Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 Hi All Maybe the best word for the collections of fluids are 'protuberances'. Ken.Ken Pearson <maputo95@...> wrote: Hi Harald Thanks so much for your interesting hypothesis that RA is a syndrome of symptoms common to a lot of diseases. This approach would explain a lot of the 'mystery' of RA. Harold, I have 2 'fluid lumps' or 'collections of fluid' on the top of my left hand just below the wrist. One doctor said these were common in RA. What can I do to get these pesky cysts go away? Hoping you are well, I thank you for the care and time you put into this group. Ken. Harold Van Tuyl <hvantuylcharter (DOT) net> wrote: Reni, I agree with you. I am more interested in having effective treatment than in having an accurate diagnosis. Similar treatments can work for a variety of different diagnoses, but even if we have a certain diagnosis we still don’t know what treatment will work. I really believe that RA is not a single disease but a syndrome or collection of symptoms common to a lot of diseases. That’s why RA presents in so many different ways and why people with RA respond so differently to any single treatment. I’m kind of reminded of the annual search for what to put in a flu vaccine. We call the disease flu even though there are many known types of flu and a different vaccine needs to be developed for each one. In a similar way I think there are many types of RA but so far we don’t know how to identify which type people have so we don’t know how to tailor a treatment to an individual case. More is being learned each year so maybe some day we can test to see what kind of RA we have and what treatment will work for us. Until that happens we have to treat each individual case on a trial and error basis. God bless. From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of ReniSent: Friday, May 30, 2008 11:50 AMRheumatoid Arthritis Subject:RE:Re: Hello all Hi Kim, I have been reading all the feed back you have gotten and think how nice it is we all have one another to rally round and support when we need it here! I am sure the not knowing and trying to find answers is hard on you, but i must confess i am not sure the dx of ra is so wonderful either. Even when you get the dx of ra it seems to me that the rat race begins all over again and may constantly be a struggle. Harold and some of the others are quiet settled in their rx threapies and doing well, but there are many of us who never get the rx cocktail correct for remission o rsubsidance of the progressive disease of rhuematoid. It is the problems of everyone is so differnet and ra strikes in so many differfent fronts and ways in and outs and curve balls. Then you throw the doctors in there too and they all have different approaches and techniques, well we all just have at some time to face the fact that ra is a progressive nasty disease and there is no cure. Sorry to be the bearer of bad tidings just the facts. But there is always hope with new drugs coming out. so hang in there and just keep looking for answers, and build a bridge and get across the symptoms and into the prevention from any more joint deteriation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 My first Dr said that the old method of dealing with those was to lay the hand flat and hit it with a Bible Annette On 5/31/08, Ken Pearson <maputo95@...> wrote: Hi All Maybe the best word for the collections of fluids are 'protuberances'. Ken.Ken Pearson <maputo95@...> wrote: Hi Harald Thanks so much for your interesting hypothesis that RA is a syndrome of symptoms common to a lot of diseases. This approach would explain a lot of the 'mystery' of RA. Harold, I have 2 'fluid lumps' or 'collections of fluid' on the top of my left hand just below the wrist. One doctor said these were common in RA. What can I do to get these pesky cysts go away? Hoping you are well, I thank you for the care and time you put into this group. Ken. Harold Van Tuyl <hvantuyl@...> wrote: Reni, I agree with you. I am more interested in having effective treatment than in having an accurate diagnosis. Similar treatments can work for a variety of different diagnoses, but even if we have a certain diagnosis we still don't know what treatment will work. I really believe that RA is not a single disease but a syndrome or collection of symptoms common to a lot of diseases. That's why RA presents in so many different ways and why people with RA respond so differently to any single treatment. I'm kind of reminded of the annual search for what to put in a flu vaccine. We call the disease flu even though there are many known types of flu and a different vaccine needs to be developed for each one. In a similar way I think there are many types of RA but so far we don't know how to identify which type people have so we don't know how to tailor a treatment to an individual case. More is being learned each year so maybe some day we can test to see what kind of RA we have and what treatment will work for us. Until that happens we have to treat each individual case on a trial and error basis. God bless. From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of Reni Sent: Friday, May 30, 2008 11:50 AMRheumatoid Arthritis Subject:RE:Re: Hello all Hi Kim, I have