Re: RA, ankylosing spondolitis, fibro, ostio

May 21, 2009

when I was told that I Have RA I was so mad then I began to think that I was blessed that I did not have Cancer so thank God you was not told that you have only 6 months to live.

From: maduroman_wcp <maduroman_wcp@...>Subject: RA, ankylosing spondolitis, fibro, ostioRheumatoid Arthritis Date: Monday, May 11, 2009, 4:38 PM

i have hit the jackpot. i take so many drugs so to be able to funtion that it sucks. i am so tired of not being able to do what i want when i want. it takes 2 days of planning to have a damn beer because of all the drugs i take. little by little i am losing the ability to do the things i want. befor i do anything i have to take the time and wonder if the pain i'm going to suffer is worth the enjoyment i'm going to get. walking has turned into a chore, from my feet hurting to my hips hurting. i have no flexability in my spine and my ribs don't expand, the pain in my uper spine and neck is a constant. and now my hands are starting to get so stiff that handling a knife is a chore. cooking was the way i depresured. thanks to this shit i don't even have that any more.thanks for letting me vent.Mad Man

May 21, 2009

Dear Mad Man

We all know how you feel, but don`t give into it.

Just tell yourself , i have Arthritis, but Arthritis does not have me

fight it with all your heart.

Enjoy the good days,

Take care

Marika

May 21, 2009

It sounds to me like your medications are not very effective for

you. Are you seeing a board-certified rheumatologist? If so, and if you are

following the doctor’s recommendations without success, I suggest a second

opinion. Most people with proper treatment don’t have as many troubles as you

do. I hope you get effective treatment. God bless.

From:

Rheumatoid Arthritis

[mailto:Rheumatoid Arthritis ] On Behalf Of maduroman_wcp

Sent: Monday, May 11, 2009 2:38 PM

Rheumatoid Arthritis

Subject: RA, ankylosing spondolitis, fibro, ostio

i have hit the jackpot. i take so many drugs so

to be able to funtion that it sucks. i am so tired of not being able to do what

i want when i want. it takes 2 days of planning to have a damn beer because of

all the drugs i take. little by little i am losing the ability to do the things

i want. befor i do anything i have to take the time and wonder if the pain i'm

going to suffer is worth the enjoyment i'm going to get. walking has turned

into a chore, from my feet hurting to my hips hurting. i have no flexability in

my spine and my ribs don't expand, the pain in my uper spine and neck is a

constant. and now my hands are starting to get so stiff that handling a knife

is a chore. cooking was the way i depresured. thanks to this shit i don't even

have that any more.

thanks for letting me vent.

Mad Man

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.339 / Virus Database: 270.12.35/2123 - Release Date: 05/20/09

06:22:00

May 23, 2009

i have a good doctor, but i am a bad patient. i do not like taking drugs at all

and i fight him on meds. pain pills are something that scares me, i don't need

dependance on them to add to my problems. i have been trying to get him to okay

celebrex but he says i have to many risk factors to take it. we been going back

and forth on humera and he has got me to say yes. this shit aint gonna beat me,

it's just that i get frustrated.

--- In Rheumatoid Arthritis , " Harold Van Tuyl " <hvantuyl@...>

wrote:

>

> It sounds to me like your medications are not very effective for you. Are

> you seeing a board-certified rheumatologist? If so, and if you are

> following the doctor's recommendations without success, I suggest a second

> opinion. Most people with proper treatment don't have as many troubles as

> you do. I hope you get effective treatment. God bless.

>

> From: Rheumatoid Arthritis

> [mailto:Rheumatoid Arthritis ] On Behalf Of maduroman_wcp

> Sent: Monday, May 11, 2009 2:38 PM

> Rheumatoid Arthritis

> Subject: RA, ankylosing spondolitis, fibro, ostio

>

> i have hit the jackpot. i take so many drugs so to be able to funtion that

> it sucks. i am so tired of not being able to do what i want when i want. it

> takes 2 days of planning to have a damn beer because of all the drugs i

> take. little by little i am losing the ability to do the things i want.

