Re: Re: humira ?

June 7, 2009

Remember that every biologic affects your immune system. Most people

with an auto immune disease wont take certain precautions. Stay away

from people as much as possible. Remember to keep your distance and

use sanitizer if someone at work or at home is sick. I am on remicade

since 2000 and part of the reason it still works is that I studied how

it works and why it works. I try to minimize side effects. One of

the huge things is infusion timing. Most centers just want to get you

in and out. Try to demand they infuse you slowly. Diluting the

medication while it is being administered into your system during an

infusion helps also.

I drink gatorade and water continuously. Sometimes your body is too

smart. It finds a way around the medication. Sometimes your body is

already so depleted by the disease your system is at risk. Some people

dont adhere to the doctors orders and that affects outcomes as well.

RA is parasitic in nature and can evolve into more serious ailments

like have RA and Lupus together. Your weight and diet and overall

nutrition play a role as well. You have to make a conscious choice to

read and advocate for yourself when it comes to biologics and meds in

general. You have to weigh the risks as well as the benefits. Is the

side effect temporary? Can you live with or tolerate it? Is there

something you can take in addition to minimize the side effects?

Usually taking benadryl or another anti histamine will help with that.

Deborah

On Sat, Jun 6, 2009 at 2:39 AM, Marika<tobytoby99350@...> wrote:

>

> I took Orencia two years ago, and had so many side effects

> my Dr just ignored it, untill it put me in the hospital with pneumonia.

> Every person is different, so maybe for you it will work

> Marika

>

>>

>> _____

>>

>> From: Rheumatoid Arthritis

>> [mailto:Rheumatoid Arthritis ] On Behalf Of maduroman_wcp

>> Sent: Friday, June 05, 2009 12:16 AM

>> Rheumatoid Arthritis

>> Subject: humira ?

>>

>> i have just started humira, how long before it starts to have an effect?

>>

>

June 7, 2009

It took about 6 months before Orencia started working for me...----- Original Message -----From: <karenbeyke@...>Date: Sunday, June 7, 2009 12:52Subject: RE: humira ?Rheumatoid Arthritis > Thanks for the link, Deborah. I've read it, and other > links, but it doesn't> seem to say how long before it starts to work.my doc says to try > it for at> least 3 months. I'm on month 2, so we'll see. > > Thx.> > > > > > _____ > > From: Rheumatoid Arthritis > [mailto:Rheumatoid Arthritis ] On Behalf Of > Deborah Bargad> Sent: Friday, June 05, 2009 9:01 PM> Rheumatoid Arthritis > Subject: Re: humira ?> > > > > > > > > http://www.drugs. <http://www.drugs.com/orencia.html> > com/orencia.html> On Fri, Jun 5, 2009 at 9:53 PM, <karenbeykecomcast (DOT) > <mailto:karenbeyke%40comcast.net> net> wrote:> >> >> > Ditto the question on Orencia.> >> >> >> > > >> >> >> > ________________________________> >> > From: rheumatoid_arthriti > <mailto:Rheumatoid Arthritis%40>s > > [mailto:rheumatoid_arthriti> <mailto:Rheumatoid Arthritis%40> > s ] On Behalf> Of maduroman_wcp> > Sent: Friday, June 05, 2009 12:16 AM> > rheumatoid_arthriti > <mailto:Rheumatoid Arthritis%40>s > > Subject: humira ?> >> >> >> >> > i have just started humira, how long before it starts to have > an effect?> >> > > > > >

June 8, 2009

Marika, Why are you being so harsh with Harold? He's trying to help others. I don't see why you think he was being insensitive. We shouldn't rip others apart.

From: Marika <tobytoby99350@...>Rheumatoid Arthritis Sent: Sunday, June 7, 2009 3:50:31 PMSubject: Re: humira ?

