Still coming to grips

[Guest guest]

Well, last Friday I went to NC for a family reunion, scared to death as to how I

was going to handle a ride and getting around. Somehow I rose to the occasion.

The ride down was not bad and we only stopped three times, walked very slowly to

the rest room but had my 92 year old mother in law with me so we walked slow. I

got around ok, even went for a boat ride. Took the elevator in the hotel and

hurt the day after coming home. But this week has been better. I actually

washed the kitchen floor and cleaned and washed.

Maybe the medicine in now getting into my system, has been a month or just

coincidental. I have been trying also to do some stretches and even went for a

very short walk down the street with my dog. Mind over matter?

This has given me some hope but I know I still feel a little feeble. I know I

am still feeling that uncomfortable pain and going slow but I am trying to come

to grips with it. It does help when you stay at home in your own surroundings

but I felt like I made strides this week.

I also know this could be a mind game. I wait for the bottom to drop out. I

know you can have good days and bad. I cry every day, depression, but this week

I cried less. While these good days come you know you will have bad come again

and emotionally that up and down will be devasting.

I do still have a couple of questions that have popped in my head.

1. How do you know that you are getting the best care, you like to trust your

dr. but if you start with these lighter end drugs how do you know its best to go

slow and see what happens over taking a stronger drug to really nip it.

2. Are you all given tests to see if this drug regimen is hurting your organs?

3. If you wear a brace on your wrists does it help your mobility in your hands.

I only have one hand that gives me trouble but it is my right hand and I am

right handed so it really limits me.

Thanks for listening.

[Guest guest]

darlin, this stuff can go into remission and never get any worse that you are

now. or it could go on a downward spiral, at least that is what my doctor tells

me. the hardest thing is finding a doctor you trust. in my area i have from 4 to

choose from so i asked a couple health care people who they recomended and went

with him. he is very aggresive with his med regeme, with my aggrement. tuesday i

start embril. you have to trust your doctor, if you don't find another. i am a

bad pateint, i question everything and make him explain what he is doing and

why. i have standing order for blood tests @ my lab for tests. i have no

experiance with apliances like braces. you are going to have bad and good days

and you are going to get down. but your doctor can help with that. welbutrin

hels with the down and helps your perception of pain. hang in there, darlin, and

praying does help, at least for me.

MM

>

> Well, last Friday I went to NC for a family reunion, scared to death as to how

I was going to handle a ride and getting around. Somehow I rose to the

occasion. The ride down was not bad and we only stopped three times, walked

very slowly to the rest room but had my 92 year old mother in law with me so we

walked slow. I got around ok, even went for a boat ride. Took the elevator in

the hotel and hurt the day after coming home. But this week has been better. I

actually washed the kitchen floor and cleaned and washed.

>

> Maybe the medicine in now getting into my system, has been a month or just

coincidental. I have been trying also to do some stretches and even went for a

very short walk down the street with my dog. Mind over matter?

>

> This has given me some hope but I know I still feel a little feeble. I know I

am still feeling that uncomfortable pain and going slow but I am trying to come

to grips with it. It does help when you stay at home in your own surroundings

but I felt like I made strides this week.

>

> I also know this could be a mind game. I wait for the bottom to drop out. I

know you can have good days and bad. I cry every day, depression, but this week

I cried less. While these good days come you know you will have bad come again

and emotionally that up and down will be devasting.

>

> I do still have a couple of questions that have popped in my head.

>

> 1. How do you know that you are getting the best care, you like to trust your

dr. but if you start with these lighter end drugs how do you know its best to go

slow and see what happens over taking a stronger drug to really nip it.

>

> 2. Are you all given tests to see if this drug regimen is hurting your

organs?

>

> 3. If you wear a brace on your wrists does it help your mobility in your

hands. I only have one hand that gives me trouble but it is my right hand and I

am right handed so it really limits me.

>

> Thanks for listening.

>

>

>