spa my choice/ progress Rituximub

[Guest guest]

Hi everyone! i hve brought a spa and find it a great source of pain relief pity about the power bill. Had my first infusion of Rituximab 2 weeks ago been less pain but still a mixed reaction and I am started to flare as it is wearing off. am told after the next infusion in 2 days time will knock my RA back and will not need another for 6mths. Did research but the word chemo was only mentioned at first infusion so i guess this stuff is pretty lethal? had all the other drugs most just gave me side effects without any effective relief the biological ones made me really ill with ongoing side effects. Be interested if others have any info on Rituximab treatment. Yes arthritis put an end to my 22yr marriage she saw no prospect for future earnings the desease is hard on families. I am lucky to have been the one to raise my children who are all still in my life every day as well as my grandchild. Also tryed natural therapies most help but have found them limited. Have a massage once a week from a therapist who only charges me half price look forward to it as it helps a lot. But when all else fails and the pain becomes shit I find a few bourbons never hurt me! smileFind out with SEEK Salary Survey Earning enough?

[Guest guest]

I, like , did not have much relief from any of the biologicals SO FAR... Am

curious about what kind of lasting side effects others have had.

Hair loss, I expected, and accept. It waxes and wanes with varied treatments.

My skin has gotten MUCH OLDER than me this past year, and the lingering

headaches finally are gone post Rituximab, but the tinnitus is the most lasting

effect. They also tell me my B cells are still way down, so monitoring and

trying to eat and sleep well are the best I can do.

I cannot tell which part of the overwhelming fatigue is achy tired versus

disease fatigue versus depression. Can anyone figure the difference? Does

anyone get treatment for the fatigue? I could have pulled over to the side of

the road and gone to sleep last week. It just hits like a tank sometimes.

But, I stay as active as possible, and always try to play the hand I have been

dealt with the most finesse... AND PRAY A LOT.

Anyone else got much to offer?

Prairiegrandma

--- In Rheumatoid Arthritis , roger pitcher <smartdog_8@...>

wrote:

>

>

> Hi everyone! i hve brought a spa and find it a great source of pain relief

pity about the power bill. Had my first infusion of Rituximab 2 weeks ago been

less pain but still a mixed reaction and I am started to flare as it is wearing

off. am told after the next infusion in 2 days time will knock my RA back and

will not need another for 6mths. Did research but the word chemo was only

mentioned at first infusion so i guess this stuff is pretty lethal? had all the

other drugs most just gave me side effects without any effective relief the

biological ones made me really ill with ongoing side effects. Be interested if

others have any info on Rituximab treatment. Yes arthritis put an end to my 22yr

marriage she saw no prospect for future earnings the desease is hard on

families. I am lucky to have been the one to raise my children who are all still

in my life every day as well as my grandchild. Also tryed natural therapies most

help but have found them limited. Have a massage once a week from a therapist

who only charges me half price look forward to it as it helps a lot. But when

all else fails and the pain becomes shit I find a few bourbons never hurt me!

smile

> _________________________________________________________________

> Earning enough? Find out with SEEK Salary Survey

>

http://a.ninemsn.com.au/b.aspx?URL=http%3A%2F%2Fsalarysurvey%2Emsn%2Eseek%2Eco%2\

Enz%2F%3Ftracking%3Dsk%3Atl%3Asknzsal%3Amsnnz%3A0%3Ahottag%3Aearn%5Fenough & _t=75\

7263783 & _r=Seek_NZ_tagline & _m=EXT

>

[Guest guest]

I have done quite well for over 7 years on Methotrexate and

Remicade with no noticeable side effects. I recognize that everyone is

different and also some people build up a tolerance for a medication and it

stops working. I have been impressed by the limited clinical trial data

and extensive personal stories of success with antibiotic therapy using

tetracycline derivatives, mostly Minocycline and Doxycycline. The link

below gives quite a bit of information about that treatment. It operates

on a different principle from any other RA medications so if others have failed

you it might be worth a try.

I don’t have the fatigue problem that so many people have

so I can’t help you with that. I hope you find something to work

for you. God bless.

