Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 Is methothrexate the only medication that you take? Renata > > Deb, > I could be the amount you are taking > might be too much for you to take. > Go to you Dr. may be he'll lower to dose. > I take 12.5mg a week! I do fine. > Good luck!! > Clare > > _____________________________________________________________________ ___ > Check Out the new free AIM® Mail -- 2 GB of storage and industry- leading spam and email virus protection. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 Renata, I also take Plaquenil, folic acid, celabrex & Methotrexate. These drugs work for me I have no problems. No side effects!!! Clare ________________________________________________________________________ Check Out the new free AIM® Mail -- 2 GB of storage and industry-leading spam and email virus protection. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2006 Report Share Posted October 22, 2006 I second that, Sierra. Deb, please call your rheumatologist. Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Re: Methotrexate >I would call the doctor on Monday and report how you're feeling. > > Sierra > > >> >> Dear All >> Last week they increase my Mthx up to 20mg. I feel awful. >> Short of breath, lethargic and exhausted doing nothing. >> Has this happened to anyone else? Did it pass eventually? >> BTW you have all given me such a lift - it's nice to feel that you > are >> not alone! Thank you & wishing you pain-free days. >> Deb in Australia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2006 Report Share Posted October 22, 2006 Hi Deb in Australia, I had the same problems the first several weeks I was increased to 20 mg of MTX. It passed after a month or so, but you should talk to your doctor, or your pharmacist, about the side effects to know what level is normal. Take care, Steph in VA ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ " Never underestimate the power of a small, dedicated group of people to change the world -- indeed, it's the only thing that ever has. " (Margaret Mead) AmeriCorps Alums -- We're Still Getting Things Done --------------------------------- Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 Thank you all for your support. I feel better today again & went to work. I will contact my Dr tomorrow, she has been away. Cheers to all. Deb in Aust. > >> > >> Dear All > >> Last week they increase my Mthx up to 20mg. I feel awful. > >> Short of breath, lethargic and exhausted doing nothing. > >> Has this happened to anyone else? Did it pass eventually? > >> BTW you have all given me such a lift - it's nice to feel that you > > are > >> not alone! Thank you & wishing you pain-free days. > >> Deb in Australia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2007 Report Share Posted August 20, 2007 I think she need to call the dr ASAP. I am pretty sure that is one of the warning signs to look out for. They may take her off of it. It is better to be safe than sorry. > > Hi, my mum has been on IV Methotrexate for about 7 months, yesterday > she started passing white stools. Does anyone know if this is > connected to the Methotrexate? Thanks. Jane > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2007 Report Share Posted August 20, 2007 Jane, the safest thing to do would be to contact your mother's rheumatologist for advice. Not an MD [ ] Methotrexate > Hi, my mum has been on IV Methotrexate for about 7 months, yesterday > she started passing white stools. Does anyone know if this is > connected to the Methotrexate? Thanks. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2007 Report Share Posted August 22, 2007 Can anyone who has taken methotrexate tell me how you did on it and if you had any adverse side effects? I was on it for 6 months and became very hypersensitive to everything around me--glues, paints, rugs, foam, molds, plastics. Now I have been diagnosed with " multiple chemical sensitivity " . My rheumatologist says he has never had any other patient react this way to the methotrexate (in fact, he seems to feel its quite harmless) yet the immunologist thinks the methotrexate caused the chemical sensitivity. I do not want to cause any problems on this board but am anxiously awaiting any responses so please email directly if you prefer. Any input would be greatly appreciated. I am just hoping and praying that any effects from the methotrexate will soon go away! ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2007 Report Share Posted August 22, 2007 Hi there, finally someone like me. I went on methotrexate and I became so sensitive I went to an allergist because I thought I was allergic to something. Could not breath out my nose anymore....... No allergies they said just sensitivities......very uncomfortable. I gave up methotrexate and now only take Embrel and am feeling so much better. Corinne GYPSYNLOVE@... wrote: > > > Can anyone who has taken methotrexate tell me how you did on it and if > you > had any adverse side effects? > I was on it for 6 months and became very hypersensitive to everything > around > me--glues, paints, rugs, foam, molds, plastics. Now I have been diagnosed > with " multiple chemical sensitivity " . My rheumatologist says he has > never had > any other patient react this way to the methotrexate (in fact, he > seems to > feel its quite harmless) yet the immunologist thinks the methotrexate > caused > the chemical sensitivity. I do not