>> , I haven't been on Humira but my rheumatologist said the same as yours> HaroldInstead of always giving advice, why dont you be a little more sensitive instead.Marika > From: rheumatoid_arthriti sgroups (DOT) com> [mailto:rheumatoid_arthriti sgroups (DOT) com] On Behalf Of > Sent: Sunday, June 07, 2009 9:52 AM> rheumatoid_arthriti sgroups (DOT) com> Subject: RE: [rheumatoid_ arthritis] humira ?> > Thanks for the link, Deborah. I've read it, and other links, but it doesn't> seem to say how long before it starts to work.my doc says to try it for at> least 3 months. I'm on month 2, so we'll see. > > Thx.> > > > > > .> > > <http://geo.. com/serv? s=97359714/ grpId=1382530/ grpspId=17050616 10/msgId> =17410/stime= 1244393557/ nc1=3848644/ nc2=5741395/ nc3=5170420>>

June 8, 2009

Is there a moderator here?----- Original Message -----From: Marika <tobytoby99350@...>Date: Monday, June 8, 2009 1:04Subject: Re: humira ?Rheumatoid Arthritis > Please don`t bother me with your insults any more.> Haraold does not have a right to say > RA sure does teach pations,> and severely punishes impatience.i resent this remark.> I guess i was so wrong about you, thinking you cared.> I had pation with the medication i took, all i had was very bad > side effects,and almost died, but why should you care, i think > you rather think i should have died.some people just can not > tolerate those powerful medications> others can not affort the price to pay for them ,so please dont > be so cold.> People in this support group need sympathy understanding,an ear > to listen to, maybe a shoulder to cry on ,that is why the are > reaching out,dont worry you will not hear me complain about my > pain any more,> maybe my dog will have more understanding for me than you do.> God be with you ( i guess you must not have Arthritis, because > otherwise you would understand.> So please don`twrite to me any more.i am not interested in your > insults to me ................> > > I guess i was wrong about you, you gave me a phony message> > I also have a right to give my opinion because the > medication works on him, that does not give him the right to > give advice like he is a Dr.> > I also had( pations) with one of the medications i took, and > it landet me in the hospital with pneumonia.i almost died , does > that give you satisfaction ??? does that make you happy ???> > I resent, him telling us RA severely punishes (impatience.) > every Person is different,i guess he is a lucky one, and he > should count his lucky stars> > i am glad for him.> > He always gives advices, and i think it is wrong, he should > show a little sympathy instead to the poor suffering people out > there.he should thank God he is not suffering like some of us > do, so think what you want of me, because i can tell you are > also not a sensitive person > > > ***********************************************************************> >> > > Marika, Why are you being so harsh with Harold? He's trying > to help others. I don't see why you think he was being > insensitive. We shouldn't rip others apart. > > > > > > > > > > > > > > > ________________________________> > > From: Marika <tobytoby99350@>> > > Rheumatoid Arthritis > > > Sent: Sunday, June 7, 2009 3:50:31 PM> > > Subject: Re: humira ?> > > > > > > > > > > > > > > > > > > > > >> > > > , I haven't been on Humira but my rheumatologist said > the same as yours> > > > > > > Harold> > > > > > Instead of always giving advice, why dont you be a little > more sensitive instead.> > > Marika > > > > > > > From: rheumatoid_arthriti sgroups (DOT) com> > > > [mailto:rheumatoid_arthriti sgroups (DOT) com] On Behalf > Of > > > > Sent: Sunday, June 07, 2009 9:52 AM> > > > rheumatoid_arthriti sgroups (DOT) com> > > > Subject: RE: [rheumatoid_ arthritis] humira ?> > > > > > > > Thanks for the link, Deborah. I've read it, and other > links, but it doesn't> > > > seem to say how long before it starts to work.my doc says > to try it for at> > > > least 3 months. I'm on month 2, so we'll see. > > > > > > > > Thx.> > > > > > > > > > > > > > > > > > > > > > > > .> > > > > > > > > > > > <http://geo.. com/serv? s=97359714/ grpId=1382530/ > grpspId=17050616 10/msgId> > > > =17410/stime= 1244393557/ nc1=3848644/ nc2=5741395/ nc3=5170420>> > > >> > >> >> > >

June 8, 2009

Harold has always given excellent advice. This is from his own experiences and what he has read and researched. I have theid humira and it took three months to feel any relief. That is what is meant by patience and impatient. I was impatient for the drug to work and learned to be patient and relief may come.