Antibiotic Therapy - Road Back Foundation

http://www.roadback.org

From:

Rheumatoid Arthritis

[mailto:Rheumatoid Arthritis ] On Behalf Of hlflatau

Sent: Friday, April 03, 2009 10:43 AM

Rheumatoid Arthritis

Subject: Re: spa my choice/ progress Rituximub

I, like , did not have much relief from

any of the biologicals SO FAR... Am curious about what kind of lasting side

effects others have had.

Hair loss, I expected, and accept. It waxes and wanes with varied treatments.

My skin has gotten MUCH OLDER than me this past year, and the lingering

headaches finally are gone post Rituximab, but the tinnitus is the most lasting

effect. They also tell me my B cells are still way down, so monitoring and

trying to eat and sleep well are the best I can do.

I cannot tell which part of the overwhelming fatigue is achy tired versus

disease fatigue versus depression. Can anyone figure the difference? Does

anyone get treatment for the fatigue? I could have pulled over to the side of

the road and gone to sleep last week. It just hits like a tank sometimes.

But, I stay as active as possible, and always try to play the hand I have been

dealt with the most finesse... AND PRAY A LOT.

Anyone else got much to offer?

Prairiegrandma

[Guest guest]

Dear Prairiegrandma

Like yours my immune system is vicously attacking my body, does not seem fair does it ? the only person who really understands my problem fully is my husband and of course the medical profession. I too suffer badly from tinnitus, (auto-immune ear) and thank goodness for i-pods and Barry Manilow who I listen to nearly all day !! Following many tests this past 6 months due to being terribly tired and ill it seems my pituitary gland is almost disappeared, causing many problems, I have a cyst on my pancreas, crohns, deafness and tinnitus, and these are all auto-immune related. I am going in to have endoscope with ultra sound scan attached to evaluate pancreas cyst on Wednesday and following that decisions will have to be made to sort out possible treatment I suppose. My fatigue is all encompassing and I feel a complete failure most of the time because I feel I am letting everyone down I am unable to

be the mom, grandma and wife that I used to be. I have become very low with iron and vit B12 and I start having blood infusions very soon, and have been promised by my consultant that I shall feel like a new woman !! - hope he's right !!

On a very serious level we here in Britain have just seen on news the terrible shootings in New York and my heart goes out to you all in the United States, I am sending my deepest sympathies to you all and praying so hard for you, as I am sure are all my other fellow Brits. God bless you.

Best wishes - Lynda

From: Harold Van Tuyl <hvantuyl@...>Subject: RE: Re: spa my choice/ progress RituximubRheumatoid Arthritis Date: Friday, 3 April, 2009, 9:05 PM

I have done quite well for over 7 years on Methotrexate and Remicade with no noticeable side effects. I recognize that everyone is different and also some people build up a tolerance for a medication and it stops working. I have been impressed by the limited clinical trial data and extensive personal stories of success with antibiotic therapy using tetracycline derivatives, mostly Minocycline and Doxycycline. The link below gives quite a bit of information about that treatment. It operates on a different principle from any other RA medications so if others have failed you it might be worth a try.

I don’t have the fatigue problem that so many people have so I can’t help you with that. I hope you find something to work for you. God bless.

Antibiotic Therapy - Road Back Foundation

http://www.roadback .org

From: rheumatoid_arthriti sgroups (DOT) com [mailto:rheumatoid_ arthritis] On Behalf Of hlflatauSent: Friday, April 03, 2009 10:43 AMrheumatoid_arthriti sgroups (DOT) comSubject: [rheumatoid_ arthritis] Re: spa my choice/ progress Rituximub

I, like , did not have much relief from any of the biologicals SO FAR... Am curious about what kind of lasting side effects others have had. Hair loss, I expected, and accept. It waxes and wanes with varied treatments. My skin has gotten MUCH OLDER than me this past year, and the lingering headaches finally are gone post Rituximab, but the tinnitus is the most lasting effect. They also tell me my B cells are still way down, so monitoring and trying to eat and sleep well are the best I can do.I cannot tell which part of the overwhelming fatigue is achy tired versus disease fatigue versus depression. Can anyone figure the difference? Does anyone get treatment for the fatigue? I could have pulled over to the side of the road and gone to sleep last week. It just hits like a tank sometimes.But, I stay as active as possible, and always try to play the hand I have been dealt with the most finesse... AND PRAY A LOT.Anyone else got

much to offer?Prairiegrandma