Guest guest Posted March 27, 2003 Report Share Posted March 27, 2003 What were your diagnoses that were wrong and what is the correct one? Of course you don't have to answer this unless you want to. I'm really sorry about your predicament Maybe it would help if you brought one of your kids to the doctor with you. a > I have been misdiagnosed for over a year. I have finally found a > Doctor after I couldn't walk for two months,now I am really feeling > depressed and alone. I have five grown kids that think I'm faking > being sick so I don't have to be alone.I want to be alone now,but I > can't handle my house without some help.I have multiple illnesses and > I am separated for two years. I can't work and I have little or no > friends left where I live. WHAT DO I DO NOW ? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2003 Report Share Posted March 27, 2003 My old doctor had it in his mind that because I was being treated for depression,due to the loss of my Grandmother that raised me and five months later my Father to the third stroke at 61. I believed I was acting responsibly going to a therapist it had been a long two years of illness, hospitals,and nursing homes then to bury both of them was the last straw. Since then I have been diagnosed Bi-polar,diabetic,osteo and facet arthritis of the lower back and neck,high blood pressure, anxiety, high cholesterol,and then I had two minor heart failures that they still haven't explained.I turned 45 on tuesday and I feel so old. My children are selfish and have problems of their own, added to thrree of them have addiction problems. I have been separated from an alcoholic husband who was also an addict,and what I have left of my life is no money state insurance and none of the things in life I ever enjoyed except for my dog that are a great comfort to me. My old Doctor told me that the pain and swelling in my hands and legs was from water retention,and that I was a bartender for years I should be used to this. I went to the ER and was diagnosed in one week, then found new doctor. I had problems finding a non-judgemental one though, because of my medications most wouldn't even talk to me.They thought I was an addict,I'm not and never was I don't even drink! It took me almost eight months to find my new Doctor, who is very attentive to me, and works with the other Doctors instead of against them. I'm on prednisolone ,decreasing, and Placquenil and getting ready to start methotrexate this week. I'm happy that some one answered my e-mail I feel alone even in a crowded room, but my children may be a gift from God,but for now they are more problems than I need. I'll survive by myself as best I can until the next stage of my life. Thank you for caring and listening. Chelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2003 Report Share Posted March 27, 2003 I'm very sorry that you are in such a tough situation. Do you have good medical care? Are you seeing a rheumatologist and are you being treated effectively? Would you ever consider moving to a smaller home that would be easier to maintain? I like a's suggestion to bring your children to one or more of your appointments. [ ] NEW TO RA > I have been misdiagnosed for over a year. I have finally found a > Doctor after I couldn't walk for two months,now I am really feeling > depressed and alone. I have five grown kids that think I'm faking > being sick so I don't have to be alone.I want to be alone now,but I > can't handle my house without some help.I have multiple illnesses and > I am separated for two years. I can't work and I have little or no > friends left where I live. WHAT DO I DO NOW ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2003 Report Share Posted March 28, 2003 Chelle, That is a very sad story. I'm so sorry about what has happened in your life in the past. I hope you can try to be optimistic about the future. It's a good thing that you didn't give up until you found a compassionate, competent doctor. He sounds as if he is doing his best to help you. It's so important to have a good physician or team when you have such complicated health problems. Once your body begins to feel some relief, maybe you will be better able to heal and make progress in other areas of your life. I pray that it will be so. Re: [ ] NEW TO RA > My old doctor had it in his mind that because I was being treated for > depression,due to the loss of my Grandmother that raised me and five months > later my Father to the third stroke at 61. I believed I was acting > responsibly going to a therapist it had been a long two years of illness, > hospitals,and nursing homes then to bury both of them was the last straw. > Since then I have been diagnosed Bi-polar,diabetic,osteo and facet arthritis > of the lower back and neck,high blood pressure, anxiety, high cholesterol,and > then I had two minor heart failures that they still haven't explained.I > turned 45 on tuesday and I feel so old. My children are selfish and have > problems of their own, added to thrree of them have addiction problems. I > have been separated from an alcoholic husband who was also an addict,and what > I have left of my life is no money state insurance and none of the things in > life I ever enjoyed except for my dog that are a great comfort to me. My old > Doctor told me that the pain and swelling in my hands and legs