Enbrel

[Guest guest]

Good luck to you Kathe! Enbrel has helped me a lot, even though I am

having

trouble getting used to the 50 mg dose which I just started about a

month

ago. Is that the one you will taking when you start it again? I hope

it

" kicks in " for you right away!

--- In , Kathe Sabetzadeh <lv2ryd@y...>

wrote:

> Hi All:

>

> Some of you who have been on the board for a while

> know that I had to discontinue Enbrel about a year ago

> when my husband changed jobs and the insurance called

> for a $400.00 per month copay. Well, he has been

> working for a new company since January and they

> upgraded the insurance, and now Enbrel is once again

> covered at only a $30.00 copay. Hurray! I am back on

> it as of next week - I am so excited to be starting it

> again, and hope that it works as well for me now as it

> did for the few months I was taking it before.

> Hopefully, I will be able to lower my 20mg. dosage of

> Methotrexate once the Enbrel kicks in - that would be

> great.

>

> Kathe in CA

>

>

> Kathe in CA

>

>

>

>

> __________________________________

> Discover

> Use to plan a weekend, have fun online and more. Check it

out!

> http://discover./

[Guest guest]

Great news Kathe! I know well it worked for you before.

a

On Jun 10, 2005, at 3:33 PM, Kathe Sabetzadeh wrote:

> Hi All:

>

> Some of you who have been on the board for a while

> know that I had to discontinue Enbrel about a year ago

> when my husband changed jobs and the insurance called

> for a $400.00 per month copay.  Well, he has been

> working for a new company since January and they

> upgraded the insurance, and now Enbrel is once again

> covered at only a $30.00 copay.  Hurray!  I am back on

> it as of next week - I am so excited to be starting it

> again, and hope that it works as well for me now as it

> did for the few months I was taking it before.

> Hopefully, I will be able to lower my 20mg. dosage of

> Methotrexate once the Enbrel kicks in - that would be

> great. 

>

> Kathe in CA

>

>

> Kathe in CA

>

>

>

>            

> __________________________________

> Discover

> Use to plan a weekend, have fun online and more. Check it out!

> http://discover./

>

>

>

[Guest guest]

kathe i know what you mean about high copay. i have to pay 10% for a 3 mos.

supply it relly hurts the old billfold. i'm glad somebody is getting a little

relief from the HIGH COST of these meds. i'm happy for you . mike

aclavern33@... wrote:Kathe,

Enbrel has co-pay assistance program now for about a year. Did know if you

knew that..but just FYI for future use. They help with any co-pay for

Rheumatoid meds above $50 per month.

I learned about this but had stopped Enbrel....so I am being switched to

Humia when ever I get the nerve up to orther the posion and be the guinnia pig!

LOL

Toni

In a message dated 6/11/2005 4:53:48 AM Central Daylight Time,

writes:

Date: Fri, 10 Jun 2005 12:33:41 -0700 (PDT)

From: Kathe Sabetzadeh <lv2ryd@...>

Subject: Enbrel

Hi All:

Some of you who have been on the board for a while

know that I had to discontinue Enbrel about a year ago

when my husband changed jobs and the insurance called

for a $400.00 per month copay. Well, he has been

working for a new company since January and they

upgraded the insurance, and now Enbrel is once again

covered at only a $30.00 copay. Hurray! I am back on

it as of next week - I am so excited to be starting it

again, and hope that it works as well for me now as it

did for the few months I was taking it before.

Hopefully, I will be able to lower my 20mg. dosage of

Methotrexate once the Enbrel kicks in - that would be

great.

Kathe in CA

[Guest guest]

I also have a contant sore throat but it started before enbrel.

Take Care

Babs

[Guest guest]

I was on Enbrel for 1 year and i had a sore throat almost the entire time, it

would go away after a day or two.

Trudy

madre_agua_ny <madre_agua_ny@...> wrote:

Hi there! My name is chris. I just took my first shot of Enbrel on

Wednesday. Since I took this shot, I have felt tired and run down. I

am also feeling very sick as in a soar throat, stuffy nose, achy head &

chest. It could be the sudden change in weather here in NY, so I do

not want to bother my Doctor. Is this a normality for enbrel? Or do

you think that it is more likely just the change in weather.

Thank you so much for taking the time to read this!

Chris

[Guest guest]

Thanks Trudy, that makes me feel so much better!!

Trudy Burch <tru0204@...> wrote:

I was on Enbrel for 1 year and i had a sore throat almost the entire time, it

would go away after a day or two.

Trudy

madre_agua_ny <madre_agua_ny@...> wrote:

Hi there! My name is chris. I just took my first shot of Enbrel on

Wednesday. Since I took this shot, I have felt tired and run down. I

am also feeling very sick as in a soar throat, stuffy nose, achy head &

chest. It could be the sudden change in weather here in NY, so I do

not want to bother my Doctor. Is this a normality for enbrel? Or do

you think that it is more likely just the change in weather.

