RE: medicines

[Guest guest]

That is the brand and the price I paid. Thank you Mark!

mholmes@... wrote:

> From: mholmes@...

>

> Here's one site that sells it - tells a bit about it.

> http://www.enrich.com/us/prod_cat_eng/prod_0270.htm

>

> Mark

>

> rheumatic Medicines

>

> > From: Bob Fain <BobFain@...>

> >

> > , how is the pain these days? Better, I hope. Did you get the

> > lobelia? Does anyone out there know what the chinese herbal mixture

> > called Mullein/Pan Pien Lien is? Mark, take a look in that expensive

> > palm toy of yours! Have any of you taken Vitamin O? This was

> > recommended to me. I think it is special order. Hugs to all of you,

> >

> >

> >

> > ------------------------------------------------------------------------

> > Tired of missing calls while online? Now you can surf the Internet

> > without worrying about missing important calls! CallWave's FREE

> > Internet Answering Machine lets you hear who's calling while online.

> > 1/1927/0/_/532797/_/951615400/

> > ------------------------------------------------------------------------

> >

> >

>

> ------------------------------------------------------------------------

> @Backup-The Easiest Way to Protect and Access your files.

> Automatic backups and off-site storage of your critical data. Install

> your FREE trial today and have a chance to WIN a digital camera!

> Click here.

> 1/1830/0/_/532797/_/951619795/

> ------------------------------------------------------------------------

[Guest guest]

As I have told you guys, Maureen is the Scleraderma who has been in

remission or cured, however you want to call it, for over ten years. She

has kindly taken me under her wing and inasmuch as she is living WELL, and I

am not, I appreciate any and all info. She and her herbalist, have told me

to take vitamin O to help with the short memory loss I am having. As I have

indicated, I am my husband's bookkeeper and I am having difficulty

remembering to do things I have done for years! Scarey, hun? I know these

are temporary things but if I can help me out of them more quickly, great.

Maureen was on the AP for two years but went into it too far gone. At that

time, the only sustenance she was getting was drinking liquid through a

straw, could not go up and down stairs and was ENCASED. She was in organ

failure. After two years, her liver said, no more. Then she had to find

other alternatives. She believes in a form of tai chi called pangu qi

gong,

consistent use of a chi machine, colostrum, lobelia by Nature's Sunshine,

Mullein/Pan Pien Lien, MSM, lots of meditation using visualization of

health, the other liquid besides water being twig tea (it is great) and

macrobiotic diet. She credits her return to health with ALL of this,

including the AP. She does not think she would have arrived where she is

without any of this. I have thought long and hard about the macrobiotic

diet but the truth is, I do not have the courage and fortitude she has to

undergo that just yet. But let scleraderma encase me, I'll bet that mindset

comes. In the meantime, I pretty faithfully follow Mercola and son.

Well, you asked about the vitamin O and got a lot more. I hope I didn't

bore anybody! I do know that if I ever get rid of this HORRIBLE sinus

infection, I will actually be able to say I feel well, not a lot of pain

etc. The strange thing is that I would have sworm Dr. Sinnott told me that

some people when on the IV and Minocin escape the sinus infections. I am

beginning to believe this is my disease flaring up in the sinuses as it is

also in my TMJ areas right now. If I was told it was in my brain, why not

the sinus cavities? Any takers on this? Love you guys,

Ute Reeves wrote:

> From: Ute Reeves <nowyoga@...>

>

> Oh no! not another vitamin!!!! ;-)

> Ute

>

> > Have any of you taken Vitamin O?

> >

> >

>

> ------------------------------------------------------------------------

> WANT FREE MAGAZINES?

> Sample over 500 magazines in 30 categories-- all for FREE at

> FreeShop.com, your source for thousands of free and trial offers!

