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I have been on methotrexate for at least 6 years, no side affects from it.  Also

Remicade, cant say it has been a problem either.  The methotrexate definitely

gave me a new lease on life.  I am not familiar w/ the Humira to speak on it.

Really as far as BAD affects, I've only had side affects from the prednisone,

but that was due to large doses at one time.  I can tell whenever I have to

raise the dose.  And the pred again does me a world of good, I could not live

anywhere near as close to a normal life w/o it.  Yes, it also makes me " moodier,

hot flashes, hotter natured, insomnia "  -or maybe that's when I forget the

Premarin.

Hang in there and keep pestering your doctor until you find something that helps

YOU.

It's out there, it may take time to find it.  Don't forget the non-medical

aspects of managing this disease too.  They are JUST as important-pace yourself,

rest, make your tasks easier, prioritize, what is important to YOU and go for

it.

I have had RA since I was a teenager.  My mother had very symptomatic SLE, she

passed away at 69.  My RA is fortunately not bone invasive, but is widespread

(almost all joints) and also affects my kidneys, lungs, eyes, and CNS.   I am by

nature a very active " outdoorsy " athelete and a mixed animal veterinarian.  The

RA became much more active about 6 years ago and took away alot of my physical

abilities, but life is certainly still very rewarding, I just can't take it for

granted and have had to make some pretty big compensations for the disease. 

(Like learn to say NO!)

Best of luck to you.

From: shannonvc <shannonvc@...>

Subject: [ ] Re: Prednisone

Date: Sunday, July 20, 2008, 10:21 AM

Shandi...I am worried about all they meds that I have recently been

on but I have seen that a lot of people say they are on prednisone

long term and nothing about the other meds. I am currently still in

pain but the rh doesnt want the dosage on the pred to be over 10mg a

day. She had me on 15mg for 2 weeks but she is doesnt want me to go

any higher for right now. she wants to see when the other meds start

working. I am on 8 pills for mtx plus humira. she also has me on

folic acid for the ill effects of mtx. this whole thing make me feel

stupid and i really cant research since i can only spend some much

time typing. my RA started in my wrists and hands and moved thruout

my body. thanks for your info and help - it means a lot to me. i

feel so alone in this and it is getting overwhelming. also thank you

for the part about pred and hormones. i often feel like it messes

with my hormones. i get like hot flashes and moody. almost like my

time of the month. noone has said anything about that.

> >

> > From: patandpaula <patandpaula@ sbcglobal. net>

> > Subject: Re: [ ] Prednisone

> > @gro ups.com

> > Date: Saturday, July 19, 2008, 12:54 PM

> >

> > , I would say the lack of appetite is the plaquenil, I a m

no

> expert but if you stay on Pred only a month, you should be ok. But

> Ive been on it seven months and can't get off; I hate it and wish I

> had tried other drugs first. a

> > [ ] Prednisone

> >

> > Hey gang! Hope everyone is having as good a day as possible! My

rh

> dr

> > put me on prednisone two weeks ago trying to get the swelling

under

> > control. No dice! I've gone through the first two weeks and he

> wants to

> > extend it another two weeks. I have heard about becoming

dependant

> on it

> > and was wondering what it was all about? And one other thing. I

am

> not

> > sure if it is the plaquenil or the pred. but I can go hours and

> hours

> > with no appetite at all and then at some point I feel like I need

> food

> > NOW! It is almost like I had gone days without food. I eat a

little

> > bit and it is over. Any ideas anyone?

> >

> > wendy [:)]

> >

> >

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Methotrexate and Humira are great drugs for RA. Of course they don't

work for everyone, unfortunately. Hopefully they will work for you, and

you'll need to take the prednisone just for a few months until the

other drugs kick in.

Sue

On Saturday, July 19, 2008, at 09:17 PM, shannonvc wrote:

> I was just diagnosed RA in Feb 08 and my rh put me on prednisone

> right away because celebrex and stuff wasnt working. I am guessing I

> should be concerned?????? The drs havent said anything about

> dependence on it and the glaucoma issues. I am taking prednisone,

> methotraxate and humira. Is there better meds I should be taking.

> Any information you could supply me would be great. Thank you so

> much -

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You definitely can get moody from prednisone.  Once I hit about 8MG I turn

into a rabid female dog :)  I snap, I feel like I am ready to bust out of my

skin...and I get active and want to clean everything.  You can get hot flashes

and flushing.  None of this isn't at all uncommon.  And yes, prednisone does

have a lot of common side effects.  With that said, as I stated before, there

are definitely exceptions.  But I also agree with doctors that less is best. 

