Severe Complications of Humira

[Guest guest]

Hi Everyone. I posted a few weeks ago about some recurring illness

I've been suffering for the past several months. My dr. had suspected

the culprit with my Humira and the fact that I went back to work in

an elementary school in September after being a stay at home mom for

several years. Since November I've been sick more days than not. As

soon as I get better, it just starts to come back. I've now been off

my Humira since Dec 12.

My story only gets worse and I'm looking for some encouragment.

12 days ago I became suddenly ill again. It had been about two weeks

since the last " sinus infection " and suddenly I was struck with a bad

fever, chills and body aches. At first I thought it was a flair

coming since I've been off my meds but soon enough I knew it wasnt. I

went into the dr. and they gave me new antibiotics and drew blood. I

was called back in two days later and was told that my blood counts

were very low (white count & platette)they drew them again and

basically nothing changed in the two days between. Oh, I also

developed a fine rash during this time that lasted about 3/4days.

I was sent home and my dr was going to consult with hemotology and

oncology. He called me at home and said he was given some reassurance

that it didnt look like a lymphoma or lukemia since my red count was

still good. They then did a ct scan of my abdomen yesterday. I guess

my liver levels were high and he felt my spleen was enlarged (though

I dont know why). Had the scan, it only showed gall stones which they

think is unrelated. I now have an apt with the

hemotologist/oncologist on Thursday. Scared to death.

In the meantime I feel I've " recovered " from that illness and am

already onto a new " cold " and feel on the upswing from that one too.

I also found out that there have been a few kids in my first grade

class and several in my hallway that have had fifth disease, and I'm

just wondering if I could have gotten something as simple as that but

it affected me way worse than normal. I tink we're all just hoping

that the Humira had really socked my system and I'm just going to

need alot of time for it to recover fully.

Any info?

[Guest guest]

I’m sorry that things have been

going so poorly for you. The combination of a biologic and working with

young children can cause lots of problems because children are natural germ

magnets. You might read up on antibiotic therapy using tetracycline

derivatives such as Minocycline. They are recognized by the American College of Rheumatology as DMARDs and

clinical studies show them to be similar in effectiveness to the

biologics. If you take those either instead of or in addition to the

biologics it should reduce the random infections you are getting. The

antibiotics not only kill the bad bugs but they also kill the good ones in the

digestive tract that help to metabolize your food. Along with antibiotics

it is important to also take probiotics. I don’t take antibiotic

therapy but I do eat yogurt daily to get acidopholus probiotics. I hope

you get things under control. God bless.

From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of i_live_in_slippers

Sent: Tuesday, January 29, 2008

7:11 PM

Rheumatoid Arthritis

Subject:

[sPAM] Severe Complications of Humira

Hi Everyone. I posted a few weeks ago about some

recurring illness

I've been suffering for the past several months. My dr. had suspected

the culprit with my Humira and the fact that I went back to work in

an elementary school in September after being a stay at home mom for

several years. Since November I've been sick more days than not. As

soon as I get better, it just starts to come back. I've now been off

my Humira since Dec 12.

My story only gets worse and I'm looking for some encouragment.

12 days ago I became suddenly ill again. It had been about two weeks

since the last " sinus infection " and suddenly I was struck with a bad

fever, chills and body aches. At first I thought it was a flair

coming since I've been off my meds but soon enough I knew it wasnt. I

went into the dr. and they gave me new antibiotics and drew blood. I

was called back in two days later and was told that my blood counts

were very low (white count & platette)they drew them again and

basically nothing changed in the two days between. Oh, I also

developed a fine rash during this time that lasted about 3/4days.

I was sent home and my dr was going to consult with hemotology and

oncology. He called me at home and said he was given some reassurance

that it didnt look like a lymphoma or lukemia since my red count was

still good. They then did a ct scan of my abdomen yesterday. I guess

my liver levels were high and he felt my spleen was enlarged (though

I dont know why). Had the scan, it only showed gall stones which they

think is unrelated. I now have an apt with the

hemotologist/oncologist on Thursday. Scared to death.

