(No subject)

[Guest guest]

Hello Kathy,

I am fine now, thank you. I don't know what the lumps are on the top of

your mouth.

I hope work turns out well for you which ever way it ends up going. All you

can do is give it your best shot. It is basically out of your hands now

anyhow. Either you can or can't. So try not to stress too much on it, that

just makes something worse that you have no control over anyhow. If you

can't do it, no biggie, bcs somehow it WILL work out and you WILL be fine!

Hugs & Smiles,

~Rainy Sue

----- Original Message -----

> sorry to hear you have been so sick rainy sue!!i hope you do let them know

> how ill you were. has it happened all the time? i was thinking of starting

> remicade. i go see my rheumi again on thursday, also i have lumps on the

roof

> of my mouth. i know i have read about them here before. what is it again?

i

> have been trying to rest as much as possible. i believe that she will send

me

> back to work probably next week. i really don't know if i can do it, but i

> guess it's time to try. we had easter dinner at my son's cousins. i really

> haven't seen my mom in laws family for a while. it was nice to visit. i

came

> home running a fever and about 15 miles from home i started to get dizzy,

but

> other than that it wasn't too bad.

> kathy

[Guest guest]

too bad we are so far apart. she said i would be all alone and i should bring

a movie, they have me in a lazy boy type chair and it is on wheels so i can

move around and go to the bathroom!!!

kathy

[Guest guest]

I get my 10th on the 8th of May. =)

~Rainy Sue

----- Original Message -----

> ok i went to the dr. she is gonna send me back part time starting the 1st.

> she laid out a whole lot of restrictions, and we'll see/ i've scheduled my

> 1st 3 remicade infusions starting on the 8th of may.

> kathy

[Guest guest]

they only do theirs on tues and wed. 9 am and 1 pm. so it gets taken up

really fast.

kathy

[Guest guest]

I have a lazy boy type chair on wheels but it isn't bathroom transportation.

I have to walk and drag the IV with me. And it's a long walk when you're

dragging that thing and have to go! We also have a TV but it is NEVER turned

on! Much to my dismay. Bcs most people prefer to sleep and read. Most of

them are on benedryl anyhow and are zonked out in about 30 minutes.

Otherwise, I visit with the ones that are awake and the nurses. I am

currently emailing one of them. I'm kinda her pet! When one of the nurses

asked what day was good for me for my next appt. said TUESDAY! Bcs she

works those days. hehe.. She even had me come back in the nurses area while

she ate lunch. =)

Be sure and take snacks with ya!

~Rainy Sue

[Guest guest]

we don't know how he did it. he worked 10 hrs on sunday. dr said that

probably did it. remicade is wonderful. i was so surprised how quick i felt

so good, and it was a beautiful day so i overdid it, of coarse!!!!what a

wonderful drug. it was so nice to be able to move outside this bent body!!! i

would say it seems my neck is the sorest from holding my head high for a

change!!! i even did me a little hoe-down!!! maybe i did overdo it. but it

felt so nice!!! i walked probably close to 3 miles today!!!!

kathy

[Guest guest]

Kathy,

Sorry you're feeling so bad. I don't know how you drag

yourself to work when you feel so bad. I hope the remicade

helps tomorrow. How did your son tear ligaments? Ouch!

They take a long time to heal.

hugs,

a

[Guest guest]

Hi Kathy,

You are having your share of problems. I hope things get better, try to

rest and let us know how things are going.

Me Mom

----------

> From: kringlemom@...

>

> Subject: [ ] (no subject)

> Date: Monday, May 07, 2001 8:52 PM

>

> well i knew when i couldn't stand long enough to get dressed and put on

my

> makeup, that i should stay home from work. i called in. my son got up and

> said his knee hurt.

> the next thing i know he says it feels like it's out of place and he is

in

> tears. so i spent the morning in the e/r. they said torn ligaments. gave

him

> a huge knee brace and crutches!! i have to take him to the ortho on

wednesday

> morning. i am in so much pain. i hope remicade works tomorrow. i figured

> today at the hospital. tomorrow is remicade, wednesday is ortho and

friday is

> gyne!!! geez!!!

>

>

>

>

> kathy

>

>

[Guest guest]

Kathy,

I'm sorry you are having such a bad time lately. Will say a prayer

that the rash goes away and you will feel more comfortable. The only

vulture position I see here is the one your employer is in.

Hang in there.