Since it is a hormone, you definitely don't want more than you need because of

the effects.  I feel most doctors are aware of this and are careful with

prednisone.  The key is low dose.

 

My son is a type 1 diabetic so I know there are particular issues in regards to

steriod drugs and certain illnesses.  He has had to have prednisone a few times

to help with poison ivy and it seriously drives up his blood glucose levels. 

Information is key, but with any medicine we can't let the side effects

overwhelm us.  Of course, this is coming from someone who will not be put on

Rituxin because the warnings scare the heck out of me.  So take it with the

grain of salt ;)

 

Shandi

From: shannonvc <shannonvc@...>

Subject: [ ] Re: Prednisone

Date: Sunday, July 20, 2008, 11:21 AM

Shandi...I am worried about all they meds that I have recently been

on but I have seen that a lot of people say they are on prednisone

long term and nothing about the other meds. I am currently still in

pain but the rh doesnt want the dosage on the pred to be over 10mg a

day. She had me on 15mg for 2 weeks but she is doesnt want me to go

any higher for right now. she wants to see when the other meds start

working. I am on 8 pills for mtx plus humira. she also has me on

folic acid for the ill effects of mtx. this whole thing make me feel

stupid and i really cant research since i can only spend some much

time typing. my RA started in my wrists and hands and moved thruout

my body. thanks for your info and help - it means a lot to me. i

feel so alone in this and it is getting overwhelming. also thank you

for the part about pred and hormones. i often feel like it messes

with my hormones. i get like hot flashes and moody. almost like my

time of the month. noone has said anything about that.

> >

> > From: patandpaula <patandpaula@ sbcglobal. net>

> > Subject: Re: [ ] Prednisone

> > @gro ups.com

> > Date: Saturday, July 19, 2008, 12:54 PM

> >

> > , I would say the lack of appetite is the plaquenil, I a m

no

> expert but if you stay on Pred only a month, you should be ok. But

> Ive been on it seven months and can't get off; I hate it and wish I

> had tried other drugs first. a

> > [ ] Prednisone

> >

> > Hey gang! Hope everyone is having as good a day as possible! My

rh

> dr

> > put me on prednisone two weeks ago trying to get the swelling

under

> > control. No dice! I've gone through the first two weeks and he

> wants to

> > extend it another two weeks. I have heard about becoming

dependant

> on it

> > and was wondering what it was all about? And one other thing. I

am

> not

> > sure if it is the plaquenil or the pred. but I can go hours and

> hours

> > with no appetite at all and then at some point I feel like I need

> food

> > NOW! It is almost like I had gone days without food. I eat a

little

> > bit and it is over. Any ideas anyone?

> >

> > wendy [:)]

> >

> >

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Guest guest

As a type 2 diabetic, I can certainly testify to this! I was on it for

just a few months while waiting for mtx to take effect. When I learned

(on this list) all of the other side effects that it can cause, I

tapered off of it as soon as I could.

Prednisone has even been known to precipitate diabetes in some people.

On Sunday, July 20, 2008, at 04:10 PM, S. Pruitt wrote:

>  

> My son is a type 1 diabetic so I know there are particular issues in

> regards to steriod drugs and certain illnesses.  He has had to have

> prednisone a few times to help with poison ivy and it seriously drives

> up his blood glucose levels. 

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Hello,

I took prednisone for a while and had some bad side affects, and also with

plaquinil. Still searching for a good one, aside from methadone. Something for

the swelling and alos i am in the process of getting a new doctor.

 

Kris

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Hi

I am from AZ. I did went to Rh, But he is resinged have cancer him self last

year May. He did gave me Corisone shot my knees. But I have enogh.. I have heard

gain wright yes. It is worry me and clothes cost money...

Thank you inform us..

Jan from AZ

Loveandbear@...

@...: wendymp@...: Sat, 19 Jul 2008

15:25:01 +0000Subject: [ ] Prednisone

Hey gang! Hope everyone is having as good a day as possible! My rh drput me on

prednisone two weeks ago trying to get the swelling undercontrol. No dice! I've

gone through the first two weeks and he wants toextend it another two weeks. I

have heard about becoming dependant on itand was wondering what it was all

about? And one other thing. I am notsure if it is the plaquenil or the pred. but

I can go hours and hourswith no appetite at all and then at some point I feel

like I need foodNOW! It is almost like I had gone days without food. I eat a

littlebit and it is over. Any ideas anyone?wendy [:)][Non-text portions of this

message have been removed]

_________________________________________________________________

Time for vacation? WIN what you need- enter now!

http://www.gowindowslive.com/summergiveaway/?ocid=tag_jlyhm

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Guest guest

Hi I was went to RH dr last year he is resign due he is diagnosed.. I did have

some Corstone shot.. I have been had Arthristmy hands and knees and both

foot... I am 47 years old...