want to cause any problems on this > board > but am anxiously awaiting any responses so please email directly if you > prefer. Any input would be greatly appreciated. I am just hoping and > praying that > any effects from the methotrexate will soon go away! > > ************************************** Get a sneak peek of the all-new > AOL at > http://discover.aol.com/memed/aolcom30tour > <http://discover.aol.com/memed/aolcom30tour> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 Hello, I take MTX and Embrel. for the first three months everytine I took it I had really bad diarrhea for two -three days. The RA Doc gave ne Leucovorin for the side effects and I took it for a few weeks. Now I don't have near the trouble I had before. I do have a reaction to smells, at time everything smells sour. Sometimes there is a bad odor I can't explain but it goes away as soon as it come on. The Doc said that the Fibro is known to cause a hypesensitivity to smells.This may be something I need to bring up to him again. Heidi M On 8/22/07, Corinne Drover <Corinne@...> wrote: > > Hi there, > finally someone like me. I went on methotrexate and I became so > sensitive I went to an allergist because I thought I was allergic to > something. Could not breath out my nose anymore....... > No allergies they said just sensitivities......very uncomfortable. > I gave up methotrexate and now only take Embrel and am feeling so much > better. > > Corinne > > GYPSYNLOVE@... <GYPSYNLOVE%40aol.com> wrote: > > > > > > Can anyone who has taken methotrexate tell me how you did on it and if > > you > > had any adverse side effects? > > I was on it for 6 months and became very hypersensitive to everything > > around > > me--glues, paints, rugs, foam, molds, plastics. Now I have been > diagnosed > > with " multiple chemical sensitivity " . My rheumatologist says he has > > never had > > any other patient react this way to the methotrexate (in fact, he > > seems to > > feel its quite harmless) yet the immunologist thinks the methotrexate > > caused > > the chemical sensitivity. I do not want to cause any problems on this > > board > > but am anxiously awaiting any responses so please email directly if you > > prefer. Any input would be greatly appreciated. I am just hoping and > > praying that > > any effects from the methotrexate will soon go away! > > > > ************************************** Get a sneak peek of the all-new > > AOL at > > http://discover.aol.com/memed/aolcom30tour > > <http://discover.aol.com/memed/aolcom30tour> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 I have had to go off Metho because I think that the folic acid that I take with has given me a side affect; I have had constant phlegm coming up all the time since I've been on it. I've been off now for a month and the phlegm is going away.....they even had to do a cat scan of my lungs to see if something was happening there and couldn't find anything, but going off it has helped me with the lungs.....but I don't know if the Mtx had something to do with that...I just figured it was the folic acid. All of our bodies react different to these drugs and I think it is absolutely possible for you to have these reactions. B.B. GYPSYNLOVE@... wrote: Can anyone who has taken methotrexate tell me how you did on it and if you had any adverse side effects? I was on it for 6 months and became very hypersensitive to everything around me--glues, paints, rugs, foam, molds, plastics. Now I have been diagnosed with " multiple chemical sensitivity " . My rheumatologist says he has never had any other patient react this way to the methotrexate (in fact, he seems to feel its quite harmless) yet the immunologist thinks the methotrexate caused the chemical sensitivity. I do not want to cause any problems on this board but am anxiously awaiting any responses so please email directly if you prefer. Any input would be greatly appreciated. I am just hoping and praying that any effects from the methotrexate will soon go away! ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 I too take mtx. I read - either in the literature that comes with it - or on-line - that it does - or can cause problems with the lungs. I also have occasional phlegm but nothing to mention to the doc..... yet that is. Folic acid is a vitamin to be taken in conjunction with mtx - that is my understanding. By the way - doesn't it seem comical that we get more information here and on-line than we do from our specialists? Mine is not very informative. I get more from my GP than I do from either of my two specialists. I am considering going off mtx and just take my enbrel. I get very fatigued with it and swollen feet and fingers. About Friday I feel better and that's when I take another dose of the mtx. c.z. On Aug 23, 2007, at 4:33 PM, wrote: > I have had to go off Metho because I think that the folic acid that I > take with has given me a side affect; I have had constant phlegm > coming up all the time since I've been on it. I've been off now for a > month and the phlegm is going away.....they even had to do a cat scan > of my lungs to see if something was happening there and couldn't find > anything, but going off it has helped me with the lungs.....but I > don't know if the Mtx had something to do with that...I just figured > it was the folic acid. > All of our bodies react different to these drugs and I think it is > absolutely possible for you to have these