In the meantime I feel I've " recovered " from that illness and am

already onto a new " cold " and feel on the upswing from that one too.

I also found out that there have been a few kids in my first grade

class and several in my hallway that have had fifth disease, and I'm

just wondering if I could have gotten something as simple as that but

it affected me way worse than normal. I tink we're all just hoping

that the Humira had really socked my system and I'm just going to

need alot of time for it to recover fully.

Any info?

[Guest guest]

Gall Stones not related??? If you have stones then you can have a blockage. If your filtering organs are enlarged (spllen) liver- etc then gall stones should be considered. Stay away from children. That is not the job for you to be in. Thats just asking for more trouble. The more infections you have the worse your RA will become. A biologic and your good health (infection free) is more important than working at the moment. Your wellness comes first and always should. My RA was triggered because I was a nanny at the time with two very sick all the time children. I was sick all the time and thats how it all started. See if they can actually prove your stones arent the issue. See the blood specialist and go from there. Let us all know. Deborah

On Jan 29, 2008 11:10 PM, i_live_in_slippers <bart.tracy@...> wrote:

Hi Everyone. I posted a few weeks ago about some recurring illness I've been suffering for the past several months. My dr. had suspected the culprit with my Humira and the fact that I went back to work in

an elementary school in September after being a stay at home mom for several years. Since November I've been sick more days than not. As soon as I get better, it just starts to come back. I've now been off

my Humira since Dec 12.My story only gets worse and I'm looking for some encouragment.12 days ago I became suddenly ill again. It had been about two weeks since the last " sinus infection " and suddenly I was struck with a bad

fever, chills and body aches. At first I thought it was a flair coming since I've been off my meds but soon enough I knew it wasnt. I went into the dr. and they gave me new antibiotics and drew blood. I was called back in two days later and was told that my blood counts

were very low (white count & platette)they drew them again and basically nothing changed in the two days between. Oh, I also developed a fine rash during this time that lasted about 3/4days.I was sent home and my dr was going to consult with hemotology and

oncology. He called me at home and said he was given some reassurance that it didnt look like a lymphoma or lukemia since my red count was still good. They then did a ct scan of my abdomen yesterday. I guess my liver levels were high and he felt my spleen was enlarged (though

I dont know why). Had the scan, it only showed gall stones which they think is unrelated. I now have an apt with the hemotologist/oncologist on Thursday. Scared to death.In the meantime I feel I've " recovered " from that illness and am

already onto a new " cold " and feel on the upswing from that one too. I also found out that there have been a few kids in my first grade class and several in my hallway that have had fifth disease, and I'm

just wondering if I could have gotten something as simple as that but it affected me way worse than normal. I tink we're all just hoping that the Humira had really socked my system and I'm just going to

need alot of time for it to recover fully.Any info?

[Guest guest]

Hi, I had similar experience with enbrel. I was in & out of Hosp ever other week hooked up on IV antibotics (for 6 months). finally stopped the enbrel (it was just part of the issue) and had to give up the volunteer work at my daughters elementary school, limited my indoor social contact during flu season, get a flu & & pnuemonia shot and if I start to get a cold or something I stop my meds for a couple of days (not to long) to get over it. If I keep taking them when I am coming down with something I end in hospt with pnuemonia and I now take antibotics everyother day. With the expection of some surgeries , I have been "health" and not in hosptial stay for a couple of years now. Talk to your Dr about an antibotic maintenance plan during the flu/cold season. Dianei_live_in_slippers <bart.tracy@...> wrote: Hi Everyone. I posted a few weeks ago about some recurring illness I've been suffering for the past several months. My dr. had suspected the culprit with my Humira and the fact that I went back to work in an elementary school in September after being a stay at home mom for several years. Since November I've been sick more days than not. As soon as I get better, it just starts to come back. I've now been off my Humira since Dec 12.My story only gets worse and I'm looking for some encouragment.12 days ago I became suddenly ill again. It had been about two weeks since the last "sinus

