Guest guest Posted September 15, 2005 Report Share Posted September 15, 2005 Hi Kathy, As your doc says, floaters are common with aging, and not related to Gleevec. They're a nuisance (I have a ton of them because I'm very nearsighted, which IS a risk factor for them), but they tend to fade in time, fortunately. I had a skiing accident last summer, in which I hit my head, causing a ton of new floaters - but I barely notice them now. Best, R > Date: Wed, 14 Sep 2005 10:43:07 -0000 > From: " kathydf47 " <kathydf47@...> > Subject: eye issues > > Hi everyone -- I've been on gleevec for a bit over 2 years now. > Chugging along & doing quite well. I recently have eye 'floaters' > -- > I think they're called vitreous floaters. Little pieces that pull > away from the eye & 'float' until they finally detach. My > opthamologist said that they are quite common as we get up there in > years <sigh> -- but I'm wondering if anyone else suspects these are > connected with gleevec. I had one in my right eye, and now have one > in > my left eye. I will have to have them checked periodically to make > sure they are not pulling too hard on the retina -- and they are > somewhat annoying -- but certainly something I can live with -- I'm > not > complaining, just curious. Any input? Thanks! > > peace, > Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2005 Report Share Posted September 15, 2005 At 09:42 PM 9/14/05 -0400, you wrote: >Hi Kathy, > >As your doc says, floaters are common with aging, and not related to >Gleevec. They're a nuisance (I have a ton of them because I'm very >nearsighted, which IS a risk factor for them), but they tend to fade in >time, fortunately. I had a skiing accident last summer, in which I hit my >head, causing a ton of new floaters - but I barely notice them now. > >Best, > R Hi and Kathy, Gee ....near sighted and getting older...sounds like me too!! I did have 2 vitreous hemorrhages that Dr. D 'agreed' (with eye doc) was probably Gleevec related........but this was not simply a few little floaters. When it happened it was like an entire spider web in front of my eye. Apparently vitreous hemorrhages have been listed as a Gleevec side effect, but rare. I think maybe Margo from the list has also had this happen. It took a number of months for this to fade, but it was checked out twice and they did not see the source of the bleed. C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2005 Report Share Posted September 16, 2005 Hi Nanc - nice to hear from you. Vitreous hemmorhages and IM makes sense. Sorry you've experienced it though. It must have been upsetting the first time. My last shower of floaters resulted from a mild head injury while I was skiing last winter. I just figured it was the vitreous humor pulling away from the retina a little more than it had already done. This is the main cause of floaters. Love, R > Gee ....near sighted and getting older...sounds like me too!! > > I did have 2 vitreous hemorrhages that Dr. D 'agreed' (with eye doc) was > probably Gleevec related........but this was not simply a few little > floaters. When it happened it was like an entire spider web in front of my > eye. Apparently vitreous hemorrhages have been listed as a Gleevec side > effect, but rare. I think maybe Margo from the list has also had this > happen. It took a number of months for this to fade, but it was checked out > twice and they did not see the source of the bleed. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2005 Report Share Posted September 18, 2005 Hi Kathy, I had floaters a year before I was dx'd and then developed a macular hole in my left eye. I also had a eye hemmorage a month ago. All in the left eye. This I am sure is related to Gleevec. If the floaters and macular hole was related to CML no one can say. I feel since I had no eye issues at all in the past only a small correction, it is all related to CML. My eyes are always watery and swollen. Small price to pay so far. I feel for you floaters are very disconcerting. Hope this helps. Joan dx'd 8/03 Gleevec 400mg Zavie #667 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 > Hi Kathy, > I had floaters a year before I was dx'd and then developed a macular > hole in my left eye. I also had a eye hemmorage a month ago. All in > the left eye. This I am sure is related to Gleevec. If the floaters and > macular hole was related to CML no one can say. I feel since I had no > eye issues at all in the past only a small correction, it is all > related to CML. My eyes are always watery and swollen. Small price to > pay so far. I feel for you floaters are very disconcerting. Hope this > helps. > Joan > dx'd 8/03 > Gleevec 400mg > Zavie #662 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 I don't know what the issues are or why they're revealing themselves but i've been fortunate enough not to experience any (thank-god) but I find that water is a vital importance for every-'Body'. I drink plenty of it even when I don't want to and just to cleanse the liver of it's intoxiants is a good thing. I don't know if this correllates to any thing but if you're not drinking more than the average (non-CML) person, then I would suggest you do. I know I do. Now, I've only been on Gleevec for 3 years but I've only had the leg/feet cramps and the legs cramps have ceased since I began drinking lots of water. Just a thought...Good Luck!! Key cellphonejoan <joanfporter@...