> 1/1610/0/_/532797/_/951690635/

> ------------------------------------------------------------------------

[Guest guest]

Here's one site that sells it - tells a bit about it.

http://www.enrich.com/us/prod_cat_eng/prod_0270.htm

Mark

rheumatic Medicines

> From: Bob Fain <BobFain@...>

>

> , how is the pain these days? Better, I hope. Did you get the

> lobelia? Does anyone out there know what the chinese herbal mixture

> called Mullein/Pan Pien Lien is? Mark, take a look in that expensive

> palm toy of yours! Have any of you taken Vitamin O? This was

> recommended to me. I think it is special order. Hugs to all of you,

>

>

>

> ------------------------------------------------------------------------

> Tired of missing calls while online? Now you can surf the Internet

> without worrying about missing important calls! CallWave's FREE

> Internet Answering Machine lets you hear who's calling while online.

> 1/1927/0/_/532797/_/951615400/

> ------------------------------------------------------------------------

>

>

[Guest guest]

I didn't even know there WAS a vitamin O - oh well I learn something every

day

Chris.

On Sat, 1 Jan 2000, Bob Fain wrote:

> From: Bob Fain <BobFain@...>

>

> , how is the pain these days? Better, I hope. Did you get the

> lobelia? Does anyone out there know what the chinese herbal mixture

> called Mullein/Pan Pien Lien is? Mark, take a look in that expensive

> palm toy of yours! Have any of you taken Vitamin O? This was

> recommended to me. I think it is special order. Hugs to all of you,

>

>

>

> ------------------------------------------------------------------------

> Tired of missing calls while online? Now you can surf the Internet

> without worrying about missing important calls! CallWave's FREE

> Internet Answering Machine lets you hear who's calling while online.

> 1/1927/0/_/532797/_/951615400/

> ------------------------------------------------------------------------

>

>

[Guest guest]

Oh no! not another vitamin!!!! ;-)

Ute

> Have any of you taken Vitamin O?

>

>

[Guest guest]

,

You are so lucky to have a mentor to help you along the way. One of the

first symptoms I had was a jaw that locked up for no reason and a hazy

memory also. I find that my memory has improved considerably and I can

retrieve information quicker than before. That awful fuzzy headedness is

gone too. I credit the AP for this. Any one of the remedies your friend

used would have helped and it shows her great courage and determination that

she continued to search for more alterntives til she reached remission.

I hope you find some of your answers here too. :>))

Bev

>

> As I have told you guys, Maureen is the Scleraderma who has been in

> remission or cured, however you want to call it, for over ten years. She

> has kindly taken me under her wing and inasmuch as she is living WELL, and

I

> am not, I appreciate any and all info. She and her herbalist, have told

me

> to take vitamin O to help with the short memory loss I am having. As I

have

> indicated, I am my husband's bookkeeper and I am having difficulty

> remembering to do things I have done for years! Scarey, hun? I know

these

> are temporary things but if I can help me out of them more quickly, great.

> Maureen was on the AP for two years but went into it too far gone. At that

> time, the only sustenance she was getting was drinking liquid through a

> straw, could not go up and down stairs and was ENCASED. She was in organ

> failure. After two years, her liver said, no more. Then she had to find

> other alternatives. She believes in a form of tai chi called pangu qi

> gong,

[Guest guest]

Where do I read about this diet?? Macrobiotic diet.

Donna

Ottawa, Canada

Scleroderma, Jan.95, AP Oct.97

(My Story) http://www3.sympatico.ca/mousepotatoes )

=============

the macrobiotic

diet but

[Guest guest]

Please post the information on the diet on the list. I'd like to know

about it too.

Bev

> From: " Donna and Ray " <mousepotatoes@...>

>

> Where do I read about this diet?? Macrobiotic diet.