Thank you so much for taking the time to read this!

Chris

[Guest guest]

Hi there,

I would like to tell you that when I got a sore throat while on Enbrel

my doctor stopped my treatments right away afraid of infection. I would

recommend you get checked by a doctor and make sure it is not an

infection because infection and Enbrel are bad.

Corinne

madre_agua_ny wrote:

> Hi there! My name is chris. I just took my first shot of Enbrel on

> Wednesday. Since I took this shot, I have felt tired and run down. I

> am also feeling very sick as in a soar throat, stuffy nose, achy head &

> chest. It could be the sudden change in weather here in NY, so I do

> not want to bother my Doctor. Is this a normality for enbrel? Or do

> you think that it is more likely just the change in weather.

> Thank you so much for taking the time to read this!

>

> Chris

>

>

>

>

>

>

>

>

[Guest guest]

Hi Chris. It's hard to say what is going on since it's your first

dose. Enbrel can make you more susceptible to infection.

You really should let your doctor know what is going on. If it bothers

him, he's not doing his job!

I've been on Enbrel since 1999 and don't have any problems. Hopefully

this will pass quickly and you will get some relief from Enbrel.

a

On Jun 17, 2005, at 9:17 AM, madre_agua_ny wrote:

> Hi there!  My name is chris.  I just took my first shot of Enbrel on

> Wednesday.  Since I took this shot, I have felt tired and run down.  I

> am also feeling very sick as in a soar throat, stuffy nose, achy head

> &

> chest.  It could be the sudden change in weather here in NY, so I do

> not want to bother my Doctor.  Is this a normality for enbrel?  Or do

> you think that it is more likely just the change in weather. 

> Thank you so much for taking the time to read this!

>

> Chris

>

>

>

>

>

>

>

>

[Guest guest]

Thank you so much a!!! My doctor is a female and she really does not get

bothered when I call. She opens that. I just feel like I call alot!

Chris

a <a54@...> wrote:

Hi Chris. It's hard to say what is going on since it's your first

dose. Enbrel can make you more susceptible to infection.

You really should let your doctor know what is going on. If it bothers

him, he's not doing his job!

I've been on Enbrel since 1999 and don't have any problems. Hopefully

this will pass quickly and you will get some relief from Enbrel.

a

On Jun 17, 2005, at 9:17 AM, madre_agua_ny wrote:

> Hi there! My name is chris. I just took my first shot of Enbrel on

> Wednesday. Since I took this shot, I have felt tired and run down. I

> am also feeling very sick as in a soar throat, stuffy nose, achy head

> &

> chest. It could be the sudden change in weather here in NY, so I do

> not want to bother my Doctor. Is this a normality for enbrel? Or do

> you think that it is more likely just the change in weather.

> Thank you so much for taking the time to read this!

>

> Chris

>

>

>

>

>

>

>

>

[Guest guest]

Thank you so much for your time and support Corinne!!

Corinne Drover <Corinne@...> wrote:Hi there,

I would like to tell you that when I got a sore throat while on Enbrel

my doctor stopped my treatments right away afraid of infection. I would

recommend you get checked by a doctor and make sure it is not an

infection because infection and Enbrel are bad.

Corinne

madre_agua_ny wrote:

> Hi there! My name is chris. I just took my first shot of Enbrel on

> Wednesday. Since I took this shot, I have felt tired and run down. I

> am also feeling very sick as in a soar throat, stuffy nose, achy head &

> chest. It could be the sudden change in weather here in NY, so I do

> not want to bother my Doctor. Is this a normality for enbrel? Or do

> you think that it is more likely just the change in weather.

> Thank you so much for taking the time to read this!

>

> Chris

>

>

>

>

>

>

>

>

[Guest guest]

Thanks Babs!!

jmorob@... wrote:I also have a contant sore throat but it started before

enbrel.

Take Care

Babs

[Guest guest]

Since Enbrel and other " biologics " supress your immune system, I would

talk to my doctor about this. You may have a viral infection and there

are things they can do to reduce your risk of serious complications.

Until you have been on Enbrel for a while and know how it affects you,

it is better to err on the side of caution.

Nina

> Hi there! My name is chris. I just took my first shot of Enbrel on

> Wednesday. Since I took this shot, I have felt tired and run down.

I

> am also feeling very sick as in a soar throat, stuffy nose, achy

head &

> chest. It could be the sudden change in weather here in NY, so I do

> not want to bother my Doctor. Is this a normality for enbrel? Or

do

> you think that it is more likely just the change in weather.

> Thank you so much for taking the time to read this!