> wrote: Hi Kathy, I had floaters a year before I was dx'd and then developed a macular hole in my left eye. I also had a eye hemmorage a month ago. All in the left eye. This I am sure is related to Gleevec. If the floaters and macular hole was related to CML no one can say. I feel since I had no eye issues at all in the past only a small correction, it is all related to CML. My eyes are always watery and swollen. Small price to pay so far. I feel for you floaters are very disconcerting. Hope this helps. Joan dx'd 8/03 Gleevec 400mg Zavie #667 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 How interesting about the eye allergies. As a college student, I spent every Easter break in the Eye Clinic on campus, because my eyes were so irritated. Vasacon, and similar meds never took care of them, but the caution against steroid drops made every doctor put me on conservative meds first. My eyes ALWAYS went on to need steroid drops, which cleared them up rapidly, but often not until the swelling ulcerated the cornea. But one time, they noted Iritis, which they said went along with connective tissue diseases. BUT, I had always been seronegative, and repeatedly told I did NOT have RA, until a major knee issue after having a kidney stone and sepsis. Since then, MTX and NSAIDS have held things in check. I have been on three research protocols, with not much benefit from the major biologicals, which my insurance will not cover. Has anyone else had significant eye issues?Usually, I am a silent reader, but this really hit my case. Thanks for sharing. Fatigue and pain have to be my major issues, but usually tolerably controlled.Prairiegrandma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 I find a humidifier makes a big difference. Here in AZ the air is so dry that my eyes are very uncomfortable. Lubricating eye drops help for a while, but running a humidifier and keeping the relative humidity at about 40 percent or so makes a big difference. (Around here the average RH runs 7 to 12 percent!) Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2009 Report Share Posted January 3, 2009 >> I find a humidifier makes a big difference. Here in AZ the air is so > dry that my eyes are very uncomfortable. Lubricating eye drops help > for a while, but running a humidifier and keeping the relative humidity > at about 40 percent or so makes a big difference. (Around here the > average RH runs 7 to 12 percent!) > > Sharon>I don't know how to add on to an e-mail. I am on Restasis for the dryness and also I have plugs in my eyes which really help me out. I think they are going through a really dry state right now. Thanks for the humidifier suggestion. Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2011 Report Share Posted February 4, 2011 I thought I should interject here so everyone will realize what has occurred. Sinus infections and involvement (bacteria and fungi), particularly the maxillary and ethmoid areas, will allow the toxins and in some cases the microbes to enter the intraocular orbit as well as the optic nerve area. This invasion can lead to visual ;problems and optic neuritis. [] Re: Eye issues Hi Kathy, Yes! You aren't alone! I had those symptoms too. With re-exposure it comes back sometimes. I hope an eye doc can help you. That wasn't the case for me though. Only CSM, exposure avoidance, & Dr Shoemaker's protocols helped in my case. Debbie H > > > It must be awful having optic neuritis. > > Do any of you have over sensitivities to colors? I have pain looking at bright > colors that's getting worse. Vivid colored paper or neon colors hurt. > > Nothing was seen on a reg. exam. I better see a medical eye doc. > > Kathy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2011 Report Share Posted February 4, 2011 makes sence to me, sometimes it ties in with my sinuses, pain/inflammation other times it ties in with head pain,inflammation. I get frontal headackes sometimes that I relate to my sinuses, but worse are the migranes that go up the back of my neck and are basicly full head migranes, scalp can get pretty tender with these, these usually involve a stabbing pain to the back of my eyeball that hurts like heck along with pressure,ect. in,around the eye. --- In , " Jack Thrasher, Ph.D. " <toxicologist1@...> wrote: > > I thought I should interject here so everyone will realize what has occurred. Sinus infections and involvement (bacteria and fungi), particularly the maxillary and ethmoid areas, will allow the toxins and in some cases the microbes to enter the intraocular orbit as well as the optic nerve area. This invasion can lead to visual ;problems and optic neuritis. Quote Link to comment Share on other sites More sharing options...
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