>

> Donna

> Ottawa, Canada

> Scleroderma, Jan.95, AP Oct.97

> (My Story) http://www3.sympatico.ca/mousepotatoes )

>

> =============

>

>

> the macrobiotic

> diet but

>

>

> ------------------------------------------------------------------------

> Get what you deserve with NextCard Visa! ZERO! Rates as low as 0.0%

> Intro or 9.9% Fixed APR, online balance transfers, Rewards Points,

> no hidden fees, and much more! Get NextCard today and get the credit

> you deserve! Apply now! Get your NextCard Visa at:

> 1/914/0/_/532797/_/951747297/

> ------------------------------------------------------------------------

>

>

[Guest guest]

I think it is fairly new as I just started to get junk mail about it this

past year or so. Someone is always coming up with something new for us that

works much better than the last thing they came up with. Too bad they don't

work so RA could of been eradicated years ago!! :-((

Carol

At 08:15 PM 2/27/00 +0100, Adlard wrote:

>From: Adlard <cadlard@...>

>

>

>I didn't even know there WAS a vitamin O - oh well I learn something every

>day

>

>Chris.

[Guest guest]

Okay - You Guys, After I get mine which I have already ordered and my brain

begins working better from the new oxygen intake, if I can remember, I am going

to write you guys and tell you how good it works!!! :>))

Carol wrote:

> From: Carol <carscott@...>

>

>

> I think it is fairly new as I just started to get junk mail about it this

> past year or so. Someone is always coming up with something new for us that

> works much better than the last thing they came up with. Too bad they don't

> work so RA could of been eradicated years ago!! :-((

> Carol

>

> At 08:15 PM 2/27/00 +0100, Adlard wrote:

> >From: Adlard <cadlard@...>

> >

> >

> >I didn't even know there WAS a vitamin O - oh well I learn something every

> >day

> >

> >Chris.

>

> ------------------------------------------------------------------------

> Why wait for a credit decision? Get one instantly! Apply for

> the Capital One 9.9% Fixed APR Visa Platinum!

> 1/1895/0/_/532797/_/951849190/

> ------------------------------------------------------------------------

[Guest guest]

,

(17) takes Effexor (antidepressant). Adderall (attention and

focus), Topamax (tics), and a tiny dose of Valium (tics).

Liz

On May 11, 2005, at 8:04 AM, A. wrote:

> Everyone:

>

> I would be interested in knowing what medications you have found

> helpful, if any, and for what particular issues they helped.

>

[Guest guest]

All people react differently to medications. What works for one may

not work for another. But one common one that here often is

Risperdal.

My son Austin has been on Risperdal since he was 3 for mood swings

and agression. He had night terrors a lot too and they have gone away

completely with it. He will be 6 in September. He can't live without

it. We have tried taking him off about 4 times and he has gotten

worse each time.

Austin has very high anxiety as do most of our Aspies... one thing

that has helped him is Prozac (Fluoxetine). His obsessing has been

minimal and he is actually less hyper.

We have just added Clonodine to the mix for impulsivity and

compulsivity. He is very impulsive and this has helped with that as

well. He actually thinks before he runs into the road. He is good at

stopping and thinking when before he would act before he thought.

Plus he now sleeps very solid during the night. I hope this helps.

Jean

Mom of Austin - Aspergers, Bi-Polar 1, OCD

[Guest guest]

Risperdal And then Geodon, both on very low doses

" When the power of love overcomes the love of power the world will know

peace. "

-- Jimi Hendrix

( ) medicines

Everyone:

I would be interested in knowing what medications you have found helpful, if

any, and for what particular issues they helped.

[Guest guest]

Seroquel

Remeron

Trileptal

Those 3 are working well for Beth right now.

Maralee

Mom to Beth, 16

Private Special Ed School, sophomore

AS/social anxiety/BP

( ) medicines

Everyone:

I would be interested in knowing what medications you have found helpful, if

any, and for what particular issues they helped.

