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hi ihave had ra for 14 years the first visit is to c wot medication is best

suits u and with exercise its best to keep it up it does help even wen in

severe pain ive been through it all and made my way from bottom of

medication list to the top of it i am in less pain now but there are days

sdtill wen its pretty bad ive been throught he wanting to jump of a bridge

and die but u get over the depression. if u ever wanna talk i will listen or

tell u my stories of what ive been through

>From: Joyce Houde <lkitdwn@...>

>Reply-Rheumatoid Arthritis

>Rheumatoid Arthritis

>Subject: Hi, new to group

>Date: Wed, 11 Jul 2007 19:21:38 -0700 (PDT)

>

>my name is Joyce and my primary doc did some bloodwork for my joint pain

>and found i have double the normal levels for RA. ive been refered to a RA

>doc but cant get in to see him until october. ;(

> i had a level 2 fusion done on my c-spine (neck) and was wondering if

>that could have triggered the RA since i started having the joint pain

>along with the neck problem.

> what can i expect when i finally get in to see the RA doc ? what do

>they usually recommend as far as rest and exersise ? does anyone on the

>list live in new england ? currantly i live in s.cal but im considering

>moving to ct to be closer to family and ive heard the cold wet weather is

>rough with RA...........

> Joyce

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they do say the cold weather makes the pain worse but from my experience hot

and freezing cold weather is bad for me sometimes( everyone is different)

ive had pain in 35+ degree days and 5 degrees hope i can help u . one piece

of advice please listen to it wen i found out i pushed my family away so

they would have to not c me in pain worst thing i could do wen u having a

bad day where u cant move and in that much pain loved ones and friends are

best to have around

>From: Joyce Houde <lkitdwn@...>

>Reply-Rheumatoid Arthritis

>Rheumatoid Arthritis

>Subject: Hi, new to group

>Date: Wed, 11 Jul 2007 19:21:38 -0700 (PDT)

>

>my name is Joyce and my primary doc did some bloodwork for my joint pain

>and found i have double the normal levels for RA. ive been refered to a RA

>doc but cant get in to see him until october. ;(

> i had a level 2 fusion done on my c-spine (neck) and was wondering if

>that could have triggered the RA since i started having the joint pain

>along with the neck problem.

> what can i expect when i finally get in to see the RA doc ? what do

>they usually recommend as far as rest and exersise ? does anyone on the

>list live in new england ? currantly i live in s.cal but im considering

>moving to ct to be closer to family and ive heard the cold wet weather is

>rough with RA...........

> Joyce

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  • 1 year later...
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>

> my husband has had asthma/allergies since childhood. has been on methylpred

and iv solumedrol off and on for over 1 year. now also diagnosed with PLS in

the family of ALS, severe chronic pain, fatigue/exhaustion, atrial fibrillation.

have been told that the PLS can affect his breathing, causing shortness of

breath due to stiff chest muscles. that on top of the asthma/allergy symptoms

has been very bad. will start xolair shots today. am praying for good results!

>

Welcome, welcome, welcome :) You have found the right place for friendship and

support. Most of us have had wonderful results. For some it has taken a few

shots, others (like me) it took just over a year.

I have been on xolair since August 2003. Every two weeks, I get my shots. Never

had ANY problem whatsoever. I am now completely off steroids and have my life

back.

God's blessings,

Doug

Group founder

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