been reading all the feed back you have gotten and think how nice it is we all have one another to rally round and support when we need it here! I am sure the not knowing and trying to find answers is hard on you, but i must confess i am not sure the dx of ra is so wonderful either. Even when you get the dx of ra it seems to me that the rat race begins all over again and may constantly be a struggle. Harold and some of the others are quiet settled in their rx threapies and doing well, but there are many of us who never get the rx cocktail correct for remission o rsubsidance of the progressive disease of rhuematoid. It is the problems of everyone is so differnet and ra strikes in so many differfent fronts and ways in and outs and curve balls. Then you throw the doctors in there too and they all have different approaches and techniques, well we all just have at some time to face the fact that ra is a progressive nasty disease and there is no cure. Sorry to be the bearer of bad tidings just the facts. But there is always hope with new drugs coming out. so hang in there and just keep looking for answers, and build a bridge and get across the symptoms and into the prevention from any more joint deteriation. -- V | /\__/\ | __( ' \-/ ' ) ( ___ ) | | | | (__ )__ )Swiftly the brain becomes an enchanted loom where millions of flashing shuttles weave a dissolving pattern, always a meaningful pattern though never an abiding one; a shifting harmony of sub-patterns. Sherrington Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 Lol, was he serious Annette? Ken.Annette <anetto@...> wrote: My first Dr said that the old method of dealing with those was to lay the hand flat and hit it with a Bible Annette On 5/31/08, Ken Pearson <maputo95 > wrote: Hi All Maybe the best word for the collections of fluids are 'protuberances'. Ken.Ken Pearson <maputo95 > wrote: Hi Harald Thanks so much for your interesting hypothesis that RA is a syndrome of symptoms common to a lot of diseases. This approach would explain a lot of the 'mystery' of RA. Harold, I have 2 'fluid lumps' or 'collections of fluid' on the top of my left hand just below the wrist. One doctor said these were common in RA. What can I do to get these pesky cysts go away? Hoping you are well, I thank you for the care and time you put into this group. Ken. Harold Van Tuyl <hvantuylcharter (DOT) net> wrote: Reni, I agree with you. I am more interested in having effective treatment than in having an accurate diagnosis. Similar treatments can work for a variety of different diagnoses, but even if we have a certain diagnosis we still don't know what treatment will work. I really believe that RA is not a single disease but a syndrome or collection of symptoms common to a lot of diseases. That's why RA presents in so many different ways and why people with RA respond so differently to any single treatment. I'm kind of reminded of the annual search for what to put in a flu vaccine. We call the disease flu even though there are many known types of flu and a different vaccine needs to be developed for each one. In a similar way I think there are many types of RA but so far we don't know how to identify which type people have so we don't know how to tailor a treatment to an individual case. More is being learned each year so maybe some day we can test to see what kind of RA we have and what treatment will work for us. Until that happens we have to treat each individual case on a trial and error basis. God bless. From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of ReniSent: Friday, May 30, 2008 11:50 AMRheumatoid Arthritis Subject:RE:Re: Hello all Hi Kim, I have been reading all the feed back you have gotten and think how nice it is we all have one another to rally round and support when we need it here! I am sure the not knowing and trying to find answers is hard on you, but i must confess i am not sure the dx of ra is so wonderful either. Even when you get the dx of ra it seems to me that the rat race begins all over again and may constantly be a struggle. Harold and some of the others are quiet settled in their rx threapies and doing well, but there are many of us who never get the rx cocktail correct for remission o rsubsidance of the progressive disease of rhuematoid. It is the problems of everyone is so differnet and ra strikes in so many differfent fronts and ways in and outs and curve balls. Then you throw the doctors in there too and they all have different approaches and techniques, well we all just have at some time to face the fact that ra is a progressive nasty disease and there is no cure. Sorry to be the bearer of bad tidings just the facts. But there is always hope with new drugs coming out. so hang in there and just keep looking for answers, and build a bridge and get across the symptoms and into the prevention from any more joint deteriation. -- V | /\__/\ | __( ' \-/ ' ) ( ___ ) | | | | (__ )__ )Swiftly the brain becomes an enchanted loom where millions of flashing shuttles weave a dissolving pattern, always a meaningful pattern though never an abiding one; a shifting harmony of sub-patterns. Sherrington Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 In a message dated 5/31/08 5:24:41 AM, anetto@... writes: My first Dr said