Re: Talked to the Nurse About the Parvovirus Test...

[Guest guest]

- Look at the link I sent you and print it out and take it with you to your next visit. Blood tests do not lie. RA is RA. I should know. I had 10 wrong diagnosis before my RA Factor was even positive. If your ANA Test is positive, your RA factor should be also. Deborah

On Sat, Jun 28, 2008 at 11:53 PM, <catdelouise@...> wrote:

In an update to my post of a few days, I spoke with a nurse yesterday as my doctor is out

for a week and she told me it just means I have developed a lot of antibodies towards the

virus, nothing else.

But why would my doctor test me for that virus if it doesn't mean RA or Lupus or

something? Why not test me for chicken pox?

Some people have mentioned the Parvovirus causes Reactive Arthritis which may later cause

RA but I was diagnosed with RA in 2003, so this would hardly be my first flare!

I am really hoping the doc's theory is that it does mean something along the

lines of AI disease and she will treat me so I could get back my life or some semblance. Of

course, I do not see her until July 30th!

Just to review. The doctor who diagnosed me passed away in 2005. My current

doctor wrote me Humira Rxs but when it stopped working he would not move on to another

treatment b/c he questioned the diagnosis. I am now on my 3rd Rheumatologist.

[Guest guest]

P.S. A nurse is not a doctor and cannot and should not have the responsiblity of blood tests. They only take your information and put it in your chart, take your vitals and thats it. If she wants to diagnose she can become a doctor herself. Her theories mean nothing. Its ridiculous what they are putting you through honestly. I sympathize. Deborah

On Sat, Jun 28, 2008 at 11:53 PM, <catdelouise@...> wrote:

In an update to my post of a few days, I spoke with a nurse yesterday as my doctor is out

for a week and she told me it just means I have developed a lot of antibodies towards the

virus, nothing else.

But why would my doctor test me for that virus if it doesn't mean RA or Lupus or

something? Why not test me for chicken pox?

Some people have mentioned the Parvovirus causes Reactive Arthritis which may later cause

RA but I was diagnosed with RA in 2003, so this would hardly be my first flare!

I am really hoping the doc's theory is that it does mean something along the

lines of AI disease and she will treat me so I could get back my life or some semblance. Of

course, I do not see her until July 30th!

Just to review. The doctor who diagnosed me passed away in 2005. My current

doctor wrote me Humira Rxs but when it stopped working he would not move on to another

treatment b/c he questioned the diagnosis. I am now on my 3rd Rheumatologist.

[Guest guest]

No blood test can either prove or disprove

RA, but they are indications. Some people are negative both for

Rheumatoid Factor and for anti-CCP but still meet the American College

of Rheumatology criteria to be diagnosed with RA. Only one of the

diagnostic criteria relates to blood tests.

http://www.rheumatology.org/publications/classification/ra/ra.asp?aud=mem

I can’t help with the reason for the

tests or treatment but you need to talk to your doctor to get your questions

answered. Please keep calling till you either talk to the doctor or get

an earlier appointment. God bless.

From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of

Sent: Saturday, June 28, 2008 7:54

PM

Rheumatoid Arthritis

Subject: Talked

to the Nurse About the Parvovirus Test...

In an update to my post of a few days, I spoke with a

nurse yesterday as my doctor is out

for a week and she told me it just means I have developed a lot of antibodies

towards the

virus, nothing else.

But why would my doctor test me for that virus if it doesn't mean RA or Lupus

or

something? Why not test me for chicken pox?

Some people have mentioned the Parvovirus causes Reactive Arthritis which may

later cause

RA but I was diagnosed with RA in 2003, so this would hardly be my first flare!

I am really hoping the doc's theory is that it does mean something along the

lines of AI disease and she will treat me so I could get back my life or some

semblance. Of

course, I do not see her until July 30th!

Just to review. The doctor who diagnosed me passed away in 2005. My current

doctor wrote me Humira Rxs but when it stopped working he would not move on to

another

treatment b/c he questioned the diagnosis. I am now on my 3rd Rheumatologist.

[Guest guest]

Deb,

I read the link but I couldn't really understand it. Can you please explain it?

I have never had a positive RA factor and just one positive ANA, BTW.

Thanks so much!

>

> > In an update to my post of a few days, I spoke with a nurse yesterday as

> > my doctor is out

> > for a week and she told me it just means I have developed a lot of

> > antibodies towards the

> > virus, nothing else.

> >

> > But why would my doctor test me for that virus if it doesn't mean RA or

> > Lupus or

> > something? Why not test me for chicken pox?

> >

> > Some people have mentioned the Parvovirus causes Reactive Arthritis which

> > may later cause

> > RA but I was diagnosed with RA in 2003, so this would hardly be my first

> > flare!

> >

> > I am really hoping the doc's theory is that it does mean something along

> > the

> > lines of AI disease and she will treat me so I could get back my life or

> > some semblance. Of

> > course, I do not see her until July 30th!

> >

> > Just to review. The doctor who diagnosed me passed away in 2005. My current

> > doctor wrote me Humira Rxs but when it stopped working he would not move on

> > to another

> > treatment b/c he questioned the diagnosis. I am now on my 3rd

> > Rheumatologist.

> >

> >

> >

> >

> >

>