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good morning all:

I want to know about your experiences with neck pain and neck surgery.

When is neck pain bad enough to risk surgery (fusion)?

I have had RA for 22 years and it has effected my neck now and I have

pretty good pain, specially on my left side, C-1-2 they say are

unstable, but not enough to be dangerous. 4-5-6- are also unstable.

My question, have any of you had neck surgery and if so what kind and

what was your experience with it?

Thanks for your replys.

Sherry

ks

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Hi Sherry, I am sorry to hear that you are in so much pain. I to have

a great amount of neck pain. My rumy sent me to a neck specalist. He

said that I have a lot of unstability but that in his opinion I

should wait as long as possible before I think about surgery. Just

make sure you get a second opinion and maybe a third. If you can

afford it. Hope you are painless soon. Betty in Mi. --

- In

Rheumatoid Arthritis , " Sherry Dreier " <sldreier@...>

wrote:

>

> good morning all:

>

> I want to know about your experiences with neck pain and neck

surgery.

> When is neck pain bad enough to risk surgery (fusion)?

>

> I have had RA for 22 years and it has effected my neck now and I

have

> pretty good pain, specially on my left side, C-1-2 they say are

> unstable, but not enough to be dangerous. 4-5-6- are also unstable.

>

> My question, have any of you had neck surgery and if so what kind

and

> what was your experience with it?

>

> Thanks for your replys.

>

> Sherry

> ks

>

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Dear Sherry- I would think about trying a glucosamine chondritin compound with hyluran. It might ease the pain, lubricate the neck joints and keep you from surgery a bit longer. Remember to build up your pillow so that your neck and spine are straight. I find a heating pad and massage help alot. This supplement is contra indicated in RA but does work joint deterioration for OA. Yours, Deborah

On 3/19/07, Betty <bj_fell@...> wrote:

Hi Sherry, I am sorry to hear that you are in so much pain. I to have a great amount of neck pain. My rumy sent me to a neck specalist. He said that I have a lot of unstability but that in his opinion I should wait as long as possible before I think about surgery. Just make sure you get a second opinion and maybe a third. If you can afford it. Hope you are painless soon. Betty in Mi. >> good morning all:> > I want to know about your experiences with neck pain and neck surgery. > When is neck pain bad enough to risk surgery (fusion)?> > I have had RA for 22 years and it has effected my neck now and I have > pretty good pain, specially on my left side, C-1-2 they say are > unstable, but not enough to be dangerous. 4-5-6- are also unstable.> > My question, have any of you had neck surgery and if so what kind and > what was your experience with it?>

> Thanks for your replys.> > Sherry> ks>

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  • 1 year later...

Gee , I wish I had read ahead to your post before responding to

Donna. On one hand it is good to talk to someone who has had this

problem happen to them, but on the other I am saddened to believe

that there really could be some damage and I might have to deal with

this now. I just can't believe this is happening.I know some might

wonder, " Why is she getting all upset about this? " and my response is

that it took me 5 years to make the decision to go ahead with

revision. Five long, hard years. And then I had to consider the

cervical first. OK, done. Then Ihave this problem with my knees and

the surgeon doesn't want to go ahead with revision without my getting

them checked out first. My local doc refuses to MRI them, so now my

surgeon has me seeking a 2nd opinion. So now there is the question

hanging over my head as to whether I am going to need knee surgery.

And - you guessed it - the surgeon insists that I do that before

revision. So revision gets pushed further away again. Now, my voice

problem - he tells me yesterday that I can't go ahead with any knee

surgery before I " fix " the voice problem. And on top of this, I was

just given a promotion in my relitively new job that requires a lot

of talking and driving. I know I sound like a big complaining baby -

Io think I just need a good cry. I'm just overwhelmed. I know it is

not a huge deal. I DO know that. I'm just upset that I am

encounetering these obstacles and I have barely forged ahead yet.