was from water > retention,and that I was a bartender for years I should be used to this. I > went to the ER and was diagnosed in one week, then found new doctor. I had > problems finding a non-judgemental one though, because of my medications most > wouldn't even talk to me.They thought I was an addict,I'm not and never was I > don't even drink! It took me almost eight months to find my new Doctor, who > is very attentive to me, and works with the other Doctors instead of against > them. I'm on prednisolone ,decreasing, and Placquenil and getting ready to > start methotrexate this week. I'm happy that some one answered my e-mail I > feel alone even in a crowded room, but my children may be a gift from God,but > for now they are more problems than I need. I'll survive by myself as best I > can until the next stage of my life. Thank you for caring and listening. > Chelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2003 Report Share Posted March 28, 2003 Hi Chelle...I'm sorry for all your heartache. I pray you get some good help soon. The people here are wonderful, and great listeners. So if you need a shoulder to cry on, there are many here. My name is Tess, I'm 51, mom to 4, grammi to two, divorced a longtime, and very low-income, too. It is always a challenge to make ends meet. I truly understand, dear Chelle. Much Love.... Tess in NW Oregon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2003 Report Share Posted June 17, 2003 Welcome to the group! Sorry about your RA diagnosis. I can understand how it would be a big relief to know what you're up against. Yes, it is possible that you will feel better in 6 to 8 weeks after starting methotrexate. How much are you taking? Orally or by injection? Great that you aren't experiencing any adverse effects. How much prednisone? How did you shatter your knee? Of course, no need to answer these questions if you don't feel like it. [ ] New to RA > Hello everyone! After many negative test results and a horrible fear > that I had ALS or MS or worse, Docs have confirmed it is RA. No > history in my family but possibly a shattered knee in Jan brought it > about. I am still taking prednizone and am three weeks into > Methodextrate. They say I may feel good as new in 6 to 8 weeks. Can > anyone confirm this? So far I don't see much difference. My life > has changed radically! However I am so very grateful that this > treatment is available and will prevent me from becoming disabled. > So far I have had no side effects from the Methodextrate and looking > forward to weaning off the prednizone. Any encouragement or info you > can offer would be very much apppreciated. > Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2003 Report Share Posted June 18, 2003 Welcome. My problems started with a bruised knee after an auto accident. MTX takes several weeks to be effective, so hopefully you'll see some improvements soon. a > Hello everyone! After many negative test results and a horrible fear > that I had ALS or MS or worse, Docs have confirmed it is RA. No > history in my family but possibly a shattered knee in Jan brought it > about. I am still taking prednizone and am three weeks into > Methodextrate. They say I may feel good as new in 6 to 8 weeks. Can > anyone confirm this? So far I don't see much difference. My life > has changed radically! However I am so very grateful that this > treatment is available and will prevent me from becoming disabled. > So far I have had no side effects from the Methodextrate and looking > forward to weaning off the prednizone. Any encouragement or info you > can offer would be very much apppreciated. > Thanks! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2004 Report Share Posted February 19, 2004 Welcome, ! I'm very sorry about your recent RA diagnosis. I think trying meditation is an excellent idea. It doesn't cost a thing and has no adverse effects that I can think of. Thanks for sharing your experience with it. I'm glad it helps you. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] New to RA > Hi > > I am new to the group. I was just diagnosed with RA a couple of weeks > ago. Fortunately,right now my case is not severe or in just the early > stages and the rheumy I am seeing seems pretty good. I am taking > Vioxx and Plaquenil. It is too early to know if the Plaquenil will do > any good. I have been following e-mails from this group for a while > now. It has been very helpful in understanding RA and the different > types of meds available to fight it. > > Recently many of you have been writing about depression or anger. > Those feelings seem pretty natural when facing a chronic disease like > RA. I have had to totally redefine my self image, since I have always > thought of myself as extremely healthy and active. Facing a lifetime > of medications and sharply curtailing my activities are depressing > prospects. One thing that has really helped me cope is meditation. It > greatly reduces my stress and anxiety. It takes patience and practice > to develop a technique and see results, but it is well worth the > effort. I am not advocating meditation as a replacement for > antidepressants, but it would be a good supplement for those who need > medications. > > It is difficult at first to find the time to meditate. I started out > by just sitting quietly for 10 minutes. After a week or