>

> Chris

[Guest guest]

Jessy,

The combination of Enbrel and Methotrexate have had very good results.

Since you're not getting relief with just the MTX, adding the Enbrel

may be an option to discuss with your doctor. Enbrel is expensive, so

unless you have insurance it may not be an option.

Methotrexate and Enbrel together may be better than either alone.

http://arthritis.about.com/od/arthritistreatments/a/ratreatcombo.htm

a

On Jun 28, 2005, at 2:24 PM, Jex wrote:

> a,

>

> No I have heard quite a few positive things about it.

> I have only been on the meth for 5 months and we just

> increased it to 25 mg.   Is Enbrel better?

>

> Jessy

[Guest guest]

Hi,

I was on Enbrel for 4 months and it helped my RA symptoms tremdously,

unfortunatly I had a rare reaction to it and it caused my immune system to go

way down. I couldnt stop getting sick from Upper Resp Infections to Bladder and

kidney infections, I have been off the Enbrel and Meth meds for 5 weeks, and I

will start on Monday the Humeria and Sunday the meth agian. Enbrel is a good

med, I gave myself the shots with no problems and I miss them acutally becuase

the intense pain is so bad i can barely move right now. Good luck and keep us

posted. I felt better after my 3 shot, so middle of next week you should be

feeling better if you are at all like me.

Cortnee

JANE <janeatregis@...> wrote: Hey yall.

My doc decided that the remicade just wasn't doing the job anymore,

and ins. approved me for Enbrel. I go Tuesday to my " how to give

yourself a shot " class. Does anyone wish to share their experiences

with this med?

Thanks!

Jane

[Guest guest]

Hi Jane:

I have been on Enbrel now for two and a half months,

and do feel the difference in less joint pain. I also

take 25 mg of Mtx a week, Mobic, and Ultracet, but the

addition of the Enbrel has helped me. The shots are

easy to do - I never thought I could give myself a

shot, but I am getting to be a real pro at it lol.

The only thing I notice is bruising at the site of the

shot, no other adverse reactions. You do have to be

careful of illness - if you are sick or feel you are

getting sick, then skip the Enbrel until you are

better. This week I have had to skip one shot so far

because of a flu type virus I am dealing with. I

started feeling better after about one month of shots.

Good luck to you and hope Enbrel helps you -

Kathe in CA

--- JANE <janeatregis@...> wrote:

> Hey yall.

> My doc decided that the remicade just wasn't doing

> the job anymore,

> and ins. approved me for Enbrel. I go Tuesday to my

> " how to give

> yourself a shot " class. Does anyone wish to share

> their experiences

> with this med?

> Thanks!

> Jane

>

>

>

Kathe in CA

__________________________________________________

[Guest guest]

Jane,

It made a HUGE difference for me. Until Enbrel, nothing was effective

for me. I've been on it for 6 years with no problems.

I have not had any increased infections. Occasionally I'll get

bruising. Can't help with the injection part. My husband

wants to do it for me and I don't object LOL! The twice a week dose

has a smaller needle than the once a week dose, and

I rarely even feel the needle. I hope it helps you.

a

On Aug 18, 2005, at 10:34 AM, JANE wrote:

> Hey yall.

> My doc decided that the remicade just wasn't doing the job anymore,

> and ins. approved me for Enbrel. I go Tuesday to my " how to give

> yourself a shot " class. Does anyone wish to share their experiences

> with this med?

> Thanks!

> Jane

>

>

>

>

>

[Guest guest]

Hi Jane,

Enbrel has been working very well for me. At first I was scared to give

myself a shot, but soon became an old pro. I inject into my tummy, and

it doesn't hurt at all. Just be forceful and stick the needle in at an

angle. Back when I tried to be too gentle with myself, it did sometimes

hurt. I always give it plenty of time to warm up after I mix it, also,

and that probably helps. I much prefer the twice-weekly 25 mg to the

once-weekly 50 mg. The needles with the 50 mg are very dull. I also

found that it didn't last as long for me. Good luck! Sue

On Thursday, August 18, 2005, at 10:34 AM, JANE wrote:

>

> My doc decided that the remicade just wasn't doing the job anymore,

> and ins. approved me for Enbrel. I go Tuesday to my " how to give

> yourself a shot " class. Does anyone wish to share their experiences

> with this med?

[Guest guest]

a, congratulations on getting over that first hurdle! You'll soon

be an old pro like the rest of us. I wouldn't worry over the small

bump. I hope the Enbrel helps you as much as it's helping me.

Sue

On Friday, March 10, 2006, at 05:49 AM, a wrote:

> WEll yesterday I had my first shot. It went real well. It really

> didn't burn until after the injection which that I can handle and it

> wasn't that bad. I got a bit dizzy but that also went away. Is it

> normal to have a small bump where the injection site is? It's not red

> or anything, just a little bump. Well its off to work I go. Have a

> great day everyone..Peace out..............