If you don't like what is said here, why don't you leave?

Vicki

From: Marika <tobytoby99350@...>Rheumatoid Arthritis Sent: Sunday, June 7, 2009 3:46:35 PMSubject: Re: humira ?

> HaroldDood for youjust because a medication is working for you, it is so sad you telling us RA does teach patience, and severely punishes impationsyou dont seem like a sensitive person to me,you are not a Dr , so what gives you the right to criticeEvery person reacts to a medication differently.for some it works, for otheres it does not.dissapointedMarika> From: rheumatoid_arthriti sgroups (DOT) com> [mailto:rheumatoid_arthriti sgroups (DOT) com] On Behalf Of > Sent: Sunday, June 07, 2009 9:52 AM> rheumatoid_arthriti sgroups (DOT) com> Subject: RE: [rheumatoid_ arthritis] humira ?> > Thanks for the link, Deborah. I've read it, and other links, but it doesn't> seem to say how long before it starts to work.my doc says to try it for at> least 3 months. I'm on month 2, so we'll see. > > Thx.> > > > > > .> > > <http://geo.. com/serv? s=97359714/ grpId=1382530/ grpspId=17050616 10/msgId> =17410/stime= 1244393557/ nc1=3848644/ nc2=5741395/ nc3=5170420>>

June 8, 2009

In a message dated 6/8/09 10:37:01 AM, angelac71@... writes:

I think we should all just let it slide what Marika is saying right now and have some sympathy for her. Marika I hope you find something that works for you.

__________________________________________

I was diagnosed with RA 25 years ago. I also have psoriatic arthritis and was recently diagnosed with osteoartritis. Although I am not in a wheelchair, current x-rays show damage from RA in my hands and feet to be severe.

I do not tell you this for sympathy. I don't want sympathy from anyone. What I want people on this list to realize is that I have had the disease for a long time and I know what many people are going through, including Marika. There are times when the disease just turns a person inside out and it is difficult to cope. When she read that the disease "teaches patience," that was the straw that broke the camel's back. Marika is frustrated, angry and in pain and those words set her off. Whether it was appropriate or inappropriate, does not matter. What matters is that Marika is hurting.

I hope that Marika does not unsub from the list. I always read her emails and especially enjoy hearing about her little dog. I care about you Marika, I really do, and I hope that we can all move past this. Looking back at the often times cruel nature of our disease, it's a wonder there isn't more infighting among us.

Harold says that he appreciates his defenders but also has sympathy for Marika. Can't we all do the same?

Clear skies,

BeingIrish

**************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1222585043x1201462775/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=62 & bcd=JunestepsfooterNO62)

June 8, 2009

Isn't it obvious to everyone that Marika is having a really hard time finding something that works for her that is not making her deathly ill. She is just venting and unfortunatly it was on Harold. We all love and admire Harolds help and know that is repeatedly tells us that he is not a doctor or medically trained. I think we should all just let it slide what Marika is saying right now and have some sympathy for her. Marika I hope you find something that works for you. Have you thought of seeing someone like a therapist to talk to so you can vent there. If not feel free to vent here but please try to think of others feelings also. I hate to see the attacks on each other in this group. Harold is a very sensitive person or he wouldnt post and try to help others. He was just stating that you cant expect and

overnight miracle with RA meds and you have to have patients to find out if it works. Most RA meds will take a few months or longer to get positive results..If you are feeling worse on the meds however stop taking them. You should start feeling some little relief when you start them but the meds are not a cure.