D. (RI)

>

> Donna and ,

> I had cervical surgery 3 years ago. I am already fused to S1 but

> really need 2 osteomies which I can't do because of heart issues.

> The doctor who does limited revisions in the DC area - told me I

had

> to have the cervical surgery before I could consider revision

because

> of the way you are placed on the operating table. My surgeon

thought

> he would need to fuse but when he got in - he said the area was

> stable enough so he did decompression of 5 or 6 discs. Like

-

> the pain was surprising and mine was done from the back - not the

> front. For me - it was pain in the area and it was intense for a

> week or so and then it went away. I have been fine and have great

> mobility in my neck since the surgery. The pain was not as bad as

my

> big back surgeries but I was surprised by it.

> When I had my last big back surgery - the intubation caused some

kind

> of growth on my vocal cords. I could not sing an octave and since

I

> teach music - I had to get it taken care of. I did have the

> respirator in for 3 days because I went into heart failure. I had

> laser surgery on my vocal cords and I could not TALK for a whole

> week. That has been fine ever since. Ask your doctor about that -

> to see if the intubation did something.

> (VA)

>

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Well, it doesn't make me feel better necessarily as I hate having to

hear other peoples angst and pain as well. We really are all in this

together and thank God for that! I am going back to work today

(attempting anyway!) so here goes.........

D.

> > >

> > > It sounds to me, , like you have several good reasons to

> > feel down

> > > and frustrated. Also what you're saying doesn't sound like

> > complaining to

> > > me; it sounds more like the pain of someone who's feeling

> > overwhelmed by

> > > very real issues. I think it would be more unrealistic to

expect

> > yourself to

> > > NOT be upset by your present situation.

> > >

> > > I have to say I've always admired the folks on this forum site

> who

> > have let

> > > their hair down and vented about what's going on in their lives

> > that is

> > > causing them pain. You are expressing honest emotions, fears,

> > upsets because

> > > you've got to let it out to someone and most of the people on

> this

> > forum

> > > have proved to be " safe " and encouraging to those who are

> hurting.

> > >

> > > I have not been that open with my own stuff. I don't know why.

> Just

> > haven't.

> > > So, , when you share info surrounding your present

> > situation, I think

> > > it's very helpful. It allows others to reach out and encourage

> you

> > to help

> > > you get through this period. It may not take away the problem,

> but

> > it helps

> > > to know that people care about you and want better for you.

Also,

> > when you

> > > share, it may encourage those of us (who tend to keep things

> locked

> > up a

> > > bit) to also be open and reach out.

> > >

> > > I wish I could make it all go away for you so you could get on

> with

> > your

> > > plan. Please know that you are in my thoughts and prayers.

> > >

> > > Kay

> > >

> >

>

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Dear ,

My goodness, how it appears to be one step forward and two steps back with your

road to a better quality of life. I know how hard it is to look at

the bright side but let me

take a stab at it for you. As you know, revision is very tough on the

back but it is much more

tougher on the knees. For the first time in years your knees will

probably be doing their job.

I had no problems with my knees prior to surgery but after a while

when I started to walk and work out,

I actually thought I was going to need knee surgery. The pain in my

knees lasted almost a year.

So, if you have problems going in, it would be twice as hard, if not

more, after, on your knees. If they

are not functioning or they hurt to much, your not going to move,

walk or do any exercise as deemed by

Glazer necessary so they need to be operational before. As for your

voice box well, it speaks for itself.

ha, ha...get it. I am a wise guy. I can see they are stumbling blocks

but maybe an outlook of they are

preparation requirements might be helpful. I am often glad for

people, that these things crop up before surgery rather then after

when it can be so much more devastating. Want to shoot me yet?? Try

to keep your head up , we are all on your side and are rooting

for you. VC

Quality Assurance Manager-Cadra Product

SofTech, Inc.

59 Composite Way, Suite 401

Lowell, MA 01851

978-513-2650 call

978-458-4096 fax

http://www.softech.com/products/cad.php

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