> befor i do anything i have to take the time and wonder if the pain i'm going

> to suffer is worth the enjoyment i'm going to get. walking has turned into a

> chore, from my feet hurting to my hips hurting. i have no flexability in my

> spine and my ribs don't expand, the pain in my uper spine and neck is a

> constant. and now my hands are starting to get so stiff that handling a

> knife is a chore. cooking was the way i depresured. thanks to this shit i

> don't even have that any more.

> thanks for letting me vent.

>

> Mad Man

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 8.5.339 / Virus Database: 270.12.35/2123 - Release Date: 05/20/09

> 06:22:00

>

May 23, 2009

Unfortunately unless you work with your doctor you don’t

have to worry about the disease beating you. You are beating yourself

instead. There are possible bad side effects with most medications but in

the unlikely event they happen most of these are reversible by stopping the

medication. On the other hand there is almost certain permanent joint

damage if you don’t treat the disease. I hope you choose to take

the medications. God bless.

From:

Rheumatoid Arthritis

[mailto:Rheumatoid Arthritis ] On Behalf Of maduroman_wcp

Sent: Friday, May 22, 2009 5:16 PM

Rheumatoid Arthritis

Subject: Re: RA, ankylosing spondolitis, fibro,

ostio

i have a

good doctor, but i am a bad patient. i do not like taking drugs at all and i

fight him on meds. pain pills are something that scares me, i don't need

dependance on them to add to my problems. i have been trying to get him to okay

celebrex but he says i have to many risk factors to take it. we been going back

and forth on humera and he has got me to say yes. this shit aint gonna beat me,

it's just that i get frustrated.

> From: Rheumatoid Arthritis

> [mailto:Rheumatoid Arthritis ]

On Behalf Of maduroman_wcp

> Sent: Monday, May 11, 2009 2:38 PM

> Rheumatoid Arthritis

> Subject: RA, ankylosing spondolitis, fibro, ostio

>

> i have hit the jackpot. i take so many drugs so to be able to funtion that

> it sucks. i am so tired of not being able to do what i want when i want.

it

> takes 2 days of planning to have a damn beer because of all the drugs i

> take. little by little i am losing the ability to do the things i want.

> befor i do anything i have to take the time and wonder if the pain i'm

going

> to suffer is worth the enjoyment i'm going to get. walking has turned into

a

> chore, from my feet hurting to my hips hurting. i have no flexability in

my

> spine and my ribs don't expand, the pain in my uper spine and neck is a

> constant. and now my hands are starting to get so stiff that handling a

> knife is a chore. cooking was the way i depresured. thanks to this shit i

> don't even have that any more.

> thanks for letting me vent.

>

> Mad Man

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 8.5.339 / Virus Database: 270.12.35/2123 - Release Date: 05/20/09

> 06:22:00

>

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.339 / Virus Database: 270.12.36/2126 - Release Date: 05/22/09

06:03:00

May 23, 2009

Hi- This post brought this issue home for me. While participating in

an RA support group many years past a man joined the group. He had

his spine, ankles and wrists fused. RA in men is so much more

devastating because Men dont have adequate estrogen to stave off

osteoporosis. If you can take a biologic in time, and get on a bone

builder like fosamax straight away, the odds are much better. Still

RA happens overnight in males. I am blessed with an over abundance of

estrogen and while I always cursed it, now I am very grateful.

Experiencing the pain and severe disability that you are, I can only

offer this advice. Quality versus Quantity. It is a life choice. As

RA advances and disables, even with a cocktail of medication we still

feel less, can do less, our senses diminish. Anything and I do mean

anything you can do to bring you joy and a respite to take yourself

out of your body and your mind for a bit, do it. Drink that beer.

Relish it. Splurge on a jacuzzi or go to a heated pool to relax your

muscles and give your body a rest from its own weight. Be good to

yourself. Sit by the lake or ocean, watch a favorite movie, go to

your favorite restaurant and try to forget for a little while the

realities that are with you all the time.

Yours, Deborah

On Mon, May 11, 2009 at 5:38 PM, maduroman_wcp <maduroman_wcp@...> wrote: