Enbrel

[Guest guest]

>

> > > > I tried the 50 mg, but didn't like it because the

needles the pain and

> fatigue and depression were almost unbearable. So, hey, any little

> improvement is good

>

>

>

I too use the 50mg once a week and I have had no problems Yet

been on it 3 months now. I let it sit out about 45 min. to get the

chill off and it does not sting.

Just my input.

Janet IN IL

[Guest guest]

,

I am fortunate that Enbrel alone works well for me. My liver values

were fine with methotrexate, but it caused my white blood cell count to

go too low. I hope the Enbrel does soon kick in for you.

I don't have a lot of pain with the Enbrel, but yesterday I was riding

in a car for about 5 hours, then stayed at our destination about 4

hours, and then rode for another 4 1/2 hours. By the time I got home, I

was stiff and aching in several places, but after a good night's sleep,

I'm fine again.

Here's wishing you luck.

Sue

On Thursday, July 13, 2006, at 02:45 AM, Randall wrote:

>

> The rheumatologist called today to tell me that my liver values are

> climbng again (after initially heading back toward normal) even

> though I'm off the Arava. She wanted my to decrease my Mtx dose for

> the next couple of weeks to see how my liver responds. That Enbrel

> better kick in if I've got to cut the Mtx!

[Guest guest]

I think that the 25mg Enbrel works better for me. I tried the 50mg for

one month, and it didn't seem to last the full week. I also didn't like

the dull needles. I switched back to the 25mg the next month, and have

been on it ever since.

Sue

On Wednesday, October 18, 2006, at 12:35 PM, M wrote:

>

> My mom is currently on Enbrel and she takes one 50mg shot a week.

> I've heard some of you say you take 25mg twice a week? Is that

> correct? If so, do you think it works better than the 50mg shot once

> a week?

>

[Guest guest]

Dear ,

Can you tell me how much Enbrel you are taking and also do you take

Methotrexate or some other DMARD?I.ve been on Remicade and MTX for 4 months

and still am in constant pain? The only thing that helps is the Prednisone.

Any help will be welcome.

Sincerely,

Bunny

[Guest guest]

remicade did not work for me,but embrel what a god sent.

monica pullern <Eightbunny@...> wrote: Dear ,

Can you tell me how much Enbrel you are taking and also do you take

Methotrexate or some other DMARD?I.ve been on Remicade and MTX for 4 months

and still am in constant pain? The only thing that helps is the Prednisone.

Any help will be welcome.

Sincerely,

Bunny

---------------------------------

Don't pick lemons.

See all the new 2007 cars at Autos.

[Guest guest]

amen

<kyrik@...> wrote: > I have been taking Enbrel for 2

years. I feel like it has given me

> my life

> back. At least I haven't become worse. I felt like I was spiraling

> downhill

> at a very quick pace.

I concur, at least partially. Unfortunately, I don't think I'll ever

have my old life back, but Enbrel has helped *enormously.* I, too, was

spiraling downhill - I called it falling into the abyss (of excruciating

pain, unbearable depression and horrible fatigue) - and Enbrel pulled me

out.

I still can't do many of the things I used to and I tire easily, plus

I'm on a ton o' other meds, but hey, it's better than the 'abyss'

Good luck

---------------------------------

Everyone is raving about the all-new beta.

[Guest guest]

Bunny,

I too was having problems with hair loss......between turning 50 and

having more pain that I can stand.....I was also loosing my hair. I

have very long blonde ( & gray) hair and to loose it makes me very upset.

I blamed the MTX until the realization that it didn't start falling out

until I started Humira. So which one is it....MTX or Humira.....we

don't know. We backed off my MTX to only 6 pills a week and I bought

every product I could afford and actually my hair is growing back in.

I don't know if I shared with the group or if it was published....but I

am having another Spine Fusion on April 23rd.......I'm pretty

scared....in fact so scared that I postponed it...it was suppose to be

this next Monday.

Hang in there and good luck with Enbrel.....I still wonder which one is

the best, Enbrel, Humira or Remicade which is what my Mother is on.

Take care.

Lyn

--- In , " monica pullern " <Eightbunny@...>

wrote:

>

> Dear Sue,

>

> Do you also take MTX with the Enbrel and how much if you don't mind?

..I lost

> a lot of hair with MTX and stopped it.