that the old method of dealing with those was to lay the hand flat and hit it with a Bible ===================================================================== A doctor told me the same thing when he diagnosed me with a ganglion cyst. Instead of the bible approach, I had it surgically removed, and it did not come back. Regards, BeingIrish **************Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. (http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 yes yes yes LOL I've heard that one too. I think I've seen it on t.v. or a movie too. I couldnt imagine. My friend would let me do it to her ROFL. Reni, I agree with you. I am more interested in having effective treatment than in having an accurate diagnosis. Similar treatments can work for a variety of different diagnoses, but even if we have a certain diagnosis we still don't know what treatment will work. I really believe that RA is not a single disease but a syndrome or collection of symptoms common to a lot of diseases. That's why RA presents in so many different ways and why people with RA respond so differently to any single treatment. I'm kind of reminded of the annual search for what to put in a flu vaccine. We call the disease flu even though there are many known types of flu and a different vaccine needs to be developed for each one. In a similar way I think there are many types of RA but so far we don't know how to identify which type people have so we don't know how to tailor a treatment to an individual case. More is being learned each year so maybe some day we can test to see what kind of RA we have and what treatment will work for us. Until that happens we have to treat each individual case on a trial and error basis. God bless. From: rheumatoid_arthriti sgroups (DOT) com [mailto:rheumatoid_arthriti sgroups (DOT) com] On Behalf Of ReniSent: Friday, May 30, 2008 11:50 AMrheumatoid_arthriti sgroups (DOT) comSubject:RE:Re: [rheumatoid_ arthritis] Hello all Hi Kim, I have been reading all the feed back you have gotten and think how nice it is we all have one another to rally round and support when we need it here! I am sure the not knowing and trying to find answers is hard on you, but i must confess i am not sure the dx of ra is so wonderful either. Even when you get the dx of ra it seems to me that the rat race begins all over again and may constantly be a struggle. Harold and some of the others are quiet settled in their rx threapies and doing well, but there are many of us who never get the rx cocktail correct for remission o rsubsidance of the progressive disease of rhuematoid. It is the problems of everyone is so differnet and ra strikes in so many differfent fronts and ways in and outs and curve balls. Then you throw the doctors in there too and they all have different approaches and techniques, well we all just have at some time to face the fact that ra is a progressive nasty disease and there is no cure. Sorry to be the bearer of bad tidings just the facts. But there is always hope with new drugs coming out. so hang in there and just keep looking for answers, and build a bridge and get across the symptoms and into the prevention from any more joint deteriation. -- V | /\__/\ | __( ' \-/ ' ) ( ___ ) | | | | (__ )__ )Swiftly the brain becomes an enchanted loom where millions of flashing shuttles weave a dissolving pattern, always a meaningful pattern though never an abiding one; a shifting harmony of sub-patterns. Sherrington Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 On 5/31/08, BeingIrish@... <BeingIrish@...> wrote: Yes he called it a ganglion. He was an old fashioned ish guy. Mine just went away - didn't seem to help him make a diagnosis Annette In a message dated 5/31/08 5:24:41 AM, anetto@... writes: My first Dr said that the old method of dealing with those was to lay the hand flat and hit it with a Bible ===================================================================== A doctor told me the same thing when he diagnosed me with a ganglion cyst. Instead of the bible approach, I had it surgically removed, and it did not come back. Regards, BeingIrish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 I actually used a big heavy book to whack my hand and the cyct stayed gone for many years, eventually though it did come back and my rhummy injected it with several injections and it has shrunk down pretty much to nothing and stayed gone now for about 4 yrs. They tend to be tender and got so big that it put a strain on the skin on my hand and made my hand ache.Annette <anetto@...> wrote: On 5/31/08, BeingIrishaol <BeingIrishaol> wrote: Yes he called it a ganglion. He was an old fashioned ish guy. Mine just went away - didn't seem to help him make a diagnosisAnnette In a message dated 5/31/08 5:24:41 AM, anettogmail writes: My first Dr said that the old method of dealing with those was to lay the hand flat and hit it with a Bible=====================================================================A doctor told me the same thing when he diagnosed me with a ganglion cyst. Instead of the bible approach, I had it surgically removed, and it did not come back.Regards,BeingIrish Quote Link to comment Share on other sites More sharing options...
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