Not Puffy Enough???

[Guest guest]

Hi All,

I came back on here a few months ago due to Humira no longer working for me. I

am

on 2 tablets of Opana (long acting drug for chronic pain) and Percoset as needed

and

it still doesn't take away my pain. I can no longer be alone with my son

because I

cannot diaper or dress him. I am still working but am experiencing horrible

fatigue,

especially at the end of the day. I have trouble concentrating, mostly at

night, and

sometimes I cannot understand nor speak, like I am at a loss for words. It is

very

scary.

Anyway, I really wanted to try Rituxan but my doc here in NJ was unsure so he

sent

me to a NYC doctor. I always tell people not to expect miracles just b/c you

are

going to a " big " doctor but I didn't take my own advice!

The doctor barely examined me and declared that I was " not puffy " enough for

this to

be an RA flare!!! He said he did believe my pain but felt that it was either

from my

Fibro or another arthritic condition due to me also having Ulcerative Colitis.

I am sorry I am not completely crippled by RA, but I do have some deformity and

my

main purpose is I am trying to prevent further damage!! Also he said that he

had no

problem with me being on the narcotics - well I do, I want to be well so I don't

have

to use them!

I know what Fibro pain is and I know what RA pain is too and I know it is RA!

My Sed

rate was okay, my ANA was positive, Rheumatoid factor negative.

The new plan is for me to try Humira once a week for 6 weeks and see how it

goes.

What do you all think? Not puffy enough???

Thanks,