two, I was > able to expand that to 20 minutes. On days when I don't have to go to > work, I now meditate for 30 minutes. > > As far as developing a technique, all you need is a relatively quiet > place where you won't be interrupted. You don't have to sit on the > floor in the lotus position. That is probably impossible for most > people with RA. You can sit on a chair, stand or lie in bed. At first > it is hard because your mind races and you think of a lot of > different things. To control this, all you need to do is focus on > your breathing. Thoughts still come and go, but you just acknowledge > them and let them go. Sometimes I focus on different parts of my > body, starting with the top of the head and moving to the bottom of > the toes, imagining stress just melting away from each point. I > also use visualization, thinking of myself in a beautiful place like > a field of lupine on a ridge top. > > After meditating my anxiety is reduced and I feel relaxed and > energized. It took some time and practice to realize this benefit, > but it is worth the effort. > > Cndy - land Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 ----- Original Message ----- From: remipain > I do not have ANY joint swelling or redness. my lab tests all came back negative; One rheumathologist told me that I " MIGHT " have RA and wanted to place me on Enbrel; Another one said he is not sure what I might have, it could be RA, but he did not want me to be on enbrel because I do not have any joint swelling and no evidence of synovitis. I'm not sure what to do ; but one thing for sure: I'm real scared as to what is awaiting me. Anyone who had experience with Enbrel? I haven't taken it yet, but it's a pretty serious drug. I can see why one of your docs would be unsure about using it since you have no joint swelling and your lab tests are negative. Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 Hi there, and welcome to the list! My pain began in my feet, and I had quite a journey before being diagnosed. I'm wondering what other tests were done for you....? Xrays did not show any evidence of damage in my feet. It wasn't until I had an MRI that all the damage to my foot joints was discovered. I was then started on methotexate. During the half year or so I took that drug, the pain started in my knees, hands and wrists, and enbrel was added to the mix. If I were you, I'd ask about other tests that will help determine the source of the foot pain before starting the drugs. Do you have another doctor's appt coming up? Kirsten Kraushaar, MN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 My test came back negative, as well. Except for the SED rate and CRP. Those were both high. My doc still isn't sure if I have RA, either, but he is trying the RA meds to see. I went on Enbrel last September and it has been helpful. So he tends to think it IS RA but just says I'm a big question mark!! It's worth a try. If it doesn't work, stop taking it. I noticed a difference by the second week. It didn't take it all away, but it sure made life a lot easier to live!! I didn't get the joint swelling for over 2 years. Now I do get it in my hands and my right ankle. It's difficult to know what to do when things don't seem to be black and white. Those gray areas are difficult to figure out.....Marina in Ohio > > i'm 31....... i've been having pain in both my feet for the past one > year.... It really started as nothing; very little pain in my feet when > I first get up and it used to last for a minute or so. Now, I get real > bad pain in the morning when I first put my feet on the floor out of > bed that gets a little better in 10 to 15 mins , but i keep having pain > on and off all day long.I do not have ANY joint swelling or redness. my > lab tests all came back negative; One rheumathologist told me that > I " MIGHT " have RA and wanted to place me on Enbrel; Another one said he > is not sure what I might have, it could be RA, but he did not want me > to be on enbrel because I do not have any joint swelling and no > evidence of synovitis. I'm not sure what to do ; but one thing for > sure: I'm real scared as to what is awaiting me. > Anyone who had experience with Enbrel? > thanx a million. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 Hi, I am Tracie. I was just curious if you were ever tested for plantar fasciitis. I had that a few years back before my RA diagnosis and Cortisone shots in my heel by a podiatrist really worked. Your story sounds familiar in that everytime I got up in the morning it would hurt like the dickens for about 10-15 minutes. Then if I would sit periodically during the day and go to get up same thing pain but not lasting as long. I compared it to stepping on spikes; excruciating at first. Well, let me know if they ever checked you out for that. I am just curious like I said, but you can never have too much information right? Take care and good luck. I am also looking at possibly trying Enbrel or Humira. Ughh. Tracie in Maine. --- In , " marina_troi " <marina_troi@y...