Re: Taking other meds...

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I would caution everyone that you need to make sure that your doctor or rheumatologist is aware of the other meds you are taking. Even 'natural' preparations can interact with the meds you are on. Please make sure you talk with your doctor before taking other things.

----- Original Message -----From: Deborah Bargad <dbargad@...>Date: Saturday, November 22, 2008 5:51Subject: Re: Orencia any one?Rheumatoid Arthritis > Dear K- I am sorry you are having such tough reaction > experiences. Let me> say that I have been on Remicade since 2000. Rituxan or > the new> Interlukin-6 meds are the only new things I have left in my > arsenal. Your> symptoms seem very severe. When I first was diagnosed I > was put on> Cyclosporine (a simple soil fungus) used to treat transplant > rejection and> it worked well. Its taken via a pill. It has TNF > binding properties along> with anti malarial. Its an old standby but it may provide > relief. You> might also want to try naltrexone which is a beta endorphin used > to treat> withdrawal symptoms which they are finding great application in > auto immune> disorders. I decided after understanding how easily RA can > destroy your> mobility and function as well as so severely affect quality of > life, I made> a conscious decision to advocate and research to know as much as > the doctors> did. That empowered me alot. I have been on every > medication known for RA> except Ridura. Chemotherapy drugs, Experimental > drugs. I was never in a> test trial. I never had to be. Cyclosporine along > with MTX worked until> the biologic came along. What I can tell you is that > sometimes when you> take something to alter or modify your disease, your body will > just not> cooperate. Alot of times which I found in my experience, > they didnt dose me> correctly. They infused me too quickly just to get me in > and out. I made> them stop that and now they go dead slow so my reaction is > minimalized. I> have had Noro twice. I had to get IV fluids both times as > well as anti> biotic. You might also try Colloidal Silver. It has > to be strong though.> Atleast 250 ppm's (parts per million). or higher. It > removes the enzyme> that lives in bacteria to cause infection. I take two dropper > fulls twice a> day. There is no taste. You can take it straight or > add to water. It> works on cuts, oral wounds in the mouth, ( I cut my lower gum in > half and I> used a dropperful and let it sit in my mouth a while. They > next day the cut> was gone and just a small red spot remained. I got my > natural path> colloidal through amazon.com just in case you are interested. Yours,> Deborah.> > On Mon, Nov 10, 2008 at 12:55 PM, <kwendt@...> wrote:> > > Hi,> > I've not been on Orencia very long. On my third treatment I > had a> > terrible "consequence or reaction" and ended up in the ER the next> > day. I had extreme "flu like" symptoms and was told I had noro > virus.> Rather suspicious since this virus is extremely > contagious and my> > husband took care of me and never got it.> > The next treatment I ended up with "shingles neuralgia" in my right> > leg so bad I couldn't walk. Conventional pain meds wouldn't > touch it -> > had to be put on Gabapentin which is almost as bad a drug as > what it's> > supposed to treat.> > To make a long story short . . . I also had a sharp rise in blood> > pressure when I was taking Remicaid. Humira didn't touch my RA.> > Now I can no longer afford the HUGE copays anyway so even if I > wasn't> tired and SICK of the pharmaceuticals which are supposed > to help - I'm> > done.> > I'll now try to take some vitamins, minerals and healthy > supplements.> No longer want to be a human "rat test" for these > extremely wealthy> > drug companies.> > Thanks,> > K> >> > > >>