds today because of nausea.I don't know for sure but I think the cause is Imdur that the cardiologist gave me. It does cause headaches but this is extreme. Where ever I lay my head a pressure point forms and it feels like something pounding my head there. I tried sleeping sitting up but my neck hurt so badly that was impossible also. What sleep that I finally did get today was in short periods. I had to use a towel to block all light out of my eyes. If tonight is

the same I will go to the ER.I was just wondering if anyone has any thoughts or insight into this.Thanks,Shirley

[Guest guest]

Jo Nell,

Thanks for the input. I have never had a migraine before, but I will

call my rheummy's ofc tomorrow just to be on the safe side.

I haven't a clue as to what started my daily headaches, they were with

me before I started Enbrel. That is why I kind of think they may be

from my heart, but I am no doctor. I should have learned by now that

self diagosing isn't good.

Shirley

[Guest guest]

you are so right. I hope you get some answers.God Bless Jo Nell

From: nana2livi <s.p5315@...>Subject: Re: Enbrel or Imdur causing headaches?Rheumatoid Arthritis Date: Sunday, September 21, 2008, 9:30 PM

Jo Nell,Thanks for the input. I have never had a migraine before, but I will call my rheummy's ofc tomorrow just to be on the safe side. I haven't a clue as to what started my daily headaches, they were with me before I started Enbrel. That is why I kind of think they may be from my heart, but I am no doctor. I should have learned by now that self diagosing isn't good.Shirley

[Guest guest]

Hi Clora - Shirley and I were goofing around about a proverbial

" reset " button to put our immune systems back to their proper state.

Then told us about two treatments - rituximab and stem cell

transplantation - that are being used in an attempt to reset the

immune system. So, there really is no " list " or " button " , but please

feel free to talk to your Rheumy about the two treatments listed above

to see if one or the other might be a possibility for you. God bless

you, dear lady.............Doreen

>

> Group;

>

> WHAT RESET BUTTION? AND WHAT FOR?? HOW DO I PUT MY NAME ON THE

> RESET BUTTION I LOOKDED FOR IT EVERYWHERE.

>

> I am so sorry everyone has such aweful headaches. I get them all

> the time. I been getting them since I was 22. I am 54 now. I

> have been trying to figure out what from. I get little sparkless

> in my eyes with the worse headaches. I also get a form of tunnel

> vision with the severe headaches.

>

>

> I do like everyone else with my headaches. Lie down, put a hot

> compress on my neck. Put a cool compress on my forhead. Darken

> the room. These things help a lot. I didnt takes meds when I

> started out with massive headaches. These headaches has been the

> same for 34 years.

>

> Maybe our government should stop all this space travel and work on

> our health problems. I know the satelites are important, but

> walking on the moon occomplished nothing. That is only my opinion.

>

> gentle hugs

> Clora

>