Sylvia

> well, yesterday was probably one of the worse days i have had in

awhile. i

> can really feel the remicade wearing off. my neck is getting back

to the

> vulture position and it is very uncomfortable. it also feels like

my spine is

> twisting. i was going to go in today for 4 hours, but have decided

against it

> after yesterday.really makes you think about quality of life. i can

feel like

> this and make $50 less a check. i was so dizzy. betty fisher again

asking me

> what i am doing there? hello... you guys called me and told me i

was too

> young to " give up " . she says you drive like that? i told her i

wonder why

> almost every day. i went to jewel after work. i was so dizzy i

thought i was

> gonna have to call shelli to come and get me, it's like it's

starting all

> over again. i hate this. i was looking forward to my next

treatment and this

> morning while putting some lotion on my feet. i noticed my shins

have a rash

> all over. i told myself this is from using the cheap dollar store

razor for

> the millionth time. but then i noticed it's all over my forearms

too. so i

> guess i'd better call her today and let her know. i will see if the

nurse

> will look at it on tuesday. it doesn't itch yet. but if they pump

another 400

> mgs on tuesday i may be a very unhappy camper. i also found the

right files

> to delete and have a piece of the pie. i want my

remicade!!!!!!!!!!!!!!

>

>

>

>

>

>

kathy

>

>

>

>

>

>

kathy

[Guest guest]

I'm not the only one who growels!! And I'm not the only one whgo

get's the run around. I don't feel so bad now. I'm also PMSing, is

that allowed?

> i find myself GRRRRRing alot lately too!!!! between getting the run

around

> about where they will put me and what i will do, my son flunked

drivers ed

> due to a prank and suspension from school. every time i have to

drive him or

> change my plans to drive him. GRRRR!! he was out after 11pm last

night!!

> hello school nite, finals. GRRRR!!! again i heard comments that oh i

feel

> dizzy like kathy, i need to go home too. ok i ran a fever for the

past 2

> days. i still went to work. do they really think i would be sitting

in a dr's

> office getting an iv if this was a joke?!?!? i really think it's a

joke while

> i try t pay my phone bill, medical bills, rent, and all the other

bills

> .plus try to buy the meds they want me to take. peolpe at work were

thinking

> i was getting partial disability. no....this is what someone expects

me to

> live on. then i called dan's dr to make a follow up appt after his

e/r visit.

> the dr's office moved last week. the insurance says if i go to him

at this

> location, he will be out of network!!! we were just referred there

by them 3

> weeks ago!!!!!GRRRRR!!!!!!!

>

>

>

>

>

>

[Guest guest]

Hi:

I changed your subscription to no email now - I think that is what

you wanted right? I didn't un-subscribe you - just changed you to no

emails.

Congrads to your DOCgrad son!!!

Debbie Abby's mom DOCgrad 6/22/01

MI

> Please delete me from the mail now.

> My son is now graduated from his DOC band. The web site has been

great.

> I have recommended it to other people.

> amyjamiewhite@a...

[Guest guest]

Why is Jesus better than Santa Claus?

 

Santa lives at the North Pole ...

JESUS is everywhere.

Santa rides in a sleigh ...

JESUS rides on the wind and walks on the water.

Santa comes but once a year ...

JESUS is an ever present help.

Santa fills your stockings with goodies ...

JESUS supplies all your needs.

Santa comes down your chimney uninvited ...

JESUS stands at your door and knocks, and then enters

your heart when invited.

You have to wait in line to see Santa ...

JESUS is as close as the mention of His name.

Santa lets you sit on his lap ...

JESUS lets you rest in His arms.

Santa doesn't know your name, all he can say is

"Hi little boy or girl, what's your name?" ...

JESUS knew our name before we were born.

Not only does He know our name,

He knows our address too.

He knows our history and future and

He even knows how many hairs are on our heads.

Santa has a belly like a bowl full of jelly ...

JESUS has a heart full of love

All Santa can offer is HO HO HO ...

JESUS offers health, help and hope.

Santa says "You better not cry" ...

JESUS says "Cast all your cares on me for I care for you."

Santa's little helpers make toys ...

JESUS makes new life, mends wounded hearts, repairs

broken homes and builds mansions.

Santa may make you chuckle but ...

JESUS gives you joy that is your strength.

While Santa puts gifts under your tree ...

JESUS became our gift and died on a tree.... The cross.

We need to put Christ back in CHRISTmas,

Jesus is still the reason for the season.

For God so loved the world, that He gave His only

begotten Son, that whosoever believeth in Him should not

perish, but have everlasting life.

3:16

 

[Guest guest]

True.

This is quite well known issue for vegans, and all one has to do to avoid

this problem is take the occasional supplement, which is widely available.