infection" and suddenly I was struck with a bad fever, chills and body aches. At first I thought it was a flair coming since I've been off my meds but soon enough I knew it wasnt. I went into the dr. and they gave me new antibiotics and drew blood. I was called back in two days later and was told that my blood counts were very low (white count & platette)they drew them again and basically nothing changed in the two days between. Oh, I also developed a fine rash during this time that lasted about 3/4days.I was sent home and my dr was going to consult with hemotology and oncology. He called me at home and said he was given some reassurance that it didnt look like a lymphoma or lukemia since my red count was still good. They then did a ct scan of my abdomen yesterday. I guess my liver levels were high and he felt my spleen was enlarged (though I dont know why). Had the scan, it only showed gall stones which they

think is unrelated. I now have an apt with the hemotologist/oncologist on Thursday. Scared to death.In the meantime I feel I've "recovered" from that illness and am already onto a new "cold" and feel on the upswing from that one too. I also found out that there have been a few kids in my first grade class and several in my hallway that have had fifth disease, and I'm just wondering if I could have gotten something as simple as that but it affected me way worse than normal. I tink we're all just hoping that the Humira had really socked my system and I'm just going to need alot of time for it to recover fully.Any info?

Never miss a thing. Make your homepage.

[Guest guest]

Get your Gall bladder checked out. I had to have my gall bladder removed 2 yrs ago as a result of my meds.Deborah Bargad <dbargad@...> wrote: Gall Stones not related??? If you have stones then you can have a blockage. If your filtering organs are enlarged (spllen) liver- etc then gall stones should be considered. Stay away from children. That is not the job for you to be in. Thats just asking for more trouble. The more infections you have the worse your RA will become. A biologic and your good

health (infection free) is more important than working at the moment. Your wellness comes first and always should. My RA was triggered because I was a nanny at the time with two very sick all the time children. I was sick all the time and thats how it all started. See if they can actually prove your stones arent the issue. See the blood specialist and go from there. Let us all know. Deborah On Jan 29, 2008 11:10 PM, i_live_in_slippers <bart.tracysbcglobal (DOT) net> wrote: Hi Everyone. I posted a few weeks ago about some recurring illness I've been suffering for the past several months. My dr. had suspected the culprit with my Humira and the fact that I went back to work in an elementary school in September

after being a stay at home mom for several years. Since November I've been sick more days than not. As soon as I get better, it just starts to come back. I've now been off my Humira since Dec 12.My story only gets worse and I'm looking for some encouragment.12 days ago I became suddenly ill again. It had been about two weeks since the last "sinus infection" and suddenly I was struck with a bad fever, chills and body aches. At first I thought it was a flair coming since I've been off my meds but soon enough I knew it wasnt. I went into the dr. and they gave me new antibiotics and drew blood. I was called back in two days later and was told that my blood counts were very low (white count & platette)they drew them again and basically nothing changed in the two days between. Oh, I also developed a fine rash during this time that lasted about 3/4days.I was sent home and my dr was going to consult with

hemotology and oncology. He called me at home and said he was given some reassurance that it didnt look like a lymphoma or lukemia since my red count was still good. They then did a ct scan of my abdomen yesterday. I guess my liver levels were high and he felt my spleen was enlarged (though I dont know why). Had the scan, it only showed gall stones which they think is unrelated. I now have an apt with the hemotologist/oncologist on Thursday. Scared to death.In the meantime I feel I've "recovered" from that illness and am already onto a new "cold" and feel on the upswing from that one too. I also found out that there have been a few kids in my first grade class and several in my hallway that have had fifth disease, and I'm just wondering if I could have gotten something as simple as that but it affected me way worse than normal. I tink we're all just hoping that the Humira had really socked my system and I'm

just going to need alot of time for it to recover fully.Any info?

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[Guest guest]

I Deborah,

I think they're saying the gallstones aren't the main issue because

until last week my illnesses have all been recurring sinus

infections. Like my body just can't fully get rid of the bacteria.