From: Vicki Hoyt <dvhoyt@...>Subject: Re: Re: humira ?Rheumatoid Arthritis Date: Monday, June 8, 2009, 9:48 AM

Harold has always given excellent advice. This is from his own experiences and what he has read and researched. I have theid humira and it took three months to feel any relief. That is what is meant by patience and impatient. I was impatient for the drug to work and learned to be patient and relief may come.

If you don't like what is said here, why don't you leave?

Vicki

From: Marika <tobytoby99350>rheumatoid_arthriti sgroups (DOT) comSent: Sunday, June 7, 2009 3:46:35 PMSubject: [rheumatoid_ arthritis] Re: humira ?

> HaroldDood for youjust because a medication is working for you, it is so sad you telling us RA does teach patience, and severely punishes impationsyou dont seem like a sensitive person to me,you are not a Dr , so what gives you the right to criticeEvery person reacts to a medication differently.for some it works, for otheres it does not.dissapointedMarika> From: rheumatoid_arthriti sgroups (DOT) com> [mailto:rheumatoid_arthriti sgroups (DOT) com] On Behalf Of > Sent: Sunday, June 07, 2009 9:52 AM>

rheumatoid_arthriti sgroups (DOT) com> Subject: RE: [rheumatoid_ arthritis] humira ?> > Thanks for the link, Deborah. I've read it, and other links, but it doesn't> seem to say how long before it starts to work.my doc says to try it for at> least 3 months. I'm on month 2, so we'll see. > > Thx.> > > > > > .> > > <http://geo.. com/serv? s=97359714/ grpId=1382530/ grpspId=17050616 10/msgId> =17410/stime= 1244393557/ nc1=3848644/ nc2=5741395/

nc3=5170420>>

June 8, 2009

Marika,

Please do not write to me anymore since you just keep insulting me. If anyone is curious what happened, I stuck up for Harold and she wrote me a nasty email. I replied to her privately, not thinking this was a group issue but just to make sure I did not do anything insevsative, I have included what I wrote to her after her email. I feel sorry for you Marika. We all care about the people who are in pain and that is why I felt it was inexcusable for you to rip on Harold. Research is good and so are life experiences. I am just in the early stages of the disease and I appreciate all of the support people have to offer. To ask if I ever cared about my mother is just downright mean. Read your own emails to us all and you will see that you are the one being insensitive. Good luck. I hope you find a group that better meets your needs.

Jean

My previous email which came after receiving a nasty email for just sticking up for Harold.

Wow Marika. I'm not a sensative person?! You just really hurt my feelings and you made me cry. I am the one who asked you what part of the country you lived in when you said that you needed surgery to see if anyone from this group could help you. I can't believe how mean your email was. I'm sorry that you are in pain and so bitter but people come to this site for information, advice and support. I thought you were pretty rough on Harold, who was trying to help. How could you ask me if I'm satisfied that you almost died from pheumonia? My mom died from pheumonia. I don't think that I've ever been so offended. All I did is said that we shouldn't rip on each other. This may sound insensative but you may want to reflect on how you talk to people. It might explain why you don't have any people close to you to help you. When you sent me an email

telling me that I made your day by showing that I cared, I showed it to my 11-year old daughter to show her how important it is to reach out to others. You really made me smile. I will not be showing her your last email. It does not teach a very good lesson.

Take care. I truely wish you well and that you find relief for your pain.

From: Marika <tobytoby99350@...>Rheumatoid Arthritis Sent: Monday, June 8, 2009 10:54:31 AMSubject: Re: humira ?