>

> Sincerely,

> Bunny

>

[Guest guest]

Hi Bunny,

No, I don't take MTX with the Enbrel. MTX lowers my white blood cell

count too much, so it's not a good med for me to take. Fortunately, the

Enbrel by itself works well for me. I do realize how lucky I am that it

does. Since my insurance company stopped covering Celebrex except with

an exorbitant co-pay, I have been taking arthritis-strength Tylenol,

along with an occasional Tramadol.

Sue

On Thursday, March 15, 2007, at 08:00 PM, monica pullern wrote:

> Dear Sue,

>

> Do you also take MTX with the Enbrel and how much if you don't mind?

> .I lost

> a lot of hair with MTX and stopped it.

>

[Guest guest]

Sue,

Have you ever tried Arthrotec? It works much better than Celebrex

ever worked for me. I still have a lot of inflamation and I'm on so

many drugs that I'm not sure which one is working and which one isn't,

but my partner started taking Arthrotec and she said it's a miracle

drug! You might want to investigate if it might be something that

would help you.

Lyn

>

> > Dear Sue,

> >

> > Do you also take MTX with the Enbrel and how much if you don't mind?

> > .I lost

> > a lot of hair with MTX and stopped it.

> >

>

[Guest guest]

I have been on Enbrel for over two years, and it does a wonderful job

for me. I don't have an adverse side effects, either. Once in a while,

I get a mild injection site reaction, but it's about like a mosquito

bite. I also do not get infections often. I hope that Enbrel works as

well for you as it does for me. Sue

On Saturday, June 9, 2007, at 08:00 AM, Posnick wrote:

> I took my second shot of Enbrel and was wondering how many of the

> members took this drug and how they are doing now? What how about the

> side effects, what problems did you have? How long did it take for it

> to work? After you read the paper, it is the a little scary. That to

> all of you who respond. I live in south florida and would to know if

> anyone is in my area. Thanks again.

[Guest guest]

Thanks for the support, I hope that I am as lucky as you.

>

> > I took my second shot of Enbrel and was wondering how many of the

> > members took this drug and how they are doing now? What how

about the

> > side effects, what problems did you have? How long did it take

for it

> > to work? After you read the paper, it is the a little scary.

That to

> > all of you who respond. I live in south florida and would to know

if

> > anyone is in my area. Thanks again.

>

[Guest guest]

>

> I took my second shot of Enbrel and was wondering how many of the

> members took this drug and how they are doing now? What how about

the

> side effects, what problems did you have? How long did it take for

it

> to work? After you read the paper, it is the a little scary. That

to

> all of you who respond. I live in south florida and would to know

if

> anyone is in my area. Thanks again.

>

> Posnick

>

Hi i am bonnie

I have been on embrel for about 7 months. I personnelly

dont know what to think about the embrel.

I still have pain not as bad . I am also on metrotexate

and folic acid. I am still having a hard time excepting it

I also have nodgules that keep poping up.

I was told they would go away after starting embrel but i

am still getting them

i hope the best for you.

bonnie from illinois

[Guest guest]

>

> I've been on Enbrel for almost 2 years. My husband gives it to me,

so I

> can't

> answer self-injecting questions, but this list is full of

experienced

> self-injectors.

> If I had to do it, I would. Enbrel controls my inflammation very

well.

> I hope it helps you.

>

> a

>

> Re: [ ] new to you guys

>

>

> > hi i was wondering if anyone has tried enbrel? i just did my first

> injection

> > today

> >

> >

> > Our websites: http://rheumatoid.arthritis.freehosting.net/

> > http://www.rasupport.webprovider.com/

> > Change subscription options: RA-

SUPPORT

> >

>Hello paula

my name is bonnie. i am trying to find a friend. I been diagosed

about 8 months ago. I am on embrel as well as metrotexate,

and folic acid. my husband also gives me my injection.

I dont really know if embrel is helping or not. i am always tired

feel lite headed at times, also sick to my stomach.

i also have nodgles that keep popping up when i was told

that would change after the embrel but still getting them.

i am 47yrs. live in illinois.

bonnie

[Guest guest]

My nodules did go away after I started the Enbrel. What a relief that

was!

Sue

On Sunday, June 10, 2007, at 12:51 PM, busterbop60 wrote:

>

> I also have nodgules that keep poping up.