> wrote: > > My test came back negative, as well. Except for the SED rate and > CRP. Those were both high. My doc still isn't sure if I have RA, > either, but he is trying the RA meds to see. I went on Enbrel last > September and it has been helpful. So he tends to think it IS RA > but just says I'm a big question mark!! It's worth a try. If it > doesn't work, stop taking it. I noticed a difference by the second > week. It didn't take it all away, but it sure made life a lot > easier to live!! I didn't get the joint swelling for over 2 years. > Now I do get it in my hands and my right ankle. It's difficult to > know what to do when things don't seem to be black and white. Those > gray areas are difficult to figure out.....Marina in Ohio > > > > --- In , " remipain " <remipain@y...> wrote: > > > > i'm 31....... i've been having pain in both my feet for the past > one > > year.... It really started as nothing; very little pain in my feet > when > > I first get up and it used to last for a minute or so. Now, I get > real > > bad pain in the morning when I first put my feet on the floor out > of > > bed that gets a little better in 10 to 15 mins , but i keep having > pain > > on and off all day long.I do not have ANY joint swelling or > redness. my > > lab tests all came back negative; One rheumathologist told me that > > I " MIGHT " have RA and wanted to place me on Enbrel; Another one > said he > > is not sure what I might have, it could be RA, but he did not want > me > > to be on enbrel because I do not have any joint swelling and no > > evidence of synovitis. I'm not sure what to do ; but one thing for > > sure: I'm real scared as to what is awaiting me. > > Anyone who had experience with Enbrel? > > thanx a million. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2005 Report Share Posted April 20, 2005 In a message dated 4/20/2005 8:23:15 P.M. Eastern Daylight Time, Remipain writes: New to RA Hi ... I ma sorry you have that pain -- I have it too, but I have elevated ESR, ANA and CRP, but negative RF. The feel are painful! I empathize! Love and Prayers, Beth ~*~*~*~*~*~*~*~* RA, or any other health challenge, is NOT a show-stopper!!! ~*~*~*~*~*~*~*~* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Hey I have lupus and sclerosis and I have been on methotrexate shots for two years. I tolerate them perfectly. I know from friends that the pills are very hard on the stomach. Try to ask for shots and you will feel the difference!! And you said it yourself, you beat CANCER!!! So don't let this get to you!! amira from Egypt bluenightsleep <bluenightsleep@...> wrote: Two years ago, I noticed two lumps on the back of my knees. Within a week my feet, ankles, knees, wrist and hands were swollen and very painfull. My primary care doctor acted like it was no big deal. I couldn't think straight, couldn't stand the pain. The doc said take advil. I was taking 20 advils a day with no relief. Finally saw a rheumatologist who just looked at me and said you have RA. Put me on Prednisone and took blood test. I have a negative RA test result but a positive CCP test for moderate RA. I have been on methotrexate it caused severe vomiting and diarrhea. I would pass out. Then Arava caused severe head pain, I thought my brain would explode. Then Imuran again severe vomiting and diarrhea. Now the doc wants to put me on Enbrel. I am scared to death of the side effects. I'm on 10mg of prednisone for the swelling and percocet for the sciatic pain going down my left leg and Ambien CR to help me sleep. I was put on Amitriptyline 50mg because doc says I also have fibromyalgia and depression. The Amitriptyline made my muscles jerk and my restless legs go crazy, (Sleep lab diagnosed RLS six years ago), I was walking around so groggy I couldn't think but I could not fall asleep so I stopped taking it. I also have Hashimotos underactive thyroid for which I take levoxyl. I have no joint pain never have. All the pain is in my ligaments, tendons, and muscles and nerves. I have a doc with no bed side manner. I have no one to talk to. I'm up all night. I feel very alone and frustrated. I had breast cancer in 1999 and my right breast was removed it had traveled to the lymph nodes and I had to have Chemo. I handled all that by myself and did fine. Because the doctors knew what had to be done and did it. This disease is frustrating. The docs don't seem to know what to do. My biggest fear is that I have no idea of what to do. My life is slipping by. I didn't fight and win over cancer to live like this. I would like to hear from other people with multiple syptoms of Rheumatoid disease so that I don't feel like I'm the only one. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Bluenight, You are not alone as long as you stay here with us. You can vent and complain to us and know that we will understand. As far as Enbrel goes, I have been on it for over two years, and so far it's been my magic med. I have very little pain, but I also have no adverse side effects. Maybe Enbrel will the the one that works for you with no side effects. You won't know until you try. Good luck with it. Sue On Monday, June 26, 2006, at 06:01 AM, bluenightsleep wrote: > > I have been on methotrexate it caused severe vomiting and diarrhea. > I would pass out. Then Arava caused severe head pain, I thought my > brain would explode. Then Imuran again severe vomiting and diarrhea. > Now the doc wants to put me on Enbrel. I am scared to death of the > side effects. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2006 Report Share Posted June 29, 2006 Hi, You are definitely not the only one. I have been having pain since I was 12. I'm 27 now. It took me over ten years to get a doctor to listen to me and to really realize that I am in pain. Btw, I too, went through Chemo. I had AML and just recently had a bone marrow transplant. Yanosz [ ] New to RA Two years ago, I noticed two lumps on the back of my knees. Within a week my feet, ankles, knees, wrist and hands were swollen and very painfull. My primary care doctor acted like it was no big deal. I couldn't think straight, couldn't stand the pain. The doc said take advil. I was taking 20 advils a day with no relief. Finally saw a rheumatologist who just looked at me and said you have RA. Put me on Prednisone and took blood test. I have a negative RA test result but a positive CCP test for moderate RA. I have been on methotrexate it caused severe vomiting and diarrhea. I would pass out. Then Arava caused severe head pain, I thought my brain would explode. Then Imuran again severe vomiting and diarrhea. Now the doc wants to put me on Enbrel. I am scared to death of the side effects. I'm on 10mg of prednisone for the swelling and percocet for the sciatic pain going down my left leg and Ambien CR to help me sleep. I was put on Amitriptyline 50mg because doc says I also have fibromyalgia and depression. The Amitriptyline made my muscles jerk and my restless legs go crazy, (Sleep lab diagnosed RLS six years ago), I was walking around so groggy I couldn't think but I could not fall asleep so I stopped taking it. I also have Hashimotos underactive thyroid for which I take levoxyl. I have no joint pain never have. All the pain is in my ligaments, tendons, and muscles and nerves. I have a doc with no bed side manner. I have no one to talk to. I'm up all night. I feel very alone and frustrated. I had breast cancer in 1999 and my right breast was removed it had traveled to the lymph nodes and I had to have Chemo. I handled all that by myself and did fine. Because the doctors knew what had to be done and did it. This disease is frustrating. The docs don't seem to know what to do. My biggest fear is that I have no idea of what to do. My life is slipping by. I didn't fight and win over cancer to live like this. I would like to hear from other people with multiple syptoms of Rheumatoid disease so that I don't feel like I'm the only one. ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.394 / Virus Database: 268.9.5/376 - Release Date: 26/06/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 Hi Tim, Plaquenil is one of the first meds often tried on people with RA, because it has fewer potential serious side effects than others. If it works for you, that's great! I had unacceptable intestinal problems with it, so was on it for too short a time to know whether it would have done any good or not. I have a family friend, though, who is on Plaquenil and nothing else for her RA, and it has kept her going and in good shape for years. > > Im 32 years old. Recently diagnosed with ra. Im on plaquinel, does > anyone have any experience with this medication? Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 Hi , Thanks for responding. I've only been on it for about a month. So far it doesn't seem to bother me. I have been trying different NSAIDS for a couple years and nothing ever worked. Finally steroids made a big difference. The dr said my case is mild, do you know if it will always be mild? Thanks and good luck.... Tim Randall <krandall@...> wrote: Hi Tim, Plaquenil is one of the first meds often tried on people with RA, because it has fewer potential serious side effects than others. If it works for you, that's great! I had unacceptable intestinal problems with it, so was on it for too short a time to know whether it would have done any good or not. I have a family friend, though, who is on Plaquenil and nothing else for her RA, and it has kept her going and in good shape for years. > > Im 32 years old. Recently diagnosed with ra. Im on plaquinel, does > anyone have any experience with this medication? Thanks > --------------------------------- Check out the all-new beta - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 Hello, I am 40 years old and also recently diagnosed. I have been taking Plaquinel now for almost 6 weeks. I haven't had any side effects, in fact I don't think it's had any effect at all. I am still on 5mg of Prednisone, supposed to wean off it, but have been waitng for the Plaquinel to start working. I am going back to my GP next week, he has a letter from my specialist so that I can start MTX if the Plaquenil didn't work. I was hoping not to have to start anything else, because my Rheumy told me that Plaquinel was the least toxic of all the RA drugs. Good luck, I hope it works for you. Pennie [ ] New to RA Im 32 years old. Recently diagnosed with ra. Im on plaquinel, does anyone have any experience with this medication? Thanks Send instant messages to your online friends http://au.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2006 Report Share Posted December 8, 2006 Hi Tim, I don't know that anyone can predict the course of RA in any individual. People's experiences seem to be all over the place. Mine started so slowly that it took a while for me to realize there was something going on other than typical middle-age aches and pains. Then it built up rapidly to a crisis level over a period of less than a month. I'm sure mine wouldn't be considered mild... I've already got some bone changes after less than a year, even with early, aggressive treatment. I sure hope yours stays mild!!! > > > > Im 32 years old. Recently diagnosed with ra. Im on plaquinel, does > > anyone have any experience with this medication? Thanks > > > > > > > > > --------------------------------- > Check out the all-new beta - Fire up a more powerful email and get things done faster. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2006 Report Share Posted December 8, 2006 I can deal with the pain a hell of a lot easier than I can deal with this crippling fatigue and weakness. It has caused me to be so depressed. I was also having terrible nausea with the mtx pills so now am injecting myself once a week...and still so nauseated. It makes the fatigue worse. I feel like giving up! I can't take any of the newer r.a. meds because of a history of skin cancer. Is anyone else out there having really BAD nausea with mtx? [ ] Re: New to RA Hi Tim, I don't know that anyone can predict the course of RA in any individual. People's experiences seem to be all over the place. Mine started so slowly that it took a while for me to realize there was something going on other than typical middle-age aches and pains. Then it built up rapidly to a crisis level over a period of less than a month. I'm sure mine wouldn't be considered mild... I've already got some bone changes after less than a year, even with early, aggressive treatment. I sure hope yours stays mild!!! > > > > Im 32 years old. Recently diagnosed with ra. Im on plaquinel, does > > anyone have any experience with this medication? Thanks > > > > > > > > > ------------ --------- --------- --- > Check out the all-new beta - Fire up a more powerful email and get things done faster. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2006 Report Share Posted December 8, 2006 What time of the day do you take the MTX? I tried taking it just before I went to bed because I've found that I don't have much nausea with the pain meds when I do that, and I figured it would reduce the nausea from the MTX. It really helped. I just take it and then go to sleep. (I sleep with the head of my bed raised about 6-inches, too, so that may help somewhat, also. That's due to the hiatal hernia). Take care, Is anyone else out there having really BAD nausea with mtx? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2006 Report Share Posted December 9, 2006 I didn't have bad nausea with Mtx (though I have ceratinly heard about other people who have) it just made me very sick, like I had the flu. The good news was that at least for me, these symptoms _have_ improved with time. I still get pretty tired for the first day or so after I take my shot, but I try to rest up, and even if I can't, I _can_ push myself through it. In the beginning, especially with the pills, I was actually bedridden for 24 hours) I've heard this from other people too, that the side effects seem to let up with time. > > Hi Tim, > > > > Plaquenil is one of the first meds often tried on people with RA, > > because it has fewer potential serious side effects than others. > If > > it works for you, that's great! I had unacceptable intestinal > > problems with it, so was on it for too short a time to know > whether it > > would have done any good or not. I have a family friend, though, > who > > is on Plaquenil and nothing else for her RA, and it has kept her > going > > and in good shape for years. > > > > > > > > --- In @gro ups.com, " Tim " <imhogwild0304@ > wrote: > > > > > > Im 32 years old. Recently diagnosed with ra. Im on plaquinel, > does > > > anyone have any experience with this medication? Thanks > > > > > > > > > > > > > > > > > ------------ --------- --------- --- > > Check out the all-new beta - Fire up a more powerful > email and get things done faster. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2006 Report Share Posted December 9, 2006 Did the flu like symptoms happen after the first shot? > > > > > > > > Im 32 years old. Recently diagnosed with ra. Im on plaquinel, > > does > > > > anyone have any experience with this medication? Thanks > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --- > > > Check out the all-new beta - Fire up a more powerful > > email and get things done faster. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2006 Report Share Posted December 9, 2006 Hello MBL, Don't know if I can help or not, but if you are taking NSAIDS, they could be irritating your stomach and can cause ulcers so you probably should consult your health care provider. I had to cut down on the amount of INSAIDS and then I also take DGL to help protect my stomach lining. It seems to be working. Do a lot of googles on DGL. Lee. Re: [ ] Re: New to RA I can deal with the pain a hell of a lot easier than I can deal with this crippling fatigue and weakness. It has caused me to be so depressed. I was also having terrible nausea with the mtx pills so now am injecting myself once a week...and still so nauseated. It makes the fatigue worse. I feel like giving up! I can't take any of the newer r.a. meds because of a history of skin cancer. Is anyone else out there having really BAD nausea with mtx? Recent Activity a.. 21New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
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