Once I go off the meds, it just comes back. Last week was the first

time I had a different situation. Mainly a fever, chills, aches and a

rash for a few days, then all that subsided into just another cold

which I am still fighting. What prompted all the worrying is my blood

tests came back extremely low in my white & platette count.

My dr. basically doesn't know if something more serious is going on

with me or if my body is just really socked from being on humira and

has been fighting infection after infection and just hasnt recovered

yet. That is best case scenario really. Will keep everyone posted and

thanks for your response

>

> > Hi Everyone. I posted a few weeks ago about some recurring

illness

> > I've been suffering for the past several months. My dr. had

suspected

> > the culprit with my Humira and the fact that I went back to work

in

> > an elementary school in September after being a stay at home mom

for

> > several years. Since November I've been sick more days than not.

As

> > soon as I get better, it just starts to come back. I've now been

off

> > my Humira since Dec 12.

> >

> > My story only gets worse and I'm looking for some encouragment.

> >

> > 12 days ago I became suddenly ill again. It had been about two

weeks

> > since the last " sinus infection " and suddenly I was struck with a

bad

> > fever, chills and body aches. At first I thought it was a flair

> > coming since I've been off my meds but soon enough I knew it

wasnt. I

> > went into the dr. and they gave me new antibiotics and drew

blood. I

> > was called back in two days later and was told that my blood

counts

> > were very low (white count & platette)they drew them again and

> > basically nothing changed in the two days between. Oh, I also

> > developed a fine rash during this time that lasted about 3/4days.

> >

> > I was sent home and my dr was going to consult with hemotology and

> > oncology. He called me at home and said he was given some

reassurance

> > that it didnt look like a lymphoma or lukemia since my red count

was

> > still good. They then did a ct scan of my abdomen yesterday. I

guess

> > my liver levels were high and he felt my spleen was enlarged

(though

> > I dont know why). Had the scan, it only showed gall stones which

they

> > think is unrelated. I now have an apt with the

> > hemotologist/oncologist on Thursday. Scared to death.

> >

> > In the meantime I feel I've " recovered " from that illness and am

> > already onto a new " cold " and feel on the upswing from that one

too.

> > I also found out that there have been a few kids in my first grade

> > class and several in my hallway that have had fifth disease, and

I'm

> > just wondering if I could have gotten something as simple as that

but

> > it affected me way worse than normal. I tink we're all just hoping

> > that the Humira had really socked my system and I'm just going to

> > need alot of time for it to recover fully.

> >

> > Any info?

> >

> >

> >

>

[Guest guest]

Hi Harold,

I'm going to ask about that. At this point I've been told my days on

Humira are over and honestly right now Im so scared i've caused more

damage to my body possibly being on it that I dont feel like taking

anything but tylenol ever again. I definetely dont want on any of

these exotic RA meds.

>

> I'm sorry that things have been going so poorly for you. The

combination of

> a biologic and working with young children can cause lots of

problems

> because children are natural germ magnets. You might read up on

antibiotic

> therapy using tetracycline derivatives such as Minocycline. They

are

> recognized by the American College of Rheumatology as DMARDs and

clinical

> studies show them to be similar in effectiveness to the biologics.

If you

> take those either instead of or in addition to the biologics it

should

> reduce the random infections you are getting. The antibiotics not

only kill

> the bad bugs but they also kill the good ones in the digestive

tract that

> help to metabolize your food. Along with antibiotics it is

important to

> also take probiotics. I don't take antibiotic therapy but I do eat

yogurt

> daily to get acidopholus probiotics. I hope you get things under

control.

> God bless.

>

>

>

> _____

>

> From: Rheumatoid Arthritis

> [mailto:Rheumatoid Arthritis ] On Behalf Of

> i_live_in_slippers

> Sent: Tuesday, January 29, 2008 7:11 PM

> Rheumatoid Arthritis

> Subject: [sPAM] Severe Complications of Humira

>

>

>

> Hi Everyone. I posted a few weeks ago about some recurring illness

> I've been suffering for the past several months. My dr. had

suspected

> the culprit with my Humira and the fact that I went back to work in

> an elementary school in September after being a stay at home mom

for

> several years. Since November I've been sick more days than not. As

> soon as I get better, it just starts to come back. I've now been

off

> my Humira since Dec 12.