[Guest guest]

Unfortunately RA varies so much that everyone seems to be

different. I started with Arava, switched to Methotrexate after not

getting much relief, and then added Remicade after still not getting enough

relief. We increased the doses and got the Remicade more often till about

a year after being diagnosed we got my RA under control. That was about 6

years ago and for the last several years I‘ve been doing well enough so

we cut back on medications and the frequency of Remicade. I don’t

post much about being stable and well controlled but I do post a lot with

information or encouragement for others. Message boards are much more

likely to attract people who are not well controlled and the subject is likely

to be how to gain control. There are many possible treatments for RA and

none of them work for everyone so we often have to try several individually or

in combination to find what works for us but by far most people do get pretty

well controlled within the first couple of years and then stop posting on

message boards.

I started with the anti-inflammatory Prednisone so I could

hobble from bed to the bathroom. As the real RA medications began to take

effect I cut back on Prednisone and finally got off it completely.

Probably the greatest success with RA comes with what we call the Biologics and

if you have a few thousand dollars a month extra you might want to start on

them. Most people do not have this luxury and most insurance will not pay

for the biologics until you have tried at least a couple of lower-cost

medications and proved that they fail to help you enough. It is usual to

start on Methotrexate, Plaquenil, or Sulfasalazine but it usually takes several

weeks to a few months to see if they really benefit you. With

Methotrexate you are usually also prescribed Folic Acid or Leucovorin to replace

the B vitamins that are destroyed by Methotrexate.

http://www.arthritistoday.org/treatments/drug-guide/types-of-drugs/index.php

You might want to be familiar with the DMARDs and Biologics in

the link above. You may also get some other types of medication depending

on your particular situation. The more you know before your visit the

more productive the visit is likely to be. Take notes with you to remind

you of what questions you have, and take notes either during the appointment or

right after while things are fresh in your mind. Have someone go with you

if you can to help you remember just what was said. I hope you get

effective treatment for your problems. God bless.

From:

Rheumatoid Arthritis

[mailto:Rheumatoid Arthritis ] On Behalf Of reneehearttoheart

Sent: Friday, April 24, 2009 5:11 AM

Rheumatoid Arthritis

Subject: medicines

Since having

fibromyalgia for years, I have found many, many people who suffer from that

also had quite a few other conditions they had to deal with at the same time. May

1 I should know what I have and to what degree if it is truely RA and hopefully

some meds that will help.

I am curious if anyone is satisfied with their meds and get relief. I don't

understand why everyone is so unsatified and always changing them.

Is it because the good of the med wears in and body overcomes the help they

give and you have to go stronger or is it the degree of RA is changing while

under the meds (which I thought you would take not only to manage the pain but

help RA from progressing)and you need stronger drugs.

And if I go and this is confirmed I gather unless its a bad, bad case, they

will just start on the low end giving me some pills to take. Do you all take

anti inflamatory drugs or just the known ra drugs with tylenol.

Just would like some bottom line knowledge if we start talking drugs at the dr.

apt.

Thanks, hope today finds you well.

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.287 / Virus Database: 270.12.3/2076 - Release Date: 04/24/09

07:54:00

[Guest guest]

Please read my previous posts about medications from the past few messages.  Yours, DeborahOn Fri, Apr 24, 2009 at 9:10 AM, reneehearttoheart <reneehearttoheart@...> wrote:

Since having fibromyalgia for years, I have found many, many people who suffer from that also had quite a few other conditions they had to deal with at the same time. May 1 I should know what I have and to what degree if it is truely RA and hopefully some meds that will help.

I am curious if anyone is satisfied with their meds and get relief. I don't understand why everyone is so unsatified and always changing them.

Is it because the good of the med wears in and body overcomes the help they give and you have to go stronger or is it the degree of RA is changing while under the meds (which I thought you would take not only to manage the pain but help RA from progressing)and you need stronger drugs.

And if I go and this is confirmed I gather unless its a bad, bad case, they will just start on the low end giving me some pills to take. Do you all take anti inflamatory drugs or just the known ra drugs with tylenol.

Just would like some bottom line knowledge if we start talking drugs at the dr. apt.

Thanks, hope today finds you well.