[Guest guest]

a,

I give you a lot of credit. My doctor suggested I go on Enbrel or Humira a

few weeks ago and I still somehow cannot get over the idea that I am going to

have to give myself injections. It's good to hear that it went so well. I am

still trying to convince myself to go get that TB test and call for the

prescription.

a <aN829@...> wrote:

Good morning everyone.

WEll yesterday I had my first shot. It went real well. It really

didn't burn until after the injection which that I can handle and it

wasn't that bad. I got a bit dizzy but that also went away. Is it

normal to have a small bump where the injection site is? It's not red

or anything, just a little bump. Well its off to work I go. Have a

great day everyone..Peace out..............

a

[Guest guest]

In a message dated 3/10/2006 9:02:03 PM Central Standard Time,

jhughes_bp@... writes:

a,

I give you a lot of credit. My doctor suggested I go on Enbrel or Humira a

few weeks ago and I still somehow cannot get over the idea that I am going to

have to give myself injections. It's good to hear that it went so well. I

am still trying to convince myself to go get that TB test and call for the

prescription.

i was scared at first also. If you do decide to take one of htese

medications, have the doc or nurse show you how to do it... Or in my case have

them do the first one;) yes its scary at first, but the benefits outweigh not

taking the meds. Good luck in whatever you decide. HUGS

from PA

[Guest guest]

,

I was absolutely terrified to inject myself, and it just wasn't a

big deal. If you really can't do it, I'm sure you can go into the

doctor's office and the nurse will inject you, but try it first.

I'm thinking about trying injectable MTX now because my doc says

that you get more drug with fewer side effects.

> Good morning everyone.

>

> WEll yesterday I had my first shot. It went real well. It really

> didn't burn until after the injection which that I can handle and

it

> wasn't that bad. I got a bit dizzy but that also went away. Is it

> normal to have a small bump where the injection site is? It's not

red

> or anything, just a little bump. Well its off to work I go. Have a

> great day everyone..Peace out..............

>

> a

>

>

>

>

>

>

>

>

>

[Guest guest]

:

My advice is to get the test done, and give Enbrel a

try. I am on it, and it is doing so well for me, and

the injections are easy. I actually can feel in my

body when it is time for my next shot. Best of luck -

Kathe in CA

--- <jhughes_bp@...> wrote:

> a,

>

> I give you a lot of credit. My doctor suggested I

> go on Enbrel or Humira a few weeks ago and I still

> somehow cannot get over the idea that I am going to

> have to give myself injections. It's good to hear

> that it went so well. I am still trying to convince

> myself to go get that TB test and call for the

> prescription.

>

>

> >

>

>

>

>

>

[Guest guest]

I too was terrified to inject myself. For the first 7 years on

Enbrel, my husband did it for me.

Then one day I decided to try it and I'm so glad I did since now I

prefer doing it myself.

I was very surprised that I hardly felt it at all.

a

On Mar 11, 2006, at 7:34 PM, eemalawyer wrote:

> ,

>

> I was absolutely terrified to inject myself, and it just wasn't a

> big deal. If you really can't do it, I'm sure you can go into the

> doctor's office and the nurse will inject you, but try it first.

> I'm thinking about trying injectable MTX now because my doc says

> that you get more drug with fewer side effects.

[Guest guest]

I don't inject myself, I go to my Dr and he does it. I couldn't do it

nor could I let my hubby do it. I had my hopes kinda high hoping I

would get some relief with the first shot..well I didn't. I spent most

of the weekend crying cuz the weather changes here are so bad right

now..cold to warm to storms and cold again all in a matter of 2 days....

tomorrow is my second shot...and hopfully the weather will settle down,

so might my body...peace out everyone and gentle hugs

a

[Guest guest]

Me, too, a. I kept going to my doctor's office and his nurse would do it.

With winter weather coming, this just would not work. I was scared to death but

just did it and was a little embarrassed when I discovered it was very easy. My

hubby learned to do it as well so when my hands are bad, he does it for me.

Hugs

June

----- Original Message -----

From: a Papola

I too was terrified to inject myself. For the first 7 years on

Enbrel, my husband did it for me.

Then one day I decided to try it and I'm so glad I did since now I

prefer doing it myself.

I was very surprised that I hardly felt it at all.

a

On Mar 11, 2006, at 7:34 PM, eemalawyer wrote:

> ,

>

> I was absolutely terrified to inject myself, and it just wasn't a

> big deal. If you really can't do it, I'm sure you can go into the

> doctor's office and the nurse will inject you, but try it first.

> I'm thinking about trying injectable MTX now because my doc says

> that you get more drug with fewer side effects.