reactions. > B.B. > > GYPSYNLOVE@... wrote: > > Can anyone who has taken methotrexate tell me how you did on it and > if you > had any adverse side effects? > I was on it for 6 months and became very hypersensitive to everything > around > me--glues, paints, rugs, foam, molds, plastics. Now I have been > diagnosed > with " multiple chemical sensitivity " . My rheumatologist says he has > never had > any other patient react this way to the methotrexate (in fact, he > seems to > feel its quite harmless) yet the immunologist thinks the methotrexate > caused > the chemical sensitivity. I do not want to cause any problems on this > board > but am anxiously awaiting any responses so please email directly if > you > prefer. Any input would be greatly appreciated. I am just hoping and > praying that > any effects from the methotrexate will soon go away! > > ************************************** Get a sneak peek of the > all-new AOL at > http://discover.aol.com/memed/aolcom30tour > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2007 Report Share Posted August 24, 2007 Thank so much to all who answered my question about methotrexate. I love both of my doctors but they have 2 completely different opinions about methotrexate. So ultimately I have to make the decision for myself. All of your input was greatly appreciated! ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2007 Report Share Posted August 24, 2007 I have only taken it for 2 weeks but no adverse reactions. > > > Can anyone who has taken methotrexate tell me how you did on it and if you > had any adverse side effects? > I was on it for 6 months and became very hypersensitive to everything around > me--glues, paints, rugs, foam, molds, plastics. Now I have been diagnosed > with " multiple chemical sensitivity " . My rheumatologist says he has never had > any other patient react this way to the methotrexate (in fact, he seems to > feel its quite harmless) yet the immunologist thinks the methotrexate caused > the chemical sensitivity. I do not want to cause any problems on this board > but am anxiously awaiting any responses so please email directly if you > prefer. Any input would be greatly appreciated. I am just hoping and praying that > any effects from the methotrexate will soon go away! > > > > > ************************************** Get a sneak peek of the all- new AOL at > http://discover.aol.com/memed/aolcom30tour > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2007 Report Share Posted August 26, 2007 I have been on MTX for a long time. I also take Mobic, Enbrel, prednisone, folic acid, vicodin, prilosec, duiretic. Pretty good cocktail. As far as the MTX, I have a problem with it like it is krptynite, if I am out in the sun or heat the water pours out of me, not normal sweating to say the least. So I avoid the sun and heat, I feel drained from the meds the first 2 days and then I start to feel like I am getting my energy back, I boost my folic acid two days before, and that seems to help the run down feeling. Other than that I have no other problems. Jean nnifer_thorson <jennifer_thorson@...> wrote: I have only taken it for 2 weeks but no adverse reactions. > > > Can anyone who has taken methotrexate tell me how you did on it and if you > had any adverse side effects? > I was on it for 6 months and became very hypersensitive to everything around > me--glues, paints, rugs, foam, molds, plastics. Now I have been diagnosed > with " multiple chemical sensitivity " . My rheumatologist says he has never had > any other patient react this way to the methotrexate (in fact, he seems to > feel its quite harmless) yet the immunologist thinks the methotrexate caused > the chemical sensitivity. I do not want to cause any problems on this board > but am anxiously awaiting any responses so please email directly if you > prefer. Any input would be greatly appreciated. I am just hoping and praying that > any effects from the methotrexate will soon go away! > > > > > ************************************** Get a sneak peek of the all- new AOL at > http://discover.aol.com/memed/aolcom30tour > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Your message is dated March 11 but I just got it today. (March 23). I have no idea why the delay. I have been taking Methotrexate for over 6 years with no side effects that I have noticed. Some people have gastrointestinal problems, especially with the pills but much milder with the injections. Some also get mouth sores or other side effects but I haven’t had any. You are taking a fairly low dose of Prednisone but even at that dose it can have some bad long-term side effects like bone loss. It would be best to wean off the Prednisone if you can but I prefer Prednisone to the pain of RA. I’ve had RA for over 6 years but I was only on Prednisone regularly for the first year. I hope you get effective treatment. God bless. From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of moondahtoo Sent: Tuesday, March 11, 2008 9:53 AM Rheumatoid Arthritis Subject: [sPAM] Methotrexate Hi, my name is Carole and I have just been prescribed Methotrexate for my RA. My doctor also prescribed Folic Acid along with the MTX. I am currently taking Plaquenil (200 mg twice a day) and 5 mg of Presdnisone daily. Please let me know what I can expect from the Methotrexate. Thanks in advance. Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Hi I am a lurker here and been gone for awhile. Methotrexate does different things to people. Just depends. I did both pills and injections depending on my liver values. I also took folic acid everyday I was on Methotrexate. If I had the choice to do this over, I would not have taken the Methotrexate. I would rather hurt that worry about whether I am going to die soon. It made me lose four of my molars as it affects them and I have also had to have major work done on teeth left; but worse of all to me, it damaged my liver. I don't drink or do drugs but I have mild inflammation and moderate fibrosis/scarring. This can't be healed or reversed. I am overweight but the drs said that skinny people get this happening to them also. So their advice to me is to lose all the weight I can, exercize (which is almost impossible for me with my RA) and then just hope that it does not progress to cirhosis. There is no medicine to take for this condition. It is called non-alcoholic steatohepatitis. The only way they suspected something was that my ALT and AST levels kept going up and then down some when I was off methotrexate. But after almost a year of being off it, my levels were still slightly elevated. So I had a liver biopsy and found out what was going on. I have to admit that I am scared. I am on a diet, had already lost 50 lbs last year, and just lost another 15 lbs in 3 weeks. But if there is no guarantee and it progresses to cirhosis, then it means a liver transplant or death. But please remember, many people take it with no side effects at all. I have lots of auto-immune diseases so I guess it is just part of it. I have 4 types of Arthritis (Ankylosing Spondylitis, RA, Psoriatric Arthritis and Osteo), Crohn's disease, Fibromyalgia, Sjorgens syndrome which also affects the teeth, cataract from Prednisone and suspected glaucoma that is being followed by my eye Dr. But it sure took the pain away for the 4 years I was on it. I now am only taking Remicade infusions and that doesn't help my RA but is keeping my Crohn's disease in remission for now. I am now on disability after working all my life and making over $50,000 a year. Now I get less than $1000 a month. But it is better than nothing. Good luck. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 Hi, my name is Carole and I have just been prescribed Methotrexate for my RA. My doctor also prescribed Folic Acid along with the MTX. I am currently taking Plaquenil (200 mg twice a day) and 5 mg of Presdnisone daily. Please let me know what I can expect from the Methotrexate. Thanks in advance. Hi carole I hae been taking 5 tablets once a week for about15 months. I was scared to take it at first but touch wood i havent had too many problems. the only other thing i take is the folic acid the next day. After suggestions on here i take the MTX on a saturday night. I have had alot of problems with my teeth and gums which could be the MTX but also just getting older! I do tend to have a cough most of the time but dont think ive had to many extra colds. eat lots of fruit and veg and try and stay healthy otherwise another carole! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2008 Report Share Posted March 25, 2008 Hi. My name is Helen and I habe been on Methotrexate for 4+ years. I also take folic acid, Prednisone (5mg) and inject Enbrel. I have no side effects other than extreme fatigue on Methotrexate and Enbrel days. The positives out weigh this. I was on 20mg of Prednisone and have found 5mg to be the smallaest dose I can take for a reasonable quality of life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 hi cheryl,how are you? im 38 yrs.old & have severe ra since the age of 5.. now i also have severe osteo & neuropathy,along with depression,it sux!! i have been on mtx for around 5 years & i take folic acid as well. my question to you cheryl is, when you take the mtx do you take the folic acid on the same day or a different day? i would like to know if you dont mind, curious & CONFUSED!!! god bless,melyndagamez 4/9/08 11:17p.m.central time [ ] Re: Methotrexate Hello all! I am currently taking 25mgs of Methotrexate on a weekly > basis. I've been on it for about 6 months now and I would love to talk > to someone who has tried or is trying this type of treatment as well. > I'm new to the group and have never really talked to anyone on this > this type of treatment before. Any and all feedback would be great. > > My story...short and sweet. At age 18 I was diagnosed with Vasculitis, > I did steroid treatments for a year and was fine up until I had my son > in 04, then I got sick all over again, however I am not testing postive > for anything but there is something going on. Between the 6 doctors > I've seen they said/think it's either RA or Lupus so we are trying the > RA treatment now, if it doesn't work we go to the Lupus treatment next. > > > I have been seeing a RA doctor for 3/4 of my life...i was diagnosed at 22 ....and a suggestion by docter told me made such sense...take it at bed time..this way the MTX is not able to make you sick..I am on the highest does as I have had to work my way there....I take the folic acid toprevent the mouth sores ect that MTX can do to you ...but try taking it at bed time..then you sleep right thru the nausa and sweats and all the yuckie stuff that MTX gives ya..... try it...good luck!!! cheryl ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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