[Guest guest]

- as I understand it, the biologics are supposed to " slow down " the

progression, not stop it. Enbrel has worked well for me for many years, but now

the RA has gotten worse and I need to consult with my Rheumy to see if a change

in meds is needed. Also have bad osteoarthritis and fibromyalgia that

complicate the picture.

Ros

_____________________________________________

>

> Since having fibromyalgia for years, I have found many, many people who suffer

from that also had quite a few other conditions they had to deal with at the

same time. May 1 I should know what I have and to what degree if it is truely

RA and hopefully some meds that will help.

>

> I am curious if anyone is satisfied with their meds and get relief. I don't

understand why everyone is so unsatified and always changing them.

> Is it because the good of the med wears in and body overcomes the help they

give and you have to go stronger or is it the degree of RA is changing while

under the meds (which I thought you would take not only to manage the pain but

help RA from progressing)and you need stronger drugs.

>

> And if I go and this is confirmed I gather unless its a bad, bad case, they

will just start on the low end giving me some pills to take. Do you all take

anti inflamatory drugs or just the known ra drugs with tylenol.

>

> Just would like some bottom line knowledge if we start talking drugs at the

dr. apt.

>

> Thanks, hope today finds you well.

>

>

>

[Guest guest]

I was diagnosed June 2006. I started with just methotrexate pills. It was a

low dose at first, 4 pills a week I believe. Then it went up after each doctor

visit. I wasn't getting any relief so I started on Enbrel along with the MTX.

I was on that for a while and still did not help so I was switched over to

Humira and topped out with 25mg of MTX taken by injection. The Humira seemed to

help a bit then I had a really bad flare, ending up at my rheumy's office and

had to get an infusion of solumedrol. During all this time I also got several

joint injections with steroids. I was then put on Remicade. I did not get any

better. I ended up getting worse and had an emergency room visit because of the

pain, then getting another solumedrol infusion at my rheumy's office a few days

later. My symptoms and pain have continued to worsen.

I ended up having to quit working last year and was approved for disability.

Now I have no health insurance. I don't qualify for Medicaid because I'm not

pregnant and have no minor children. I cannot get Medicare for two years after

my disability benefits began. So I am stuck with no way of treating my RA. I

recently applied for help through our county hospital system. I am still

waiting to get an appointment. I've also read that they have only one

rheumatologist for the entire county. That county includes the entire city of

Houston. It may be a long time before I get any help. Meanwhile I am dealing

with daily chronic and intense pain. I sometimes question if it's all worth it.

My RA is progressing and the pain is worsening... I don't know if there is any

treatment that will help.

I don't want to be so negative. I have a friend that is on Humira and it has

changed her life for the better. This disease seems to be different from one

person to the next.

>

> Since having fibromyalgia for years, I have found many, many people who suffer

from that also had quite a few other conditions they had to deal with at the

same time. May 1 I should know what I have and to what degree if it is truely

RA and hopefully some meds that will help.

>

> I am curious if anyone is satisfied with their meds and get relief. I don't

understand why everyone is so unsatified and always changing them.

> Is it because the good of the med wears in and body overcomes the help they

give and you have to go stronger or is it the degree of RA is changing while

under the meds (which I thought you would take not only to manage the pain but

help RA from progressing)and you need stronger drugs.

>

> And if I go and this is confirmed I gather unless its a bad, bad case, they

will just start on the low end giving me some pills to take. Do you all take

anti inflamatory drugs or just the known ra drugs with tylenol.

>

> Just would like some bottom line knowledge if we start talking drugs at the

dr. apt.

>

> Thanks, hope today finds you well.

>

>

>

[Guest guest]

No going back to Arava because now my liver function tests are elevated. Plus Arava stays in your system sooo long. My new rheummy is not comfortable with that. The fact that Arava has a black box warning about sudden liver failure and I have no health insurance and so I am self pay. He says NO!

He would be much easier to take a pill as well as cheaper than they Humira.

Toni A Good Credit Score is 700 or Above. See yours in just 2 easy steps!