>From: kimlynette@...

>Reply-

>

>CC: optimalnutrition@...

>Subject: [ ] (no subject)

>Date: Sat, 7 Feb 2004 04:01:06 EST

>

> " The other supplement that is critical for individuals who choose not to

>eat

>animal protein is vitamin B12. Vegetarism is not a very wise choice in my

>opinion, but nevertheless a common approach, even among many readers of

>this

>newsletter. Fortunately, the human body is quite forgiving and can tolerate

>this

>abuse for about 7 years with liver reserves of B12. But, after that time,

>the

>B12 deficiency frequently causes irreversible brain damage. "

>From Mercola.com....

>I know he is a quack about a lot of things...but any comments on this

>interesting quip?

[Guest guest]

I am not sure what was wrong with the address I typed in, but here goes again:

http://www.chronicneurotoxins.com/

Stacey

[Guest guest]

I am not sure what was wrong with the address I typed in, but here goes again:

http://www.chronicneurotoxins.com/

Stacey

[Guest guest]

a

Thank you. I think its four days of prednisone, but I had to take it. I am soooo upset at how far back these antigen shots have sent me.

Janet

[Guest guest]

I ended up in the ER last night because of my reaction to the antigen shots I was taking. My asthma came on with the rain like it used to. These have put me backwards in my recovery. They also found by chest Xray I have started bacterial pneumonia in the right lobe of my lung. So I left with prednisone for my reactions and Zithromax for the bacterial pneumonia.How much damage are these pills going to do to my already fragile system? I am so upset that these shots put me back to a year agos symptoms. I was recovered some just by leaving my job but still couldn't handle old building and damp days. Thanks,Janet

Janet, nothing is foolproof, but Zithromax is a pretty safe antibiotic. Hopefully they will give it to you long enough to treat the infection. The prednisone is another matter. It can make the infection worse as it suppresses the immune system. Hopefully you can get off it soon. Keep us posted on how you do.

a

[Guest guest]

a

Thank you. I think its four days of prednisone, but I had to take it. I am soooo upset at how far back these antigen shots have sent me.

Janet

[Guest guest]

I ended up in the ER last night because of my reaction to the antigen shots I was taking. My asthma came on with the rain like it used to. These have put me backwards in my recovery. They also found by chest Xray I have started bacterial pneumonia in the right lobe of my lung. So I left with prednisone for my reactions and Zithromax for the bacterial pneumonia.How much damage are these pills going to do to my already fragile system? I am so upset that these shots put me back to a year agos symptoms. I was recovered some just by leaving my job but still couldn't handle old building and damp days. Thanks,Janet

Janet, nothing is foolproof, but Zithromax is a pretty safe antibiotic. Hopefully they will give it to you long enough to treat the infection. The prednisone is another matter. It can make the infection worse as it suppresses the immune system. Hopefully you can get off it soon. Keep us posted on how you do.

a

[Guest guest]

WHY! did you HAVE! to take prednisone???? It is a very HORRIBLE drug with a list of side effects longer than an ape's arm! Why all the drugs? You are caught in the gears of "the system"! You would do much better on a bowel cleanse and a juice fast. Do a web search on Ann Wigmore's energy soup! Really! The "system" got you sick so please don't count on "the system" to get you well!

Blessings to you!!!!!!.............Betsy

Janet wrote:a Thank you. I think its four days of prednisone, but I had to take it. I am soooo upset at how far back these antigen shots have sent me.Janet

[Guest guest]

WHY! did you HAVE! to take prednisone???? It is a very HORRIBLE drug with a list of side effects longer than an ape's arm! Why all the drugs? You are caught in the gears of "the system"! You would do much better on a bowel cleanse and a juice fast. Do a web search on Ann Wigmore's energy soup! Really! The "system" got you sick so please don't count on "the system" to get you well!

Blessings to you!!!!!!.............Betsy

Janet wrote:a Thank you. I think its four days of prednisone, but I had to take it. I am soooo upset at how far back these antigen shots have sent me.Janet

[Guest guest]

janet,an experienced kinesiologist can desensitize

you-must have been the mold in the injections-ask

yourkinesiologist for the name of one that

desensitizes. k

--- Gingersnap1964@... <Gingersnap1964@...>

wrote:

> I ended up in the ER last night because of my

reaction to the antigen shots I

> was taking. My asthma came on with the rain like it

used to. These have put

> me backwards in my recovery. They also found by

chest Xray I have started

> bacterial pneumonia in the right lobe of my lung.

> So I left with prednisone for my reactions and

Zithromax for the

> bacterial pneumonia.