>

> I was told they would go away after starting embrel but i

>

> am still getting them

>

[Guest guest]

I felt like I had more energy when I took it but it seemed to wear off quickly.

Had to get off of it because of frequent sinus infections though.

Joy

busterbop60 <busterbop60@...> wrote:

>

> I took my second shot of Enbrel and was wondering how many of the

> members took this drug and how they are doing now? What how about

the

> side effects, what problems did you have? How long did it take for

it

> to work? After you read the paper, it is the a little scary. That

to

> all of you who respond. I live in south florida and would to know

if

> anyone is in my area. Thanks again.

>

> Posnick

>

Hi i am bonnie

I have been on embrel for about 7 months. I personnelly

dont know what to think about the embrel.

I still have pain not as bad . I am also on metrotexate

and folic acid. I am still having a hard time excepting it

I also have nodgules that keep poping up.

I was told they would go away after starting embrel but i

am still getting them

i hope the best for you.

bonnie from illinois

[Guest guest]

HI ,

I started taking Enbrel 3 weeks ago. My first dose made me drowsy, caused

muscle pain in my neck and shoulders, and gave me a lovely all day headache.

2nd dose headache only. 3rd dose, headache, gone with tylenol. No problems

at injections site first 2 times. I switched to my left thigh on the 3rd time

and had a little redness and swelling, don't know why , but it was painless

and gone after 3 days. Monday will be my 4th adventure. I suspect it will be

uneventful. As of this time, I've not noticed any improvement, but I

understand it can take a few more doses. I take 8 MTX on Thursdays, and take

my

Enbrel on Monday nights. I've also now had to start taking 50000 IU of Vitamin

D as I had a neg 15 level last week. so that day of the week is Friday. RA

is quite an adventure. Good luck and please let me know how you do on it.

Heidi in Mass.

To those who believe, no explanation is necessary; to those who dont, no

explanation is possible

In a message dated 5/3/2008 11:08:47 P.M. Eastern Daylight Time,

bengal9@... writes:

Getting ready to start enbrel Monday is any one using it with mtx , wanted

to know what kind of reactions any one is having from it???

Thanks O

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[Guest guest]

thanks i will keep everyone updated as to what is going on

In a message dated 5/3/2008 9:14:46 P.M. Mountain Daylight Time,

sposy@... writes:

HI ,

I started taking Enbrel 3 weeks ago. My first dose made me drowsy, caused

muscle pain in my neck and shoulders, and gave me a lovely all day headache.

2nd dose headache only. 3rd dose, headache, gone with tylenol. No problems

at injections site first 2 times. I switched to my left thigh on the 3rd

time

and had a little redness and swelling, don't know why , but it was painless

and gone after 3 days. Monday will be my 4th adventure. I suspect it will be

uneventful. As of this time, I've not noticed any improvement, but I

understand it can take a few more doses. I take 8 MTX on Thursdays, and take

my

Enbrel on Monday nights. I've also now had to start taking 50000 IU of

Vitamin

D as I had a neg 15 level last week. so that day of the week is Friday. RA

is quite an adventure. Good luck and please let me know how you do on it.

Heidi in Mass.

To those who believe, no explanation is necessary; to those who dont, no

explanation is possible

In a message dated 5/3/2008 11:08:47 P.M. Eastern Daylight Time,

_bengal9@..._ (mailto:bengal9@...) writes:

Getting ready to start enbrel Monday is any one using it with mtx , wanted

to know what kind of reactions any one is having from it???

Thanks O

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[Guest guest]

I have been on enbrel since december, my second time around on enbrel. The

first time around was wonderful but due to insurance issues I had to go off of

it. The second time around has been ok. It keeps me going every day. I

haven't had any reactions from it. The hardest part for me is Friday evenings

when I have to do my shots. I have many stretch marks from my 2 kids and

finding a place to inject sometimes can be difficult. I inject in my stomach

because it is much easier for me to do so. I tried injecting into my legs but

have found that it hurts way too much for me. Thought about getting my

boyfriend to help me inject in my arm but he is visually impaired so not sure if

I want to go that route yet. I do not get any reaction at the injection site.

I was put on injectable MTX at .20 cc a week but at this point can not afford it

and what I did have for insurance wouldn't cover it. Now, I do not have

insurance and down to my last 5 shots so will be ordering more, but not sure how

I'm going to be paying for it at this point. I'm also on lamictal for bipolar,

it has also helped with a lot of the sensitivity issues of my nerves. I hope

some of this will help you, if not atleast I got a chance to talk about it.

Have a pain free day

[ ] enbrel

Getting ready to start enbrel Monday is any one using it with mtx , wanted

to know what kind of reactions any one is having from it???

Thanks O

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[Guest guest]

Thanks for the insight i am not sure where i am going to try injecting it

first but i feel a little better about it and it if i will take care of this

pain so that i can function like a human again then i will do what ever it

takes......

O

In a message dated 5/3/2008 10:34:44 P.M. Mountain Daylight Time,

renandstimpy3@... writes:

I have been on enbrel since december, my second time around on enbrel. The

first time around was wonderful but due to insurance issues I had to go off of

it. The second time around has been ok. It keeps me going every day. I

haven't had any reactions from it. The hardest part for me is Friday evenings

when

I have to do my shots. I have many stretch marks from my 2 kids and finding a

place to inject sometimes can be difficult. I inject in my stomach because

it is much easier for me to do so. I tried injecting into my legs but have

found that it hurts way too much for me. Thought about getting my boyfriend to

help me inject in my arm but he is visually impaired so not sure if I want to

go that route yet. I do not get any reaction at the injection site. I was put

on injectable MTX at .20 cc a week but at this point can not afford it and

what I did have for insurance wouldn't cover it. Now, I do not have insurance

and down to my last 5 shots so will be ordering more, but not sure how I'm

going to be paying for it at this point. I'm also on lamictal for bipolar, it

has also helped with a lot of the sensitivity issues of my nerves. I hope some

of this will help you, if not atleast I got a chance to talk about it.

Have a pain free day

[ ] enbrel

Getting ready to start enbrel Monday is any one using it with mtx , wanted

to know what kind of reactions any one is having from it???

Thanks O

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[Guest guest]

I have been on Enbrel for five years, and have had no adverse side

effects. It works very well for me. I can't use Mtx because it

decreases my white blood cell count. The Enbrel alone is sufficient for

me.

Sue

On Saturday, May 3, 2008, at 11:05 PM, bengal9@... wrote:

> Getting ready to start enbrel Monday is any one using it with mtx ,

> wanted

> to know what kind of reactions any one is having from it???

> Thanks O

[Guest guest]

HI ,

My experience with Enbrel is that the side effects lessen with each week. I

take mine on Mondays as well. The first time I got horrible neck and shoulder

muscle pain and a nasty headache, as well as tired. 2nd, 3rd and 4th times,

headache. When I took it last week, nothing! Good luck!

Heidi

To those who believe, no explanation is necessary; to those who dont, no

explanation is possible

In a message dated 5/18/2008 8:22:28 P.M. Eastern Daylight Time,

bengal9@... writes:

i just started enbrel last monday, it made so tired i could hardly stay

awake at work, I was wondering if i could change the day i take it and take

it

today or would that be too soon so maybe i won't be as tired tomorrow at

work?

Thanks O

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[Guest guest]

thanks i hope it gets better i have had the headache too but the drowsness

was terrible

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[Guest guest]

Yes I agree, the " enbrel headache " is ugly and untouched by tylenol. But,

mind did go away. Keep us posted.

Heidi

To those who believe, no explanation is necessary; to those who dont, no

explanation is possible

In a message dated 5/18/2008 8:27:01 P.M. Eastern Daylight Time,

bengal9@... writes:

thanks i hope it gets better i have had the headache too but the drowsness

was terrible

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[Guest guest]

Thanks i will i was thinking about taking it tonight but i was told i

couldn't back up the shots took the last one on the 12th

O

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[Guest guest]

Hi Esther and welcome.  Enbrel started working for me within a week, along with

10mg of prednisone.  I stopped gelling up at my desk and during my commute.  I

also noticed much less morning stiffness and I had tons more energy.  I'm a huge

Enbrel fan!

[ ] Enbrel

Hi all,

My name is Esther....I had JRA since age 8.

Now I have fibro....well my JRA is active now again.

We been trying different drugs....I am on Enbel now.

How long will it take to work?

Esther