Jan from AZ

@...: shannonvc@...: Sun, 20 Jul 2008

01:17:38 +0000Subject: [ ] Re: Prednisone

I was just diagnosed RA in Feb 08 and my rh put me on prednisone right away

because celebrex and stuff wasnt working. I am guessing I should be

concerned?????? The drs havent said anything about dependence on it and the

glaucoma issues. I am taking prednisone, methotraxate and humira. Is there

better meds I should be taking. Any information you could supply me would be

great. Thank you so much - > > From: patandpaula <patandpaula@

sbcglobal. net>> Subject: Re: [ ] Prednisone> @gro

ups.com> Date: Saturday, July 19, 2008, 12:54 PM> > , I would say the lack

of appetite is the plaquenil, I a m no expert but if you stay on Pred only a

month, you should be ok. But Ive been on it seven months and can't get off; I

hate it and wish I had tried other drugs first. a > [ ] Prednisone> > Hey gang! Hope everyone is

having as good a day as possible! My rh dr> put me on prednisone two weeks ago

trying to get the swelling under> control. No dice! I've gone through the first

two weeks and he wants to> extend it another two weeks. I have heard about

becoming dependant on it> and was wondering what it was all about? And one other

thing. I am not> sure if it is the plaquenil or the pred. but I can go hours and

hours> with no appetite at all and then at some point I feel like I need food>

NOW! It is almost like I had gone days without food. I eat a little> bit and it

is over. Any ideas anyone?> > wendy [:)]> > [Non-text portions of this message

have been removed]> >

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Guest guest

Hi I was went to RH dr last year he is resign due he is diagnosed.. I did have

some Corstone shot.. I have been had Arthristmy hands and knees and both

foot... I am 47 years old...

Jan from AZ

@...: shannonvc@...: Sun, 20 Jul 2008

01:17:38 +0000Subject: [ ] Re: Prednisone

I was just diagnosed RA in Feb 08 and my rh put me on prednisone right away

because celebrex and stuff wasnt working. I am guessing I should be

concerned?????? The drs havent said anything about dependence on it and the

glaucoma issues. I am taking prednisone, methotraxate and humira. Is there

better meds I should be taking. Any information you could supply me would be

great. Thank you so much - > > From: patandpaula <patandpaula@

sbcglobal. net>> Subject: Re: [ ] Prednisone> @gro

ups.com> Date: Saturday, July 19, 2008, 12:54 PM> > , I would say the lack

of appetite is the plaquenil, I a m no expert but if you stay on Pred only a

month, you should be ok. But Ive been on it seven months and can't get off; I

hate it and wish I had tried other drugs first. a > [ ] Prednisone> > Hey gang! Hope everyone is

having as good a day as possible! My rh dr> put me on prednisone two weeks ago

trying to get the swelling under> control. No dice! I've gone through the first

two weeks and he wants to> extend it another two weeks. I have heard about

becoming dependant on it> and was wondering what it was all about? And one other

thing. I am not> sure if it is the plaquenil or the pred. but I can go hours and

hours> with no appetite at all and then at some point I feel like I need food>

NOW! It is almost like I had gone days without food. I eat a little> bit and it

is over. Any ideas anyone?> > wendy [:)]> > [Non-text portions of this message

have been removed]> >

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Hi Jan. Thanks for your response. I hope you have found a good rheum.

dr. I hope you are feeling better soon.

wendy

> Hi

> I am from AZ. I did went to Rh, But he is resinged have cancer him

self last year May. He did gave me Corisone shot my knees. But I have

enogh.. I have heard gain wright yes. It is worry me and clothes

cost money...

> Thank you inform us..

> Jan from AZ

> Loveandbear@...

>

>

>

>

> @...: wendymp@...: Sat, 19 Jul 2008 15:25:01

+0000Subject: [ ] Prednisone

>

>

>

>

> Hey gang! Hope everyone is having as good a day as possible! My rh

drput me on prednisone two weeks ago trying to get the swelling

undercontrol. No dice! I've gone through the first two weeks and he

wants toextend it another two weeks. I have heard about becoming

dependant on itand was wondering what it was all about? And one other

thing. I am notsure if it is the plaquenil or the pred. but I can go

hours and hourswith no appetite at all and then at some point I feel

like I need foodNOW! It is almost like I had gone days without food.