> How much damage are these pills going to do to my

already fragile system?

> I am so upset that these shots put me back to a

year agos symptoms. I

> was recovered some just by leaving my job but still

couldn't handle old building

> and damp days.

> Thanks,

> Janet

[Guest guest]

janet,an experienced kinesiologist can desensitize

you-must have been the mold in the injections-ask

yourkinesiologist for the name of one that

desensitizes. k

--- Gingersnap1964@... <Gingersnap1964@...>

wrote:

> I ended up in the ER last night because of my

reaction to the antigen shots I

> was taking. My asthma came on with the rain like it

used to. These have put

> me backwards in my recovery. They also found by

chest Xray I have started

> bacterial pneumonia in the right lobe of my lung.

> So I left with prednisone for my reactions and

Zithromax for the

> bacterial pneumonia.

> How much damage are these pills going to do to my

already fragile system?

> I am so upset that these shots put me back to a

year agos symptoms. I

> was recovered some just by leaving my job but still

couldn't handle old building

> and damp days.

> Thanks,

> Janet

[Guest guest]

Dr. S. could you post the study on LDN and its reverse of the tolerance to

opioids, if you have it I would be interested. I have MS and have been on

LDN for just over 3 month and have greatly decreased my pain. Was a 12

Advil a day man until LDN, now have taken only two in three months and for a

headache. My brother is bed-ridden with MS and heavily pain medicated. I

think if he could just get of the pain meds he could find some relief from

his MS. He will not try LDN as he is dependent on the pain meds.

Doug

----- Original Message -----

From: " Dr. RLS " <ursae@...>

<low dose naltrexone >

Sent: Tuesday, July 20, 2004 3:35 PM

Subject: [low dose naltrexone] (no subject)

> I am pursuing LDN to decrease tolerance to and increase the efficacy of

> opioid drugs for chronic pain, of which I suffer.. A recent study found

> that LDN reverses the tolerance and hyperalgesia caused by opioids. So

> when I see my MD next time I will show him the study and procure a

> script. Will apprise all of you the result, although it's not really

> germane to those of you suffering from MS. By the way, I've noticed

> discussions on increasing beta-endorphin. DL-Phenalalynine inhibits the

> degradation or metabolization of beta-endorphin in the cerebral cortex,

> thus acting as an analgesic by increasing endorphin in the brain. As

> you may know, DLPA is an essential amino acid and readily available in

> most health food stores. But it must be the DL form, not the L form.

> Good luck and I am very happy so many of you are responding so well to

> LDN. Dr. S.

>

>

>

>

>

>

[Guest guest]

Hi Doug,

Glad to help in any way I can. Briefly, I am licensed as a

Clinical/Forensic Psychologist in Alaska. One of my specialties is the

treatment of chronic pain, which includes hypnosis for pain control,

psychotherapy for the same and lifestyle/nutritional changes for pain

control. I have an MD I work closely with, to whom I refer patients for

opioid pain medications. He is also my personal doc. I presently take

80 mg. of oxycodone/day, 20 mg. QID. I have been through pain clinics

in Seattle, Portland, San Francisco, and LA. I have been on Methadone,

MS-Contin, Oxycontin, and all the regular short acting opioids. I do

not like the extended release formulations at all as they cause severe

insomnia but of even greater concern make me crazy and violent.. As an

aside, I am a Vietnam era combat veteran, and while taking the extended

release morphine, killed a large dog with an aluminum baseball bat. The

long acting formulations cause somnambulation and somnarticulation. I

woke up one night in the state of WA, upright, choking out my wife,

while in a full blown PTSD dream,with every intention of terminating

her. She managed to rouse me, wake me up, and when I realized what was

happening I fell apart big time, crying uncontrollably. I immediately

flushed all my remaining MS-Contin. The withdrawal syndrome I

experienced until I saw my MD again was minor and insignificant when

compared with the emotional pain I experienced from what might have

happened. In summary, I returned to the short acting oxycodone with no

problems whatsover. However this bring us to the crux of my note. I

want to be able to take less oxy with better analgesic effect. The

paper I referred to is a " News Release " dated 06/06/02 from the Albert

Einstein College of Medicine entitled, " Einstein Researchers Report on

Safer Narcotic Painkillers that Prevent Dependency, Withdrawal

Problems " I found it by running a Google search with something like,

" decrease opioid tolerance/hyperalgesia + supplements + medications "

Something like that. Please stay in touch and let me know if you find

any additional information. Hope this helps.

Robb Stokes, Ph.D., FACFEI

ursae@...