>

> My story only gets worse and I'm looking for some encouragment.

>

> 12 days ago I became suddenly ill again. It had been about two

weeks

> since the last " sinus infection " and suddenly I was struck with a

bad

> fever, chills and body aches. At first I thought it was a flair

> coming since I've been off my meds but soon enough I knew it wasnt.

I

> went into the dr. and they gave me new antibiotics and drew blood.

I

> was called back in two days later and was told that my blood counts

> were very low (white count & platette)they drew them again and

> basically nothing changed in the two days between. Oh, I also

> developed a fine rash during this time that lasted about 3/4days.

>

> I was sent home and my dr was going to consult with hemotology and

> oncology. He called me at home and said he was given some

reassurance

> that it didnt look like a lymphoma or lukemia since my red count

was

> still good. They then did a ct scan of my abdomen yesterday. I

guess

> my liver levels were high and he felt my spleen was enlarged

(though

> I dont know why). Had the scan, it only showed gall stones which

they

> think is unrelated. I now have an apt with the

> hemotologist/oncologist on Thursday. Scared to death.

>

> In the meantime I feel I've " recovered " from that illness and am

> already onto a new " cold " and feel on the upswing from that one

too.

> I also found out that there have been a few kids in my first grade

> class and several in my hallway that have had fifth disease, and

I'm

> just wondering if I could have gotten something as simple as that

but

> it affected me way worse than normal. I tink we're all just hoping

> that the Humira had really socked my system and I'm just going to

> need alot of time for it to recover fully.

>

> Any info?

>

[Guest guest]

Hi, Thanks for your story. I'm really hoping that something similar

is what's going on with me. That my system just got too worn down and

now it's picking up everything little bug, and I just can't quite get

back to normal. Thanks

> Hi Everyone. I posted a few weeks ago about some

recurring illness

> I've been suffering for the past several months. My dr. had

suspected

> the culprit with my Humira and the fact that I went back to work in

> an elementary school in September after being a stay at home mom

for

> several years. Since November I've been sick more days than not. As

> soon as I get better, it just starts to come back. I've now been

off

> my Humira since Dec 12.

>

> My story only gets worse and I'm looking for some encouragment.

>

> 12 days ago I became suddenly ill again. It had been about two

weeks

> since the last " sinus infection " and suddenly I was struck with a

bad

> fever, chills and body aches. At first I thought it was a flair

> coming since I've been off my meds but soon enough I knew it wasnt.

I

> went into the dr. and they gave me new antibiotics and drew blood.

I

> was called back in two days later and was told that my blood counts

> were very low (white count & platette)they drew them again and

> basically nothing changed in the two days between. Oh, I also

> developed a fine rash during this time that lasted about 3/4days.

>

> I was sent home and my dr was going to consult with hemotology and

> oncology. He called me at home and said he was given some

reassurance

> that it didnt look like a lymphoma or lukemia since my red count

was

> still good. They then did a ct scan of my abdomen yesterday. I

guess

> my liver levels were high and he felt my spleen was enlarged

(though

> I dont know why). Had the scan, it only showed gall stones which

they

> think is unrelated. I now have an apt with the

> hemotologist/oncologist on Thursday. Scared to death.

>

> In the meantime I feel I've " recovered " from that illness and am

> already onto a new " cold " and feel on the upswing from that one

too.

> I also found out that there have been a few kids in my first grade

> class and several in my hallway that have had fifth disease, and

I'm

> just wondering if I could have gotten something as simple as that

but

> it affected me way worse than normal. I tink we're all just hoping

> that the Humira had really socked my system and I'm just going to

> need alot of time for it to recover fully.

>

> Any info?

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>