I eat a littlebit and it is over. Any ideas anyone?wendy [:)][Non-

text portions of this message have been removed]

>

>

>

>

>

> _________________________________________________________________

> Time for vacation? WIN what you need- enter now!

> http://www.gowindowslive.com/summergiveaway/?ocid=tag_jlyhm

>

>

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  • 7 months later...

New to this. Taking Remicade, Methotrexate and Prednisone. Weight gain

is a problem. But, doc keeps the Prednisone going. Kinda afraid to

stop. Afraid of joints not affected by RA will start hurting. Been on

Prednisone since September when diagnosed. Any suggestions?

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  • 1 month later...
Guest guest

I started out the same way (40 mg Prednisone daily) and we kept

increasing the dose of Remicade and decreasing the time between

infusions. When we got to 6 mg/kg infusions every 6 weeks I was finally

able to get off the Prednisone. I have also been taking Methotrexate all

the time with as much as 25 mg once a week. Now after about 7 years I

have stabilized and decreased doses so I am now on 3 mg/kg Remicade every 10

weeks and 10 mg Methotrexate weekly. It can take a long time for the

medications to reach maximum effectiveness so we have to learn patience. I

hope you can have similar success. God bless.

From: Rheumatoid Arthritis

[mailto:Rheumatoid Arthritis ] On Behalf Of nhensl

Sent: Wednesday, February 25, 2009 7:48 AM

Rheumatoid Arthritis

Subject: Prednisone

New to this. Taking Remicade, Methotrexate and

Prednisone. Weight gain

is a problem. But, doc keeps the Prednisone going. Kinda afraid to

stop. Afraid of joints not affected by RA will start hurting. Been on

Prednisone since September when diagnosed. Any suggestions?

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.287 / Virus Database: 270.11.58/2061 - Release Date: 04/16/09

08:12:00

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  • 1 month later...
Guest guest

That's actually a very low dose of prednisone, and you're only doing it for a

short burst of time, so getting off of it should be no problem. This has

usually been the dosage that my doctor has prescribed for me, except when I'm in

a long flare, he keeps me on it. I tend to be sensitive to prednisone and can't

tolerate a dosage over the 15mg. That said, I've not had any trouble coming

down off of it as he tapers me very slowly. I've been on prednisone since

December and am now working to 2.5mg every other day. This is only because

we've had such a hard time getting this flare under control. I expect to be

completely off of it in July.

Lori

http://home.comcast.net/~queenstitcher/

http://stitchingqueen.multiply.com

[ ] Prednisone

Hi All,

New to the group. I was misdiagnosed (as having polymyalgia rheumatica) and

then 6 months later it became obvious I had RA since my fingers started getting

bent, and I couldn't close my hands. My new rheumy is putting me on prednisone

(15mg first week, 10mg next, then 5mg and stay on 5mg). After a while he will

switch me to a less dangerous med.

I've taken the prednisone two days so far. No reaction good or bad yet of

course. The doctor told me my appetite would likely increase. I've also heard

that this med can make you " jumpy, " and am aware of more serious side effects

from long term use. And I know it's a hassle to get off prednisone.

Wondering what experiences people have had at the type of doses listed above

-- good and bad.

Best to everyone,

Ira Brightman

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  • 1 year later...

Prednisone caused me mood swings. I would feel angry for no reason, then

depressed and not know why. The mood swings were so bad I had to stop taking

it- that and the fact that I gained weight. Of course, I am diagnosed with

bipolar disorder (but had been stable on my medication without mood swings

for years) until I took the prednisone. Mood problems went away a few days

after I stopped taking it, so I'm pretty sure its the prednisone. The doctor

said it could cause that problem in some people.

On Wed, Jan 26, 2011 at 9:36 AM, jane <janeatregis@...> wrote:

>

>

> hi billie, you have another Texas girl here. My name's jane, I'm from the

> Dallas area. I was on prednisone for several years and it really helped (I'm

> 54, diagnosed about 20 yrs ago.) they had to take me off of it because I

> developed diabetes. Wish i could still take it. Welcome to the group, they

> are a great bunch of folks, we really are the RA family.

> Blessings and best wishes to you!

> jane

>

>

>

> >

> > Hi I am new to the group, and to RA,I am 75, and take blood thinners

> > my Doctor put me on low dose prednisone, has anyone tried this,

> > i sure like this group lots of information, thanks Billie from Texas

> >

>

>

>

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