>another insult, but it is expected from you, i just have one question , did you ever care about your poor mom.because as cold as you are i keep wondering.so please for the last time, dont bother me anymore, as i will get out of this Group, and not read your garbage and Dr Herolds anymore.happy now.what a stone cold person you are.I wonder what Herolds Dr would think, knowing Herold is playing Dr on the Internet> > > Please don`t bother me with your insults any more.> > Haraold does not have a right to say > > RA sure does teach pations,> > and severely punishes impatience.i resent this remark.> > I guess i was so wrong about you, thinking you cared.> > I had pation with the medication i took, all i had was very bad > > side effects,and almost died, but why should you care, i think > > you

rather think i should have died.some people just can not > > tolerate those powerful medications> > others can not affort the price to pay for them ,so please dont > > be so cold.> > People in this support group need sympathy understanding, an ear > > to listen to, maybe a shoulder to cry on ,that is why the are > > reaching out,dont worry you will not hear me complain about my > > pain any more,> > maybe my dog will have more understanding for me than you do.> > God be with you ( i guess you must not have Arthritis, because > > otherwise you would understand.> > So please don`twrite to me any more.i am not interested in your > > insults to me ............ ....> > > > > > I guess i was wrong about you, you gave me a phony message> > > I also have a right to give my opinion because the >

> medication works on him, that does not give him the right to > > give advice like he is a Dr.> > > I also had( pations) with one of the medications i took, and > > it landet me in the hospital with pneumonia.i almost died , does > > that give you satisfaction ??? does that make you happy ???> > > I resent, him telling us RA severely punishes (impatience. ) > > every Person is different,i guess he is a lucky one, and he > > should count his lucky stars> > > i am glad for him.> > > He always gives advices, and i think it is wrong, he should > > show a little sympathy instead to the poor suffering people out > > there.he should thank God he is not suffering like some of us > > do, so think what you want of me, because i can tell you are > > also not a sensitive person > > > > >

************ ********* ********* ********* ********* ********* ********* *****> >> > > > Marika, Why are you being so harsh with Harold? He's trying > > to help others. I don't see why you think he was being > > insensitive. We shouldn't rip others apart. > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ __> > > > From: Marika <tobytoby99350@ >> > > > rheumatoid_arthriti sgroups (DOT) com> > > > Sent: Sunday, June 7, 2009 3:50:31 PM> > > > Subject: [rheumatoid_ arthritis] Re: humira ?> > > > > > > > > > > > > > > > > > >

> > > > > > > > > >> > > > > , I haven't been on Humira but my rheumatologist said > > the same as yours> > > > > > > > > Harold> > > > > > > > Instead of always giving advice, why dont you be a little > > more sensitive instead.> > > > Marika > > > > > > > > > From: rheumatoid_arthriti sgroups (DOT) com> > > > > [mailto:rheumatoid_ arthriti sgroups (DOT) com] On Behalf > > Of > > > > > Sent: Sunday, June 07, 2009 9:52 AM> > > > > rheumatoid_arthriti sgroups (DOT) com> > > > > Subject: RE: [rheumatoid_ arthritis] humira ?> > > > > >

> > > > Thanks for the link, Deborah. I've read it, and other > > links, but it doesn't> > > > > seem to say how long before it starts to work.my doc says > > to try it for at> > > > > least 3 months. I'm on month 2, so we'll see. > > > > > > > > > > Thx.> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > .> > > > > > > > > > > > > > > <http://geo.. com/serv? s=97359714/ grpId=1382530/ > > grpspId=17050616 10/msgId> > > > > =17410/stime= 1244393557/ nc1=3848644/ nc2=5741395/ nc3=5170420>> > > > >> > > >> > >> > > >

> >>

June 8, 2009

Please don’t be concerned about me because I have a very

thick skin. Marika obviously has severe problems with her RA and is

taking it out on me. I don’t know what I said to offend her and it

was not my intent, but I am willing to let it slide and to pray for her.

I do feel sorry for others including Marika but I also have enough ego that I

do not feel sorry for myself. Marika’s anger is her problem unless

I choose to make it mine, and I do not choose to do that. Please just

drop this subject. I do appreciate my defenders but I also sympathize

with Marika. God bless.

From: